parents of kids with Type 1

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parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1369
Latest Activity: on Wednesday

Tudiabetes resources related to parenting kids with diabetes

Diabetes Forum

Discussing T1D Complications with Children

Started by aimeeh2oski. Last reply by aimeeh2oski on Wednesday. 4 Replies

Thyroid labs

Started by PhDiabetes. Last reply by PhDiabetes on Tuesday. 7 Replies

Levemir & Lantus

Started by MisMelissa. Last reply by rgcainmd Mar 8. 4 Replies

Getting it off my chest

Started by Jennifer Feb 16. 0 Replies

Life Insurance for T1D Child?

Started by aimeeh2oski. Last reply by april Jan 30. 6 Replies

Abandoning Responsibility

Started by Laura. Last reply by Laura Jan 9. 8 Replies

Humana in Texas

Started by dalajosa Dec 30, 2014. 0 Replies

Help with Huge Lows with little insulin

Started by rjhufnagel. Last reply by sarah Dec 17, 2014. 11 Replies

Pet peeves

Started by 1eyednurseguy. Last reply by kcolbertandco Dec 16, 2014. 30 Replies

Sleepover at 8 years old?

Started by Jennifer. Last reply by cass1972 Dec 15, 2014. 7 Replies

Disagreement over CGM

Started by Kate. Last reply by Kate Dec 9, 2014. 7 Replies

Bent cannula

Started by macfrizz. Last reply by Sarah Howard Dec 1, 2014. 7 Replies

Time for the Ophthalmologist

Started by aimeeh2oski. Last reply by aimeeh2oski Nov 17, 2014. 5 Replies

Ketones

Started by cass1972. Last reply by Elizabeth Nov 16, 2014. 7 Replies

New pump user - uncomfortable site

Started by macfrizz. Last reply by Jo Momma Nov 15, 2014. 16 Replies

Refusal for Field Trip

Started by Kelly. Last reply by KalebMommy Nov 13, 2014. 30 Replies

JDRF’s Children’s Congress

Started by Emily Coles Nov 10, 2014. 0 Replies

Grace's Mom

Started by kcolbertandco. Last reply by Elizabeth Nov 10, 2014. 2 Replies

Problems with Blood Sugar testing

Started by Jennifer. Last reply by Jan Nov 6, 2014. 10 Replies

Comment Wall

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Comment by marnie on April 5, 2012 at 6:29am

My daughter was diagnosed Type 1 just 8 months ago...She started complaining that she had trouble falling asleep..She was very tired during the day and looked so pale...Her blood sugar numbers were fine...My endo ran bloodwork and it turns out it was her thyroid, which is not uncommon with Type 1...Now she takes a little pill every morning and has no more trouble sleeping and looks great again!

Comment by Cheryl on April 5, 2012 at 5:28am

My son also has been type 1 for just short of 9 years. He is 19. Pre-pump, rising overnight BG's always affected his sleep and he would definitely be irritable waking up that way, and be just plain difficult to get out of bed. If someone in the household is a late to bed sort of person, they might do a late check each night and correct any rising BG. Just verify with your endo to see what level they suggest correcting to so that you don't worry about an overnight low.

Comment by Fighting for Stephany on April 4, 2012 at 7:47pm

I have a 15 year old daughter who is type 1 diabetic for the past 9 yrs. My question is can it affect sleep? Mine has alot of problems sleeping and staying asleep. I have spoken to pediatrician and she said not to worry about it. But when she wakes up irritable and her sugar is high I worry about it. Any advice...

Comment by Mitch's*Mom on March 18, 2012 at 12:12pm

It has been a wonderful weekend for my son. His 8th birthday and almost 7 years of dealing with diabetes. He had a great weekend, an unexpected party at a water park and visits from his relatives. When it came time to blow out his birthday candles and make his wish, he said that it was the same wish he makes every year. For a cure. It breaks my heart. He is always such a trouper, never complaining about his pump and dex site changes, enduring what seems like a bazillion finger pokes, and he has never complained. He just wishes with all of his might every Birthday. He is my hero and my inspiration. I only wish I had a way to make his one wish in life come true. I keep praying that in his lifetime someone somewhere will make it so.

Comment by Holly on February 29, 2012 at 11:56am

I have been following all of the post's on this issue. Have you gone to a lawyer about these issues with your wife? I know it sounds extreem but maybe her influence in their lives is not a good thing and fighting her for full custody would be the only answer. I don't know what your situation is but sometimes the easy way for us isn't always the best for our kids. Good luck with your kids. Keep your chin up I hope things get better.

Comment by Holly on February 29, 2012 at 11:53am

Comment by Elizabeth on February 29, 2012 at 8:18am

Wow. That's... stunning. You have my sympathies, jms. Diabetes is hard enough to manage with BOTH parents on board, never mind when one is doing everything possible to undermine the other. Your wife's behavior could quite literally kill your daughter if you weren't there to counter it, and I give you props for working so hard in such difficult circumstances. We're here for you when you need to vent, and lordy, it sounds like you're going to need to vent plenty. I would second Natasha's suggestion. Is your daughter interested in the Jonas Brothers, or Crystal Bowersox? It might be helpful for her to know there are some famous, talented people out there with the same disease she has — give her someone to identify with.

Comment by Natasha Bowlds on February 28, 2012 at 6:30am

Have you looked into the CWD conference in Orlando? This is a great place to make a child with diabetes feel not just normal, but special. My son has met pro football players, Miss America, Crystal Bowersox, and more - and played basketball with other kids with diabetes. I agree that camp and a dog are great options too - just didn't know if you'd heard of the conference. We've gone twice and my son LOVES it. They also have pump reps there where my son was able to just try on pumps and see what they look like etc. It's called "Friends for Life."

Comment by Jerodsmom on February 28, 2012 at 6:05am

Goodness......your wife certainly sounds like a work of art! How awful of her to say those things. I think diabetes camp is a wonderful idea. My son went last year for the first time and loved it. Have him signed up for this summer and he is looking very forward to it. The worst thing a parent can do is deal with their childs diabetes with blinders on.

@ Jake....wonderful news on your childs A1C coming down! That is super! My son just had his regular checkup yesterday and was down to 6.9. I completely am confident the pump has been what helped achieve that great number!!

Comment by jake42 on February 28, 2012 at 1:56am

Just my 2c on this. Our little one with HbA1C of >9% five months ago. Now 7.2%. We're working just as hard, perhaps harder given all the options a pump brings. But it's great to finally get some traction on this disease. And our little one? She loves it and wouldn't countenance returning to injections. And yes, she's (now) into sports and restarting her life (18mth dx'd).

 

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From the Diabetes Hands Foundation blog...

DHF Joins Diabetes Advocacy Alliance

Diabetes Hands Foundation is incredibly honored to join the Diabetes Advocacy Alliance, an organization with the drive and potential to affect a powerful, positive impact on diabetes and healthcare policy. Diabetes Advocacy Alliance is a 20-member coalition of leading professional Read on! →

Helmsley Charitable Trust Renews Support for DHF

HELMSLEY CHARITABLE TRUST GRANTS SUPPORT TO DIABETES HANDS FOUNDATION FOR FOURTH YEAR  Funding in 2015 to support major transitions in programs and leadership at Diabetes Hands Foundation BERKELEY, CA: February 18, 2015 – The Leona M. and Harry B. Helmsley Read on! →

Diabetes Hands Foundation Team

DHF TEAM

Melissa Lee
(Interim Executive Director, Editor, has type 1)


Manny Hernandez
(Co-Founder, has LADA)

Emily Coles (Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Director of Operations and Development, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator

Brian (bsc) (has type 2)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)

 

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