parents of kids with Type 1

Information

parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1336
Latest Activity: yesterday

Tudiabetes resources related to parenting kids with diabetes

Diabetes Forum

Medical I.D's

Started by Jennifer. Last reply by Jennifer Oct 1. 14 Replies

High And Low Blood Sugar

Started by Jennifer. Last reply by Jennifer Sep 22. 10 Replies

She's only 2 y/o

Started by nurivl. Last reply by swisschocolate Sep 22. 4 Replies

Ketones

Started by MisMelissa. Last reply by crys Sep 16. 3 Replies

Trouble with School Athletics

Started by ahe05a. Last reply by rgcainmd Sep 14. 3 Replies

How to answer the "why me?" question

Started by aimeeh2oski. Last reply by rgcainmd Sep 14. 3 Replies

Night Scout

Started by Jennifer. Last reply by Lorraine Sep 13. 3 Replies

Snacks for 5k walk

Started by SEM2REM. Last reply by Jacob's mom Aug 19. 1 Reply

VERY PICKY EATER

Started by crys. Last reply by Elizabeth Jul 27. 3 Replies

High Lipids in teen

Started by Linda Rabe-Frady. Last reply by Elizabeth Jul 21. 3 Replies

Help with getting a type 1 kid gain weight

Started by jakesmom427. Last reply by Ethan10183 Jul 20. 5 Replies

Comment Wall

Comment

You need to be a member of parents of kids with Type 1 to add comments!

Comment by Natasha Bowlds on December 1, 2011 at 11:10am

I know we have gluten free wafers at our church (the pastor's wife has celiac) and they are on their own separate plate and everything.

Comment by Elizabeth on December 1, 2011 at 9:51am

Holly, you can learn more about it here: http://www.catholicceliacs.org/CatholicCeliacOverview.pdf

Comment by Emily B on December 1, 2011 at 8:54am

Hi Holly, I have read that there are alternative accommodation for communion. You'll probably have to do a search online and talk to your church about it. As for people making assumptions that a little gluten won't hurt... people eventually realize that's not the case when they see your diligence. Good luck with the endoscopy and Happy early Birthday Francesca!

Comment by Holly on December 1, 2011 at 8:27am

Well we went to the gastric doctor yesterday and my daughters number for Celiac (blood tests) was 100. They have scheduled her for an upper endoscopy on 12/7 (her birthday it was either that or January) So we are on the way home and I am telling her that she will be going to the hospital and she will get an IV. They are just going to check her for Celiac. My husband decided that it would be a good idea to tell her that they would be going to sleep!!! She FREAKED OUT! I told her that Mommy would never stop holding her hand. I would still be holding it when she wakes up. She seemed to calm down. My husband tried to cover by telling her that they were just going to take some pictures of her belly and then they would wake her up. It would only take about 10 min. She seemed a little better with that. I told my husband that sometimes he needs to trust me.

Well anyway I decided (even though it is last min.) to have my family over for her birthday this Saturday and then I told her she could have one of her friends over for a play date on Sunday just to keep her busy.

As soon as I called my mother (on the way home from the appt. So I am already upset) I wished I wouldn't have. She asked about the appt. and I told her what was going on. Then I told her that I wanted to have something for Francesca's B'day on Saturday to try and keep her busy over the weekend. Her answer was well I can't be there at that time I work at 5(I told her 1) I thought to myself. WHY IS EVERYTHING ABOUT YOU!!! Sorry as you all can tell I was a little annoyed with the answer that I rec. Sometimes I just don't know what to do with people.

My sister was asking me about the Celiac the weekend of thanksgiving and I am explaining to her that she can not even have the littlest bit of Gluten. Which means that we have to find out from the church if there is an accomodation that can be made for communion. Her answer was well it is such a little amount why would it matter?? REALLY!!! I told her like any other allergy if you are allergic to strawberries then you can not eat even a small bite or you could go into shock and die. This will cause damage that you may not see at first but could really mess you up.

Comment by Jillx4 on November 28, 2011 at 4:58am
Your son's case is very unusual. My daughter was diagnosed in 10/10 with a blood sugar of 669, was admitted to Childrens immediately and has been on insulin ever since. She is now on the pump. The doctor we go to told us when to make all changes initially, but now we make most of the decisions on our own. We can still fax her logs over if we need help with something. Her pediatrician is very helpful and I can always get help when I need it. It sounds like your doctor could be more involved.
Comment by CC on November 27, 2011 at 9:18pm

Hello all I am new to the site, my 6 yr old son was dx in 12/09, honeymooned for a year, started humalog 02/2011 and now 11/11 added lantus. He takes 1 unit of lantus and 1 unit of humalog meal times. His A1c is always below 6.5 except at 7.7 when he was diagnosed and again when the honeymoon ended :( I want his A1c to be 5.5- 6 consistently. Nevertheless, I am always interested in finding a better MD and Endo team. I feel like I am the one making the decisions of when to add more insulin, how much and what type. The current MD says you are doing good his A1c is low and says my son's case is unusual and see you in 3 months. Should the MD be doing more or is this standard protocol. I feel so not proactive in my son's care and I feel the MD is not either...perhaps I am expecting to much. Any suggestions on Ped. Endo in Dallas or perhaps realistic expectations of the MD's role

Comment by jlin1024 on November 17, 2011 at 11:54am

Hello! I am a parent of a son who is T1. He was diagnosed at 16 months. He is now 20 years old. I am also T1.

Comment by Christina Elizabeth Rodriguez on November 10, 2011 at 9:57am

Hi everyone! I'm actually not a parent but I'm looking for one. I have Type 1 and I'm also the editor of Extra Bilingual Newspaper in Chicago. I'm looking for a parent to talk about their experiences having a child with Type 1. I would love to find a Latino parent because that is our audience.

I think it's super important to address this issue, since there isn't a particular culture or race that has Type 1. I want parents to know what they have to do and how to cope with knowing their child has diabetes. Most of all, I want parents to learn that they shouldn't blame themselves like my mother did. Anyone want to talk to one of my freelance writers? Please email me at christina@extranews.net. Any help would be appreciated.

Comment by Ruby's mom on November 6, 2011 at 6:59pm
My daughter was diagnosed extremely early. I would call you regular doctor ASAP or even the on call number to see if your normal doctor is available. Hope all ends up well.
Comment by Jen on November 6, 2011 at 6:08pm
I am not keeping this doctor. We just had to go to him because of the short notice. I certainly will not recomend him to anyone.
 

Members (1336)

 
 
 

Advertisement



REsources

From the Diabetes Hands Foundation blog...

Meet The 2014 Big Blue Test Grant Recipients

  This year Diabetes Hands Foundation has pledged US$35,000 in Big Blue Test grants, continuing its support for programs aimed at providing lifesaving supplies, medical tests, treatment, and patient education to people living in need who have or at risk Read on! →

Kim Vlasnik: The Patient Voice

  Kim Vlasnik, you NAILED it! In this video, Kim Vlasnik takes our breath away as she describes what its like to be a person with diabetes. Fortunately, Stanford’s Medicine-X Conference gives ePatients, like Kim, a chance to speak since we carry the Read on! →

Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator

Brian (bsc) (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)

 

LIKE us on Facebook

Spread the word

Loading…

This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.

© 2014   A community of people touched by diabetes, run by the Diabetes Hands Foundation.

Badges  |  Contact Us  |  Terms of Service