My daughter was diagnosed with T1D a year ago today (2/13/12), although I was emotional about it on Monday since that was the actual day it happened last year. I was just curious what people do to recognize this day. Do you treat your child to something special or do you try to forget all about "D-day"?
For those of you with young children, do you talk to them about it? Since Liz is only 4 and still has no real concept of time, I think it would be pretty meaningless to her.
We didn't do anything special. We just carried on with the day, as we do every day, for the last 4 1/2 years. We may note the date by mentioning it, but it's not something we celebrate. My oldest son was Dx almost 2 years ago, right before a holiday, so when that rolls around I can't help remembering and frankly, I'm always sad because that made 2 out of my 3 boys diabetic. It was a huge shock and while the holiday is supposed to be happy, I am sad.
Oh my, 2 out of 3? That does stink. And I'm sure you're always worried about the third child, as well. I have a younger son and I'm always worried, too, esp when he drinks a lot of water. Last year at the JDRF walk I had him (and me) tested through TrialNet, and the guy said I would get a letter if everything was fine and a call if it wasn't. So when the letter about my test results came in the mail on Saturday but Sam's did not, I was a nervous wreck the rest of the weekend and called first thing Monday morning. Luckily he tested negative last year, but the worry is ALWAYS there.
My oldest was diagnosed 2 1/2 years after my youngest while enrolled in the TrialNet study. When the youngest was Dx, they tested the 2 siblings and found that only my oldest had the antibodies they were looking for. The middle boy was told he had nothing to worry about so I don't worry either. I am confident that he will not have T1D. When they did find the antibodies in Raphael, he was enrolled in the study and 2 1/2 years later he had his first abnormal blood test and Dx. I really cannot worry about the 3rd one being diabetic since he has a cardiac issue that will require open heart surgery in the near future, so that is where I have to focus my concerns. Yes, my plate is full. Very full. But wait, you get mail on Saturday? Where do you live?
Wow, yes you're plate IS full. Did Raphael receive any oral meds when he first tested positive for the antibodies? I was told that is what they do, to see if the meds will prevent or delay the onset.
You're in Canada, right? We live in South Florida, and as of now the USPS still delivers on Saturday, although stopping mail delivery on Saturdays been discussed by the US gov't since the postal service's bottom line is continually "in the red."
No, Rafi did not get any oral meds when he tested for the antibodies, perhaps because when he went back for the follow up test to confirm the result, the antibodies were not there! How's that for being screwed up? When that happened they kept him in the study for the blood tests but there were no meds...till he had the Dx of T1D.
My son Eric was diagnosed on his father's 46th birthday, so we do not celebrate the "diaversary", although I'm always very aware of it. That was a pretty sucky birthday for my husband, because as if the diagnosis wasn't bad enough, the day before our 6-month-old filly had broken her leg and been put down, so he spent the day burying her and that evening got a call from me that I needed him to come from the hospital. I don't know that we did ANYTHING to mark his birthday that year, come to think of it. Don't see how we could've, though, given that one or the other of us was continually in the pediatric ward at Maine Med for the entire week.
So no, we don't celebrate it, because it's more important on that day to celebrate Mark's birthday. But that's also why we aren't likely to ever forget it.
PS Eric was 18 months old at the time of his Dx, he'll be 6 in April, so we have lived with it for quite a while. I don't know that I'll make a point of telling him one way or the other what day he was diagnosed, which is a little weird given that my TuDiabetes home page starts with the headline "The world changed October 6th"!
Yeah, NOT a good birthday for sure. And to have your son diagnosed at 18 months is so unfair. 3 years old is bad enough, but younger than that is just plain cruel. I'll always remember Liz's D-day since it was the day before Valentines. To top it off, after I called my husband and told him to come home from work ASAP, he got a speeding ticket. Ironically, the cop's granddaughter had T1D, so my husband eventually got out of the ticket.
Do you think women feel the pain of our children's Dx more keenly than our husbands? Of course it is upsetting for them too, but we were pregnant all that time, we gave birth, we went through so much to bring them into this world. I can't help but think that it is more painful or deeply felt for us. I guess I risk the wrath of "man"kind by saying this!
I don't know. My husband is actually still way more emotional about it than I am. I have my moments, but maybe it's because I'm so much more actively involved in her D-care and always focused on what I have to do to take care of her. Someone suggested to me that my husband has such a hard time with it because of the male "protector" role and he couldn't protect his little girl from this disease.
i think this is how my husband feels too, yet he isnt always as support of me when we are having a bad D day and i am sweating the numbers or worried in general its that powerless feeling or god forbid the blame game his bs is what under your watch, you guys did what! of course i dont vocalize that but he can pick up on my body language! it does get easier as time goes on i was never big on celebrating a diaversery i think the first year or two we might of mentioned it but now we just let it slide and i am pretty sure jacob forgot about it, lets face it is is a sad reminder. since your daughter is so young i think i would let it slide. i am glad you are adjusting well, it is what it is and dealing with what ever is in front of us one day at a time is best, while celebrating all our small victories and all the little girl moments of your daughter that are not D related! amy
My daughter was diagnosed the day after Valentine's Day...2/15/12. I was actually thinking about the same thing you were. My daughter was 11 at the time so she remembers all about the day. :( And, I know that she knows that the 1 year "diaversary" is coming up because she brought it up last week. So, I really don't know what to do on that day.
Hi Desi! since your daughter has the day on her mind i think i would do a so proud of your braveness day pared up with valentines day, we love you, we support you, you had a tough year, we are so proud of you day kind of thing but not overplay it, i think some kids have reality set in this isnt going away kind of thing around 1 year so tread lightly. and keep acknowledging all her things you love about her that are not D related! and dont forget the impact of the day on you emotionally it is a biggie the relevance of the day gets less and less as the years go by you are doing well! amy