parents of kids with Type 1

Information

parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1163
Latest Activity: 6 hours ago

Welcome

Welcome to the parents of kids with Type 1 group. I'm so excited that we now have over 1000 members!!!

I hope you find this group useful. Send me an email if I can help you in anyway.

Thanks.
Penny R.


MyCareConnect is a free, easy-to-use online solution for your child and all their caregivers – parents, school nurses, teachers, doctors & more. Start living connected today and share BG’s, carbs, notes and more instantly with all your caregivers via e-mail and text message.

Discussion Forum

Insulin Pump Recommendations.

Started by Jamie. Last reply by Hockeymom 6 hours ago. 2 Replies

How many Carbs?

Started by kaitype1. Last reply by kaitype1 on Saturday. 9 Replies

Pet peeves

Started by 1eyednurseguy. Last reply by aliceclones on Friday. 28 Replies

Frustrated with Adult Endo practices

Started by Hockeymom. Last reply by Jacob's mom on Thursday. 9 Replies

I just need to vent.

Started by Holly on Wednesday. 0 Replies

Shyness toward diabetes at School

Started by Jamie. Last reply by Jamie on Tuesday. 12 Replies

Behavior problems in T1 children

Started by aimeeh2oski. Last reply by aimeeh2oski May 11. 7 Replies

Lots of Hypos lately

Started by MisMelissa. Last reply by Elizabeth May 11. 7 Replies

Lost, 1 week post T1 diagnosis

Started by Aidan's Mom. Last reply by BitchinDietitian May 9. 24 Replies

Thoughts on Screening Siblings?

Started by PhDiabetes. Last reply by Sophia'smommyLori Apr 29. 9 Replies

recently diagnosed with T1. please help.

Started by michelle13. Last reply by twinmomlisa Apr 25. 27 Replies

Update on social services case

Started by Shant. Last reply by sheryl lauria Apr 18. 8 Replies

Tired of DKA

Started by Shant. Last reply by Shant Apr 15. 20 Replies

Need Advice/ Tips

Started by Nic. Last reply by Jacob's mom Apr 14. 11 Replies

Comment Wall

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Comment by Shant on August 18, 2012 at 5:34am

I am not sure of the reason, but my son's doctor started him on Humalog. When we went to the pump, he did switch him to Novolog. Over the summer we put him back on shots, and he put him on Humalog again. School started, and Novolog for the pump. I never questioned him, because I know there must be a reason. Our Endo is impeccable at everything he does.

Comment by daneenm on August 16, 2012 at 7:11am

I have heard people advocate Novolog in the pump as well. For what it has worth, we have used Humalog in DSs pump all along with no apparent issues with insulin degradation. We have also tried Apidra with no noticeable difference in effect.

Comment by Cobi Campbell on August 16, 2012 at 6:51am

Good to know! We used to use Novalog until it became a "non-preferred medication" to our insurance company. Grrrr... Currently using an advocate to get the test strips for the integrated Omnipod meter at regular copay instead of "ridiculous copay". LOL...grateful to have the advocate to fight for us!

Comment by undertakr on August 16, 2012 at 6:22am

My daughter is not on the pump but if you are using Humalog as your insulin in the pump, I heard that it is better to use Novolog because of the heat factor. Maybe this is something to consider.

Comment by Elizabeth on August 14, 2012 at 1:27pm

Hee hee... you nailed it there, Cobi: "classic unrealistic self-expectations" R Us. Anytime I talk to someone who is just switching, I try to warn them not to expect instant gratification and immediate nose-diving A1c's. I'm the first to say that our switch to pumping had WONDERFUL benefits in the long run, but OMG, the short run SUCKED. I hate to be a Debbie Downer but it's so important that people have realistic understanding that it takes time to get the hang of pumping. It's not nearly as simple as MDI, and there are so many potential factors you need to keep on top of, that at first it's harder. However, once you get it down... I wouldn't want to go back to MDI now, pumping is second nature to us now and it goes smoothly about 75% of the time. Of course, that other 25% is a b***h, but... when those times come, I remind myself of the difference: Eric on MDI, a1c = >8.0, but Eric on pump, a1c consistently <7.8, and I have pretty high hopes (now that we've solved... for now... the overnight highs) of breaking through the 7.4 minimum a1c record we've had for the past 2 years.

Comment by Cobi Campbell on August 14, 2012 at 11:47am

Thanks for the responses! Yes, starting pumping felt like starting all over. I think maybe my classic unrealistic self-expectations are rearing their ugly heads. I guess I'm not going to have this all wired by two weeks into it! LOL...
daneenm--thanks for including all those factors/things to think about. I think that there were a few factors going on last night...too many simple sugars (went out to dinner to celebrate something...white flour mac n cheese, french fries, ice cream, ack!), heat, still tweaking overnight basals, growth, not quite having insulin:carb ratios right yet (endo set them high at first as a precaution). I did the best I could, increased basals and adjusted i:c ratios for today. Now I'm going to go nap so I can fight again tonight! LOL...thanks for the support ladies! :)

Comment by daneenm on August 14, 2012 at 10:45am

Based on my son's experience, all of the below could be possible (my eternal frustration with T1D!)

• Heat - almost always makes him run higher. Always has.

• Growth - Often sees spikes at night that we can only attribute after the fact to growth spurts. He was dx at 20 months and we have always seen this pattern. We are heading in to puberty territory soon so not only will we have growth hormone, but also all of the other raging hormones. Should be a fun ride.

• Pod changes - we also see post pod change highs. In our case, if he is eating, we just bolus for that, if he is not, we usually give 1/2 unit to just get the flow going.

Also remember that since you have just changed to the pump, it is like starting over again. There will be quite some time that you need to tweak setting until you 'get it right'

Comment by Holly on August 14, 2012 at 10:33am

I can't wait this Sunday we are leaving for Diabetes Family camp. Camp Najeda for 3 days and two nights. My daughter is soooo excited! I am too we had a great time last year connecting with other parents and all of the counselors have diabetes too. It was great to talk to them about how they feel and how they feel about their parents roles in all of this. I will try to post some pictures when we return on my facebook page. Come see.

Comment by Jacob's mom on August 14, 2012 at 10:17am

Cobi, now that i know you are on omnipod, i can let you in on a trick. i'm not sure if you have read about the high after pod change issue but it seems worse in children for jacob we do a small bolus before his change .5 U and 1.5-5 units post pod change with no food ( he is 14 now) it seems the pod needs to be primed? dont ask why but after months of frustration this has worked for us, hope things get better! amy

Comment by Cobi Campbell on August 14, 2012 at 7:57am

Thanks for the replies! Elizabeth--yes, that's why we have it as well. Her night time bgs have always seemed unpredictable so the cgm helps me sleep a little more. I do think we're having the same issue and I did talk to her endo about it. She said to go up by .05 per night initially but now she says bump it by .1 since the issue isn't resolving. Last night she was over 300 from after dinner 'til 2am. NOT OKAY! I ended up giving her two injections at various points in the night, one from a new bottle of insulin in case the heat had destroyed the other. Naomi'sMommy--she's on the Omnipod so I can't disconnect and prime it to solve the problem, unfortunately. May have to do pump change earlier than expected if her bolus this morning doesn't work. It's frustrating, too because before starting the pump two weeks ago, we had gotten her Lantus dosing and dinner regimen to the point where she was steady between 100 and 150 all night most nights. It is so gratifying to see that (mostly) flat line right where you want it all night long on the Dexcom...
I guess you've just got to enjoy and celebrate those moments while they last...

 

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TuDiabetes Team

DHF STAFF

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Emily Walton
(Business Manager)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Heather Gabel
(Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator
Bradford (has type 1)

Administrators
Lorraine (mother of type 1)
Marie B (has type 1)

Teena (has type 2)

Brian (bsc) (has type 2)

jrtpup (has type 1)

 

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