parents of kids with Type 1


parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1297
Latest Activity: yesterday

Tudiabetes resources related to parenting kids with diabetes

Diabetes Forum

Help with getting a type 1 kid gain weight

Started by jakesmom427. Last reply by SweetBaby Mar 17. 3 Replies


Started by jdyoung. Last reply by Jo Momma Mar 4. 6 Replies

Meals schedule

Started by yousof. Last reply by Jeje9272 Mar 3. 5 Replies

Free (uncovered) carbs??

Started by yousof. Last reply by Jeje9272 Mar 3. 2 Replies

Pump vs Pens

Started by Melissa. Last reply by Eric Feb 26. 6 Replies

Private School Obligations/Rules in Florida?

Started by PhDiabetes. Last reply by PhDiabetes Feb 20. 7 Replies

Free Food Ideas

Started by Leigh. Last reply by Jessie Feb 19. 12 Replies

DKA and A1C

Started by AlysonCheatham. Last reply by AlysonCheatham Feb 19. 5 Replies

Stomach Issues with T1D Teen

Started by Chris. Last reply by Elizabeth Feb 19. 7 Replies

Comment Wall


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Comment by Jerodsmom on January 5, 2011 at 6:02pm
WYOmom, we experience the same thing and can call our doctors/nurse any time if we have questions or concerns. I booked our next 3 appointments at our last appointment for the year, just so I didnt face this type of problem. I think the lack of endos plus sadly how many kids are being diagnosed is overloading their schedules. Thats awful how far you have to drive. We would be in the same boat if we didnt care for our current doctors. They are far and few unless we would be willing for our son to see an adult endo, which even at age 12 I don't think that would be a good decision on our part.
Comment by MelissaBL on January 5, 2011 at 3:21pm
@Jillx4, that's actually been the case with every endo I've ever seen in Dallas. Mine is booked so far out that I sometimes make my next two appointments at once just to get in. And I was a patient at Children's from 1990-1998 and it was exactly the same back then. =/
Comment by Jerodsmom on January 5, 2011 at 2:55pm
Are these juvenile endocrinologists? Not sure how a medical practice earns the top 10 rating, but when our doctor diagnosed my son, she sent us to a particular hospital because she wanted us to deal with a certain doctor. I couldn't tell you if his practice is in the top 10 but we deal with the same thing regarding appointments and it is because there is a lack of juvenile endos. Had we chose just to see an endocrinologist, then it wouldn't be such a problem getting appointments.
Comment by Schmaps on January 5, 2011 at 2:37pm
I'm curious if you've tried "walk ins" with these doctors. Sometimes there are cancellations and although you might end up waiting all day if you're sitting right there they'll tend to try to fit you in at some point. Just bring a LOT of books / work to do while waiting. Nothing like a squeaky wheel sitting right in front of you...
Comment by estpeters on January 5, 2011 at 2:29pm
To Jillx4 - YES! YES! & YES! We see an endo doc out of St. Louis Children's Hospital which is suppose to be in the top ten, but appointments are booked up 6 months in advance. My daughter is suppose to get seen in Jan but her doctor quit and her new assigned doc (who we met & LOVE!) cannot see her until April. I told them and I keep wondering myself if going to the Best of the Best is really worth it when you can't be seen.
Comment by Jillx4 on January 5, 2011 at 2:23pm
I'm really getting frustrated with my daughter's Endocrinologist who works out of Children's Hospital in Dallas. I called today to get an appointment to switch her over to a different insulin, and they said the earliest appointment is 2 months away. Likewise, I called a while back to schedule her appointment (which was 6 months away) and they told me that the doctor was already booked up for that month. I've never dealt with a doctor who was so busy that they could not see their patients on a timely basis. Do any of you have a problem with your child's doctor like this?
Comment by Tracy K on January 5, 2011 at 11:30am
this is a great little cartoon on the stupid things people sometimes say to us:)
Comment by Cheryl on December 17, 2010 at 1:33pm

Wow, never experienced that, but I'd suggest engaging the control lock each night to be safe.

Comment by Lori on December 17, 2010 at 5:53am

Hi everyone! I'm Lori, my Daughter is 10 almost 11.  She was diagnosed in May 2008. has been on the pump for 2 years which has been a blessing.  I'm hoping to make friends with some other parents who understand what I go through on a daily basis.  Can't wait to get to know everyone!! :)

Comment by mom2atype1 on December 13, 2010 at 12:18pm

Hi All!!! Im Elizabeth, I have a son named Aaris who is 4yrs old... diagnosed at 12 months he has been pumping since 18 months... hope to get to know all you :-)


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From the Diabetes Hands Foundation blog...

FDA Docket Extended! We Need You.

If you are new to diabetes advocacy in the traditional sense of the word, you may be thinking, “What the heck is a docket!?” I certainly was the first twenty times I heard it (yes it took that long). For Read on! →

An Open Letter from @AskManny, @DiabetesHF to @NYTRosenthal, @NYTimes

Dear Ms. Rosenthal: I am a person living with type 1 diabetes since the age of 30. I am also the President and co-Founder of the Diabetes Hands Foundation, a nonprofit aimed at connecting and mobilizing the diabetes community. Seeing Read on! →

Diabetes Hands Foundation Team


Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Heather Gabel
(Administrative and Programs Assistant, has type 1)


Lead Administrator
Bradford (has type 1)

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)


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