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Comment by Marie B on December 15, 2012 at 7:46am

Rene, here's a discussion on it, also look at the link I posted in this discussion
http://www.tudiabetes.org/forum/topics/charcot-marie-tooth-disease

Comment by Rene on December 15, 2012 at 7:41am

I guess general discussion of Charcot would help me since I was just diagnosed with it. I have been wearing orthopedic boot but am not told I will need to wear an "Arizona Boot"to hold the bones together in my foot. I have always been picky about "pretty" shoes but I guess I will get over that.

Comment by catlover on October 13, 2011 at 1:47pm

I had my regular foot doc appt today. My doc suggested trying the Laser on one of my toes, since I have a bad foot nail fungus on all 10 of them. So I tried the Laser on my Rt. big toe. Didn't feel a thing. He said the Laser kills the fungus spores and the nail should start to grow out clean in about 6 weeks. I'll let you all know how it goes. I was really tired of the ugly nails. I may do another one next appt.

Comment by Cosumne Jan on May 14, 2011 at 6:03pm

Thank you, Trudy. I'm wearing a pair of Drew's right now. They protect my feet very well, but I can't walk very far in them, they're a bit bulky. I had some Arcopedico soft net shoes before the Charcot and I loved them, they're light and washable. But they don't work with inserts. I'll check out the Sauconys.

Comment by Trudy on May 14, 2011 at 8:04am

Hi Jan. What awful luck with your feet, but for goodness' sake, don't blame yourself. I have a bit of a problem with my right foot, a hammertoe and the other toes take some care. The shoes I've found worked for me are Saucony's running shoes. I buy the Saucony's for pronation control and in men's sizes, which have a larger toebox than women's. I buy them from www.roadrunnersports.com. For my leather shoes, I buy Drew's. The Drew brand can often be found in local specialty shoe stores, and can be found online, one source being www.footsmart.com. Don't know if they would work for you, but I kind of like looking at shoes and clothes that I don't buy! Good luck.

Comment by Cosumne Jan on May 13, 2011 at 9:08pm

Hello, I'm new here. I was diagnosed T2 4 years ago, with a 9.1 A1C. Three months later I was down to 5.2. I've been between 4.9 and 5.3 for over 3 years, but I keep having problems with my feet and legs. First I had an infected big toe that was amputated. Then I had Diabetic Amytrophic Neuropathy and couldn't walk for a couple of months. It took almost 2 years to work through that. Now it's Charcot. Other than having nasty feet, I'm the healthiest person I know. I keep my numbers low with a low carb diet only. The prescription shoes I was given are almost impossible for me to wear, they are big and heavy. My legs are not strong and my balance is still poor. Inside those shoes my feet get no sensory contact and start to contract. I grow calluses very quickly. The remaining toes on the foot with no big toe are starting to become hammertoes, I think my poor balance makes me use them to grip. Without looking at my numbers, the docs tell me that I can expect these foot problems from having uncontrolled diabetes for so long. I was never that high, not for very long. It was easy to get under control and stay that way. (Sometimes I have to wonder if I'm really diabetic.) Does anyone else have feet like this? The doc wants to cut tendons in my toes now, it's just one thing after another.

Comment by Kelly WPA on April 17, 2011 at 4:36pm

Hi 24HrRevengeTherapy. Sorry about your problems. I also went thru a bad foot wound that included MRSA and came close to losing my leg. I am surprised that you are not allowed to see a podiatrist for the problems you currently have. I would suggest trying to see if there are any wound centers in your area. I originally went to one at one of the hospitals near where I lived and when things were getting worse, I decided to jump ship and look for a better doctor. The wound center I switched to was part of Diversified Clinical Services. Unfortunately you have to actually call them to see if there is a wound center near you – I would suggest doing that. You really need a doctor that specializes in wounds. Here is the link to their website.

http://www.diversifiedcs.com/

I had a 3 hour drive to get to one. I can tell you if I had not gone, I would not have my leg today so it was worth the trip! If they have one in your area, they will know which doctors take Medicaid or not. The participating doctors have private practices but then spend a certain amount of time at the wound center.

The doctor I currently see used to be a doctor at the wound center. He is a GP but only sees wound patients. He is very good.

One of the more successful treatments in wound care has been with honey dressings. Hopefully you can find someone that uses those.

I know it is hard, but stay off your feet! Walking on the wound will only stop it from healing. They make something called a Knee About that you put your knee on and scoot around – that won’t help if you are having problems with both feet. If it is both feet, ask about getting a wheelchair. I had to get one when I went thru my big wound and when I had a smaller one after that, I used the wheelchair just because I could get around more and not put weight on my foot.

As far as the specialist for neuropathy, you will be seeing a neurologist. There are two primary tests that they will most likely do – an EMG and a Nerve Conduction Study. When I had mine, I did not thing they hurt but there was a guy there the same time I was an when he walked back into the waiting room, he told his wife that it did not hurt as much as one he had done at another hospital

If you want to see pics of what my foot looked like & read some of what I went thru you can check it out here. It is possible to get thru something really bad like what you are going thru – just don’t give up!

http://kellywpa.wordpress.com/diabetic-foot-wound-picture/

Comment by thomas on March 21, 2011 at 9:27pm

I love my feet! I walk around on them all the time. wrap them up away from air and light and they still walk me around. broke my hip in an auto accident years back(how I found out about hypoglycemic unawareness) andd broke my hip so I couldn't walk for two months. I will never feel sorry for having to walk, no matter how cold or tired or wet YAY! FEET!

Comment by Kristin on March 4, 2011 at 12:06pm

Podiatrist is definitely a good idea. I don't see one, but my endo does a thorough foot exam once per year. I went to a specialty shoe shop where I bought my inserts. They are kind of like these ones (in that they have this raised part in the middle of the foot), but mine were cheaper.

Comment by A aka Amber on March 4, 2011 at 10:41am

thanks for the replies catlover and Kristin! I'll look into the shoe inserts! I had no idea they made them to help with calluses LOL I definitely need a podiatrist, I don't have one. Isn't that crazy :)~

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