parents of kids with Type 1

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parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1345
Latest Activity: Nov 19

Tudiabetes resources related to parenting kids with diabetes

Diabetes Forum

Time for the Ophthalmologist

Started by aimeeh2oski. Last reply by aimeeh2oski Nov 17. 5 Replies

Pet peeves

Started by 1eyednurseguy. Last reply by Linda G Nov 16. 29 Replies

Ketones

Started by cass1972. Last reply by Elizabeth Nov 16. 7 Replies

New pump user - uncomfortable site

Started by macfrizz. Last reply by Jo Momma Nov 15. 16 Replies

Refusal for Field Trip

Started by Kelly. Last reply by KalebMommy Nov 13. 30 Replies

JDRF’s Children’s Congress

Started by Emily Coles Nov 10. 0 Replies

Grace's Mom

Started by kcolbertandco. Last reply by Elizabeth Nov 10. 2 Replies

Tips for talking to kindergartners about T1D

Started by aimeeh2oski. Last reply by Horizon22 Oct 31. 3 Replies

Curious Kids

Started by Leslie. Last reply by Leslie Oct 31. 5 Replies

Trouble with School Athletics

Started by ahe05a. Last reply by Mountain Oct 30. 4 Replies

Medical I.D's

Started by Jennifer. Last reply by Jennifer Oct 1. 14 Replies

High And Low Blood Sugar

Started by Jennifer. Last reply by Jennifer Sep 22. 10 Replies

She's only 2 y/o

Started by nurivl. Last reply by swisschocolate Sep 22. 4 Replies

Comment Wall

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Comment by mom on January 9, 2012 at 3:45pm

My son is 7 1/2, 7 months post diagnosis. Next month he is having dental treatment under anaesthesia. We are doing it at the children's hospital where is diabetes clinic is. Am getting nervous even though we met with anaesthesiologist and she said they would check hi, and have iv ready for insulin or glucose.

Before the diabetes he had a few treatments with laughing gas and dealing with all the diabetes management we postponed the dental stuff. he now has a few root canals and fillings so they thought it best to do it all at once. Any suggestions or calm words will do to help me get ready!

Comment by Fighting for Stephany on December 25, 2011 at 3:29pm

My daughter was diagnosed at age 6, she got really sick and was put into the hospital. They tested her and came back she is diabetic type 1. She's going to 15 soon and now uses an insulin pump and checks her blood about 10 times a day. We manage and deal with day by day, she does sports and plays music. Routines and accuracy is key for good succes in monitoring and controling sugars. Keep strong it get's easier.

Comment by mkampmann on December 8, 2011 at 12:55pm

Hello, I was hoping to never join this group. I'm T1 and us this site for my own personal needs. Well, Monday my worst nightmare came true. My 5 yro was diagnosed with T1. She's on very little insulin because of the Honeymoon stage (.25 units somethimes) but will eventually need Lantus until we can get her a pump in about a year. I'm happy there is a place to go with questions about kids

Comment by Beth on December 3, 2011 at 9:09am

Hello I am a Parent of two kids with type 1 diabetes. My Son Richard was diagnosed when he was 4 in 2001 he is now 15 years old and My daughter Heather was diagnosed when she was 8 in 2008 she is now 12 years old. I'm also new to the site.

Comment by Natasha Bowlds on December 1, 2011 at 11:10am

I know we have gluten free wafers at our church (the pastor's wife has celiac) and they are on their own separate plate and everything.

Comment by Elizabeth on December 1, 2011 at 9:51am

Holly, you can learn more about it here: http://www.catholicceliacs.org/CatholicCeliacOverview.pdf

Comment by Emily B on December 1, 2011 at 8:54am

Hi Holly, I have read that there are alternative accommodation for communion. You'll probably have to do a search online and talk to your church about it. As for people making assumptions that a little gluten won't hurt... people eventually realize that's not the case when they see your diligence. Good luck with the endoscopy and Happy early Birthday Francesca!

Comment by Holly on December 1, 2011 at 8:27am

Well we went to the gastric doctor yesterday and my daughters number for Celiac (blood tests) was 100. They have scheduled her for an upper endoscopy on 12/7 (her birthday it was either that or January) So we are on the way home and I am telling her that she will be going to the hospital and she will get an IV. They are just going to check her for Celiac. My husband decided that it would be a good idea to tell her that they would be going to sleep!!! She FREAKED OUT! I told her that Mommy would never stop holding her hand. I would still be holding it when she wakes up. She seemed to calm down. My husband tried to cover by telling her that they were just going to take some pictures of her belly and then they would wake her up. It would only take about 10 min. She seemed a little better with that. I told my husband that sometimes he needs to trust me.

Well anyway I decided (even though it is last min.) to have my family over for her birthday this Saturday and then I told her she could have one of her friends over for a play date on Sunday just to keep her busy.

As soon as I called my mother (on the way home from the appt. So I am already upset) I wished I wouldn't have. She asked about the appt. and I told her what was going on. Then I told her that I wanted to have something for Francesca's B'day on Saturday to try and keep her busy over the weekend. Her answer was well I can't be there at that time I work at 5(I told her 1) I thought to myself. WHY IS EVERYTHING ABOUT YOU!!! Sorry as you all can tell I was a little annoyed with the answer that I rec. Sometimes I just don't know what to do with people.

My sister was asking me about the Celiac the weekend of thanksgiving and I am explaining to her that she can not even have the littlest bit of Gluten. Which means that we have to find out from the church if there is an accomodation that can be made for communion. Her answer was well it is such a little amount why would it matter?? REALLY!!! I told her like any other allergy if you are allergic to strawberries then you can not eat even a small bite or you could go into shock and die. This will cause damage that you may not see at first but could really mess you up.

Comment by Jillx4 on November 28, 2011 at 4:58am
Your son's case is very unusual. My daughter was diagnosed in 10/10 with a blood sugar of 669, was admitted to Childrens immediately and has been on insulin ever since. She is now on the pump. The doctor we go to told us when to make all changes initially, but now we make most of the decisions on our own. We can still fax her logs over if we need help with something. Her pediatrician is very helpful and I can always get help when I need it. It sounds like your doctor could be more involved.
Comment by CC on November 27, 2011 at 9:18pm

Hello all I am new to the site, my 6 yr old son was dx in 12/09, honeymooned for a year, started humalog 02/2011 and now 11/11 added lantus. He takes 1 unit of lantus and 1 unit of humalog meal times. His A1c is always below 6.5 except at 7.7 when he was diagnosed and again when the honeymoon ended :( I want his A1c to be 5.5- 6 consistently. Nevertheless, I am always interested in finding a better MD and Endo team. I feel like I am the one making the decisions of when to add more insulin, how much and what type. The current MD says you are doing good his A1c is low and says my son's case is unusual and see you in 3 months. Should the MD be doing more or is this standard protocol. I feel so not proactive in my son's care and I feel the MD is not either...perhaps I am expecting to much. Any suggestions on Ped. Endo in Dallas or perhaps realistic expectations of the MD's role

 

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Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator

Brian (bsc) (has type 2)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)

 

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