Started Symlin - although not having any side effects??

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Permalink Reply by Jason on May 15, 2009 at 12:55am

I noticed the appetite suppressant effect strongly at 15mcg when I started, but everyone is different. The nausea was never really bad for me- I only noticed it at the beginning really and it was virtually gone by the time I was at 60 or 75mcg.

How is it affecting your post-meal blood glucose movement? Are you looking to end up at 60mcg or 120mcg?

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Permalink Reply by Maden on May 20, 2009 at 3:33pm

Hey J - It's so good to hear that the nausea wasn't really bad for you either. I gradually started feeling a appetite suppressant & do use 50% less insulin then before. I am up to 45mcg and have now been having a terrible nerve like pinch headache for 2 days, but still no nausea. The post meal blood glucose is amazing! I hope to get up to 120mcg, we'll see...

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Permalink Reply by Doug on May 15, 2009 at 7:14am

I started Symlin a week and a half ago. I'm currently using 60 mcg. per meal. The appetite suppressant effects have been good. No nausea so far. My insulin requirements have remained constant (instead of decreasing as the doc told me they would). The main beneficial effects for me so far have been that my BG levels don't bottom out to 50mg/dl as they did consistently at 5 or 6 am. (I work a graveyard shift...I know when they bottom out!) It now stays about 120mg/dl. I plan on ending up at 120 mcg.

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Permalink Reply by Dora on May 15, 2009 at 10:06am

No - you are not weird. I started at 60 mcg and was at 120 mcg without Any nausea, although I had to go off of it. It was giving me heart palps and also 'stopping' me up big time! It did have the appetite suppressant effect which was really good...but I feel so much better being off of it now. I may try to go back on at a latter date. It did help with the highs after dinner...not much difference on my low and actually had a few more lows than normal. I did have other reactions...I was cold (bone chilling) all the time and would get very sleepy for the first half hour after taking. They hadn't heard that before. Since I have gone off, no more cold and no sleepy feeling after eating. Interesting. I guess I just have to watch what I eat and keep the carbs low. I was really hoping this would work. I also ate less, but still didn't lose any weight. Oh well... still waiting for that miracle cure!!!

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Permalink Reply by Maden on May 20, 2009 at 3:37pm

Wow Dora... You went through a lot with Symlin! I'm glad that you recognized that it was stemming from that and got off of it. Maybe if you try it again you should start at 15mcg and let your body try to get use to it before you jump up to 60mcg... baby steps ;-) Good to hear from you!

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Permalink Reply by Jason on May 15, 2009 at 4:56pm

Might be a bit different for Type 2s. . .since their body already produces some amylin on its own.

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Permalink Reply by Maden on May 30, 2009 at 3:52am

Okay, I've had a side effect... The back of my head became swollen after starting on 45mcg. I have come back down to 15mcg & will be working my way back up again, but very slowly. I've lost 4lbs since starting (3 weeks).

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