This is a group for the parents of kids with diabetes.
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Forum category: Children with Diabetes
Group: Grandparents of T1D Kids
Group: Momnipods and Popnipods!
Group: Families with Multiple Members with Type 1 Diabetes
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TuDiabetes resource page for loved-ones
Back to School: a webinar by the American Diabetes Association
Topics: Safe at School Overview; School Diabetes Care Challenges; Federal & State Laws; Developing a 504 Plan; Key Resources for Families & Schools
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Hi Alyson We have a 17 year old non diabetic and a 14 year old diabetic. He was diagnosed at 12. I cannot imagine what it is like to handle T1D with a young child. Ours totally takes care of injections and testing. I just hover like a nervous parent.
Does anyone in the group have an older child who is non diabetic and the younger one is T1?
Hi everyone, I just joined this group. I've attached the story of my son who was diagnosed 3 months ago if anyone is interested in reading it. Thanks! I'm sure I will be posting in here a lot as my son is 20 months, and we are only 3 months into diagnosis. http://wp.me/P4gOyk-2l
We are going through a very confusing time right now and thought I would share the details. 5 days ago my 6 year old type 1 daughter Alexa started going low everyday followed by a spike later on in the evening around 8 pm. I have had to adjust her ratios from 1:16 breakfast, 1:21 lunch, and 1:19 dinner back to levels I haven't seen in months. Her current ratios are 1:25 breakfast, 1:28 lunch, and 1:26 dinner and she is still coming in low. Last night I adjusted her basal to account for the spike going from .250 u/hr to .300 u/hr and then did a temp increase by 50% and she still climbed. I had to correct with 1.5 units and she still stayed around 200. I will try .500 u/hr as a basal rate tonight and see what happens. She has had Type 1 since August 2011. Diet remains the same. Just wondering if anyone else has gone though something similiar?
I had to drive an hour and a half to check out the medtronic pump in a larger centre but the Animas rep came to my town and the omnipod people sent sample pods and info to our local diabetic nurse. I guess it all depends on where you live and so on! Also Avie, is your daughter on multiple daily doses (MDI)or are you using NPH? We were getting good A1c's with MDI so knew if the pump didn't work for us Ian would still be healthy on MDI. It's certainly nice seeing the more even sugars with the smaller doses so worth trying the pump for that :) You're doing the right thing by asking questions and doing your research. Ian has only been on his pump for a week yesterday so I know what you're going through!
As part of your research, have a rep from each pump company come and give you a demonstration at home -- they all should do this for you with no problem and no pressure.
In general, it seems that many people find tubing to be less of an issue than they expect. But everybody's experience is different.
The pump doesn't make diabetes go away but it can be a big help. Good luck!
My daughter has been on the medtronic pump for five years now since diagnosis. We tried the TSlim but we were not happy with its accuracy. The tubing was not a prblem for her and she uses the belt clip she doesn't like the band she said it itches her. We love the medtronic and my daughter adjusted well and quickly to the pump. We also just started the Dexcom at the end of November and it has been sooo easy and very helpful.
We just put our 3 yearold on the Animas pump with Ping remote. I was drawn to the tubelessness of the omnipod as well but after wearing one (a sample obtained from company) and a few other reasons I decided on Animas. The omnipod has a large adhesive area compared to the infusion sets of Animas and Medtronic. I also wore an Animas infusion set for a few days and tugged that tube as much as I could. I went with Animas for my son because of the Ping remote so once the pump is on him and in his little tummy band, I don't have to access it for boluses. With the omnipod you throw out the motor with each unit and I had seen a study showing it to be less accurate with doses compared to Animas and Medtronic (who were comparable). In the end it comes to what works best for you and your child. Having some samples, meeting with reps, and wearing one yourself I highly recommend. It takes longer to decide (as it takes longer to acquire samples) but for us it was a 5 year committment so worth doing. I was so worried about the tubing but winding it around the pump and tucking it into the tallygear tummietote I got has been great. It took our 3 yearold one day to adjust to this pump. I was shocked. I had held off for so long (diagnosed at 20 months) as I wasnt' sure the logistics of a little one wearing a pump. Wish I'd done it sooner. With the smaller doses he's been so much more level. good luck!
what ever you choose, don't be afraid to change your mind if it doesn't work. Check out trial periods or money back guarruntees.
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(Head of Communities, has type 1)
(EsTuDiabetes Community Manager, mother of a child with type 1)
(Head of Experience, has type 1)
(Development Manager, has type 2)
Desiree Johnson (Administrative and Programs Assistant, has type 1)
Brian (bsc) (has type 2)
Gary (has type 2)
David (dns) (type 2)
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