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Comment by migmercy on July 31, 2010 at 10:13am

Hello I am also new to this website, it has great information. I live in Miami, Florida and started a support group for kids and families. We get together and do fun events as well as help one another. Please join our website miabetes.com. Thank you. Mercy

Comment by Michelle on July 31, 2010 at 10:06am

Hi I'm new on here so would just like to say hello and introduce myself. I am mum to Emily who is 12 years old . She was diagnosed Type 1 aged 3. She has been pumping insulin for 18 months now. We have recently purchased a Dexcom seven plus CGMS in the hope it will help us battle the high blood sugars Emily is getting at the moment. I am pretty sure puberty hormones are adding themselves to the mix . Are there any parents of adolescents here that I could share experiences with (and moan to lol)

Comment by MelissaBL on July 11, 2010 at 8:02pm

Amelia's dad, I'm a T1D of 20 years now and can promise you that rage and adrenaline rushes are normal side effects of high BG. I become very angry, edgy, and intense. My mom and brother would upset me when I was a teen though because any time I was legitimately upset about something (or being dramatic), they'd always say, "she must be high." My husband has learned not to do that. *laughs* Instead, if he knows I'm high, he has learned that the best thing to do is not to escalate it and to just pat me on the arm or leg and say, "You're okay, honey. It's okay."

I'm not saying that, as parents, you should sit idly by and let your child snap your head off. But I am saying that during the high is never the best time to address it. Try having that conversation about how she was feeling when her behavior was out of line when she's back to normal.

Comment by Cheryl on July 11, 2010 at 6:51am

Amelia's Dad,
Work on the 504 plan. I am sure that a lot of people on the site that live in the U.S. can help you with this. I think that you might even find a discussion area on this site on 504 plans. In Canada there is no support in school for children with diabetes. If supervision of blood glucose testing, or insulin dosing, or anything else is needed, the parent or someone outside the school that the parent designates has to do it. School staff do not. The only responsibility that school staff has is to learn what to do in the event of a hypoglycemic event, which is little really beyond recognizing that there is a problem and calling 911. Fortunately my husband, as an education assistant, has been able to bring David as a student to the schools where he works, every year, except for grade 7 and 8. For 7 and 8 we moved David to a school that was a 10 minute drive from my work. There were about five times over the school year that I had to pick him up, due to pump site issues resulting in very high BG's that he needed my help with to correct.

As to your high drama note below. A really high BG for David at the start of the day would make it very hard to get that kid out of bed and once you did get him out of bed, he would be very groucy until the high BG was fixed. The result being temper tantrums that typically we never see otherwise. We resolved this a fews years back by always doing a 3 a.m. check and catch any rising BG's at that time. He needed an overnight BG check anyway as his activity levels sometimes has him running low at the 3 a.m. check. He does his last check around 10 before he heads to bed and I set an alarm for 3.

While you are working on the 504 plan, I would suggest removing all contact numbers from Amelia's school file, except the cell that you carry with you and instruct the school that they are to call the cell number, anytime that there is any concern with Amelia.

Cheryl

Comment by amelia's dad on July 11, 2010 at 12:46am

Does anyone have issues with their kids when their sugar goes high 200 + in the way of personality changes. Sometimes we have HIGH DRAMA and she gets very sensitive. It's hard for me to tell if it's the age or the high sugar. The doctor said she will have mood swings when bg gets wacky. Could be that it's just because she is a girl too. Just kidding. It defiantly seems worse and over exaggerated now when she goes high. Maybe it's the stress of this, anyways let me know if you have had similiar reactions from your kids on bg above 200. Thanks!!!

Comment by amelia's dad on July 11, 2010 at 12:33am

Got a lot of questions about school and a 504 plan which I know nothing about. Here is part of a message I sent someone so any suggestions are much appreciated. Never heard of a 504 plan. But that sort of experience is what I am afraid of. Here is a prime example. Amelia had a lot of problems with her respiratory system. Make a long story short she was sick at school we have 3 emergency contacts on record and both my cell phones and our home phone. The school only contacted our home phone, which no one was there. So they let her "lay down and rest" Luckly I got rained out ( I am a brickmason/tuckpointer) and got home about a hour after they called. When I got the school they said her fever was 102 and they tried to call us. I said what numbers. They said one emergency contact and our home so I said why didn't you call the cell and they said they didn't want to bother me at work!! I own the dang business and they know that. They also know she has been hospitalized for it several times and she takes nebulizer treatments at school. Her o2 was down to 90 I was hot. I never play Mr. nice guy anyways you can't in my line of work. I let them have it. The biggest problem where we are is that they are a underfunded small school district. I think we have something like 240 kids for pre k- 12 total. Half the time the nurse isn't even there. So any help you can give me on this subject and getting started on making sure this school year goes flawless I would appreciate it.

Comment by Emily B on July 10, 2010 at 8:12pm

Hi Amelia's Dad! I don't think it's an issue to leave the Lantus out. Once it's not refrigerated you'll have to toss it in 28 days or something like that. We don't keep insulin in the fridge after opening it. I hear cold insulin stings more and you're less likely to get air bubbles with it room temp. I do test my son at night although I know a lot of people don't. His Dr. has also told me that I don't need to, but I feel better if I do. I usually check him a couple hours after his last insulin (2-3 hours after bedtime?) and usually once more although lately he's been nowhere near low so I've been skipping it every once in a while. :)
I also read your question about going high after exercise... Check this link
http://diabetesnewshound.com/type1/strenuous-exercise/
I always give my son extra carbs when exercising/playing hard. He often goes high after, but later will even out. If I don't give the extra carbs he goes very low.
Glad you found this site :)

Comment by Laura on July 10, 2010 at 8:18am

I don't think you should stop testing. And I think you asking this question says that you don't think you should either. You should trust your instincts. I get up at least once per night and usually more to test my daughter. I've been doing it for the past 2 1/2 years since her diagnosis. And there have been a number of occasions where she would have gone dangerously low if I hadn't. There are times when she might have died if I hadn't tested her. It doesn't happen all the time, occasionally her BG does unpredictable things. But her endo still tells me that I don't have to test at night either.

You don't hear a lot about deaths from low blood sugar at night because it's nearly impossible to tell if someone died that way. Google "dead in bed syndrome" Scary stuff.

Comment by amelia's dad on July 10, 2010 at 6:02am

Ok, just went to a link for sleeping with a minimed pump and some of the posts about dipping in night scared the crap out of me. The doc said we can stop testing her at night. She said that amelia is in the "honeymoon phase" I would welcome opinions about this.

Comment by amelia's dad on July 10, 2010 at 6:00am

Left the lantus out last night!! It expires in 3 days anyways. I have a lot of questions and if anyone would like to give me the lowdown I will welcome it even criticism. check out my wall and add us as a friend!!

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