parents of kids with Type 1

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parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1345
Latest Activity: Nov 19

Tudiabetes resources related to parenting kids with diabetes

Diabetes Forum

Time for the Ophthalmologist

Started by aimeeh2oski. Last reply by aimeeh2oski Nov 17. 5 Replies

Pet peeves

Started by 1eyednurseguy. Last reply by Linda G Nov 16. 29 Replies

Ketones

Started by cass1972. Last reply by Elizabeth Nov 16. 7 Replies

New pump user - uncomfortable site

Started by macfrizz. Last reply by Jo Momma Nov 15. 16 Replies

Refusal for Field Trip

Started by Kelly. Last reply by KalebMommy Nov 13. 30 Replies

JDRF’s Children’s Congress

Started by Emily Coles Nov 10. 0 Replies

Grace's Mom

Started by kcolbertandco. Last reply by Elizabeth Nov 10. 2 Replies

Tips for talking to kindergartners about T1D

Started by aimeeh2oski. Last reply by Horizon22 Oct 31. 3 Replies

Curious Kids

Started by Leslie. Last reply by Leslie Oct 31. 5 Replies

Trouble with School Athletics

Started by ahe05a. Last reply by Mountain Oct 30. 4 Replies

Medical I.D's

Started by Jennifer. Last reply by Jennifer Oct 1. 14 Replies

High And Low Blood Sugar

Started by Jennifer. Last reply by Jennifer Sep 22. 10 Replies

She's only 2 y/o

Started by nurivl. Last reply by swisschocolate Sep 22. 4 Replies

Comment Wall

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Comment by Mitch's*Mom on March 18, 2012 at 12:12pm

It has been a wonderful weekend for my son. His 8th birthday and almost 7 years of dealing with diabetes. He had a great weekend, an unexpected party at a water park and visits from his relatives. When it came time to blow out his birthday candles and make his wish, he said that it was the same wish he makes every year. For a cure. It breaks my heart. He is always such a trouper, never complaining about his pump and dex site changes, enduring what seems like a bazillion finger pokes, and he has never complained. He just wishes with all of his might every Birthday. He is my hero and my inspiration. I only wish I had a way to make his one wish in life come true. I keep praying that in his lifetime someone somewhere will make it so.

Comment by Holly on February 29, 2012 at 11:56am

I have been following all of the post's on this issue. Have you gone to a lawyer about these issues with your wife? I know it sounds extreem but maybe her influence in their lives is not a good thing and fighting her for full custody would be the only answer. I don't know what your situation is but sometimes the easy way for us isn't always the best for our kids. Good luck with your kids. Keep your chin up I hope things get better.

Comment by Holly on February 29, 2012 at 11:53am

Comment by Elizabeth on February 29, 2012 at 8:18am

Wow. That's... stunning. You have my sympathies, jms. Diabetes is hard enough to manage with BOTH parents on board, never mind when one is doing everything possible to undermine the other. Your wife's behavior could quite literally kill your daughter if you weren't there to counter it, and I give you props for working so hard in such difficult circumstances. We're here for you when you need to vent, and lordy, it sounds like you're going to need to vent plenty. I would second Natasha's suggestion. Is your daughter interested in the Jonas Brothers, or Crystal Bowersox? It might be helpful for her to know there are some famous, talented people out there with the same disease she has — give her someone to identify with.

Comment by Natasha Bowlds on February 28, 2012 at 6:30am

Have you looked into the CWD conference in Orlando? This is a great place to make a child with diabetes feel not just normal, but special. My son has met pro football players, Miss America, Crystal Bowersox, and more - and played basketball with other kids with diabetes. I agree that camp and a dog are great options too - just didn't know if you'd heard of the conference. We've gone twice and my son LOVES it. They also have pump reps there where my son was able to just try on pumps and see what they look like etc. It's called "Friends for Life."

Comment by Jerodsmom on February 28, 2012 at 6:05am

Goodness......your wife certainly sounds like a work of art! How awful of her to say those things. I think diabetes camp is a wonderful idea. My son went last year for the first time and loved it. Have him signed up for this summer and he is looking very forward to it. The worst thing a parent can do is deal with their childs diabetes with blinders on.

@ Jake....wonderful news on your childs A1C coming down! That is super! My son just had his regular checkup yesterday and was down to 6.9. I completely am confident the pump has been what helped achieve that great number!!

Comment by jake42 on February 28, 2012 at 1:56am

Just my 2c on this. Our little one with HbA1C of >9% five months ago. Now 7.2%. We're working just as hard, perhaps harder given all the options a pump brings. But it's great to finally get some traction on this disease. And our little one? She loves it and wouldn't countenance returning to injections. And yes, she's (now) into sports and restarting her life (18mth dx'd).

Comment by jms1313 on February 27, 2012 at 9:16pm

Sophia is very small and her Mom has convinced her it would look out of place - I am sending her to a Diabetes camp this summer and hope she sees all the other kids with pumps and gets curious, this is what the nurse at the Endo suggested. I have to bite my tongue daily - she told both of my girls right in front of the doctor that it is their Fathers fault that Sophia has Diabetes because my sister has type 2 and my Brother has adult onset type 1 - her words were - it's your daddy's dirty blood that gave you this disease. I thought the doctor was going to fall out of the chair and when the doctor corrected her - she told her to mind her own business. Not a very pleasant person to deal with and certainly not logical. This too shall pass and all shall come to light in time. I just have to stay focused on what is best for my little ones and press forward. No down time - EVER!

Comment by Jerodsmom on February 27, 2012 at 1:54pm

I agree with Elizabeth. To hear that your wife has made any negative comments to your child about her disease is sad. This isnt a disease that is going away any time soon and could very well be for her entire life. Your daughter has enough to deal with being a diabetic that she shouldnt have her own mother showing any negativity toward things that are made to help her. It sounds like your wife needs to get herself an education in diabetes and understand how important it is for your daughter to maintain good control to prevent any long term effects. Not having good control could result in so many different things that wouldnt be pretty. Never have I looked at my sons pump as ugly. I know based on what you have said, you realize all of this. But you need to get your wife on board so that your daughter can have both parents dealing with this the way it needs to be dealt with!

Comment by Elizabeth on February 27, 2012 at 6:54am

A diabetes dog, if you can get one, would be a terrific addition, though. I have Eric on a CGM and while it's great peace of mind, I think I'd rather have the dog — having a creature that is focused entirely on your well-being is wonderfully validating for a kid. Sort of takes the edge off diabetes, in a way, to have diabetes bring you a special dog. We're not in a situation right now that we can manage that... and I'm also sort of wondering if one of our cats is learning to "alert" when Eric has low BG. Jake (the cat) isn't terribly loving toward the kids, but several times this week, I've seen him approach Eric and have found Eric low not long after. So I'm starting to wonder if something about Eric's BG going low is attracting Jake's attention.

 

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Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator

Brian (bsc) (has type 2)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)

 

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