parents of kids with Type 1


parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 1297
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Tudiabetes resources related to parenting kids with diabetes

Diabetes Forum

Help with getting a type 1 kid gain weight

Started by jakesmom427. Last reply by SweetBaby Mar 17. 3 Replies


Started by jdyoung. Last reply by Jo Momma Mar 4. 6 Replies

Meals schedule

Started by yousof. Last reply by Jeje9272 Mar 3. 5 Replies

Free (uncovered) carbs??

Started by yousof. Last reply by Jeje9272 Mar 3. 2 Replies

Pump vs Pens

Started by Melissa. Last reply by Eric Feb 26. 6 Replies

Private School Obligations/Rules in Florida?

Started by PhDiabetes. Last reply by PhDiabetes Feb 20. 7 Replies

Free Food Ideas

Started by Leigh. Last reply by Jessie Feb 19. 12 Replies

DKA and A1C

Started by AlysonCheatham. Last reply by AlysonCheatham Feb 19. 5 Replies

Stomach Issues with T1D Teen

Started by Chris. Last reply by Elizabeth Feb 19. 7 Replies

Comment Wall


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Comment by Patti on August 9, 2011 at 7:19am
We have two on the OmniPod and have had days like this as well. I remember one time when we had 5 pods go bad in the space of about 2 hours, and yes, the boys and I were upset, but Insulet replaced everything and we vented to each other (and the infinitely patient woman on the phone at Insulet) and moved on.

We have used other pumps and the boys say in spite of the pod failures they would never go back to a tube!
Comment by Katsz on August 9, 2011 at 7:03am
oops... sorry for all the typos. :( just read it back.
Comment by Katsz on August 9, 2011 at 7:02am
My son hasn't had many pod failures since the the beginning there seemed to be more. And as far as I can see from twitter....all pumps can have occlusions...and bad sites and issues.... My niece is on the Animas and has had to send it back because buttons broke on it... And she has had to redo her sites cuz the come out when her pump falls of her etc. So things like this can happen w/ all pumps.. it is just a matter of finding the pump that works best for you. When my son does have a fail...he gets upset too...but then goes on. He is now 17 and has to shave... he says that is more anoying to have to do than to change a pod... so I guess... at some point.. they just is a "normal" annoyance for "their" life. I wish it wasn't...but it is. So.. we try not to make more of it than that... it is just a thing that happens and then you go on. We try not to let it become a big deal. Hard..but we try at least.
Comment by Valerie on August 9, 2011 at 6:45am
Personally, I do not understand why people keep on using the pods, they seem to fail all the time. we never have that problem with the Animas pump
Comment by Jacob's mom on August 9, 2011 at 5:02am
good morning, just wanted to vent and ask you all how you help your children when you have pump failures. we had a pod failure/occlusion two mornings in a row, my son's mood changes from great to depressed in two seconds, I feel so bad and try to stay calm though this and supportive but truth be told i am just as devestated as him. we are 5 months into using the omnipod and have had pretty good success but times like this are so hard on both of us, just wanted to vent i guess. i've been studying buddhism a bit and they say life is suffering and it is up to us to learn to be less reactive to it so to speak but really!! oh well heading for the beach today hoping for a better end to the day! amy
Comment by Candee on August 3, 2011 at 2:44pm
We are having a problem this hot summer with CGM sites becoming infected. Even if we leave it just the 3 days we have little infected pimples under the tape. (Tegaderm) Anybody else dealing with this or have any suggestions?
Comment by Jessica05 on July 23, 2011 at 6:50pm
Thanks for the advice, ladies. I'm going to contact our Endo about the A1C finger stick...I never would've known without Tu! Serena: I've heard Columbia is very's just a HUGE hike for me! We go to Friedman's Diabetes Institute near Union Sq. and love the Endo & P.A. They have a Nutritionist and social worker as well, and have the JDFR meetings there, and do other support stuff which is nice. In August the kids are having a fun day where the parents can drop them, and the Endo will manage the entire day for everyone (insulin wise). Looking forward to that!
Comment by Serena on July 22, 2011 at 9:34am
Thanks for the info, Natasha. Jessica, we go to Naomi Berrie at Columbia in upper Manhattan. It's great because they have all the specialists you need under one roof -- endos, CDEs, nutritionists, podiatrist and an ophthalmologist. If you have any specific questions, feel free to message me.
Comment by daneenm on July 22, 2011 at 8:59am
Wow, really you have to do a draw for an A1C? Our practice has done finger stick A1C since my sin was dx, almost 9 years ago. That must be a real pain to go through every 3 months!
Comment by Jessica05 on July 22, 2011 at 4:37am
Serena: Can i ask which center you go to or could you message me? We are also in the NY area. I have never heard of finger stick for a1c...that would be amazing. On the other hand, I still have to do the labs for the GI stuff so it might not even make a difference in our case, but it would be nice.
Thanks for all the good advice ladies!

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From the Diabetes Hands Foundation blog...

FDA Docket Extended! We Need You.

If you are new to diabetes advocacy in the traditional sense of the word, you may be thinking, “What the heck is a docket!?” I certainly was the first twenty times I heard it (yes it took that long). For Read on! →

An Open Letter from @AskManny, @DiabetesHF to @NYTRosenthal, @NYTimes

Dear Ms. Rosenthal: I am a person living with type 1 diabetes since the age of 30. I am also the President and co-Founder of the Diabetes Hands Foundation, a nonprofit aimed at connecting and mobilizing the diabetes community. Seeing Read on! →

Diabetes Hands Foundation Team


Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Heather Gabel
(Administrative and Programs Assistant, has type 1)


Lead Administrator
Bradford (has type 1)

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)


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