parents of kids with Type 1

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parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1327
Latest Activity: on Wednesday

Tudiabetes resources related to parenting kids with diabetes

Diabetes Forum

How to answer the "why me?" question

Started by aimeeh2oski. Last reply by Jacob's mom on Wednesday. 2 Replies

Tips for talking to kindergartners about T1D

Started by aimeeh2oski. Last reply by daneenm on Wednesday. 2 Replies

Snacks for 5k walk

Started by SEM2REM. Last reply by Jacob's mom on Tuesday. 1 Reply

Ketones

Started by MisMelissa. Last reply by Elizabeth Aug 15. 2 Replies

VERY PICKY EATER

Started by crys. Last reply by Elizabeth Jul 27. 3 Replies

High Lipids in teen

Started by Linda Rabe-Frady. Last reply by Elizabeth Jul 21. 3 Replies

Help with getting a type 1 kid gain weight

Started by jakesmom427. Last reply by Ethan10183 Jul 20. 5 Replies

Trouble with Breakfast Highs

Started by SEM2REM. Last reply by SEM2REM Jul 6. 9 Replies

Stomach Pain and Low Blood Sugar

Started by aimeeh2oski. Last reply by rgcainmd Jun 29. 6 Replies

Dexcom 1st Insertion Let Down

Started by SEM2REM. Last reply by rgcainmd Jun 29. 3 Replies

Does red food dye increase blood sugars?

Started by aimeeh2oski. Last reply by rgcainmd Jun 29. 5 Replies

Comment Wall

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Comment by Julie on October 1, 2011 at 11:21am
Thought I would share some of our "Diabetes Tidbits with the group" these are bite size video's of what has helped us with raising 3 children with diabetes. We have tidbits on sleep overs, 504 plans, how to make changing a site fun and more. I hope you enjoy them

http://www.pumpwearinc.com/index.php?page_id=487
Comment by Jillx4 on September 30, 2011 at 6:14pm
My 4-year-old daughter was diagnosed 11 1/2 months ago. She is starting on the pump on Oct 17th. I'm excited but a little nervous. Does anyone have any advice for us?
Comment by The Bucks on September 30, 2011 at 2:27pm
Hi all, my name is Paul. first off, my spelling is realy bad, sorry. My sone is 20 yr and he has had diabeties since he was 1.5yr. I am trying to see if I can get a support group of his age to take to. And maby my wife will like to share here thought wiht some.
Comment by Hebrew on September 13, 2011 at 5:18am
Thanks for the info.Will keep you all informed as we progress!
Comment by Tracy Greene Mintz on September 12, 2011 at 8:42am
Welcome Hebrew! Getting on a pump doesn't require hospitalization, but it is a few weeks of checking the blood sugar very few hours, including through the night, and then keeping logs for the pump company representatives They help you set it up and then your doctor double checks it. maybe tweaks a few things, and gives the OK. The rationale is that the user (you) needs to know how to adjust pump settings independent of the MD. Good luck!
Comment by Hebrew on September 11, 2011 at 9:56am
Hi.I am new here and still getting to know my way around.I am happy to be a member though!I need some information.What does the doctors actually do when setting up/programming an insulin pump?does it require hospitalisation and if so for how long?I am trying to get a pump for my daughter and may need to come up to the USA to do so.So I am trying to see how much time we will need to get it done.thanks in advance for any info given.
Comment by Jessica05 on September 1, 2011 at 7:41pm
Elizabeth, that's a good idea, I'll check into that. Thanks so much for your input.

Jodil, Your experience sounds very, very tough. I can't imagine dealing with that school situation, I pray you get it resolved!

Take care everyone, I hope we all have a healthy, safe school year with out kiddos.
Comment by Jodil on September 1, 2011 at 4:38pm
Well, I live in Montreal, Quebec Canada and we have NO PROTOCOLS in place for kids with diabetes in school and the best his school will do is call 911 should he pass out!!! The principal does not want anyone to come into the school to educatre the teachers properly and does not want me there. Because my son requires a shot at lunch, he must come home from school everyday. There has even been times when he needed to check his sugar (meter is in the office with treatment for lows and paper for protocol in case of low) and he has been told by teachers to wait to check his sugar and that "swedish berries" his treatment for lows and for extra carbs for gym are not healthy. I have spoken with the school, nurse and my social worker and the principal is a b-tch and does not want anyone else running the show or telling her what to do. This year I am asking to meet with the teachers to try and enlist their help. VERY FRUSTRATING!!!! PS...Our diabetic nurse educator at the hospital is no better and tried once when my son was diagnosed to reach the school nurse (last November) and could not reach her and that was the end. I may ask for a new diabetic educator at the hospital. Thank goodness I myself am Type 1 diabetic so my son knows more than the average 9 year old (dx at 8 years old) but has grown up with me having it.
Comment by Elizabeth on September 1, 2011 at 4:25pm
Jessica, could your diabetes clinic or endocrinologist "loan" you a diabetes educator to give a seminar on recognizing and treating diabetes symptoms at your school? I think this might make your daughter's teachers and the school staff more comfortable that they know what to do, and the more comfortable they are, the more accommodations they might be willing to make. I know that the training class my daycare provider got was a HUGE step forward in her willingness to be the primary caregiver for Eric. And the NPs at my clinic have made it quite clear that they are more than willing to work with me to get the school up to speed once Eric starts attending kindergarten next year.

If the clinic doesn't have the capacity, see if the local ADA chapter does -- the chapter here in Maine runs seminars quite often (I missed a recent one on safety in schools, rats) and they might be willing to hold one for you. Especially if there are others in your school district who might benefit from it. It's worth asking.
Comment by Hockey Mom on August 26, 2011 at 12:12pm
My son is older but in our Texas public school district we were required to supply a new Glucagon kit each school year. The nurse showed me how it has his Name in big letters in black Sharpie for quick reference and is kept with other emergency type items (inhalers, epi pens, etc) by the door of the Nurses offce in a small red duffle bag. If they get a call from a teacher about a child with an emergency situation, one of the Nurses grabs the bag and runs for the room while one of the other Nurses calls 911 and directs the emergency personnel. It's a large high school so while they can arrive in under 3 minutes, it may take longer to actually find the child's location on campus.

My son actually still has pretty good awareness of low BG so we have not had to use it but it is good to know it is there and that they have been trained on how to use it. They also have juice, cookies, etc to treat lows in the Nurse's office and the Athletic Office. He is allowed to leave class but they will call the Nurse to make sure he arrives or have another student go with him. Afater two years, I have just gotten comfortable with his diabetes, his ability to handle things and the high school situation and now he is a senior and is looking at going away 5 hours to college. I don't think the worry ever will end.

My cousin teaches second grade and one of her students is diabetic with a CGM. She says that has helped a lot. Before the student got it she was always having the child check BG if anything was wrong and then felt guilty if that was not the problem. It will take a lot of the guesswork out of it.
 

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From the Diabetes Hands Foundation blog...

Diabetes Among Hispanics: We’re not all the same

US Hispanics are often portrayed in the press as a single, monolithic group. But anyone who has spent any time in San Francisco’s Mission District or the Bronx can tell you, we’re not all the same. Now we’re finding out Read on! →

Diabetes entre los hispanos: no somos todos iguales

Traducido por Mila Ferrer.    A menudo los Hispanos en Estados Unidos son retratados en la prensa como un solo grupo, monolítico. Pero cualquiera que haya pasado algún tiempo en el  Mission District de San Francisco o el Bronx se Read on! →

Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


DHF VOLUNTEERS


Lead Administrator

Bradford (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

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