I just want to get an idea about what others have heard / experienced by those that are "not in the know".
My absolute BIGGEST peeve is when I tell someone my softball catcher/soccer goalie/basketball playing daughter is T1 and they spout off "REALLY!? She doesnt look diabetic". I just want to stroke their hair and say "its a good thing your pretty". But I dont do that. I typically do a quick education about the diffeences between 1 and 2.
Do i really have to pick just one! i think i can narrow it down to 2. When people realize that both my oldest 2 are type 1 i get "there not fat!" da da da! CAPTAIN OBVIOUS! (my girls swim competitively year round and dance 12 hours a week)
the second is "did you have gestational diabetes?" Um, no. and even if i did i don't think i could have magically transferred it to my girls, and switch the disease itself! (eye roll so big its a miracle i don't fall over). I could go on but i will stop there. This is fun!
Wow, I haven't heard that one before about gestational diabetes. Duh!
Oh, I have more so dont worry about taking up too much space here.
Another one of my favorites is, "i know a homeopathic doctor who says they could have the girls off of insulin in 6 months!". To which i am thinking, yeah, they would be off insulin because the quack would have killed them.
you need to add that to your 504 plan, if it is a school team, there is a federal law that will protect you. Simple as that. No questions to be asked. You put it in your 504 plan, and she wears it. Period. Anything less, raise cain, work with the school board, and if that fails, get a good lawyer.
Your taxes pay their salaries.
If it's a private team, I would work with the owner and talk some sense into him... ( you are a p[aying customer!!)
I hate it when people ask me if she'll "grow out of it." Uh, no, it will never magically go away because she grows up!
And the other day a D-mom I know was calling around for a daycare center who would accept her 2 year old T1D daughter and one - a church-based one, no less - said no, they don't because "it would be a distraction for the other kids." OMG - can you believe that?? Made my blood boil! If you don't accept kids with adverse health conditions, just say "no, I'm sorry, we can't take her" but don't be so ignorant and insensitive to add salt to the wound!!
guess it would be in poor form to sue the church, huh?
I was given a gluten free cookbook as a gift. Very well intentioned, but not even remotely on the mark.
ha ha , my kid has both, diabetes and celiac!!
My pet peeves are, "Will she grow out of it?" and "Is her diabetes under control?" and "Was she born with it?" It takes every ounce of patience I have not to yell my answers. No, it will not magically go away. Well, her blood sugar may happen to be in range right this minute, but ask me 5 mins from now and I will probably have a different answer. And, no, she was not "born with it." It developed when she was very young, but for the first 22 months of her life, diabetes was not a part of our lives.
I try to remember that *most* people mean well, and every question is an opportunity to educate and advocate for our T1 loved ones. But, it's those people who *think* they already know it all that I want to punch. And sometimes, after having had a particularly loooooong night, restraining myself is an especially difficult thing to do!!
I wish people could understand that this disease is not managed by "just taking some insulin a couple of times a day." Many people I have met seem to be under the impression that it is like remembering to take your daily vitamins, same amount, same time every day... no big deal, right? Oh, and just don't eat candy.
UGH! If they only knew... but sadly, unless you are also a T1 parent, no one really gets it.