Replies to This Discussion

Permalink Reply by jake42 on November 3, 2012 at 5:07am

Jen,
my daughter (12yo) has been using Medtronic Paradigm Veo with Mio infusion sets for over a year now. We generally get a good 2 days from each set with more often than not significant deterioration in infusion at 2.5 days. If we forget (thankfully rare) the rise in numbers is a give-away. However, we have found that some sets 'fail' at 2 days and we don't know if it's the set or the site or any number of other things (e.g. bad insulin, onset of a 'bug', something she ate).

We do rotate sites around the stomach and lower back - we even tried the thighs once or twice (not a hit). We found the lower back works best but while we (and med team) haven't identified any significant lumps in her sites, we do sometimes notice what seems like pooling when the site seems a little swollen. We take care when bolusing on the 'fresh' set as sometimes pooled insulin will continue to infuse slowly from the old set. That, and the fact that a new set always seems to have an added potency.

20 hours flies by so fast and I'm guessing an Omnipod change is just as disruptive as an infusion set change - I feel you should definitely be getting more time from a change.

Permalink Reply by Cheryl on November 3, 2012 at 5:52am

My son has skin sensitivities. When he first started pumping at age 14 we had to change his infusion set, every other day. Now that he is older, 19, he is getting 3 days out of many sets, just not all of them.

Permalink Reply by daneenm on November 3, 2012 at 7:35am

My son's omniPod sites almost always last 3 days. That would be tough to have repeated issues one day in.

Permalink Reply by Jacob's mom on November 3, 2012 at 1:23pm

Hi Jen, this may be a pain but i think one or two parents need to change their childs pod every two days for this same issue, and their perscription is written that way, i'm thinking lorraine and calab but i am not positive. jacob some times has three day highs and we have to change out early but not really consistent i think it was more of an issue this summer when he was in a growth spurt. i feel your pain though it is so stressful when things arent going as expected. do you rotate sites, sometime a fresher spot yields better results. hang in there! amy

Permalink Reply by Jack's Mom on November 3, 2012 at 6:22pm

I know this has been said before but .... we only got two days out of the Omnipod when we used Humalog (this is for my 3 yr old son, who has been pumping with Omnipod since 18 months old). When we switched to Novolog all the problems stopped and we get three days. I have had many friends and families who have had a similar experience, no matter what kind of pump they have (Omnipod, Medtronic, Ping, etc.)

The only other time I have an issue is I have been using a site too much. If I have a major start problem or two day problem, I let that site rest for two weeks before I go back and that usually fixes it.

Permalink Reply by Jen in CO on November 4, 2012 at 2:56pm

I have never heard that before about Humalog/Novolog! Unfortunately, our insurance company decides on which we use - but I will look into this more.

For any others that are reading this - my main reason for posting is because I am considering switching him to a tubed-pump - IF it would last longer. So my question really is - are there any tubed-pumpers out there who also only go two days? Or is this just an Omnipod thing?

Thanks!! jen

Permalink Reply by Jack's Mom on November 4, 2012 at 5:17pm

My friends on other pumps (Medtronic, etc) had the same issue with sites only lasting two days with the Novolog / Humalog issue. Maybe it's worth getting a bottle of Novolog from your endo and trying it before switching pumps. If that's the problem, you can always appeal to your insurance company with the help of your doctor i.e. getting a doctor specific prescription and more pumps cost more than insulin.