parents of kids with Type 1

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parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1334
Latest Activity: yesterday

Tudiabetes resources related to parenting kids with diabetes

Diabetes Forum

High And Low Blood Sugar

Started by Jennifer. Last reply by Jennifer yesterday. 10 Replies

She's only 2 y/o

Started by nurivl. Last reply by swisschocolate yesterday. 4 Replies

Medical I.D's

Started by Jennifer. Last reply by Jennifer Sep 16. 12 Replies

Ketones

Started by MisMelissa. Last reply by crys Sep 16. 3 Replies

Trouble with School Athletics

Started by ahe05a. Last reply by rgcainmd Sep 14. 3 Replies

How to answer the "why me?" question

Started by aimeeh2oski. Last reply by rgcainmd Sep 14. 3 Replies

Night Scout

Started by Jennifer. Last reply by Lorraine Sep 13. 3 Replies

Snacks for 5k walk

Started by SEM2REM. Last reply by Jacob's mom Aug 19. 1 Reply

VERY PICKY EATER

Started by crys. Last reply by Elizabeth Jul 27. 3 Replies

High Lipids in teen

Started by Linda Rabe-Frady. Last reply by Elizabeth Jul 21. 3 Replies

Help with getting a type 1 kid gain weight

Started by jakesmom427. Last reply by Ethan10183 Jul 20. 5 Replies

Trouble with Breakfast Highs

Started by SEM2REM. Last reply by SEM2REM Jul 6. 9 Replies

Comment Wall

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Comment by Mother of many on June 2, 2012 at 6:33am

Hi, I have two little girls that are 10 and 8 living with type one. Look forward to a book that I will be publishing. It is geared for tweens but everyone who knows someone with diabetes will get something out of it.

Comment by ahe05a on April 20, 2012 at 9:29am

@Fighting for Stephany - My 10 yr old has trouble sleeping lately. Once in a while she takes 1mg of Melatonin and sleeps much better. We don't do it often b/c it makes her sleep really deeply and at least now lows wake her up.

Comment by Hockey Mom on April 5, 2012 at 8:45am

My son's auto-immune diseases started with Thyroid in second/third grade (which is rare for boys) and progressed to Type I Diabetes at sophomore in high school. They waited and waited and kept retesting hoping that his low thyroid numbers were mono or some other disease that they were not specifically testing. He never recovered Thyroid function and takes synthetic Thyroid but the good news was we caught his Type I early due to our great Endo and he has never been in the hospital.

Comment by marnie on April 5, 2012 at 6:29am

My daughter was diagnosed Type 1 just 8 months ago...She started complaining that she had trouble falling asleep..She was very tired during the day and looked so pale...Her blood sugar numbers were fine...My endo ran bloodwork and it turns out it was her thyroid, which is not uncommon with Type 1...Now she takes a little pill every morning and has no more trouble sleeping and looks great again!

Comment by Cheryl on April 5, 2012 at 5:28am

My son also has been type 1 for just short of 9 years. He is 19. Pre-pump, rising overnight BG's always affected his sleep and he would definitely be irritable waking up that way, and be just plain difficult to get out of bed. If someone in the household is a late to bed sort of person, they might do a late check each night and correct any rising BG. Just verify with your endo to see what level they suggest correcting to so that you don't worry about an overnight low.

Comment by Fighting for Stephany on April 4, 2012 at 7:47pm

I have a 15 year old daughter who is type 1 diabetic for the past 9 yrs. My question is can it affect sleep? Mine has alot of problems sleeping and staying asleep. I have spoken to pediatrician and she said not to worry about it. But when she wakes up irritable and her sugar is high I worry about it. Any advice...

Comment by Mitch's*Mom on March 18, 2012 at 12:12pm

It has been a wonderful weekend for my son. His 8th birthday and almost 7 years of dealing with diabetes. He had a great weekend, an unexpected party at a water park and visits from his relatives. When it came time to blow out his birthday candles and make his wish, he said that it was the same wish he makes every year. For a cure. It breaks my heart. He is always such a trouper, never complaining about his pump and dex site changes, enduring what seems like a bazillion finger pokes, and he has never complained. He just wishes with all of his might every Birthday. He is my hero and my inspiration. I only wish I had a way to make his one wish in life come true. I keep praying that in his lifetime someone somewhere will make it so.

Comment by Holly on February 29, 2012 at 11:56am

I have been following all of the post's on this issue. Have you gone to a lawyer about these issues with your wife? I know it sounds extreem but maybe her influence in their lives is not a good thing and fighting her for full custody would be the only answer. I don't know what your situation is but sometimes the easy way for us isn't always the best for our kids. Good luck with your kids. Keep your chin up I hope things get better.

Comment by Holly on February 29, 2012 at 11:53am

Comment by Elizabeth on February 29, 2012 at 8:18am

Wow. That's... stunning. You have my sympathies, jms. Diabetes is hard enough to manage with BOTH parents on board, never mind when one is doing everything possible to undermine the other. Your wife's behavior could quite literally kill your daughter if you weren't there to counter it, and I give you props for working so hard in such difficult circumstances. We're here for you when you need to vent, and lordy, it sounds like you're going to need to vent plenty. I would second Natasha's suggestion. Is your daughter interested in the Jonas Brothers, or Crystal Bowersox? It might be helpful for her to know there are some famous, talented people out there with the same disease she has — give her someone to identify with.

 

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From the Diabetes Hands Foundation blog...

#MedicareCoverCGM Panel Discussion

If you follow the diabetes online community, you know that #MedicareCoverCGM is a big deal. We have continued to raise awareness on #MedicareCoverCGM because we believe that ALL people living with diabetes should have access to continuous glucose monitors (CGM). With Read on! →

#WalkWithD: Making MORE Sense of Diabetes

  A few years ago, we at Diabetes Hands Foundation reached out to the members on TuDiabetes and asked them to share their perspective of life with diabetes through one of the five senses, as part of an initiative called Read on! →

Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


DHF VOLUNTEERS


Lead Administrator

Bradford (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

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