Type1 for 30 Plus Years


Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 352
Latest Activity: yesterday

Diabetes Forum

Sorry Honey...

Started by Stuart. Last reply by Kilij yesterday. 14 Replies

Had a little "challenge" this week, which suffice to say I won't go into detail about. It was bad, really, really bad (sic. diabetic stuff) by any possible measure.My question for you my peers....…Continue

Tags: sorry, advice, counsel, experience, lover

You Did Not Take Good Care Of Yourself???

Started by Richard157. Last reply by artwoman on Friday. 27 Replies

Those of us who have been type 1 for a very long time have probably dealt with a lot of ignorance from people giving us bad advice. Has anyone ever told you that "You Did Not Take Care Of Yourself"?…Continue

50y.o. (almost) now what ...

Started by Stuart. Last reply by shoshana27 on Friday. 6 Replies

Nearing fifty "soon", what kind of changes were necessary for YOU, re: dosages and so forth.How much did you need to tweak the carb counting? How much did you have to change/alter what you used to…Continue

Tags: percentage, anticipated-changes, anticipate, anticipated, formula

insulin pump vs shots perplexed

Started by Francie. Last reply by Stuart on Thursday. 18 Replies

T1 36 years w/ insulin resistance for 3 years . . . I was put on the pump 5 years ago to gain better control which looking back, was a horrible mistake, i needed twice as much insulin to control…Continue

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Comment by trinsmum on November 30, 2011 at 10:19am

35 years this past July..Still going strong with no major complications. *knock on wood*

Comment by Josh F on November 30, 2011 at 10:10am

Richard, thanks for the kind words. I worry about my eyes all the time. I think I drive my Opthamologist and Endo a little nutty sometimes. ;-) I followed your posts on Joslin and want to let you know I consider you and others a great inspiration. Maybe I have good genes like you guys. I hope so. cr88te , it is a little strange to think how much time has passed with this condition. So used to having it, I forget it is there sometimes ;-). Well not really. Ha.

Comment by cr88te on November 30, 2011 at 7:32am

Hi Josh! I'm right there with you... 32 years and counting. :)

Comment by Richard157 on November 30, 2011 at 7:29am

Hello Josh, you have done very well! ith only a mild complication after 32 years, wo shoyld be able to have a very long and healthy life.

Comment by Josh F on November 30, 2011 at 12:05am

Hi everyone. I have had Type 1 for 32 years, and well, have only some background retinopathy to show for it. ;-) Not too bad considering.

Comment by spumoni on November 6, 2011 at 8:46pm
Hello to all! I'm so happy I discovered this group today! I've had Type 1 diabetes for 37 years and have no idea how I've made it this far with so few problems. We are all members of a truly special group! :^>
Comment by Richard157 on November 5, 2011 at 5:35pm
Jack, I misread your post as 44 years. Ha! I did not have any hospital records to show. That hospital keeps patient records for only 10 years. Then I found that I could have a couple of people who knew me near the time of my diagnosis write letters telling what they remembered. My sister and a first cousin did that, and I sent their letters to Joslin along with my application. I received my medal a few weeks later.Then I participated in the Joslin Medalist Study later that year. Participating in the study is optional.
Comment by JackSprat999 on November 5, 2011 at 4:48pm
Hallo Richard,
Yes, I have already contacted Joslin inquiring about their "half century" club. However, I had to do a good bit of digging into old archives to find my hospital records when my type 1 was diagnosed so long ago. I sent copies in recently and that should confirm my eligability. I look forward to joining the medalist club.

However, I am confused over your comment saying that I will be eligable in 6 more years. In 6 more years, I will have had type 1 diabetes for 60 years. Ha! I read that there are several 75 year medalist as well. I would love to chat with them.

I have a daughter back at Boston University in grad school thus I may swing by Joslin when I visit her this Spring. It should be interesting indeed.

All the best, Jack
Comment by Richard157 on November 5, 2011 at 7:33am
Hello Jack. In 6 more years you will be eligible for the Joslin 50 year medal. Are you aware of their medalist program?
Comment by JackSprat999 on November 5, 2011 at 1:24am
Howdy fellow long timer type 1's!

My name is Jack and I've had type 1 for over 54 years. I am currently using an Animas Ping with Humalog, Dexcom Seven Plus, OneTouch blood tester, and use EzManager to calculate my carbs and dosage. My last HbA1c was 7.1, with my best at 6.8. My endocrinologist says that is great. He advises me not to shoot for sub 7 since to get there I have had a lot of hypo sessions. Overall I have the big D under reasonable control. It has certainly not easy, but I give it my best effort. I eat healthy stuff and exercise vigorously on a daily basis for at least an hour and that certainly seems to help. I spent 2 weeks at Joslin clinic when I was 7 years old and that helped get me on the right track. I look forward to reading and participating in the daily comments.

All the best, Jack

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