parents of kids with Type 1

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parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1369
Latest Activity: yesterday

Tudiabetes resources related to parenting kids with diabetes

Diabetes Forum

Discussing T1D Complications with Children

Started by aimeeh2oski. Last reply by aimeeh2oski yesterday. 4 Replies

Thyroid labs

Started by PhDiabetes. Last reply by PhDiabetes on Tuesday. 7 Replies

Levemir & Lantus

Started by MisMelissa. Last reply by rgcainmd Mar 8. 4 Replies

Getting it off my chest

Started by Jennifer Feb 16. 0 Replies

Life Insurance for T1D Child?

Started by aimeeh2oski. Last reply by april Jan 30. 6 Replies

Abandoning Responsibility

Started by Laura. Last reply by Laura Jan 9. 8 Replies

Humana in Texas

Started by dalajosa Dec 30, 2014. 0 Replies

Help with Huge Lows with little insulin

Started by rjhufnagel. Last reply by sarah Dec 17, 2014. 11 Replies

Pet peeves

Started by 1eyednurseguy. Last reply by kcolbertandco Dec 16, 2014. 30 Replies

Sleepover at 8 years old?

Started by Jennifer. Last reply by cass1972 Dec 15, 2014. 7 Replies

Disagreement over CGM

Started by Kate. Last reply by Kate Dec 9, 2014. 7 Replies

Bent cannula

Started by macfrizz. Last reply by Sarah Howard Dec 1, 2014. 7 Replies

Time for the Ophthalmologist

Started by aimeeh2oski. Last reply by aimeeh2oski Nov 17, 2014. 5 Replies

Ketones

Started by cass1972. Last reply by Elizabeth Nov 16, 2014. 7 Replies

New pump user - uncomfortable site

Started by macfrizz. Last reply by Jo Momma Nov 15, 2014. 16 Replies

Refusal for Field Trip

Started by Kelly. Last reply by KalebMommy Nov 13, 2014. 30 Replies

JDRF’s Children’s Congress

Started by Emily Coles Nov 10, 2014. 0 Replies

Grace's Mom

Started by kcolbertandco. Last reply by Elizabeth Nov 10, 2014. 2 Replies

Problems with Blood Sugar testing

Started by Jennifer. Last reply by Jan Nov 6, 2014. 10 Replies

Comment Wall

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Comment by Emily Coles on July 9, 2014 at 10:42am

Is anyone here familiar with Safe Sittings?  I just learned about it, and immediately thought "I bet my parents would have LOVED a resource like this when I was a kid!"  It's a service that helps parents of kids with diabetes find babysitters who also have diabetes, and who have signed up in their registry to sit for D-kids.  The service itself is free, and you negotiate the price of the babysitter with the sitter.

Comment by Elizabeth on July 3, 2014 at 12:12pm

That's why we're here, Paula.

The child's safety and well-being always must come first. And if Dad doesn't understand this basic fact, he's not ready to handle your son's care regardless of whatever training he has.

Comment by paula77 on June 30, 2014 at 5:16pm

Elizabeth...You are right,thank you so much for telling me what I already knew. Your reassurance means so much to me that I could cry.
I too had to get my son's preschool staff and nurse up-to-date on Diabetes Education. My son's safety is 1st and foremost my main concern.
Again Thank you for the advice and support with this. It means so much to me :)

Comment by Elizabeth on June 30, 2014 at 12:13pm

Paula, here's the thing: you are the custodial parent. You are legally responsible for your child's safety and well-being. If your 4-year-old's father lacks the skills to manage his diabetes care, he is NOT qualified to have him overnight, not even for one day. Allowing him to take your son could be construed as child endangerment should something happen. I am not a lawyer, but my husband was told by a DSS social worker that allowing his children to stay overnight at their mother's place when he knew there was a chance she was actively engaged in drug use could get him charged — even though he wasn't the one endangering them, simply putting them in a situation where their well-being *might* be at risk would be enough for legal action against him. So DO NOT DO IT.

Simply having a few semesters of nursing school under his belt is not at all enough. Plenty of nurses know nothing about managing diabetes — I had to push my school district to train all of the nurses at the diabetes clinic after a nurse with long-time experience made a mistake handling my son, and this is a woman who'd been in this career a couple of decades! It would be different if your child were a teenager and capable of handling his own situation.

Obtaining training for your child's diabetes management is an ABSOLUTE prerequisite for overnight visits. Stand firm, and don't budge. Use the potential risk of legal action against you as a reason if you must, but DO NOT let anyone who hasn't been trained in diabetes management, even the father, take your child overnight. [PS I would not allow anyone not trained in diabetes management to take my son for more than 3 hours, personally.]

Comment by paula77 on June 29, 2014 at 10:48pm

hello I need your help. I am a single mom with full custody of my T1D 4yr old. his father( I was never married to) spent 20yrs in Army and is now taking classes to become an RN. he is only halfway through his 1st year of nursing. he would like to keep my son overnight for a few days in August, without me, but has not had any formal training on the insulin pump or in depth training on pediatric diabetes(T1D). I am freaked out. he refuses to take the classes I had to take even though I have a medical background and my ex-husband is T1D too. there were so many new things i'd learned. help advice please. am I just over reacting?

Comment by Elizabeth on June 10, 2014 at 3:27pm

My son was 18 months old at diagnosis, and a picky eater -- very sensitive to textures and flavors and not at all adventurous. I'd be doing well just to get him to TRY a vegetable-based diet, never mind focus on it. But the endo we use basically told me to feed him whatever he was willing to eat and not worry overly much about dietary solutions -- he takes the position that it's better to have a slightly higher A1c and ensure the brain gets its needs met than to push for a lower A1c at the expense of repeated lows. Carbs are not something to be avoided, ESPECIALLY for children — the brain needs glucose! — but don't fall into the trap of thinking all carbs are the same. Simple sugars (glucose, fructose, sucrose) and complex carbs (like the ones found in whole grains and starchy vegetables like squash) are two very different things, and in particular when they're paired with other components (fibers, fats, proteins) they behave differently. Apple juice does different things to blood sugar than a whole apple would for that reason.

I'm cudgeling my brain trying to think of a resource that explains it all simply and failing... I know there are some good books out there about how carbohydrates and fats and fibers interact though. However, do be advised that the information out there for Type 2 is not necessarily the best course of action for Type 1. In T2D, the person has insulin available to them (except in very severe/advanced cases) but their body doesn't put it to use correctly. It's a situation where the signal is being transmitted but not heard. In T1D, there is no signal being transmitted, but if you add insulin, it will be "heard" loud and clear. So a diet that focuses on "low carb" as opposed to focusing on balanced nutrition is not nearly as helpful a strategy in T1D as it is in T2D.

Actually Michael Pollan's advice is about as spot on as you get: "Eat food. Not too much. Mostly plants." People with diabetes (PWD, sorry for going Twitter-jargon on you!) have slightly different needs than the average human because of the lack of pancreas-initiated regulation they experience, but overall you can't go wrong if you eat fresh whole foods and limit processed & sweets. Susan used to suggest an 80-20 rule — eat alkaline 80% of the time and you can do what you like the other 20%, because going all-alkaline is tough for most people, especially kids, especially if they didn't grow up on it. That's why I suggested starting slow.

Comment by Dan and Nick's mom on June 7, 2014 at 9:24am

Thank you all for your comments, I have lots of studying to do at this point to find what is best, I did not do that well the first time around. I appreciate all the comments they will help me make sure that I am looking at all the aspects of this before taking any particular route. I pray daily for a cure all the best to you all!

Comment by Rich on June 6, 2014 at 7:36pm
I promise myself never to get into a diet discussion, but I have to agree with Jennifer, as does our endo and, I think, the entire medical establishment. Insulin is a growth hormone, so the goal is not to reduce it (reducing it is not curing anything). Carbohydrates are important for long bone development. Look at Eskimos who have a very high fat diet, and grow short eating their traditional diet. When they move into the city, they greatly increase in height, mainly due to long bone development. However I know none of the diets being proposed are THAT extreme. So everyone will do just fine. For adults, where growth is finished, low carb diets seem less of an issue to me.
Our diabetes diet is a low GI diet, especially at times of the day when our daughter is sensitive, like breakfast. We aim for the standard 50% carb diet, while also keeping BG below 250 postprandial.
Comment by Jo Momma on June 6, 2014 at 4:25pm
Dan and Nick's mom. Thanks for posting on here. I know it can seem imposing putting ideas and opinions in a public forum but I've enjoyed reading them. They make me think about why we're doing what we're doing. My guy is three (diagnosed 20 mos) and I constantly worry about long term ramifications on decisions I'm making now. I'm sorry your older son has had a hard time. We all just want the best for them don't we. Keep up the research and definitely keep sharing.
Joanne
Comment by Jo Momma on June 6, 2014 at 4:11pm
Barbi. I really enjoyed reading your post. It was written very well. I've had the question raised, well if you don't give your son carbs then he doesn't need insulin right? Wrong. That basal need has to be covered. The bolus you could limit with diet for sure. I want him to live a healthy life but also enjoy the fun things like birthday cake. I try to have the insulin match the food not the other way around. To me matching food to the amount of insulin is like living with one hand tied behind my back. It can be done but it's frustrating.
Thanks for letting me share.
Jo
 

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Diabetes Hands Foundation Team

DHF TEAM

Melissa Lee
(Interim Executive Director, Editor, has type 1)


Manny Hernandez
(Co-Founder, has LADA)

Emily Coles (Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Director of Operations and Development, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator

Brian (bsc) (has type 2)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)

 

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