parents of kids with Type 1


parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1298
Latest Activity: yesterday

Tudiabetes resources related to parenting kids with diabetes

Diabetes Forum

Help with getting a type 1 kid gain weight

Started by jakesmom427. Last reply by SweetBaby Mar 17. 3 Replies


Started by jdyoung. Last reply by Jo Momma Mar 4. 6 Replies

Meals schedule

Started by yousof. Last reply by Jeje9272 Mar 3. 5 Replies

Free (uncovered) carbs??

Started by yousof. Last reply by Jeje9272 Mar 3. 2 Replies

Pump vs Pens

Started by Melissa. Last reply by Eric Feb 26. 6 Replies

Private School Obligations/Rules in Florida?

Started by PhDiabetes. Last reply by PhDiabetes Feb 20. 7 Replies

Free Food Ideas

Started by Leigh. Last reply by Jessie Feb 19. 12 Replies

DKA and A1C

Started by AlysonCheatham. Last reply by AlysonCheatham Feb 19. 5 Replies

Stomach Issues with T1D Teen

Started by Chris. Last reply by Elizabeth Feb 19. 7 Replies

Comment Wall


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Comment by ahe05a on April 20, 2012 at 9:29am

@Fighting for Stephany - My 10 yr old has trouble sleeping lately. Once in a while she takes 1mg of Melatonin and sleeps much better. We don't do it often b/c it makes her sleep really deeply and at least now lows wake her up.

Comment by Hockey Mom on April 5, 2012 at 8:45am

My son's auto-immune diseases started with Thyroid in second/third grade (which is rare for boys) and progressed to Type I Diabetes at sophomore in high school. They waited and waited and kept retesting hoping that his low thyroid numbers were mono or some other disease that they were not specifically testing. He never recovered Thyroid function and takes synthetic Thyroid but the good news was we caught his Type I early due to our great Endo and he has never been in the hospital.

Comment by marnie on April 5, 2012 at 6:29am

My daughter was diagnosed Type 1 just 8 months ago...She started complaining that she had trouble falling asleep..She was very tired during the day and looked so pale...Her blood sugar numbers were fine...My endo ran bloodwork and it turns out it was her thyroid, which is not uncommon with Type 1...Now she takes a little pill every morning and has no more trouble sleeping and looks great again!

Comment by Cheryl on April 5, 2012 at 5:28am

My son also has been type 1 for just short of 9 years. He is 19. Pre-pump, rising overnight BG's always affected his sleep and he would definitely be irritable waking up that way, and be just plain difficult to get out of bed. If someone in the household is a late to bed sort of person, they might do a late check each night and correct any rising BG. Just verify with your endo to see what level they suggest correcting to so that you don't worry about an overnight low.

Comment by Fighting for Stephany on April 4, 2012 at 7:47pm

I have a 15 year old daughter who is type 1 diabetic for the past 9 yrs. My question is can it affect sleep? Mine has alot of problems sleeping and staying asleep. I have spoken to pediatrician and she said not to worry about it. But when she wakes up irritable and her sugar is high I worry about it. Any advice...

Comment by Mitch's*Mom on March 18, 2012 at 12:12pm

It has been a wonderful weekend for my son. His 8th birthday and almost 7 years of dealing with diabetes. He had a great weekend, an unexpected party at a water park and visits from his relatives. When it came time to blow out his birthday candles and make his wish, he said that it was the same wish he makes every year. For a cure. It breaks my heart. He is always such a trouper, never complaining about his pump and dex site changes, enduring what seems like a bazillion finger pokes, and he has never complained. He just wishes with all of his might every Birthday. He is my hero and my inspiration. I only wish I had a way to make his one wish in life come true. I keep praying that in his lifetime someone somewhere will make it so.

Comment by Holly on February 29, 2012 at 11:56am

I have been following all of the post's on this issue. Have you gone to a lawyer about these issues with your wife? I know it sounds extreem but maybe her influence in their lives is not a good thing and fighting her for full custody would be the only answer. I don't know what your situation is but sometimes the easy way for us isn't always the best for our kids. Good luck with your kids. Keep your chin up I hope things get better.

Comment by Holly on February 29, 2012 at 11:53am

Comment by Elizabeth on February 29, 2012 at 8:18am

Wow. That's... stunning. You have my sympathies, jms. Diabetes is hard enough to manage with BOTH parents on board, never mind when one is doing everything possible to undermine the other. Your wife's behavior could quite literally kill your daughter if you weren't there to counter it, and I give you props for working so hard in such difficult circumstances. We're here for you when you need to vent, and lordy, it sounds like you're going to need to vent plenty. I would second Natasha's suggestion. Is your daughter interested in the Jonas Brothers, or Crystal Bowersox? It might be helpful for her to know there are some famous, talented people out there with the same disease she has — give her someone to identify with.

Comment by Natasha Bowlds on February 28, 2012 at 6:30am

Have you looked into the CWD conference in Orlando? This is a great place to make a child with diabetes feel not just normal, but special. My son has met pro football players, Miss America, Crystal Bowersox, and more - and played basketball with other kids with diabetes. I agree that camp and a dog are great options too - just didn't know if you'd heard of the conference. We've gone twice and my son LOVES it. They also have pump reps there where my son was able to just try on pumps and see what they look like etc. It's called "Friends for Life."


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From the Diabetes Hands Foundation blog...

#OpposeAB1893: California Bill that Burdens People with Diabetes on Insulin

A couple of days ago I learned that the California State Assembly is considering AB-1893 Sharps waste, which in (if approved) will mandate that: “Sharps sold to the general public in California shall be sold with a sharps waste container Read on! →

FDA Docket Extended! We Need You.

If you are new to diabetes advocacy in the traditional sense of the word, you may be thinking, “What the heck is a docket!?” I certainly was the first twenty times I heard it (yes it took that long). For Read on! →

Diabetes Hands Foundation Team


Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Heather Gabel
(Administrative and Programs Assistant, has type 1)


Lead Administrator
Bradford (has type 1)

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)


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