Type1 for 30 Plus Years

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Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 359
Latest Activity: 22 hours ago

Diabetes Forum

Perplexing symptoms - Autonomic Neuropathy or Addison's?

Started by earthling. Last reply by earthling 22 hours ago. 18 Replies

Hello fellow D-veterans. If anyone here could help me figure out my current weird symptoms, I would be eternally grateful! Sorry if this is long.Background:I'm a 62 year old woman I've had T1…Continue

Tags: Disease, low, BP, Addison's, Neuropathy

You Did Not Take Good Care Of Yourself???

Started by Richard157. Last reply by angivan yesterday. 28 Replies

Those of us who have been type 1 for a very long time have probably dealt with a lot of ignorance from people giving us bad advice. Has anyone ever told you that "You Did Not Take Care Of Yourself"?…Continue

Sorry Honey...

Started by Stuart. Last reply by angivan yesterday. 33 Replies

Had a little "challenge" this week, which suffice to say I won't go into detail about. It was bad, really, really bad (sic. diabetic stuff) by any possible measure.My question for you my peers....…Continue

Tags: sorry, advice, counsel, experience, lover

50y.o. (almost) now what ...

Started by Stuart. Last reply by Fred Goldberg Dec 10. 9 Replies

Nearing fifty "soon", what kind of changes were necessary for YOU, re: dosages and so forth.How much did you need to tweak the carb counting? How much did you have to change/alter what you used to…Continue

Tags: percentage, anticipated-changes, anticipate, anticipated, formula

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Comment by Richard157 on November 30, 2011 at 12:19pm

I was diagnosed in 1945, when I was 6, so it has been 66 years for me. I have some mild nerve damage, but no other complications. There are hundreds of moms of T1 kids in parent's groups on Facebook. They love to hear from us long termers who are healthy. Many of them have bought my book about my life with T1.

Comment by ShelbyH on November 30, 2011 at 11:42am

Uh oh. Let me clarify. My most recent eye tests are normal. But, I did have some retinopathy in my right eye. I got that lasered in 1999. But, now that is all healed up and have had no further problems.
You are a ROCK STAR! Seriously, what's a little laser action on the eyes? Nothing much! I bet your eyes heal up and your eye doc won't even see scarring or anything!
Thanks for the warm fuzzies, BTW.
~Shelby

Comment by Josh F on November 30, 2011 at 11:15am

Shelby I am so impressed and jealous ;-) Nothing after 38 years of T1? WOW. i thought I was doing ok. Heh. Congrats.

Comment by ShelbyH on November 30, 2011 at 10:59am

Hi fellow warriors and rock stars,
It is awesome to meet more people like me and have new people in our very special group. It is awesome to hear your stories and successes.
Everyday I am blown away by how old I am, 39, and how many years with diabetes, 38 this month! I really don't know how this happens. Time moves so fast, doesn't it?
Anyways, I got my labs back and my kidneys are AOK. My eyes too. I really don't have time for issues. I am in Grad School, getting married Dec 30th, and moving to San Diego. Life plows forward! : )
It is not like everyday is a picnic though, as I am sure you all can attest to. I was late to Thanksgiving festivities because I had the worst low I have had in a long time. I was 53, did the normal juice and granola bar thing. But, it just didn't work. 30 minutes later I was 40. I still have no idea what was going on. I just drank some juice and laid in my bed listening to music accepting I would be late. Whateves! Just how it goes sometimes.
The point is that we all RULE and I am happy to chat with all of you.
~Shelby

Comment by Tarra on November 30, 2011 at 10:47am

It has been great hearing how many there are in 30 plus years doing well. I have had it 31 years only issue i have is hypoglycemia unawareness. So feeling lucky so far. It makes me realize how long i have had it when people ask. Still can't believe i have had it since i was 18 months old and her i am at 31 years.

Comment by cr88te on November 30, 2011 at 10:35am

I agree with Josh... it gives me hope to see so many who have found their own way to 'make it work.' Josh, the passing of time with diabetes is as strange to me as admitting how old I am... my first memories are of being in the hospital being diagnosed (at 3), so life without it is like a new language to me, i just don't understand the concept. I guess it's all relative... to me, this is normal. :)

Comment by trinsmum on November 30, 2011 at 10:19am

35 years this past July..Still going strong with no major complications. *knock on wood*

Comment by Josh F on November 30, 2011 at 10:10am

Richard, thanks for the kind words. I worry about my eyes all the time. I think I drive my Opthamologist and Endo a little nutty sometimes. ;-) I followed your posts on Joslin and want to let you know I consider you and others a great inspiration. Maybe I have good genes like you guys. I hope so. cr88te , it is a little strange to think how much time has passed with this condition. So used to having it, I forget it is there sometimes ;-). Well not really. Ha.

Comment by cr88te on November 30, 2011 at 7:32am

Hi Josh! I'm right there with you... 32 years and counting. :)

Comment by Richard157 on November 30, 2011 at 7:29am

Hello Josh, you have done very well! ith only a mild complication after 32 years, wo shoyld be able to have a very long and healthy life.

 

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