parents of kids with Type 1


parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1369
Latest Activity: Mar 25

Tudiabetes resources related to parenting kids with diabetes

Diabetes Forum

Discussing T1D Complications with Children

Started by aimeeh2oski. Last reply by aimeeh2oski Mar 25. 4 Replies

Thyroid labs

Started by PhDiabetes. Last reply by PhDiabetes Mar 24. 7 Replies

Levemir & Lantus

Started by MisMelissa. Last reply by rgcainmd Mar 8. 4 Replies

Getting it off my chest

Started by Jennifer Feb 16. 0 Replies

Life Insurance for T1D Child?

Started by aimeeh2oski. Last reply by april Jan 30. 6 Replies

Abandoning Responsibility

Started by Laura. Last reply by Laura Jan 9. 8 Replies

Humana in Texas

Started by dalajosa Dec 30, 2014. 0 Replies

Help with Huge Lows with little insulin

Started by rjhufnagel. Last reply by sarah Dec 17, 2014. 11 Replies

Pet peeves

Started by 1eyednurseguy. Last reply by kcolbertandco Dec 16, 2014. 30 Replies

Sleepover at 8 years old?

Started by Jennifer. Last reply by cass1972 Dec 15, 2014. 7 Replies

Disagreement over CGM

Started by Kate. Last reply by Kate Dec 9, 2014. 7 Replies

Bent cannula

Started by macfrizz. Last reply by Sarah Howard Dec 1, 2014. 7 Replies

Time for the Ophthalmologist

Started by aimeeh2oski. Last reply by aimeeh2oski Nov 17, 2014. 5 Replies


Started by cass1972. Last reply by Elizabeth Nov 16, 2014. 7 Replies

New pump user - uncomfortable site

Started by macfrizz. Last reply by Jo Momma Nov 15, 2014. 16 Replies

Refusal for Field Trip

Started by Kelly. Last reply by KalebMommy Nov 13, 2014. 30 Replies

JDRF’s Children’s Congress

Started by Emily Coles Nov 10, 2014. 0 Replies

Grace's Mom

Started by kcolbertandco. Last reply by Elizabeth Nov 10, 2014. 2 Replies

Problems with Blood Sugar testing

Started by Jennifer. Last reply by Jan Nov 6, 2014. 10 Replies

Comment Wall


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Comment by Jessica05 on September 1, 2011 at 7:41pm
Elizabeth, that's a good idea, I'll check into that. Thanks so much for your input.

Jodil, Your experience sounds very, very tough. I can't imagine dealing with that school situation, I pray you get it resolved!

Take care everyone, I hope we all have a healthy, safe school year with out kiddos.
Comment by Jodil on September 1, 2011 at 4:38pm
Well, I live in Montreal, Quebec Canada and we have NO PROTOCOLS in place for kids with diabetes in school and the best his school will do is call 911 should he pass out!!! The principal does not want anyone to come into the school to educatre the teachers properly and does not want me there. Because my son requires a shot at lunch, he must come home from school everyday. There has even been times when he needed to check his sugar (meter is in the office with treatment for lows and paper for protocol in case of low) and he has been told by teachers to wait to check his sugar and that "swedish berries" his treatment for lows and for extra carbs for gym are not healthy. I have spoken with the school, nurse and my social worker and the principal is a b-tch and does not want anyone else running the show or telling her what to do. This year I am asking to meet with the teachers to try and enlist their help. VERY FRUSTRATING!!!! PS...Our diabetic nurse educator at the hospital is no better and tried once when my son was diagnosed to reach the school nurse (last November) and could not reach her and that was the end. I may ask for a new diabetic educator at the hospital. Thank goodness I myself am Type 1 diabetic so my son knows more than the average 9 year old (dx at 8 years old) but has grown up with me having it.
Comment by Elizabeth on September 1, 2011 at 4:25pm
Jessica, could your diabetes clinic or endocrinologist "loan" you a diabetes educator to give a seminar on recognizing and treating diabetes symptoms at your school? I think this might make your daughter's teachers and the school staff more comfortable that they know what to do, and the more comfortable they are, the more accommodations they might be willing to make. I know that the training class my daycare provider got was a HUGE step forward in her willingness to be the primary caregiver for Eric. And the NPs at my clinic have made it quite clear that they are more than willing to work with me to get the school up to speed once Eric starts attending kindergarten next year.

If the clinic doesn't have the capacity, see if the local ADA chapter does -- the chapter here in Maine runs seminars quite often (I missed a recent one on safety in schools, rats) and they might be willing to hold one for you. Especially if there are others in your school district who might benefit from it. It's worth asking.
Comment by Hockey Mom on August 26, 2011 at 12:12pm
My son is older but in our Texas public school district we were required to supply a new Glucagon kit each school year. The nurse showed me how it has his Name in big letters in black Sharpie for quick reference and is kept with other emergency type items (inhalers, epi pens, etc) by the door of the Nurses offce in a small red duffle bag. If they get a call from a teacher about a child with an emergency situation, one of the Nurses grabs the bag and runs for the room while one of the other Nurses calls 911 and directs the emergency personnel. It's a large high school so while they can arrive in under 3 minutes, it may take longer to actually find the child's location on campus.

My son actually still has pretty good awareness of low BG so we have not had to use it but it is good to know it is there and that they have been trained on how to use it. They also have juice, cookies, etc to treat lows in the Nurse's office and the Athletic Office. He is allowed to leave class but they will call the Nurse to make sure he arrives or have another student go with him. Afater two years, I have just gotten comfortable with his diabetes, his ability to handle things and the high school situation and now he is a senior and is looking at going away 5 hours to college. I don't think the worry ever will end.

My cousin teaches second grade and one of her students is diabetic with a CGM. She says that has helped a lot. Before the student got it she was always having the child check BG if anything was wrong and then felt guilty if that was not the problem. It will take a lot of the guesswork out of it.
Comment by dawn100670 on August 26, 2011 at 7:18am

My son has attended a private school without a nurse since he was diagnosed. However, he was diagnosed at an older age (almost 8), and he started testing his own blood right away. We had only 4 teachers for K-8, so all the teachers learned how to give him shots, and what to watch for when he was out on the playground. They also learned how to test his blood, in case he was unable to do it himself due to a low. I went to school at lunch time every day until his immediate teacher felt comfortable with dosing Jonathon according to a sliding scale. We used a pen, so we didn't have any worries about measuring up the wrong amount of insulin.

When I wrote up Jonathon's d-plan, I put in everything about day-to-day care, and all the info about his pump and insulin, should the need arise to call for emergency help. I also made laminated cards (1/2 sheet of paper) that gave detailed instructions on testing his blood on one side, and blood sugar ranges with correction instructions on the other. EVERYTHING had my name and cell phone/work numbers listed, particularly in case we had a substitute teacher. Jonathon was later diagnosed with epilepsy as well, so his medical plan became even more detailed.

One other thing we did was write up a waiver stating that we would not hold the school or the teachers personally responsible for problems or errors that may arise during Jonathon's care, as long as they were following the medical care plan to the best of their ability (e.g., if they overdosed his insulin in error, we promised that we wouldn't sue for damages). However, if they knowingly took actions that caused harm, all deals were off (e.g., preventing Jonathon from treating a low). It just let the teachers know that we weren't looking to place blame for mistakes, or looking for an opportunity to sue and make money for a mistake that we could have (and probably already had) made.

I hope this helps. Good luck!
Comment by Jessica05 on August 26, 2011 at 6:39am
BlessedMom, thanks for the below. It really helps to get ideas from other Moms. My daughter dosnt check her BG yet, she's 5 and doesn't show a lot of interest at this point. Hope you have a wonderful school year!
Comment by Jessica05 on August 26, 2011 at 6:37am
Ok, thanks Lorraine. I am going to look at my documents with a fresh eye this morning. Hope you all have an awesome school year!
Comment by Lorraine on August 26, 2011 at 5:18am
I think the ADA takes the position of asking for everything you want (that is reasonable of course) and let them tell you "no". As long as you present it in a reasonable way, I still think you should be able to ask for whatever you think is necessary and negotiate from there.
Comment by Jessica05 on August 26, 2011 at 4:43am
Hi Lorraine,
No, they don't get any funding from the state. They are very willing to work with me, but I guess because they are private, I am a little more hesitant to make too many demands. Some of the 504plans are very detailed and need to be, but since I will be her nurse, I am wondering if I should cut out some of the details...
Comment by BlessedMom on August 26, 2011 at 4:41am
We do have a nurse at my daughter's school but I have had to go up and sit for a few hours when she had to take her daughter to the Dr. My daughter also has a CGM. I can just tell you what I do in hopes that it will help you prepare for the school day.
First I plan her lunch the night before and write down the carbs.
Second I stick with a breakfast I know will not send her BS out of control during the day. (She gets frustrated about this sometimes but it cuts back on the amount of instruction time she loses going to the nurse)
Now, since YOU will be her nurse, maybe you can get a cell phone line designated just for her care. When the school needs to contact you they can call that line.
I too am only 5 minutes away and this has been helpful.
Does your daughter know how to check her own blood sugar? I know she has a CGM but if she knows how to check her own BS then you could advise over the phone instead of having to go to the school all the time.
The first week you may want to just take a book and stay up there for a bit until you both get an idea of how most of her days will go.
My daughter has a low box in the Nurses office, her classroom, the gym and in her backpack. This is helpful to know she has what she needs close by.
Another good idea is to be sure ALL of your daughters teachers are educated on the importance of her BS and not hinder her if she has to get up quickly to get a juice.
My daughter had a teacher that did not realize the danger of a low BS (My daughter also has photosensitive epilepsy and usually has seizures with her lows) and told her to wait to go see the nurse because they were in the middle of an assignment :0
Our nurse drew up a plan of procedures to follow for all caregivers/teachers to read over and sign stating they understand what needs to be done in the event of an extreme low or high.
I will try to scan it and post it so you can see it or I can send you a private message. with the info. Good luck!! :)

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Diabetes Hands Foundation Team


Melissa Lee
(Interim Executive Director, Editor, has type 1)

Manny Hernandez
(Co-Founder, has LADA)

Emily Coles (Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Director of Operations and Development, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


Lead Administrator

Brian (bsc) (has type 2)


Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)


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