Comment

Comment by Elizabeth on March 7, 2013 at 11:09am

Hi Garry,

It's absolutely normal and understandable to feel that way. My son was diagnosed at 18 months old in October of 2008, and I've run the full gamut — anger, depression, denial. What you have to understand is, this is grief, even though your son hasn't died. His health has been lost, and you're reacting just as anyone does who experiences a major loss. And we all go through this. ALL of us. Heck, I've been living with this thing for 4 1/2 years and I still have weepy moments over it. But it does take time to reach acceptance. Most people say, "the first year is the hardest", and I think that's true, but there's really no set time that you should "get over" this blow to your family. If you feel like you're struggling more than you should, then see if the clinic has a LICSW that you can talk to about it — my clinic actually mandates a session between parents and newly diagnosed children (and the kids are EXCLUDED) so that parents can discuss how they feel about the diagnosis and where they're having trouble coming to terms with it.

But look, the bottom line is, all of us go through this stuff. There's nothing wrong with you because you feel angry. Who wouldn't? The key thing is, you don't let that anger impede your ability to do your job taking care of Nathan. And also, you make sure he knows it's not HIM you're mad at.

Comment by Garry on March 7, 2013 at 10:55am

Not sure if this is the proper place to say anything, but does anyone else get really angry with this illness in their kids? I'm struggling more than I let on and it eats away at me daily. Not sure why because it's not as if it's me that's ill. Why am I feeling so down? Nathan was diagnosed June 2012 and I've still not accepted it. Will I ever?

Comment by Cheryl on January 23, 2013 at 11:08am

We experienced what Jodil is referring to. Our son started pumping at age 14. He had set basal increases at 10 pm and again at 3 am for years to help have him in range by morning. It has only been over the past 1/2 year (just turned 20) that those two overnight basals are now lower than his daytime basal settings and TTD was running typically around 58.

Comment by ahe05a on January 23, 2013 at 6:28am

My 11 year old just started her period too. Our Endo says that we will need to increase by increments of 10% each time to figure out how much extra insulin she will need. Also now because of puberty, she is requiring a huge amount of insulin anyway. The dr. says she will go back to less when she is older.

Comment by Jodil on January 23, 2013 at 6:21am

One last thing, hormones are known to play havoc on blood sugars so even puberty will start to have an impact on blood sugar needs. I am told once my son hits puberty his insulin needs can DOUBLE. He just turned 11 and is currently on 48 units of insulin per day and we continue to have issues with his blood sugars in the morning (both my son and I are diabetic).

Comment by Jodil on January 23, 2013 at 6:20am

Hey Jojo,

I think this is normal. Halfway through my cycle my insulin needs increase to the point that a few days before my period I cannot get my sugars down despite a 25% increase in insulin and I will have to try and increase it even more.

Speak to the endocrinologist since they are in charge of diabetes and hormones as well.

Good luck

Comment by jojo on January 22, 2013 at 8:48pm

Does this happen to any one else
My 14 year old daughter got her period 4 months ago for the first time. She is on a pump. It seems somewhere in the middle of her cycle ,and she is not exactly regular yet so this is killing us her blood sugar shoots up to the 400's for like 4 days it took my awhile to figure this out along with temp basals that were 50 percent higher. Is this what usually happens?

Comment by Smmtc on January 16, 2013 at 2:24pm

My son is 19 and he is considered an uncontrolled diabetic. He doesn't take this disease serious and I am sick about the damage he is doing to his body. We don't let him drive and I am looking for any suggestions. He was diagnosed with Type 1 almost a year ago and his A1c has doubled.

Comment by k on January 16, 2013 at 12:16pm

yummy pancakes.
2eggs, 1/2cup ricotta cheese,1/4 cup vanilla whey protein powder, 1/2tsp baking powder, 1/8 tsp salt. whisk together, fry by 1 tbsp.
awesome!
14 mini pancakes. 0.6 cbs a piece

Comment by Adjomom on January 11, 2013 at 1:39pm

I actually just started trying Dermoplast right after I take off the pod (well, usually, Jonah rips it off - he's 3). It is benzocaine and menthol spray that the doctor actually gave me after Jonah was born. It seems to control the immediate itch well. You can then switch to the topical steroid cream.

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