Hey fellow diabetics! I'm new to tu-diabetes, but not new to the whole having diabetes thing. I was diagnosed when I was 18 months old and just turned 29 years old a few days ago. I constantly hear nightmare stories about complications and am fully aware of the consequences to not taking good care of the disease. It can just be so frustrating sometimes when people especially my peers ask me about having type 1 diabetes because there is ALWAYS that one person who tries to relate to me by sharing some nightmare story about great uncle so and so who had diabetes and lost his legs. I understand why people share that kind of stuff but come on! I don't bust out stories about things like cancer to cancer patients unless I have something intelligent or positive to say. Does anyone else experience people sharing those scary stories and want to scream? I truly get they are trying to relate I just cannot stand it when they go about it in such a negative way.
some people are so rude. have you ever seen this?
it's a "diabetes etiquette" card, you can download it and give it out
also, please watch this video, I just love it!
the "diabetes police"
This happens to me ALL the time. I was diagnosed at age 3 and am 32 years old now. Knock on wood, but I have always had pretty good control and have no complications at all.
Because of negative people, or people who tell me "you can't eat that" (oh really? you know my diet?) or "you're low? better take some insulin" (and then you better take me to the hospital, you idiot) I have stopped sharing that I have diabetes with anyone outside my family and very close friends which results in a lot of bathroom trips or shut doors to test and shoot up (haha). But, when I do hear something negative, I respond with: "I'm sorry to hear about so & so; thankfully, I am extremely healthy" and look away - that usually ends it.
When I was on the MiniMed 508 15 years ago, it was the WORST because everyone noticed it and most would feel compelled to say something stupid. Now, I'm back on injections so I can go undercover.
Good luck! Vent to us anytime you need to. And - happy belated birthday!
I heard comments like this years ago, but not so much recently. But when I did, I thought how inconsiderate. Now I simply respond that many things have changed in treatment and technology, so not likely to happen to me !
More recently I find I have to emphasize I have T1 since childhood, since many assume I am T2 due to my age. What ?? An adult that has 'juvenile diabetes'. How confusing.
Hmmm, 28 years ago. When you were diagnosed, did they call it juvenile or insulin dependent or T1 ?? No wonder everyone is confused.
Maybe someday there will be internet groups of people who "used to have type 1 diabetes, but have been cured of it." I would love to be part of that.
Yup. Even your doc will tell you way more than anyone needs to hear about what WILL happen if we don't___,___, and _____ better. I think it is horrible and counter productive. Like they don't get how creative human beings are and how fear is as powerful as love in creating our personal reality. No I am not a New Age freak. I get this opinion just from observing my own and other people's lives.
Somebody else that is in my club. Someone who has been diagnosed as type 1 before age 3. Looks like you are even before that-before 2 club. Been having to deal with it for 53 and one-half years.
Unfortunately people just don't realize that they have 2 ears and only 1 mouth and seem to think that means the mouth has to work twice as hard to keep up. Way to many speak without thinking about what they are saying.
Many have to deal with the negative results of that ignorance.
Dream that one of these days I will find Aladins lamp with three wishes to it. All that have insulted me with their rudeness get to be diabetic for 1 month and have to deal with what we have to go through. Even more so they have to test blood and give injections in public places like restaurants, malls and such. Uncomfortable for a lot of people- the bystanders and them
hi .... i have had diabetes for almost 27 years now...currently i am 34.... its very natural for others to give references of severe complications so as to inquire abt how u r managing it.... its not negative.... i too just dont like hearing such stories bcoz that drains me....... anyways thats the way humans behave n is quite natural.....
I think a lot of the perceived rudeness comes from ignorance. Most people don't know the difference between Type 1 and Type 2 diabetes, much less how each is treated. I have well-intentioned co-workers who like to lament about how their husbands don't treat their diabetes as carefully as I do. The husbands, naturally, are all Type 2s. :)
Of course, I think Type 2 presents particular problems because usually people are old enough when diagnosed to be very set in their ways and unwilling to change. It's frustrating to be lumped with "those people" when most of us strive to take good care of ourselves. It's also frustrating to have nurses at the insurance company calling to give me advice as if I were a newly-diagnosed Type 2, when I've had Type 1 for 30 years! I try not to be offended, but really, you expect the medical professionals to know better. Ha!
cchelms, you hit it right on the head. I put myself on FMLA at work, just to cover myself if I need to be late because of a low bg or something. It's rare I take an entire day for myself due to diabetic issues and I have enjoyed good health. The HR person sent me an email telling me how to take care of myself and how the disease works. I was diagnosed at the age of 2, September 1955 and am a medalist. I was sweet and thanked her for her concern.