parents of kids with Type 1

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parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1357
Latest Activity: 22 minutes ago

Tudiabetes resources related to parenting kids with diabetes

Diabetes Forum

Life Insurance for T1D Child?

Started by aimeeh2oski. Last reply by aimeeh2oski yesterday. 4 Replies

Abandoning Responsibility

Started by Laura. Last reply by Laura Jan 9. 8 Replies

Humana in Texas

Started by dalajosa Dec 30, 2014. 0 Replies

Help with Huge Lows with little insulin

Started by rjhufnagel. Last reply by sarah Dec 17, 2014. 11 Replies

Pet peeves

Started by 1eyednurseguy. Last reply by kcolbertandco Dec 16, 2014. 30 Replies

Sleepover at 8 years old?

Started by Jennifer. Last reply by cass1972 Dec 15, 2014. 7 Replies

Disagreement over CGM

Started by Kate. Last reply by Kate Dec 9, 2014. 7 Replies

Bent cannula

Started by macfrizz. Last reply by Sarah Howard Dec 1, 2014. 7 Replies

Time for the Ophthalmologist

Started by aimeeh2oski. Last reply by aimeeh2oski Nov 17, 2014. 5 Replies

Ketones

Started by cass1972. Last reply by Elizabeth Nov 16, 2014. 7 Replies

New pump user - uncomfortable site

Started by macfrizz. Last reply by Jo Momma Nov 15, 2014. 16 Replies

Refusal for Field Trip

Started by Kelly. Last reply by KalebMommy Nov 13, 2014. 30 Replies

JDRF’s Children’s Congress

Started by Emily Coles Nov 10, 2014. 0 Replies

Grace's Mom

Started by kcolbertandco. Last reply by Elizabeth Nov 10, 2014. 2 Replies

Problems with Blood Sugar testing

Started by Jennifer. Last reply by Jan Nov 6, 2014. 10 Replies

Tips for talking to kindergartners about T1D

Started by aimeeh2oski. Last reply by Horizon22 Oct 31, 2014. 3 Replies

Curious Kids

Started by Leslie. Last reply by Leslie Oct 31, 2014. 5 Replies

Trouble with School Athletics

Started by ahe05a. Last reply by Mountain Oct 30, 2014. 4 Replies

Preteen who refuse to help manage Type 1 Diabetes

Started by Kennedysmom. Last reply by Kennedysmom Oct 24, 2014. 5 Replies

Comment Wall

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Comment by Jillx4 on November 28, 2011 at 4:58am
Your son's case is very unusual. My daughter was diagnosed in 10/10 with a blood sugar of 669, was admitted to Childrens immediately and has been on insulin ever since. She is now on the pump. The doctor we go to told us when to make all changes initially, but now we make most of the decisions on our own. We can still fax her logs over if we need help with something. Her pediatrician is very helpful and I can always get help when I need it. It sounds like your doctor could be more involved.
Comment by CC on November 27, 2011 at 9:18pm

Hello all I am new to the site, my 6 yr old son was dx in 12/09, honeymooned for a year, started humalog 02/2011 and now 11/11 added lantus. He takes 1 unit of lantus and 1 unit of humalog meal times. His A1c is always below 6.5 except at 7.7 when he was diagnosed and again when the honeymoon ended :( I want his A1c to be 5.5- 6 consistently. Nevertheless, I am always interested in finding a better MD and Endo team. I feel like I am the one making the decisions of when to add more insulin, how much and what type. The current MD says you are doing good his A1c is low and says my son's case is unusual and see you in 3 months. Should the MD be doing more or is this standard protocol. I feel so not proactive in my son's care and I feel the MD is not either...perhaps I am expecting to much. Any suggestions on Ped. Endo in Dallas or perhaps realistic expectations of the MD's role

Comment by jlin1024 on November 17, 2011 at 11:54am

Hello! I am a parent of a son who is T1. He was diagnosed at 16 months. He is now 20 years old. I am also T1.

Comment by Christina Elizabeth Rodriguez on November 10, 2011 at 9:57am

Hi everyone! I'm actually not a parent but I'm looking for one. I have Type 1 and I'm also the editor of Extra Bilingual Newspaper in Chicago. I'm looking for a parent to talk about their experiences having a child with Type 1. I would love to find a Latino parent because that is our audience.

I think it's super important to address this issue, since there isn't a particular culture or race that has Type 1. I want parents to know what they have to do and how to cope with knowing their child has diabetes. Most of all, I want parents to learn that they shouldn't blame themselves like my mother did. Anyone want to talk to one of my freelance writers? Please email me at christina@extranews.net. Any help would be appreciated.

Comment by Ruby's mom on November 6, 2011 at 6:59pm
My daughter was diagnosed extremely early. I would call you regular doctor ASAP or even the on call number to see if your normal doctor is available. Hope all ends up well.
Comment by Jen on November 6, 2011 at 6:08pm
I am not keeping this doctor. We just had to go to him because of the short notice. I certainly will not recomend him to anyone.
Comment by Jen on November 6, 2011 at 4:47pm
The two hour was the result of the glucose tolerance test. The nurse told us the numbers. The doctor just never gave us a diagnoses. It was a fluke that I checked her sugars at home. When the home reading came back at 386, believe me I had he wash her hands, I cleaned the machine surfaces and checked everyone else in the household. I am thinking she is just starting and we just happened to catch it. I wish the doctor would have called back. I keep hoping it is something else.
Comment by Sarah Howard on November 6, 2011 at 4:38pm
Did you wash her finger before testing? could be something was on her finger. but other than that, I don't know of anything... good luck...
Comment by Jen on November 6, 2011 at 4:25pm
Old to diabetes, but all new with it being my daughter. Im not even sure of the correct diagnoses as the doctor left me waiting ALL weekend. But with a two hour of 356 what else can it be?
Comment by Shant on November 4, 2011 at 6:19pm
That was what I was thinking...actually I thought strep since he has had it four times this year. After the tests were negative, I was stumped. I guess I will keep waiting and see what he comes down with. I guess if there is a good side to diabetes, it is that we know before the illness hits. Never thought I would be able to say that and smile. He doesn't sneak candy often, but this time of year I don't think any of them can resist. I just reinforce the fact that he doesn't need to sneak we can incorporate it in his meal...have to reinforce it every year though!!!!! Thanks for reinforcing my thoughts.
 

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From the Diabetes Hands Foundation blog...

Spare A Rose, Save A Child for Valentines Day

Here’s a new way to celebrate Valentines Day: Buy a dozen roses, spare the cost of one (about $5) and donate to IDF’s Life for a Child program. By doing this, you will help children in need of life saving insulin. Those of Read on! →

Diabetes Hands Foundation Announces Interim Executive Director as Manny Hernandez, Co-Founder and President, Steps Down

Read the Spanish version of the announcement. BERKELEY, CA: January 15, 2015 – Manny Hernandez, President and Co-Founder of the Diabetes Hands Foundation (DHF), has announced his decision to step down as President of the organization. “Diabetes Hands Foundation has Read on! →

Diabetes Hands Foundation Team

DHF TEAM

Melissa Lee
(Interim Executive Director, has type 1)
Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Director of Operations and Development, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator

Brian (bsc) (has type 2)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)

 

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