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Comment by Allie on April 15, 2010 at 4:06pm

Want to see a cute video? My 7 year old with type 1 made a video for a contest by Medtronic. Go to youtube and watch "Jenna's video: Learning Fun with type 1", then sign in with youtube and click "I like"! Voting ends April 30th. Thanks for your support!!

Comment by Tracy K on April 13, 2010 at 9:57am

we have been DENIED the pump also for the same reason- not necessary. But when you have to give a 5 year old anywhere from 4-8 needles everyday and know you will have to do it for the rest of your life, I DISAGREE! We pay into these insurance companies, but when we need to use them, they don't want to pay out....

Comment by MelissaBL on March 22, 2010 at 11:39am

Mischele, I think I'd start by fighting the claim that the pump isn't medically necessary. There is enough support out there for pump usage for type 1s that insurers usually cave to an appeal on that front and cover the pump at your durable medical percentage. That doesn't solve the problem of your deductible, but it might fix the denial.

You might also try approaching the pump company for the pump in which you're interested. They have great go-to people for pushing the insurers around.

Another thought is that, if your son has had continuous coverage, there is no reason your current insurer should deny him on the basis of his pre-existing condition (regardless of protections from yesterday's new legislation) if you were to reapply. I don't understand why they are claiming you might be rejected for changing the policy. I would wait until it's time for reenrollment for 2011, opt for a different plan with a different deductible, and then start pursuing the pump.

Comment by sheryl lauria on March 20, 2010 at 8:24pm

Hi Mischele, when my son was diagnosed a year ago, my husband had just lost his job so we qualified for Healthy Families, I think that is just a California insurance that helps low income families (just the kids) All of his diabetes supplies and doctor visits are covered by California Childrens Services. I guess we lucked out in this way, however my husband is still out of a perm. job and we lost our house to forclosure.

Comment by MsShelly on March 20, 2010 at 2:37pm

I could use some advice, my son is type 1 just over a year. We had and still do a $5,000.00 deductable insurance plan thinking he was perfectly healthy and he was until the diagnosis. This insurance was about all we could afford but thought we should have it just in case something serious happened. The plan does have a $15.00 co pay on prescriptions and we have been getting needles and lancets at no charge. Now we would like to purchase a pump, we have to meet our deductable, then our infusion sets etc would be covered for the remainder of the year, then in 2011 we will have to start over. I spoke to someone with Anthem about getting a lower decuctable and she said we would have to re-appy and might be DENIED. Now insurance has DENIED the pump because it isn't medically necessary, we are going to appeal. Financially we qualify for our states children's health insurance program but we were DENIED because we already had insurance. My question is, is there anything else out there how do other people do it, is there any help for us. We have always tried to do the right thing by keeping insurance and saving for retirement but it seems you have to spend your retirement savings and your home to afford to help your child. I am pretty angry, it seems you either have to be rich or have nothing and get everything given to you. Any suggestions would be appreciated. Thanks!

Comment by Joseph Boyd on March 16, 2010 at 7:24am

April,

First of all, welcome to the group. I wish you didn't have to be here, but this group is an invaluable resource and some wonderful people who have been through what you are going through now.

We haven't undergone any trials (my son was 3 at diagnosis) and none were suggested at the time, so I can't be of much help here, but just wanted to say Hi, and welcome you to the group. How old is your son? Any other history of Type 1 in your family?

Comment by April Durham on March 15, 2010 at 9:49pm

Hi
My name is April and our son was diagnosed three weeks ago today after developing serious DKA. We are in the San Francisco Bay area and are considering a clinical trial at UCSF that uses a drug called thymoglobulin to help preserve the remaining pancreatic islet cells that produce insulin. The drug has been used for people who have an organ transplant to prevent the body from rejecting the new organ.

We are still gathering information and are very early in the process but I am wondering if any of you have thoughts on the trial. I am sure many of you have managed this disease for years and I am interested in your input.

We have our sons best interest and future in mind and want the best chance for him, but are concerned about the consequences as well. He is fully involved in the decision making process.

Thanks for your time and consideration. We are relieved to find a place to learn, vent, grieve and laugh and share.

April

PS I posted this on the tudiabetes forum for Type 1 diabetics as well. I am really new to this and hope that is ok. Thanks.

Comment by Julie on February 19, 2010 at 6:04am

Hello Scott.

Welcome to this group. :) My daughter was diagnosed at age 7... I can't even begin to imagine 2. I am also dedicated to contributing towards the cure, and have in fact signed up with a fantastic program out of Boston, from Harvard Medical School, who is about to start phase two of human clinical trials. No surgeries, no immune suppressing drugs...
http://www.faustmanlab.org

I have decided to write a book, in an effort to show realistically how difficult things got for us, not just because of diabetes, but life in general, and how we have managed to turn our life around completely (mine in particular). They say 'from contrast comes clarity'... and I can honestly say now that our life is much richer and deeper in meaning than it ever was before. (Doesn't mean we would turn down the cure however :))

I have checked out your blog and will follow you on twitter. Who better than parents to change the world for our children! Quantum Physics says all we need is the intention.

I look forward to following your progress, and invite you also to my web site and facebook fan page. My goal is to have my book ready to publish within the year.

www.acureforemma.com

http://www.facebook.com/pages/A-Cure-for-Emma-by-Julie-Colvin/23504...

http://twitter.com/juliecolvin

Many Blessings to you and your family.
Julie

Comment by Scott on February 18, 2010 at 8:10pm

Hi everyone! I'm new here but I've been blogging about being a parent of a type I child since August 16, 2007 on my site www.ardensday.com - no ads, no pay, just me trying to help other people that find themselves trying to care for a small child with type I. My daughter Arden was diagnosed just after her 2nd birthday when she weighed just 17 pounds and three and a half years later we are going strong!

Anyway, I just started to blog about the process of putting Arden's 504 plan in place and I wanted to share it here in case someone could learn from my journey. The rest of the site is an honest though not pessimistic look into the day of a diabetic child.

Our site has an OmniPod section, Daddy's Blog, Back to School, videos, JDRF walks and much more. If you are interested, the following links will get you where you want to go. If I didn't post this properly please let me know.

Best,
Scott

www.ardensday.com and/or http://twitter.com/ArdensDay

Comment by Julie on February 18, 2010 at 3:54pm

Nice to meet you Trisha and Besim :)

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