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parents of kids with Type 1


parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1371
Latest Activity: Apr 2

Tudiabetes resources related to parenting kids with diabetes

Diabetes Forum

Discussing T1D Complications with Children

Started by aimeeh2oski. Last reply by aimeeh2oski Mar 25. 4 Replies

Thyroid labs

Started by PhDiabetes. Last reply by PhDiabetes Mar 24. 7 Replies

Levemir & Lantus

Started by MisMelissa. Last reply by rgcainmd Mar 8. 4 Replies

Getting it off my chest

Started by Jennifer Feb 16. 0 Replies

Life Insurance for T1D Child?

Started by aimeeh2oski. Last reply by april Jan 30. 6 Replies

Abandoning Responsibility

Started by Laura. Last reply by Laura Jan 9. 8 Replies

Humana in Texas

Started by dalajosa Dec 30, 2014. 0 Replies

Help with Huge Lows with little insulin

Started by rjhufnagel. Last reply by sarah Dec 17, 2014. 11 Replies

Pet peeves

Started by 1eyednurseguy. Last reply by kcolbertandco Dec 16, 2014. 30 Replies

Sleepover at 8 years old?

Started by Jennifer. Last reply by cass1972 Dec 15, 2014. 7 Replies

Disagreement over CGM

Started by Kate. Last reply by Kate Dec 9, 2014. 7 Replies

Bent cannula

Started by macfrizz. Last reply by Sarah Howard Dec 1, 2014. 7 Replies

Time for the Ophthalmologist

Started by aimeeh2oski. Last reply by aimeeh2oski Nov 17, 2014. 5 Replies


Started by cass1972. Last reply by Elizabeth Nov 16, 2014. 7 Replies

New pump user - uncomfortable site

Started by macfrizz. Last reply by Jo Momma Nov 15, 2014. 16 Replies

Refusal for Field Trip

Started by Kelly. Last reply by KalebMommy Nov 13, 2014. 30 Replies

JDRF’s Children’s Congress

Started by Emily Coles Nov 10, 2014. 0 Replies

Grace's Mom

Started by kcolbertandco. Last reply by Elizabeth Nov 10, 2014. 2 Replies

Comment Wall


You need to be a member of parents of kids with Type 1 to add comments!

Comment by Lorraine on August 26, 2011 at 4:28am
Hi Jessica - Does the school get any type of funding from the public school district - like for buses or perhaps a subsidy for the cafeteria?
Comment by Jessica05 on August 25, 2011 at 9:11pm
Hi, Everyone~
I am working on my daughter's D-plan for school in a few weeks. She will be attending a private school without a nurse. I will be her Nurse, checking her at snack time, lunchtime and for any emergencies. We are 5 minutes away and she wears a CGM, so I am hoping we can pull this off.
My question is: I'm making up a plan of action based on 504 template, much of which the principal has already agreed to in our dialogue back and forth. I like the action plan in that it spells everything out in every situation, but I am wondering if it's too much info considering I will be responsible for her care and all. I'm not sure they would have to sign it given they're a private school and all.
Does anyone have experience with this and private schools and if so, could you give me any words of wisdom? Thanks!
Comment by Nancy Hallock on August 20, 2011 at 1:30pm
I am having serious troubles with my 10 year old son's eating and blood sugar numbers. He was diagnosed at 3 which at the time was a lot easier than now. Especially when he's at home, he wanders to the kitchen and eats things and "forgets" to give himself insulin. I literally have gotten to the point where I feel I need to lock the refrigerator and cabinets at home or follow him around every minute of the day. He is not taking his diabetes seriously - the endocrinologist has spoken to him several times and it seems like he's blatantly rebelling. He has mentioned that he hates having diabetes and is embarrassed. I can't find any good support groups where I live for his age group so he can discuss these issues and be motivated to take better care of himself. Any suggestions besides locking up the food?
Comment by Suzanne on August 17, 2011 at 10:47am
I have been very happy using "label once" labels on rubbermaid containers both for marking lunches with carb counts and labeling leftovers. You use permanent markers and it comes with a special eraser. They go through the dishwasher, and have lasted for years. I think I got them at the Container Store.
Comment by dawn100670 on August 17, 2011 at 7:33am
I haven't seen the labels, but I just write on the cover with permanent marker, and wash it off with a "Magic Eraser" type sponge. As for the notepads, could you do something on your computer and just copy the sheets? My son is in a very small parochial school, so we send a slip (1/3 of a sheet of paper, made on a spreadsheet program) for his lunch order, which tells how many carbs for a specific serving size. That way, Jonathon can still pick and choose what he wants to eat at lunch time, and bolus for what he wants. I've also done cards that I laminated that tell how to test his blood, and what he should do for a correction, depending on the bg level. I just update every year and distribute new info.
Comment by stretched2thin on August 17, 2011 at 6:15am
Anyone ever see these labels that you could write in the carbs and stick them on left overs and stick the to rubber maids and stuff? And also caregiver notepads of these preprinted sheets for schools and sitters and what not?
Comment by daneenm on August 9, 2011 at 9:44am
Over the nearly 4 years my son has been on OmniPod, we have had quite a low problem rate. Yes, there have been some, and it is frustrating to have a pod fail right after it has been changed, but that is not completely unique to OmniPod. I think you have to decide what works for you and go with it. There are pros and cons to every choice.
Comment by Hockey Mom on August 9, 2011 at 8:06am
It is frustrating but if you don't laugh, you'll cry! For a while we had so many occlusions that if a pod was really good and made it to 3 days expiration, it got a little retirement ceremony as it went into the recylce bag. Some really bad pods might get the "hammer of death" even if they are not making noise. My son's latest thing is the timing of the pod change - I think he is down to under 5 minutes. He has been on the Omnipod for over a year and occlusions are now more rare but still always at the worst possible time.
Comment by Patti on August 9, 2011 at 7:19am
We have two on the OmniPod and have had days like this as well. I remember one time when we had 5 pods go bad in the space of about 2 hours, and yes, the boys and I were upset, but Insulet replaced everything and we vented to each other (and the infinitely patient woman on the phone at Insulet) and moved on.

We have used other pumps and the boys say in spite of the pod failures they would never go back to a tube!
Comment by Katsz on August 9, 2011 at 7:03am
oops... sorry for all the typos. :( just read it back.

Members (1371)




From the Diabetes Hands Foundation blog...

DHF Joins Diabetes Advocacy Alliance

Diabetes Hands Foundation is incredibly honored to join the Diabetes Advocacy Alliance, an organization with the drive and potential to affect a powerful, positive impact on diabetes and healthcare policy. Diabetes Advocacy Alliance is a 20-member coalition of leading professional Read on! →

Helmsley Charitable Trust Renews Support for DHF

HELMSLEY CHARITABLE TRUST GRANTS SUPPORT TO DIABETES HANDS FOUNDATION FOR FOURTH YEAR  Funding in 2015 to support major transitions in programs and leadership at Diabetes Hands Foundation BERKELEY, CA: February 18, 2015 – The Leona M. and Harry B. Helmsley Read on! →

Diabetes Hands Foundation Team


Melissa Lee
(Interim Executive Director, Editor, has type 1)

Manny Hernandez
(Co-Founder, has LADA)

Emily Coles (Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Director of Operations and Development, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


Lead Administrator

Brian (bsc) (has type 2)


Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)


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