Type1 for 30 Plus Years


Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 352
Latest Activity: Nov 10

Diabetes Forum

Sorry Honey...

Started by Stuart. Last reply by Stuart Nov 6. 29 Replies

Had a little "challenge" this week, which suffice to say I won't go into detail about. It was bad, really, really bad (sic. diabetic stuff) by any possible measure.My question for you my peers....…Continue

Tags: sorry, advice, counsel, experience, lover

50y.o. (almost) now what ...

Started by Stuart. Last reply by Jane Dullius Oct 22. 8 Replies

Nearing fifty "soon", what kind of changes were necessary for YOU, re: dosages and so forth.How much did you need to tweak the carb counting? How much did you have to change/alter what you used to…Continue

Tags: percentage, anticipated-changes, anticipate, anticipated, formula

You Did Not Take Good Care Of Yourself???

Started by Richard157. Last reply by artwoman Oct 17. 27 Replies

Those of us who have been type 1 for a very long time have probably dealt with a lot of ignorance from people giving us bad advice. Has anyone ever told you that "You Did Not Take Care Of Yourself"?…Continue

insulin pump vs shots perplexed

Started by Francie. Last reply by Stuart Oct 16. 18 Replies

T1 36 years w/ insulin resistance for 3 years . . . I was put on the pump 5 years ago to gain better control which looking back, was a horrible mistake, i needed twice as much insulin to control…Continue

Comment Wall


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Comment by rahul aswani on December 1, 2011 at 1:36am

hi jack...gr8 going for the HbA1c.....i hv diabetes for past 27 years...recently detected with background retinopathy.....my HbA1c is not that good......trying level best....

Comment by ShelbyH on November 30, 2011 at 11:37pm

Duuuuude! I have never had an A1C below 7. If anyone knows the golden ticket to that, please share! I know what you mean about the "good diabetic" thing. I knew this woman who would eat 4 honey graham bear things when her blood sugar was low. Then, she would wait and retest and eat 2 more. OMG! So unrealistic. Give me a huge glass of juice and a granola bar so the shaking will stop. Seriously Josh, you RULE and when you get burnt out, you are not the only one! This is some hard stuff that we have to contend with.
Speaking of as a BTW, so I go to a bar tonight to meet friend. They had NO DIET COKE. Irritating is an understatement.

Comment by Josh F on November 30, 2011 at 11:20pm

Thanks Gail. Yeah I have to admit, I get down sometimes and burnt out. I never felt like a good diabetic, but guess I must be doing something right, as ( knock on wood) I am still relatively healthy. I was really beating myself up over the Moderate NPDR, but my long term goal is to try and reverse it to Mild if possible. I have been reading Dr. Berstien's book as well. Something I never considered because I could for years barely get my A1c below 7.5 let alone a 6. But we will see. Maybe the hard work might pay off one day.

Comment by Gail on November 30, 2011 at 6:45pm

Hey Josh, welcome to the group! This is such an inspiring group, isn't it? I love hearing everyone's experiences. It's just so liberating (and at the same time also unfortunate) to know that others have been through a lot of the same experiences as me and we can all relate to each other. For so long, I never really had anyone who truly understood the ups and downs of this disease. Anyway, I've been a T1 for 43 years and am amazed that I've survived very well thus far!

Comment by Josh F on November 30, 2011 at 3:42pm

@ Shelby, Oh I am sorry. ;-) I misunderstood. I was so amazed, that I read into it as no complications ever. But even so, congrats! Still inspiring to know someone who got it at 1 year old!

Richard, as always, you inspire us all. ;-)

Comment by Richard157 on November 30, 2011 at 12:19pm

I was diagnosed in 1945, when I was 6, so it has been 66 years for me. I have some mild nerve damage, but no other complications. There are hundreds of moms of T1 kids in parent's groups on Facebook. They love to hear from us long termers who are healthy. Many of them have bought my book about my life with T1.

Comment by ShelbyH on November 30, 2011 at 11:42am

Uh oh. Let me clarify. My most recent eye tests are normal. But, I did have some retinopathy in my right eye. I got that lasered in 1999. But, now that is all healed up and have had no further problems.
You are a ROCK STAR! Seriously, what's a little laser action on the eyes? Nothing much! I bet your eyes heal up and your eye doc won't even see scarring or anything!
Thanks for the warm fuzzies, BTW.

Comment by Josh F on November 30, 2011 at 11:15am

Shelby I am so impressed and jealous ;-) Nothing after 38 years of T1? WOW. i thought I was doing ok. Heh. Congrats.

Comment by ShelbyH on November 30, 2011 at 10:59am

Hi fellow warriors and rock stars,
It is awesome to meet more people like me and have new people in our very special group. It is awesome to hear your stories and successes.
Everyday I am blown away by how old I am, 39, and how many years with diabetes, 38 this month! I really don't know how this happens. Time moves so fast, doesn't it?
Anyways, I got my labs back and my kidneys are AOK. My eyes too. I really don't have time for issues. I am in Grad School, getting married Dec 30th, and moving to San Diego. Life plows forward! : )
It is not like everyday is a picnic though, as I am sure you all can attest to. I was late to Thanksgiving festivities because I had the worst low I have had in a long time. I was 53, did the normal juice and granola bar thing. But, it just didn't work. 30 minutes later I was 40. I still have no idea what was going on. I just drank some juice and laid in my bed listening to music accepting I would be late. Whateves! Just how it goes sometimes.
The point is that we all RULE and I am happy to chat with all of you.

Comment by Tarra on November 30, 2011 at 10:47am

It has been great hearing how many there are in 30 plus years doing well. I have had it 31 years only issue i have is hypoglycemia unawareness. So feeling lucky so far. It makes me realize how long i have had it when people ask. Still can't believe i have had it since i was 18 months old and her i am at 31 years.


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From the Diabetes Hands Foundation blog...

An eye opening experience at @CWDiabetes!

Last month, I had one of the most amazing experiences I have had with technology since I have been living with diabetes. It happened at the Focus On Technology conference organized by Children With Diabetes in Los Angeles (the first Read on! →

World Diabetes Day at REALM Charter School

REALM Charter is a middle school full of amazing young people eager to learn about World Diabetes Day. Team DHF spent the day with over 300 students and taught them about the Big Blue Test and what they can do Read on! →

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Manny Hernandez
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Emily Coles
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Corinna Cornejo
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Brian (bsc) (has type 2)


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Marie B (has type 1)

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