parents of kids with Type 1

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parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1336
Latest Activity: 18 hours ago

Tudiabetes resources related to parenting kids with diabetes

Diabetes Forum

Medical I.D's

Started by Jennifer. Last reply by Jennifer Oct 1. 14 Replies

High And Low Blood Sugar

Started by Jennifer. Last reply by Jennifer Sep 22. 10 Replies

She's only 2 y/o

Started by nurivl. Last reply by swisschocolate Sep 22. 4 Replies

Ketones

Started by MisMelissa. Last reply by crys Sep 16. 3 Replies

Trouble with School Athletics

Started by ahe05a. Last reply by rgcainmd Sep 14. 3 Replies

How to answer the "why me?" question

Started by aimeeh2oski. Last reply by rgcainmd Sep 14. 3 Replies

Night Scout

Started by Jennifer. Last reply by Lorraine Sep 13. 3 Replies

Snacks for 5k walk

Started by SEM2REM. Last reply by Jacob's mom Aug 19. 1 Reply

VERY PICKY EATER

Started by crys. Last reply by Elizabeth Jul 27. 3 Replies

High Lipids in teen

Started by Linda Rabe-Frady. Last reply by Elizabeth Jul 21. 3 Replies

Help with getting a type 1 kid gain weight

Started by jakesmom427. Last reply by Ethan10183 Jul 20. 5 Replies

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Comment by Lorraine on August 26, 2011 at 5:18am
I think the ADA takes the position of asking for everything you want (that is reasonable of course) and let them tell you "no". As long as you present it in a reasonable way, I still think you should be able to ask for whatever you think is necessary and negotiate from there.
Comment by Jessica05 on August 26, 2011 at 4:43am
Hi Lorraine,
No, they don't get any funding from the state. They are very willing to work with me, but I guess because they are private, I am a little more hesitant to make too many demands. Some of the 504plans are very detailed and need to be, but since I will be her nurse, I am wondering if I should cut out some of the details...
Comment by BlessedMom on August 26, 2011 at 4:41am
Jessica05,
We do have a nurse at my daughter's school but I have had to go up and sit for a few hours when she had to take her daughter to the Dr. My daughter also has a CGM. I can just tell you what I do in hopes that it will help you prepare for the school day.
First I plan her lunch the night before and write down the carbs.
Second I stick with a breakfast I know will not send her BS out of control during the day. (She gets frustrated about this sometimes but it cuts back on the amount of instruction time she loses going to the nurse)
Now, since YOU will be her nurse, maybe you can get a cell phone line designated just for her care. When the school needs to contact you they can call that line.
I too am only 5 minutes away and this has been helpful.
Does your daughter know how to check her own blood sugar? I know she has a CGM but if she knows how to check her own BS then you could advise over the phone instead of having to go to the school all the time.
The first week you may want to just take a book and stay up there for a bit until you both get an idea of how most of her days will go.
My daughter has a low box in the Nurses office, her classroom, the gym and in her backpack. This is helpful to know she has what she needs close by.
Another good idea is to be sure ALL of your daughters teachers are educated on the importance of her BS and not hinder her if she has to get up quickly to get a juice.
My daughter had a teacher that did not realize the danger of a low BS (My daughter also has photosensitive epilepsy and usually has seizures with her lows) and told her to wait to go see the nurse because they were in the middle of an assignment :0
Our nurse drew up a plan of procedures to follow for all caregivers/teachers to read over and sign stating they understand what needs to be done in the event of an extreme low or high.
I will try to scan it and post it so you can see it or I can send you a private message. with the info. Good luck!! :)
Comment by Lorraine on August 26, 2011 at 4:28am
Hi Jessica - Does the school get any type of funding from the public school district - like for buses or perhaps a subsidy for the cafeteria?
Comment by Jessica05 on August 25, 2011 at 9:11pm
Hi, Everyone~
I am working on my daughter's D-plan for school in a few weeks. She will be attending a private school without a nurse. I will be her Nurse, checking her at snack time, lunchtime and for any emergencies. We are 5 minutes away and she wears a CGM, so I am hoping we can pull this off.
My question is: I'm making up a plan of action based on 504 template, much of which the principal has already agreed to in our dialogue back and forth. I like the action plan in that it spells everything out in every situation, but I am wondering if it's too much info considering I will be responsible for her care and all. I'm not sure they would have to sign it given they're a private school and all.
Does anyone have experience with this and private schools and if so, could you give me any words of wisdom? Thanks!
Comment by Nancy Hallock on August 20, 2011 at 1:30pm
I am having serious troubles with my 10 year old son's eating and blood sugar numbers. He was diagnosed at 3 which at the time was a lot easier than now. Especially when he's at home, he wanders to the kitchen and eats things and "forgets" to give himself insulin. I literally have gotten to the point where I feel I need to lock the refrigerator and cabinets at home or follow him around every minute of the day. He is not taking his diabetes seriously - the endocrinologist has spoken to him several times and it seems like he's blatantly rebelling. He has mentioned that he hates having diabetes and is embarrassed. I can't find any good support groups where I live for his age group so he can discuss these issues and be motivated to take better care of himself. Any suggestions besides locking up the food?
Comment by Suzanne on August 17, 2011 at 10:47am
I have been very happy using "label once" labels on rubbermaid containers both for marking lunches with carb counts and labeling leftovers. You use permanent markers and it comes with a special eraser. They go through the dishwasher, and have lasted for years. I think I got them at the Container Store.
Comment by dawn100670 on August 17, 2011 at 7:33am
I haven't seen the labels, but I just write on the cover with permanent marker, and wash it off with a "Magic Eraser" type sponge. As for the notepads, could you do something on your computer and just copy the sheets? My son is in a very small parochial school, so we send a slip (1/3 of a sheet of paper, made on a spreadsheet program) for his lunch order, which tells how many carbs for a specific serving size. That way, Jonathon can still pick and choose what he wants to eat at lunch time, and bolus for what he wants. I've also done cards that I laminated that tell how to test his blood, and what he should do for a correction, depending on the bg level. I just update every year and distribute new info.
Comment by stretched2thin on August 17, 2011 at 6:15am
Anyone ever see these labels that you could write in the carbs and stick them on left overs and stick the to rubber maids and stuff? And also caregiver notepads of these preprinted sheets for schools and sitters and what not?
Comment by daneenm on August 9, 2011 at 9:44am
Over the nearly 4 years my son has been on OmniPod, we have had quite a low problem rate. Yes, there have been some, and it is frustrating to have a pod fail right after it has been changed, but that is not completely unique to OmniPod. I think you have to decide what works for you and go with it. There are pros and cons to every choice.
 

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Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
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DanP (has Type 1)

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