parents of kids with Type 1

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parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1166
Latest Activity: 5 hours ago

Discussion Forum

Insulin Pump Recommendations.

Started by Jamie. Last reply by Piki101 yesterday. 7 Replies

Products to Treat Low BG

Started by Jay (JJ). Last reply by Piki101 yesterday. 8 Replies

Shyness toward diabetes at School

Started by Jamie. Last reply by Jacob's mom yesterday. 24 Replies

Frustrated with Adult Endo practices

Started by Hockeymom. Last reply by David (dns) on Tuesday. 11 Replies

How Many Carbs for a Teen?

Started by kaitype1. Last reply by kaitype1 on Tuesday. 3 Replies

How many Carbs?

Started by kaitype1. Last reply by kaitype1 on Tuesday. 10 Replies

Pet peeves

Started by 1eyednurseguy. Last reply by aliceclones May 17. 28 Replies

I just need to vent.

Started by Holly May 15. 0 Replies

Behavior problems in T1 children

Started by aimeeh2oski. Last reply by aimeeh2oski May 11. 7 Replies

Lots of Hypos lately

Started by MisMelissa. Last reply by Elizabeth May 11. 7 Replies

Lost, 1 week post T1 diagnosis

Started by Aidan's Mom. Last reply by BitchinDietitian May 9. 24 Replies

Thoughts on Screening Siblings?

Started by PhDiabetes. Last reply by Sophia'smommyLori Apr 29. 9 Replies

recently diagnosed with T1. please help.

Started by michelle13. Last reply by twinmomlisa Apr 25. 27 Replies

Update on social services case

Started by Shant. Last reply by sheryl lauria Apr 18. 8 Replies

Tired of DKA

Started by Shant. Last reply by Shant Apr 15. 20 Replies

Comment Wall

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Comment by Jerodsmom on November 25, 2010 at 5:03am
Hi Kellie. I also have a 12 year old son who was diagnosed recently. October 6th to be exact. So we are very new to this as well. You are your sons biggest advocate. The most important thing I have found is to do everything I can to make my sons life feel as close to normal as it use to be. Also, when you are counting carbs and figuring out insulin, have him do it as well so that he is learning right along with you. This way when he asks to go sleep over a friends, or go to the mall etc, you will know he is capable of doing this without you at his side. My son had his first sleepover birthday party last weekend. While I was nervous, I was confident my son knew what he needed to do. The only thing I asked of him is to text me his blood glucose whenever he checked it.
Comment by Tracy Greene Mintz on November 24, 2010 at 11:03pm
Welcome and as I always say, sorry to meet you. What I wish I would have known 1.5 years ago, when my then 7-yr old dtr was dxd was that most people don't know one damn thing about type 1. Well-meaning parents snatched food out of my daughter's hands! I decided right away that part of my job in normalizing my daughter's world is to gently educate the other parents around her, like friends' parents, teachers, scout leader, etc. I'm not sure I was prepared to focus my energy there, 'cause I was so focused on controlling everything for my daughter. But I found that teaching others to share the workload was incredible empowering to both her and me (and my husband) because it lets her move around the world and not be tethered to me. My whole family can give a shot if they need to, and soon I will be teaching my dad to change the pump set.
Now I can write out instructions for camp counselors, babysitters, whomever in about 20 seconds! We also bought our daughter a cellphone so she can text us her BG any time. She's only 9, so she thinks she is the bomb! Try not to worry. xoxoxoxxo
Comment by Alissa on November 24, 2010 at 9:28pm
Hi Kellie! Welcome!!!! I'm pretty new to the group as well, my 6 yr old daughter was diagnosed...holy smokes...1 month ago as of tomorrow! Shock..yeah. This will be our first Thanksgiving where we don't travel to be with family and celebrate with 20+ people, it'll just be our little family of four here at home. It's just too much for us to try and take our show on the road quite yet. I'm appreciate Amber's reminder to try and embrace that we can't "control" but we can "manage" blood sugar levels. I guess maybe I should put that on a post-it note and put it all over my house. :) I bought a nice digital kitchen scale and have found it to be really helpful. One other thing I would say is to be really watching for lows after active days during the night, I'm amazed at how much exercise effects my daughters numbers and for how long. Glad you found this site - yes the people are so wonderful!
Comment by Kellie on November 24, 2010 at 8:37pm
Thanks Amber, My son has been so up and down with his levels that I haven't had enough time or energy to feel guilty yet, but I am sure at some point I will!! :) I wonder if the things ever "level" out or will it always be so up and down...I guess I will find out...I am so glad I as lead to this site..I have learned so much already!!
Comment by stjrhein on November 24, 2010 at 8:25pm
Welcome Kellie, My 10 year old was diagnosed almost 6 months ago, I think I am still dealing with the shock :) This is the right place to be, I have learned so much from all the families on the group.
The most helpful thing anyone told me was that we can't control his blood sugar we can just manage it. I always felt like I did something wrong when he went high or low... sometimes it just happens.
We are planning on switching over to the pump next month.
Hugs!
Amber
Comment by Kellie on November 24, 2010 at 8:08pm
My 12 year old son was diagnosed two weeks ago and we are just now getting over the shock and settling into this new way of life. Could you all share with me the one or two things you wish you had known early on when dealing with Type 1 and your child....especially an active teenager!?!?!?
Comment by Christy (Jaylin's Mom) on November 19, 2010 at 4:22pm
My daughter is 7 1/2 and she has been using deodorant for about 6 months now. We were told it is common in Type 1 diabetics to show pre-puberty signs, even signs of early under arm hair. They have assured us she is not in puberty yet, but it still makes me anxious she might go early into puberty.
Comment by aliceclones on November 19, 2010 at 2:34pm
my 9 year old started needing deodorant around 7.5, i got her one without aluminum that was gentle, but i think it is just hormones, i know our daughters was, she didn't have D yet.
Comment by Alissa on November 19, 2010 at 2:32pm
So....my daughter suddenly has a little offensive body odor under her pits. She's "6.75 yrs old". Hormones? Insulin? Type 1? Related at all? Anyone? Anyone? Bueller?
Comment by aliceclones on November 18, 2010 at 10:06pm
KcF, one of my girls likes the multiclix from accucheck because she doesnt need to switch it out too often (although she says it feels the same as her regular lancet with the BD33 needle), but my other daughter will only use the new delica, she seems to see a difference.
 

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