parents of kids with Type 1

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parents of kids with Type 1

This is a group for the parents of kids with diabetes.

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Diabetes Forum

VERY PICKY EATER

Started by crys. Last reply by Elizabeth on Sunday. 3 Replies

High Lipids in teen

Started by Linda Rabe-Frady. Last reply by Elizabeth Jul 21. 3 Replies

Help with getting a type 1 kid gain weight

Started by jakesmom427. Last reply by Ethan10183 Jul 20. 5 Replies

Trouble with Breakfast Highs

Started by SEM2REM. Last reply by SEM2REM Jul 6. 9 Replies

Stomach Pain and Low Blood Sugar

Started by aimeeh2oski. Last reply by rgcainmd Jun 29. 6 Replies

Dexcom 1st Insertion Let Down

Started by SEM2REM. Last reply by rgcainmd Jun 29. 3 Replies

Does red food dye increase blood sugars?

Started by aimeeh2oski. Last reply by rgcainmd Jun 29. 5 Replies

Camp Conrad Chinnock

Started by Jennifer Jun 25. 0 Replies

College Accommodations

Started by Larry D. Last reply by Hockey Mom Jun 11. 3 Replies

Pump vs Pens

Started by Melissa. Last reply by lizlowery Apr 23. 7 Replies

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Comment by dawn100670 on August 17, 2011 at 7:33am
I haven't seen the labels, but I just write on the cover with permanent marker, and wash it off with a "Magic Eraser" type sponge. As for the notepads, could you do something on your computer and just copy the sheets? My son is in a very small parochial school, so we send a slip (1/3 of a sheet of paper, made on a spreadsheet program) for his lunch order, which tells how many carbs for a specific serving size. That way, Jonathon can still pick and choose what he wants to eat at lunch time, and bolus for what he wants. I've also done cards that I laminated that tell how to test his blood, and what he should do for a correction, depending on the bg level. I just update every year and distribute new info.
Comment by stretched2thin on August 17, 2011 at 6:15am
Anyone ever see these labels that you could write in the carbs and stick them on left overs and stick the to rubber maids and stuff? And also caregiver notepads of these preprinted sheets for schools and sitters and what not?
Comment by daneenm on August 9, 2011 at 9:44am
Over the nearly 4 years my son has been on OmniPod, we have had quite a low problem rate. Yes, there have been some, and it is frustrating to have a pod fail right after it has been changed, but that is not completely unique to OmniPod. I think you have to decide what works for you and go with it. There are pros and cons to every choice.
Comment by Hockey Mom on August 9, 2011 at 8:06am
It is frustrating but if you don't laugh, you'll cry! For a while we had so many occlusions that if a pod was really good and made it to 3 days expiration, it got a little retirement ceremony as it went into the recylce bag. Some really bad pods might get the "hammer of death" even if they are not making noise. My son's latest thing is the timing of the pod change - I think he is down to under 5 minutes. He has been on the Omnipod for over a year and occlusions are now more rare but still always at the worst possible time.
Comment by Patti on August 9, 2011 at 7:19am
We have two on the OmniPod and have had days like this as well. I remember one time when we had 5 pods go bad in the space of about 2 hours, and yes, the boys and I were upset, but Insulet replaced everything and we vented to each other (and the infinitely patient woman on the phone at Insulet) and moved on.

We have used other pumps and the boys say in spite of the pod failures they would never go back to a tube!
Comment by Katsz on August 9, 2011 at 7:03am
oops... sorry for all the typos. :( just read it back.
Comment by Katsz on August 9, 2011 at 7:02am
My son hasn't had many pod failures since the beginning...in the beginning there seemed to be more. And as far as I can see from twitter....all pumps can have occlusions...and bad sites and issues.... My niece is on the Animas and has had to send it back because buttons broke on it... And she has had to redo her sites cuz the come out when her pump falls of her etc. So things like this can happen w/ all pumps.. it is just a matter of finding the pump that works best for you. When my son does have a fail...he gets upset too...but then goes on. He is now 17 and has to shave... he says that is more anoying to have to do than to change a pod... so I guess... at some point.. they just decide...it is a "normal" annoyance for "their" life. I wish it wasn't...but it is. So.. we try not to make more of it than that... it is just a thing that happens and then you go on. We try not to let it become a big deal. Hard..but we try at least.
Comment by Valerie on August 9, 2011 at 6:45am
Personally, I do not understand why people keep on using the pods, they seem to fail all the time. we never have that problem with the Animas pump
Comment by Jacob's mom on August 9, 2011 at 5:02am
good morning, just wanted to vent and ask you all how you help your children when you have pump failures. we had a pod failure/occlusion two mornings in a row, my son's mood changes from great to depressed in two seconds, I feel so bad and try to stay calm though this and supportive but truth be told i am just as devestated as him. we are 5 months into using the omnipod and have had pretty good success but times like this are so hard on both of us, just wanted to vent i guess. i've been studying buddhism a bit and they say life is suffering and it is up to us to learn to be less reactive to it so to speak but really!! oh well heading for the beach today hoping for a better end to the day! amy
Comment by Candee on August 3, 2011 at 2:44pm
We are having a problem this hot summer with CGM sites becoming infected. Even if we leave it just the 3 days we have little infected pimples under the tape. (Tegaderm) Anybody else dealing with this or have any suggestions?
 

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From the Diabetes Hands Foundation blog...

DHF Partners with HelpAround in an Effort to Connect People Touched by Diabetes

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Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


DHF VOLUNTEERS


Lead Administrator

Bradford (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

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