Comment

Comment by Elizabeth on December 21, 2009 at 3:32am

If I could only test my son five times per day, he'd likely have been hospitalized any number of times in the year since his diagnosis. His endocrinologist prescribed 10, and we frequently go over that. A five-times-per-day test limit is only going to make health WORSE for T1Ds, and cost MORE, possibly in the short term but certainly in the long term. They are saving pennies and losing dollars--thousands of dollars.

Comment by Judith on December 20, 2009 at 4:09pm

Dear All: Forgive me for horning in here. I am working up an official challenge to Kaiser's new policy on testing strips----5 per day for insulin dependent; 1.6 per day for those not using insulin. I need to know if this will effect you and your beloved children. There is a vague line in the notification in the letter I received that says your doc may prescribe more. I am T2 used to testing 7+ times per day, so you can see that for me it is potentially devastating.

It is not clear if this will impact all of Kaiser's areas or not. Any information you can give me would be helpful. If it does impact you negatively and you feel like writing a letter that would be great. There is a discussion thread called: "Shocking New Kaiser Policy on Test Strips." You can respond there, or add me as a friend and respond privately.

I admire all of you in your struggles to keep your precious children healthy and moving forward successfully in their lives......Happy Holidays of all Kinds! to all!

Judith in Portland, OR

Comment by Elizabeth on December 6, 2009 at 5:42pm

This looks like a good place for me to ask a question then - what do you tell a child when other kids treat him/her like he/she is "different"? I'm researching a book I'm writing and because my son is only 2 and hasn't experieneced this yet, I'm stumped. Suggestions?

Comment by Chris P Cracolice on December 6, 2009 at 1:36pm

My name is Chris Cracolice I am 53 years old and have had diabetes for 48
of those years. I remember growing up with diabetes and how it not only affected
me physically but mentally as well. One of the most vivid memories I have was as
any child growing up in the 60’s was watching Batman, Superman and Tarzan on TV.
Of course the next day I would go outside and have my own adventures as being
that Super Hero. One day I was being Tarzan and it hit me if I was out in the
middle of a jungle without insulin I would die. This affected my self-esteem in
many ways and still does to this day. I was not like other kids who could do
things that I was not able to. For years I wanted to help other children with
diabetes not have to go through this. A few years ago I came up with an
idea of a child Super Hero with diabetes called Diabetic Dude. I have written
and illustrated a book about Diabetic Dude with his sidekick FRED who is a
glucose monitor Fast Reliable Educating Data, and his foes the Glucose Gang. My goal is that this book will help young people with diabetes identify with a super hero who shares their situation helping to build early self-esteem. You can purchase the book at createspace.com/3407373.

Comment by Anna on November 23, 2009 at 9:44pm

Is there anyone out there whose child is taking animal insulin?

Comment by natalie morales on November 6, 2009 at 11:28am

any parent in brooklyn, new york?
my son has type one and there seem to be no one that he can share or understand...... it would be nice for him to chat

Comment by kAiTs_mOm on October 29, 2009 at 11:23am

Awesome, thanks for the info. I will contact the leads you provided and post any helpful information I dig up.

Comment by Natasha Bowlds on October 29, 2009 at 11:15am

We are in a private school, so this doesn't pertain to us, but I have heard a lot of parents say that contacting the ADA is the best way to go. They should have a local rep for you to speak to, who can help. Also - here is a woman who is supposed to have all the answers to these types of things - try contacting her!Crystal Jackson, Manager, Legal Advocacy, National Office 1701 North Beauregard Street, Alexandria, VA 22311, Telephone - 703-549-1500 Ext. 2108 Fax - 703-549-8748 cjackson@diabetes.org

Comment by kAiTs_mOm on October 29, 2009 at 9:12am

Hi, I'm kaits_mom and hoping someone can help me with the following: the school district nurse has been giving Kait a hard time so i'm trying to find answers to some questions. 1. Does Kait have to go to the health room at least once a day? Kait is 15, has been T1 for 5 years, and knows how to care for her diabetes. She doesn't want to go to the health room-she knows where the medical department is and if she needs them she'll come to them. Legally, I know everyone has the right to refuse medical treament as well as the choice as to who provides us that treatment. 2. Does this right follow her to the school environment? Meaning, can she refuse treatment from the school nurse? Something about the nurse did not sit right with her. Get this: Nurse asked Kait a question about bgl's. Kait thought she was asking her what her range was. Nurse tells Kait she is wrong as a non-diabetic range is 70 to 110. For this reason, Nurse writes on Kaits IHP "student displays lack of knowledge regarding medication, diet, blood sugar monitoring and excercise." Huh? What does a non-diabetic range have to do with Kaits ability to care for herself? After all, she is a diabetic and that range doesn't pertain to her...her endo set her range at 70 to 150. Bytw, she answered the question correct as it pertains to her. The Nurse told me this story and asked me the same question. She was not specific-the answer given was determined by how the question was interpreted by the person being asked... I gave Kaits range. 3. Where can I go to find out answers to specific questions such as these? The school has their best interest before Kaits so I don't think they always provide the most honest answers. Thanks in advance for any and all input --Kaits_mom

Comment by Natasha Bowlds on September 9, 2009 at 8:30pm

Kimberly, yes - we had a great time. Both times. We only went to Magic Kingdom both times though also. The second time was with the Children with Diabetes conference which was absolutely amazing.

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