parents of kids with Type 1

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parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1369
Latest Activity: Mar 25

Tudiabetes resources related to parenting kids with diabetes

Diabetes Forum

Discussing T1D Complications with Children

Started by aimeeh2oski. Last reply by aimeeh2oski Mar 25. 4 Replies

Thyroid labs

Started by PhDiabetes. Last reply by PhDiabetes Mar 24. 7 Replies

Levemir & Lantus

Started by MisMelissa. Last reply by rgcainmd Mar 8. 4 Replies

Getting it off my chest

Started by Jennifer Feb 16. 0 Replies

Life Insurance for T1D Child?

Started by aimeeh2oski. Last reply by april Jan 30. 6 Replies

Abandoning Responsibility

Started by Laura. Last reply by Laura Jan 9. 8 Replies

Humana in Texas

Started by dalajosa Dec 30, 2014. 0 Replies

Help with Huge Lows with little insulin

Started by rjhufnagel. Last reply by sarah Dec 17, 2014. 11 Replies

Pet peeves

Started by 1eyednurseguy. Last reply by kcolbertandco Dec 16, 2014. 30 Replies

Sleepover at 8 years old?

Started by Jennifer. Last reply by cass1972 Dec 15, 2014. 7 Replies

Disagreement over CGM

Started by Kate. Last reply by Kate Dec 9, 2014. 7 Replies

Bent cannula

Started by macfrizz. Last reply by Sarah Howard Dec 1, 2014. 7 Replies

Time for the Ophthalmologist

Started by aimeeh2oski. Last reply by aimeeh2oski Nov 17, 2014. 5 Replies

Ketones

Started by cass1972. Last reply by Elizabeth Nov 16, 2014. 7 Replies

New pump user - uncomfortable site

Started by macfrizz. Last reply by Jo Momma Nov 15, 2014. 16 Replies

Refusal for Field Trip

Started by Kelly. Last reply by KalebMommy Nov 13, 2014. 30 Replies

JDRF’s Children’s Congress

Started by Emily Coles Nov 10, 2014. 0 Replies

Grace's Mom

Started by kcolbertandco. Last reply by Elizabeth Nov 10, 2014. 2 Replies

Problems with Blood Sugar testing

Started by Jennifer. Last reply by Jan Nov 6, 2014. 10 Replies

Comment Wall

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Comment by jms1313 on February 27, 2012 at 9:16pm

Sophia is very small and her Mom has convinced her it would look out of place - I am sending her to a Diabetes camp this summer and hope she sees all the other kids with pumps and gets curious, this is what the nurse at the Endo suggested. I have to bite my tongue daily - she told both of my girls right in front of the doctor that it is their Fathers fault that Sophia has Diabetes because my sister has type 2 and my Brother has adult onset type 1 - her words were - it's your daddy's dirty blood that gave you this disease. I thought the doctor was going to fall out of the chair and when the doctor corrected her - she told her to mind her own business. Not a very pleasant person to deal with and certainly not logical. This too shall pass and all shall come to light in time. I just have to stay focused on what is best for my little ones and press forward. No down time - EVER!

Comment by Jerodsmom on February 27, 2012 at 1:54pm

I agree with Elizabeth. To hear that your wife has made any negative comments to your child about her disease is sad. This isnt a disease that is going away any time soon and could very well be for her entire life. Your daughter has enough to deal with being a diabetic that she shouldnt have her own mother showing any negativity toward things that are made to help her. It sounds like your wife needs to get herself an education in diabetes and understand how important it is for your daughter to maintain good control to prevent any long term effects. Not having good control could result in so many different things that wouldnt be pretty. Never have I looked at my sons pump as ugly. I know based on what you have said, you realize all of this. But you need to get your wife on board so that your daughter can have both parents dealing with this the way it needs to be dealt with!

Comment by Elizabeth on February 27, 2012 at 6:54am

A diabetes dog, if you can get one, would be a terrific addition, though. I have Eric on a CGM and while it's great peace of mind, I think I'd rather have the dog — having a creature that is focused entirely on your well-being is wonderfully validating for a kid. Sort of takes the edge off diabetes, in a way, to have diabetes bring you a special dog. We're not in a situation right now that we can manage that... and I'm also sort of wondering if one of our cats is learning to "alert" when Eric has low BG. Jake (the cat) isn't terribly loving toward the kids, but several times this week, I've seen him approach Eric and have found Eric low not long after. So I'm starting to wonder if something about Eric's BG going low is attracting Jake's attention.

Comment by Elizabeth on February 27, 2012 at 6:49am

Considering what his pump has done for my son's BG, I would describe it as beautiful, not ugly. Your ex needs to work with a therapist, IMHO, because such an ill-considered response could very well affect her daughter's health — if not directly, then by giving her a negative attitude toward her diabetes. Does your ex not understand the disease? Where did your daughter get the idea that she could manage her T1 by diet? That's what I find concerning.

And, pumps CAN be "dressed up" any way you want — either by buying a skin, or by making a belt pouch for it. She could accessorize it in much the same way she accessorizes a cell phone, iPod, and so on.

Comment by Suzanne on February 27, 2012 at 4:31am
For jms1313: I'm sorry for your struggles. Do you have a good endocrinologist and/or Certified Diabetes Educator nearby? It sounds like your family ( esp. your ex, who sounds like she might be both angry and in denial about how serious caring for a child with type 1 is) could benefit from more education about type 1. This could make a world of difference for all of you, and it would take the pressure off of you and give it to the professionals ( we use this tactic with my 13 year old when we are having trouble, at at the suggestion of the CDE.) My daughter also has a pump ( Animas Ping) and I agree with many of the comments about our children's lives being improved by them. Top improvement for my daughter would be freedom from the rigid eating schedule that goes with shots!
Comment by jms1313 on February 26, 2012 at 9:12pm

Comment by jms1313 on February 26, 2012 at 9:12pm

I have my Girls 60% or more of the time, so it makes it difficult if I can't get her on board - it's like when she first came home she wouldn't give her shots - said she could manage it by diet - and in the honeymoon period did pretty well, so I was the bad guy telling her she had to take shots. It's a weird and unusual situation - I have got her to consider letting me buy a diabetes dog that could go back and forth. I could certainly sleep better.

Comment by Jerodsmom on February 26, 2012 at 7:45am

My sons pump which was only 7 months old decided to quit working. Thankfully it was under warranty and they sent out a replacement within 24 hours. That 24 hours my son was miserable. Was so unhappy having to go back to shots until the new pump arrived. With the pump, you get 10 injections a month (unless you have problems which isnt a normal thing). With injections you have around 120 shots.

•Using an insulin pump means eliminating individual insulin injections
•Insulin pumps deliver insulin more accurately than injections
•Insulin pumps often improve A1C
•Using an insulin pump usually results in fewer large swings in your blood glucose levels
•Using an insulin pump makes diabetes management easier – if your glucose level is high or you feel like eating, figure out how much insulin you need and push the little button on the pump
•Insulin pumps allow you to be flexible about when and what you eat
•Using an insulin pump can improve your quality of life
•Using an insulin pump reduces severe low blood glucose episodes
•Using an insulin pump eliminates unpredictable effects of intermediate- or long-acting insulin
•Insulin pumps allow you to exercise without having to eat large amounts of carbohydrate

Comment by Natasha Bowlds on February 26, 2012 at 7:28am

I agree. The pump made my son feel "free" (and those were his words, not mine!) He loves it so much and is also on the Omnipod. He refused to even think about tubes. He's been on the Omnipod for 2 1/2 years and wouldn't consider going back to shots.

Comment by daneenm on February 26, 2012 at 7:25am
My son did not want people to see a pump either. His CDE convinced him to look at the OmniPod, which has no tubing. He has been on it for 4 1/2 years now and loves it. Might be the thing that gets you over the 'it's ugly' block. We did many years of MDI and if that continues to work then great, just wanted to float that option.
 

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Diabetes Hands Foundation Team

DHF TEAM

Melissa Lee
(Interim Executive Director, Editor, has type 1)


Manny Hernandez
(Co-Founder, has LADA)

Emily Coles (Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Director of Operations and Development, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator

Brian (bsc) (has type 2)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)

 

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