parents of kids with Type 1

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parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1348
Latest Activity: on Thursday

Tudiabetes resources related to parenting kids with diabetes

Diabetes Forum

Help with Huge Lows with little insulin

Started by rjhufnagel. Last reply by sarah on Thursday. 11 Replies

Pet peeves

Started by 1eyednurseguy. Last reply by kcolbertandco on Tuesday. 30 Replies

Sleepover at 8 years old?

Started by Jennifer. Last reply by cass1972 Dec 15. 7 Replies

Disagreement over CGM

Started by Kate. Last reply by Kate Dec 9. 7 Replies

Bent cannula

Started by macfrizz. Last reply by sarhow Dec 1. 7 Replies

Time for the Ophthalmologist

Started by aimeeh2oski. Last reply by aimeeh2oski Nov 17. 5 Replies

Ketones

Started by cass1972. Last reply by Elizabeth Nov 16. 7 Replies

New pump user - uncomfortable site

Started by macfrizz. Last reply by Jo Momma Nov 15. 16 Replies

Refusal for Field Trip

Started by Kelly. Last reply by KalebMommy Nov 13. 30 Replies

JDRF’s Children’s Congress

Started by Emily Coles Nov 10. 0 Replies

Grace's Mom

Started by kcolbertandco. Last reply by Elizabeth Nov 10. 2 Replies

Tips for talking to kindergartners about T1D

Started by aimeeh2oski. Last reply by Horizon22 Oct 31. 3 Replies

Curious Kids

Started by Leslie. Last reply by Leslie Oct 31. 5 Replies

Trouble with School Athletics

Started by ahe05a. Last reply by Mountain Oct 30. 4 Replies

Comment Wall

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Comment by Natasha Bowlds on February 19, 2014 at 10:49am

LOVE the pod. My 13 year old has been on it since his 9th birthday. We've never looked back and he won't even consider another pump. We've done the old system and the new one. Happy to answer any questions!

Comment by Barbi on February 19, 2014 at 10:41am

@Linda Rabe-Frady - call the pump companies and have the rep come to your house so that your son can feel and see each product. They will explain all the different bells and whistles to you both! All the best! Barbi

Comment by Linda Rabe-Frady on February 19, 2014 at 10:32am

Starting to look at pumps for my 13yo son. He has always been against using a pump until just recently. Our endo like the animus or the medtronic. Says her patients on the omnipod have given up on it, but since they have changed the pod. Any suggestions or users with the new pod system that like or no like.

Comment by Jo Momma on February 19, 2014 at 7:46am

Alyson, just had a quick thought when just testing Ian. Have you checked out the Accucheck mobile meter? It's got the lancet device attached (with 6 needle cartridge) and holds a 50 test cassete. I can hold Ian's hand in one hand and work the meter with the other. I slide it open using my leg to expose the strip. Once we started using it we couldn't go back to separate strip/meter/lancets. I can just throw it in my pocket if we go outside. It's on the bigger side but I'm carrying around a kit with me anyway so no biggie!
Jo

Comment by Jo Momma on February 19, 2014 at 7:21am

Alyson,
I agree, first year is the hardest. Kind of like having a newborn again! With all the unknown's and insecurities and how to go out in public again! The bruises are heartbreakers for sure. It's a little capillary burst and I know they don't hurt anymore than the other pokes but it's that visual reminder. We just put Ian on a pump (Animas Ping) in january and although site changes are hard and he cries, it's one big poke every three days instead of up to 6 little ones a day. Whenever I used the remote to dose for carbs I try to remind myself how less intrusive it is. He doesn't even know it's happening! Don't rush your pump decision though. We did MDI first and the pump training nurse said she wished everyone did that before pump as it makes the transition less stressful. One good App I use is the carbs and cals app. I also just got this scale that is easy to take out with me and wish I'd found it a long time ago! http://www.josephjoseph.com/product/triscale It's amazing, we're almost 2 years into diabetes and STILL learning!

Comment by Heather on February 19, 2014 at 5:26am
Hi. My non-d is 8 & my T1 is 5 ( almost 6). My T1 was dx at 21 months. My T1 obviously had to mature faster than other kids her age, but she is a trooper. These kids are so strong.
Comment by Sophia Mother on February 19, 2014 at 2:39am
Hi Alyson, yes 19y nonD, 18 nonD and 9y D diagnosed at 3y.
First year is the worst... Now she take care with herself, count the carprbs. She knows when she is hi... Low...
Comment by jms1313 on February 18, 2014 at 9:57pm

I have a 14 year old non-diabetic and a 9 year Old T1 hat was D at 6 years old. It's never easy but our 14 year old watches out for her sister like a hawk - they are very close.

Comment by AlysonCheatham on February 18, 2014 at 9:41pm

Hi Jo Momma, I agree, Carter has adjusted really well and he's a champ! Barely even cries now, he knows there is a meaning for this before he eats. So that's good. I try to talk to Ashleigh a lot to see how she is coping....but being exhausted it's so hard. I think it's adorable that your daughter asked how many carbs are in Jello! So cute.....it's true, this is a family disease. I think it's good to have everyone more aware of what we put in our mouths and how much. I just can't wait to not be soooo exhausted. :)

Comment by Jo Momma on February 18, 2014 at 9:15pm
Hi Alyson. My daughter is 6 (nonD) and son is 3. He was diagnosed at 20 months. It's hard for sure. I felt bad thinking it was easier that it was our little guy and not our then 4 year old as we don't think she would have adapted as quickly to the pokes and tests. I was amazed how fast Ian adapted. With all the attention he got my daughter did start to ask when she was going to get diabetes. I wish I could have pulled myself away from it more in the beginning to make sure she was coping ok and just ok in general. It definitely becomes a family affair! My daughters grade one teacher told me she wanted to know the carbs in jello because her brother has diabetes and we need to know.
 

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Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator

Brian (bsc) (has type 2)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)

 

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