parents of kids with Type 1

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parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1336
Latest Activity: 15 hours ago

Tudiabetes resources related to parenting kids with diabetes

Diabetes Forum

Medical I.D's

Started by Jennifer. Last reply by Jennifer Oct 1. 14 Replies

High And Low Blood Sugar

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She's only 2 y/o

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Ketones

Started by MisMelissa. Last reply by crys Sep 16. 3 Replies

Trouble with School Athletics

Started by ahe05a. Last reply by rgcainmd Sep 14. 3 Replies

How to answer the "why me?" question

Started by aimeeh2oski. Last reply by rgcainmd Sep 14. 3 Replies

Night Scout

Started by Jennifer. Last reply by Lorraine Sep 13. 3 Replies

Snacks for 5k walk

Started by SEM2REM. Last reply by Jacob's mom Aug 19. 1 Reply

VERY PICKY EATER

Started by crys. Last reply by Elizabeth Jul 27. 3 Replies

High Lipids in teen

Started by Linda Rabe-Frady. Last reply by Elizabeth Jul 21. 3 Replies

Help with getting a type 1 kid gain weight

Started by jakesmom427. Last reply by Ethan10183 Jul 20. 5 Replies

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Comment by Jessica05 on July 14, 2011 at 7:20am
Thank you Hockey Mom. I will check into the smaller butterfly needle, I'm not sure what they are currently using, but I will ask them.

I am so glad your son has found a group of friends who accept him. I want to do family counseling, and our Endo recommended it, but it's weekly, and my husband travels quite a bit internationally. However, I am looking into it and think it will be beneficial for her and her older sister...for all of us!

Take care & blessings to your family. Jessica
Comment by Hockey Mom on July 13, 2011 at 3:00pm
Jessica,

My son was diagnosed with Low Thyroid (which is also autoimmune) in the beginning of the third grade (around 7 - 8 y old). He had to do lots of lab work weekly because they were trying to determine if he had mono or another virus or if his thyroid had really failed (which is rare at that age). He literally had to be strapped down after a few times until we went to another doctor for a consult in West Texas. His tech was a medical student intern that also worked rotation in the Children's Emergency and showed Greg the trick - a smaller butterfly needle. After that labs were never as big of a problem although he always wanted to drive across Texas to let Trevor draw his blood or fly Trevor to Dallas. You may be able to get labs done at the Children's Hospital and they may be better equipped for children.

It is hard socially. My son was already shy but he did not go out for literally a year after he was diagnosed at 16. We were really worried but this year he seems to have found a small group of friends that accept him diabetes and all. Your daughter may benefit from counseling - my son has refused it so far but our CDE recommends it for all families with diabetes. It is hard to be different at any age.
Comment by Jessica05 on July 13, 2011 at 8:29am
Hi, Everyone!
I have 2 questions:
1) Does your child have a very hard time with Labs? EA has 2 chronic conditions, Type 1 included, so she has to go through labs every 3 months, with at least 5-6 vials of blood taken. She has been through a lot of medical procedures which I think have been hard on her emotionally, so she does not take kindly to her labs. This past time, I had to hold her down while she screamed and kicked and the techs who were NOT kid-friendly just looked on. It is so stressful. I told her that she cannot do that next time, that I understand it's hard, but it's something we have to do. Does anyone have kids who respond like this? Any suggestions for how to handle this? I almost feel like advocating for a special pediatric lab for all the kids with chronic stuff!

2) My daughter has had type 1 since 15 mo. and is now 5 almost 6. I feel her diabetes has affected her emotionally and socially. She doesn't interact with most other kids (only her sister & her best buddy) and doesn't participate in her classes (aside from Gymnastics/Dance class) She was doing better before, but it seems recently she doesn't want to do anything. Last night in children's church, she refused to sit down for the entire 2 hour class. If she didn't have Diabetes, I would just think she's being stubborn, but because I don't know what is happening inside her heart/mind, I feel her behavior may be related.

Has anyone else had situations like this? Any suggestions?
Thanks, Jessica
Comment by daneenm on June 27, 2011 at 11:31am
We were very excited about it initially. However, in recent years, I understand that many of their results have been called into question in the scientific community (due to their approaches their studies). So, I'm not actually sure how excited to be.
Comment by Hockey Mom on June 27, 2011 at 8:09am
Thanks for posting this. It sounds promising. I also did not know about the Iacoco Foundation and their research grants.
Comment by MI_Dad on June 27, 2011 at 6:50am
Anyone been following this development?

BCG Vaccine - Promising T1 Results
Comment by Kim3 on June 16, 2011 at 2:39pm
Hi Everyone. New to tudiabetes...so please add me:) My son is 8yrs old was dx 9/18/08. I also have identical twins age 4 ND. Nice to meet you all!:)

Kim
Comment by Cyn on May 29, 2011 at 9:56am
Mignonne- I wonder if a couple of the more influential kids in the class (with their parents permission) could be assigned to be her "guardian angels"? The teacher can't have her eyes everywhere at once so it's important that your daughters classmates recognize the signs of a potential diabetic crisis and know what to do. While having an important job, these "angels" would be learning about Alexis' disease and perhaps become her advocates and share what they've learned with the other classmates.
Comment by Elizabeth on May 28, 2011 at 5:36pm
The class clearly didn't work! So hold another class. Get a CDE in there who is used to working with kids. Agree that having her meet other kids with T1D to realize that the problem is the other childrens' and not hers might help.
Comment by daneenm on May 28, 2011 at 3:32pm
Wow, that is terrible that the children at school are not being kind. Can't see how old you daughter is, but in your pic, she looks quite young. We always read the book Taking Diabetes to School to his classes in K-3rd grades. It talks about just being a regular kid..not contagious, not who can't eat anything, etc. Don't know what your class involved, but this is very approachable and is written in the child's words. Also, getting her involved in a playgroup with other children with T1D could also help.

Good luck.
 

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Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


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Brian (bsc) (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)

 

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