parents of kids with Type 1

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parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1345
Latest Activity: Nov 19

Tudiabetes resources related to parenting kids with diabetes

Diabetes Forum

Time for the Ophthalmologist

Started by aimeeh2oski. Last reply by aimeeh2oski Nov 17. 5 Replies

Pet peeves

Started by 1eyednurseguy. Last reply by Linda G Nov 16. 29 Replies

Ketones

Started by cass1972. Last reply by Elizabeth Nov 16. 7 Replies

New pump user - uncomfortable site

Started by macfrizz. Last reply by Jo Momma Nov 15. 16 Replies

Refusal for Field Trip

Started by Kelly. Last reply by KalebMommy Nov 13. 30 Replies

JDRF’s Children’s Congress

Started by Emily Coles Nov 10. 0 Replies

Grace's Mom

Started by kcolbertandco. Last reply by Elizabeth Nov 10. 2 Replies

Tips for talking to kindergartners about T1D

Started by aimeeh2oski. Last reply by Horizon22 Oct 31. 3 Replies

Curious Kids

Started by Leslie. Last reply by Leslie Oct 31. 5 Replies

Trouble with School Athletics

Started by ahe05a. Last reply by Mountain Oct 30. 4 Replies

Medical I.D's

Started by Jennifer. Last reply by Jennifer Oct 1. 14 Replies

High And Low Blood Sugar

Started by Jennifer. Last reply by Jennifer Sep 22. 10 Replies

She's only 2 y/o

Started by nurivl. Last reply by swisschocolate Sep 22. 4 Replies

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Comment by Natasha Bowlds on July 20, 2011 at 8:36am
When I found out about Emla, and realized I could have had it on all my kids any time blood was drawn I was so upset it was never suggested! And now I insist on on. Yes, we put it on both arms, and then cover it with Tegaderm patches (made for IVs I think, and it's a clear piece of tape that is only sticky on the edges.)
Comment by Jessica05 on July 20, 2011 at 7:54am
Natasha, they have never used numbing cream at any of the labs we've gone to. Question: since she's little, I can never be sure which arm they will use for the blood draw. Do you put emla on both arms?
I also find it matters who does the blood draw. I found one team in the city who were kid-friendly and EA did better with them. But, it's a big hike with at least 3 hours round trip to do the testing, so I've been finding labs that are local. Maybe it's worth it to go back to the lab in the city. I think there should be a lab that specializes in peds in the city. One that's filled with kid-friendly technicians, nurses, bubbles, balloons, kids books, DVDs and lots and lots of stickers when you're done. :) Anyone agree? I would advocate for one, but have no idea how to go about it nor do I have a lot of extra time.
I am going to keep my eye on the family counseling and try to find the time for it...I think it would help and be good for everyone. In the meantime, we're going to our first Diabetic family get-away in September and can't wait!!! Anyone else going?
Comment by sarhow on July 20, 2011 at 5:57am
Yes, we use Emla numbing cream, and it's like magic. His labs have gone from epic to easy. We put it on when we get to the doctor's office for the labs. Our doctor told us not to use it regularly at home however, e.g., for pump site/dexcom changes. But I can't remember why.
Comment by Natasha Bowlds on July 19, 2011 at 11:38am
Do they use any sort of numbing cream? My son insists on Emla, and we use it for his Dexcom insertion at home. It requires a 45 minute wait, so now since we have the prescription at home we put it on ourselves so he doesn't have to give blood before it's fully taken effect.
I've also found that it matters who draws the blood and I insist on a certain nurse when my others get blood drawn at our ped office. At the endo I haven't found anyone with the "magic touch" though so I don't bother requesting anyone. If I find that person I'll definitely start insisting though!
My son was diagnosed with anxiety 2 years before diabetes (although he had high blood sugar then too) and we did counseling. It was a hike and it wasn't convenient - he was six at the time. I am so glad we did though - I think it probably helped me and my husband parent him better - more than it helped him. But in the long run it's the same thing. : )
Comment by Jessica05 on July 14, 2011 at 7:20am
Thank you Hockey Mom. I will check into the smaller butterfly needle, I'm not sure what they are currently using, but I will ask them.

I am so glad your son has found a group of friends who accept him. I want to do family counseling, and our Endo recommended it, but it's weekly, and my husband travels quite a bit internationally. However, I am looking into it and think it will be beneficial for her and her older sister...for all of us!

Take care & blessings to your family. Jessica
Comment by Hockey Mom on July 13, 2011 at 3:00pm
Jessica,

My son was diagnosed with Low Thyroid (which is also autoimmune) in the beginning of the third grade (around 7 - 8 y old). He had to do lots of lab work weekly because they were trying to determine if he had mono or another virus or if his thyroid had really failed (which is rare at that age). He literally had to be strapped down after a few times until we went to another doctor for a consult in West Texas. His tech was a medical student intern that also worked rotation in the Children's Emergency and showed Greg the trick - a smaller butterfly needle. After that labs were never as big of a problem although he always wanted to drive across Texas to let Trevor draw his blood or fly Trevor to Dallas. You may be able to get labs done at the Children's Hospital and they may be better equipped for children.

It is hard socially. My son was already shy but he did not go out for literally a year after he was diagnosed at 16. We were really worried but this year he seems to have found a small group of friends that accept him diabetes and all. Your daughter may benefit from counseling - my son has refused it so far but our CDE recommends it for all families with diabetes. It is hard to be different at any age.
Comment by Jessica05 on July 13, 2011 at 8:29am
Hi, Everyone!
I have 2 questions:
1) Does your child have a very hard time with Labs? EA has 2 chronic conditions, Type 1 included, so she has to go through labs every 3 months, with at least 5-6 vials of blood taken. She has been through a lot of medical procedures which I think have been hard on her emotionally, so she does not take kindly to her labs. This past time, I had to hold her down while she screamed and kicked and the techs who were NOT kid-friendly just looked on. It is so stressful. I told her that she cannot do that next time, that I understand it's hard, but it's something we have to do. Does anyone have kids who respond like this? Any suggestions for how to handle this? I almost feel like advocating for a special pediatric lab for all the kids with chronic stuff!

2) My daughter has had type 1 since 15 mo. and is now 5 almost 6. I feel her diabetes has affected her emotionally and socially. She doesn't interact with most other kids (only her sister & her best buddy) and doesn't participate in her classes (aside from Gymnastics/Dance class) She was doing better before, but it seems recently she doesn't want to do anything. Last night in children's church, she refused to sit down for the entire 2 hour class. If she didn't have Diabetes, I would just think she's being stubborn, but because I don't know what is happening inside her heart/mind, I feel her behavior may be related.

Has anyone else had situations like this? Any suggestions?
Thanks, Jessica
Comment by daneenm on June 27, 2011 at 11:31am
We were very excited about it initially. However, in recent years, I understand that many of their results have been called into question in the scientific community (due to their approaches their studies). So, I'm not actually sure how excited to be.
Comment by Hockey Mom on June 27, 2011 at 8:09am
Thanks for posting this. It sounds promising. I also did not know about the Iacoco Foundation and their research grants.
Comment by MI_Dad on June 27, 2011 at 6:50am
Anyone been following this development?

BCG Vaccine - Promising T1 Results
 

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Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

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Marie B (has type 1)

DanP (has Type 1)

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