parents of kids with Type 1

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parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1328
Latest Activity: 10 hours ago

Tudiabetes resources related to parenting kids with diabetes

Diabetes Forum

Trouble with School Athletics

Started by ahe05a. Last reply by Elizabeth 10 hours ago. 2 Replies

How to answer the "why me?" question

Started by aimeeh2oski. Last reply by Jacob's mom Aug 20. 2 Replies

Snacks for 5k walk

Started by SEM2REM. Last reply by Jacob's mom Aug 19. 1 Reply

Ketones

Started by MisMelissa. Last reply by Elizabeth Aug 15. 2 Replies

VERY PICKY EATER

Started by crys. Last reply by Elizabeth Jul 27. 3 Replies

High Lipids in teen

Started by Linda Rabe-Frady. Last reply by Elizabeth Jul 21. 3 Replies

Help with getting a type 1 kid gain weight

Started by jakesmom427. Last reply by Ethan10183 Jul 20. 5 Replies

Trouble with Breakfast Highs

Started by SEM2REM. Last reply by SEM2REM Jul 6. 9 Replies

Stomach Pain and Low Blood Sugar

Started by aimeeh2oski. Last reply by rgcainmd Jun 29. 6 Replies

Dexcom 1st Insertion Let Down

Started by SEM2REM. Last reply by rgcainmd Jun 29. 3 Replies

Comment Wall

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Comment by AlysonCheatham on February 18, 2014 at 9:01pm

Thanks Betsy, I hope it will be easier once Carter can give himself injections. It is so hard with him being so young, and having a 4 year old who is confused about the whole thing. I hope as time goes on it will all get easier. :)

Comment by AlysonCheatham on February 18, 2014 at 9:00pm

Comment by Betsy on February 18, 2014 at 8:49pm

Hi Alyson We have a 17 year old non diabetic and a 14 year old diabetic. He was diagnosed at 12. I cannot imagine what it is like to handle T1D with a young child. Ours totally takes care of injections and testing. I just hover like a nervous parent.

Comment by Betsy on February 18, 2014 at 8:47pm

Comment by AlysonCheatham on February 18, 2014 at 8:17pm

Does anyone in the group have an older child who is non diabetic and the younger one is T1?

Comment by AlysonCheatham on February 18, 2014 at 7:58pm

Hi everyone, I just joined this group. I've attached the story of my son who was diagnosed 3 months ago if anyone is interested in reading it. Thanks! I'm sure I will be posting in here a lot as my son is 20 months, and we are only 3 months into diagnosis. http://wp.me/P4gOyk-2l

Comment by Father of Alexa on January 18, 2014 at 3:15pm

Aloha Everyone,

We are going through a very confusing time right now and thought I would share the details. 5 days ago my 6 year old type 1 daughter Alexa started going low everyday followed by a spike later on in the evening around 8 pm. I have had to adjust her ratios from 1:16 breakfast, 1:21 lunch, and 1:19 dinner back to levels I haven't seen in months. Her current ratios are 1:25 breakfast, 1:28 lunch, and 1:26 dinner and she is still coming in low. Last night I adjusted her basal to account for the spike going from .250 u/hr to .300 u/hr and then did a temp increase by 50% and she still climbed. I had to correct with 1.5 units and she still stayed around 200. I will try .500 u/hr as a basal rate tonight and see what happens. She has had Type 1 since August 2011. Diet remains the same. Just wondering if anyone else has gone though something similiar?

Comment by Jo Momma on January 15, 2014 at 5:17pm

I had to drive an hour and a half to check out the medtronic pump in a larger centre but the Animas rep came to my town and the omnipod people sent sample pods and info to our local diabetic nurse. I guess it all depends on where you live and so on!
Also Avie, is your daughter on multiple daily doses (MDI)or are you using NPH? We were getting good A1c's with MDI so knew if the pump didn't work for us Ian would still be healthy on MDI. It's certainly nice seeing the more even sugars with the smaller doses so worth trying the pump for that :) You're doing the right thing by asking questions and doing your research. Ian has only been on his pump for a week yesterday so I know what you're going through!

Comment by svenmint on January 15, 2014 at 8:50am

As part of your research, have a rep from each pump company come and give you a demonstration at home -- they all should do this for you with no problem and no pressure.

In general, it seems that many people find tubing to be less of an issue than they expect. But everybody's experience is different.

The pump doesn't make diabetes go away but it can be a big help. Good luck!

Comment by Holly on January 15, 2014 at 8:17am

My daughter has been on the medtronic pump for five years now since diagnosis. We tried the TSlim but we were not happy with its accuracy. The tubing was not a prblem for her and she uses the belt clip she doesn't like the band she said it itches her. We love the medtronic and my daughter adjusted well and quickly to the pump. We also just started the Dexcom at the end of November and it has been sooo easy and very helpful.

 

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REsources

From the Diabetes Hands Foundation blog...

Diabetes Among Hispanics: We’re not all the same

US Hispanics are often portrayed in the press as a single, monolithic group. But anyone who has spent any time in San Francisco’s Mission District or the Bronx can tell you, we’re not all the same. Now we’re finding out Read on! →

Diabetes entre los hispanos: no somos todos iguales

Traducido por Mila Ferrer.    A menudo los Hispanos en Estados Unidos son retratados en la prensa como un solo grupo, monolítico. Pero cualquiera que haya pasado algún tiempo en el  Mission District de San Francisco o el Bronx se Read on! →

Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


DHF VOLUNTEERS


Lead Administrator

Bradford (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

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