Type1 for 30 Plus Years

Information

Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 291
Latest Activity: yesterday

Discussion Forum

Symlin?

Started by ANTONIA RETMAN. Last reply by Dan P yesterday. 7 Replies

Any other long time Type 1's on Symlin? And how is that working out for you? I'm 40 and was diagnosed at the age of 3. Thanks for any infoContinue

Tags: Symlin

Our role (8,520 years w/ diabetes at minimum) ?

Started by Stuart. Last reply by Stephaniebeth May 28. 9 Replies

I am in stunned awe of the profound diabetic experience(s) which this 30 plus years group possesses. 8,520 years presuming only 30 years.Many (most?) appear to have significant diabetes experience…Continue

Tags: 8520, 1000, serious-experience, diabetes, experience

T1D - Discrimination or Not?

Started by Robert Yancey. Last reply by Theodore Quick May 27. 9 Replies

Hi All, After recently joining Emily's awesome interview with the CEO of Dexcom, I realized that I missed associating with fellow T1D'ers. So, I thought I would share with you a recent experience…Continue

Memories I'd like to forget

Started by Marion Mifsud. Last reply by Mike May 2. 16 Replies

I was diagnosed at age 6 and am now 59. Trying to keep from losing kidney function 30% left. I remember the glass needles with the thick needles that could have a bard on it. I don't know if this…Continue

Comment Wall

Comment

You need to be a member of Type1 for 30 Plus Years to add comments!

Comment by Josh F on November 30, 2011 at 10:10am

Richard, thanks for the kind words. I worry about my eyes all the time. I think I drive my Opthamologist and Endo a little nutty sometimes. ;-) I followed your posts on Joslin and want to let you know I consider you and others a great inspiration. Maybe I have good genes like you guys. I hope so. cr88te , it is a little strange to think how much time has passed with this condition. So used to having it, I forget it is there sometimes ;-). Well not really. Ha.

Comment by cr88te on November 30, 2011 at 7:32am

Hi Josh! I'm right there with you... 32 years and counting. :)

Comment by Richard157 on November 30, 2011 at 7:29am

Hello Josh, you have done very well! ith only a mild complication after 32 years, wo shoyld be able to have a very long and healthy life.

Comment by Josh F on November 30, 2011 at 12:05am

Hi everyone. I have had Type 1 for 32 years, and well, have only some background retinopathy to show for it. ;-) Not too bad considering.

Comment by spumoni on November 6, 2011 at 8:46pm
Hello to all! I'm so happy I discovered this group today! I've had Type 1 diabetes for 37 years and have no idea how I've made it this far with so few problems. We are all members of a truly special group! :^>
Comment by Richard157 on November 5, 2011 at 5:35pm
Jack, I misread your post as 44 years. Ha! I did not have any hospital records to show. That hospital keeps patient records for only 10 years. Then I found that I could have a couple of people who knew me near the time of my diagnosis write letters telling what they remembered. My sister and a first cousin did that, and I sent their letters to Joslin along with my application. I received my medal a few weeks later.Then I participated in the Joslin Medalist Study later that year. Participating in the study is optional.
Comment by JackSprat999 on November 5, 2011 at 4:48pm
Hallo Richard,
Yes, I have already contacted Joslin inquiring about their "half century" club. However, I had to do a good bit of digging into old archives to find my hospital records when my type 1 was diagnosed so long ago. I sent copies in recently and that should confirm my eligability. I look forward to joining the medalist club.

However, I am confused over your comment saying that I will be eligable in 6 more years. In 6 more years, I will have had type 1 diabetes for 60 years. Ha! I read that there are several 75 year medalist as well. I would love to chat with them.

I have a daughter back at Boston University in grad school thus I may swing by Joslin when I visit her this Spring. It should be interesting indeed.

All the best, Jack
Comment by Richard157 on November 5, 2011 at 7:33am
Hello Jack. In 6 more years you will be eligible for the Joslin 50 year medal. Are you aware of their medalist program?
Comment by JackSprat999 on November 5, 2011 at 1:24am
Howdy fellow long timer type 1's!

My name is Jack and I've had type 1 for over 54 years. I am currently using an Animas Ping with Humalog, Dexcom Seven Plus, OneTouch blood tester, and use EzManager to calculate my carbs and dosage. My last HbA1c was 7.1, with my best at 6.8. My endocrinologist says that is great. He advises me not to shoot for sub 7 since to get there I have had a lot of hypo sessions. Overall I have the big D under reasonable control. It has certainly not easy, but I give it my best effort. I eat healthy stuff and exercise vigorously on a daily basis for at least an hour and that certainly seems to help. I spent 2 weeks at Joslin clinic when I was 7 years old and that helped get me on the right track. I look forward to reading and participating in the daily comments.

All the best, Jack
Comment by Richard157 on November 4, 2011 at 7:59pm
Gail, that was a very good post. I was diagnosed in 1945, so I had the same experiences. Do you remember having to insert a wire through the needle to unclog it it? You are right, I "don't know how we got through those times", but we did. Most type 1 diabetics did not get through so well. Those of us who did are being studied at the Joslin diabetes Center in Boston. More than 700 participants with type 1 for 50 years or more have participated. In 7 more years you will be eligible for the 50 year medal. Maybe the study being done will have determined why we have lived long and healthy by then. Thy want to know what makes us different.
 

Members (291)

 
 
 

Advertisement



REsources

From the Diabetes Hands Foundation blog...

How do you measure the work of volunteers?

329,040 minutes, 329,040 moments so dear. 329,040 minutes — How do you measure, measure volunteers? In smileys, in tears shed, in counsel, in cups of coffee. In units, in carb counts, in laughter, in strife. In 329,040 minutes – how …
Continue Reading

DHF Expands Board of Advisors

Diabetes Hands Foundation has always relied on partners and advisors to increase its understanding of the diabetes space, in order to better serve people touched by diabetes. Today this is as true as ever, as we proudly announce the expansion …
Continue Reading

TuDiabetes Team

DHF STAFF

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Emily Walton
(Business Manager)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Heather Gabel
(Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator
Bradford (has type 1)

Administrators
Lorraine (mother of type 1)
Marie B (has type 1)

Teena (has type 2)

Brian (bsc) (has type 2)

jrtpup (has LADA)

 

LIKE us on Facebook

Spread the word

Loading…

This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.

© 2013   A community of people touched by diabetes, run by the Diabetes Hands Foundation.

Badges  |  Contact Us  |  Terms of Service