parents of kids with Type 1


parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1365
Latest Activity: 3 hours ago

Tudiabetes resources related to parenting kids with diabetes

Diabetes Forum

Levemir & Lantus

Started by MisMelissa. Last reply by Jan 3 hours ago. 2 Replies

Thyroid labs

Started by PhDiabetes. Last reply by PhDiabetes on Monday. 2 Replies

Intensive Summer Sports Training for Youth?

Started by PhDiabetes. Last reply by tommy on Friday. 1 Reply

Getting it off my chest

Started by Jennifer Feb 16. 0 Replies

Life Insurance for T1D Child?

Started by aimeeh2oski. Last reply by april Jan 30. 6 Replies

Abandoning Responsibility

Started by Laura. Last reply by Laura Jan 9. 8 Replies

Humana in Texas

Started by dalajosa Dec 30, 2014. 0 Replies

Help with Huge Lows with little insulin

Started by rjhufnagel. Last reply by sarah Dec 17, 2014. 11 Replies

Pet peeves

Started by 1eyednurseguy. Last reply by kcolbertandco Dec 16, 2014. 30 Replies

Sleepover at 8 years old?

Started by Jennifer. Last reply by cass1972 Dec 15, 2014. 7 Replies

Disagreement over CGM

Started by Kate. Last reply by Kate Dec 9, 2014. 7 Replies

Bent cannula

Started by macfrizz. Last reply by Sarah Howard Dec 1, 2014. 7 Replies

Time for the Ophthalmologist

Started by aimeeh2oski. Last reply by aimeeh2oski Nov 17, 2014. 5 Replies


Started by cass1972. Last reply by Elizabeth Nov 16, 2014. 7 Replies

New pump user - uncomfortable site

Started by macfrizz. Last reply by Jo Momma Nov 15, 2014. 16 Replies

Refusal for Field Trip

Started by Kelly. Last reply by KalebMommy Nov 13, 2014. 30 Replies

JDRF’s Children’s Congress

Started by Emily Coles Nov 10, 2014. 0 Replies

Grace's Mom

Started by kcolbertandco. Last reply by Elizabeth Nov 10, 2014. 2 Replies

Problems with Blood Sugar testing

Started by Jennifer. Last reply by Jan Nov 6, 2014. 10 Replies

Comment Wall


You need to be a member of parents of kids with Type 1 to add comments!

Comment by Suzanne on August 17, 2011 at 10:47am
I have been very happy using "label once" labels on rubbermaid containers both for marking lunches with carb counts and labeling leftovers. You use permanent markers and it comes with a special eraser. They go through the dishwasher, and have lasted for years. I think I got them at the Container Store.
Comment by dawn100670 on August 17, 2011 at 7:33am
I haven't seen the labels, but I just write on the cover with permanent marker, and wash it off with a "Magic Eraser" type sponge. As for the notepads, could you do something on your computer and just copy the sheets? My son is in a very small parochial school, so we send a slip (1/3 of a sheet of paper, made on a spreadsheet program) for his lunch order, which tells how many carbs for a specific serving size. That way, Jonathon can still pick and choose what he wants to eat at lunch time, and bolus for what he wants. I've also done cards that I laminated that tell how to test his blood, and what he should do for a correction, depending on the bg level. I just update every year and distribute new info.
Comment by stretched2thin on August 17, 2011 at 6:15am
Anyone ever see these labels that you could write in the carbs and stick them on left overs and stick the to rubber maids and stuff? And also caregiver notepads of these preprinted sheets for schools and sitters and what not?
Comment by daneenm on August 9, 2011 at 9:44am
Over the nearly 4 years my son has been on OmniPod, we have had quite a low problem rate. Yes, there have been some, and it is frustrating to have a pod fail right after it has been changed, but that is not completely unique to OmniPod. I think you have to decide what works for you and go with it. There are pros and cons to every choice.
Comment by Hockey Mom on August 9, 2011 at 8:06am
It is frustrating but if you don't laugh, you'll cry! For a while we had so many occlusions that if a pod was really good and made it to 3 days expiration, it got a little retirement ceremony as it went into the recylce bag. Some really bad pods might get the "hammer of death" even if they are not making noise. My son's latest thing is the timing of the pod change - I think he is down to under 5 minutes. He has been on the Omnipod for over a year and occlusions are now more rare but still always at the worst possible time.
Comment by Patti on August 9, 2011 at 7:19am
We have two on the OmniPod and have had days like this as well. I remember one time when we had 5 pods go bad in the space of about 2 hours, and yes, the boys and I were upset, but Insulet replaced everything and we vented to each other (and the infinitely patient woman on the phone at Insulet) and moved on.

We have used other pumps and the boys say in spite of the pod failures they would never go back to a tube!
Comment by Katsz on August 9, 2011 at 7:03am
oops... sorry for all the typos. :( just read it back.
Comment by Katsz on August 9, 2011 at 7:02am
My son hasn't had many pod failures since the the beginning there seemed to be more. And as far as I can see from twitter....all pumps can have occlusions...and bad sites and issues.... My niece is on the Animas and has had to send it back because buttons broke on it... And she has had to redo her sites cuz the come out when her pump falls of her etc. So things like this can happen w/ all pumps.. it is just a matter of finding the pump that works best for you. When my son does have a fail...he gets upset too...but then goes on. He is now 17 and has to shave... he says that is more anoying to have to do than to change a pod... so I guess... at some point.. they just is a "normal" annoyance for "their" life. I wish it wasn't...but it is. So.. we try not to make more of it than that... it is just a thing that happens and then you go on. We try not to let it become a big deal. Hard..but we try at least.
Comment by Valerie on August 9, 2011 at 6:45am
Personally, I do not understand why people keep on using the pods, they seem to fail all the time. we never have that problem with the Animas pump
Comment by Jacob's mom on August 9, 2011 at 5:02am
good morning, just wanted to vent and ask you all how you help your children when you have pump failures. we had a pod failure/occlusion two mornings in a row, my son's mood changes from great to depressed in two seconds, I feel so bad and try to stay calm though this and supportive but truth be told i am just as devestated as him. we are 5 months into using the omnipod and have had pretty good success but times like this are so hard on both of us, just wanted to vent i guess. i've been studying buddhism a bit and they say life is suffering and it is up to us to learn to be less reactive to it so to speak but really!! oh well heading for the beach today hoping for a better end to the day! amy

Members (1364)




From the Diabetes Hands Foundation blog...

Helmsley Charitable Trust Renews Support for DHF

HELMSLEY CHARITABLE TRUST GRANTS SUPPORT TO DIABETES HANDS FOUNDATION FOR FOURTH YEAR  Funding in 2015 to support major transitions in programs and leadership at Diabetes Hands Foundation BERKELEY, CA: February 18, 2015 – The Leona M. and Harry B. Helmsley Read on! →

Spare A Rose, Save A Child for Valentines Day

Here’s a new way to celebrate Valentines Day: Buy a dozen roses, spare the cost of one (about $5) and donate to IDF’s Life for a Child program. By doing this, you will help children in need of life saving insulin. Those of Read on! →

Diabetes Hands Foundation Team


Melissa Lee
(Interim Executive Director, Editor, has type 1)

Manny Hernandez
(Co-Founder, has LADA)

Emily Coles (Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Director of Operations and Development, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


Lead Administrator

Brian (bsc) (has type 2)


Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)


LIKE us on Facebook

Spread the word


This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.

© 2015   A community of people touched by diabetes, run by the Diabetes Hands Foundation.

Badges  |  Contact Us  |  Terms of Service