Type1 for 30 Plus Years


Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 351
Latest Activity: Sep 9

Diabetes Forum

You Did Not Take Good Care Of Yourself???

Started by Richard157. Last reply by Marie Torregrosa Sep 7. 20 Replies

Those of us who have been type 1 for a very long time have probably dealt with a lot of ignorance from people giving us bad advice. Has anyone ever told you that "You Did Not Take Care Of Yourself"?…Continue

Joslin Medalist Program

Started by Emily Coles. Last reply by shoshana27 Jun 8. 55 Replies

Hey fellow D long-timers,If you've had diabetes for 50 years or more, you're eligible for a…Continue

Tags: medalist, gold medal, Joslin

Our minds, our thinking... ???

Started by Stuart. Last reply by Stuart Jun 5. 25 Replies

Consider with this much experience, how has diabetes fundamentally effected the ways you think about & filter things?!?!How has our diabetes changed our psychology whether we are aware of it or…Continue

Tags: effects, mental-diabetes, floss, psychological, behavior

Osteoporosis meds?

Started by Marypat. Last reply by Sue R. Feb 27. 3 Replies

Are there any T1s who are taking meds for osteoporosis? What is your experience? I have seen 4 doctors and have 4 different opinions and still no treatment plan.Continue

Comment Wall


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Comment by ShelbyH on November 30, 2011 at 11:37pm

Duuuuude! I have never had an A1C below 7. If anyone knows the golden ticket to that, please share! I know what you mean about the "good diabetic" thing. I knew this woman who would eat 4 honey graham bear things when her blood sugar was low. Then, she would wait and retest and eat 2 more. OMG! So unrealistic. Give me a huge glass of juice and a granola bar so the shaking will stop. Seriously Josh, you RULE and when you get burnt out, you are not the only one! This is some hard stuff that we have to contend with.
Speaking of as a BTW, so I go to a bar tonight to meet friend. They had NO DIET COKE. Irritating is an understatement.

Comment by Josh F on November 30, 2011 at 11:20pm

Thanks Gail. Yeah I have to admit, I get down sometimes and burnt out. I never felt like a good diabetic, but guess I must be doing something right, as ( knock on wood) I am still relatively healthy. I was really beating myself up over the Moderate NPDR, but my long term goal is to try and reverse it to Mild if possible. I have been reading Dr. Berstien's book as well. Something I never considered because I could for years barely get my A1c below 7.5 let alone a 6. But we will see. Maybe the hard work might pay off one day.

Comment by Gail on November 30, 2011 at 6:45pm

Hey Josh, welcome to the group! This is such an inspiring group, isn't it? I love hearing everyone's experiences. It's just so liberating (and at the same time also unfortunate) to know that others have been through a lot of the same experiences as me and we can all relate to each other. For so long, I never really had anyone who truly understood the ups and downs of this disease. Anyway, I've been a T1 for 43 years and am amazed that I've survived very well thus far!

Comment by Josh F on November 30, 2011 at 3:42pm

@ Shelby, Oh I am sorry. ;-) I misunderstood. I was so amazed, that I read into it as no complications ever. But even so, congrats! Still inspiring to know someone who got it at 1 year old!

Richard, as always, you inspire us all. ;-)

Comment by Richard157 on November 30, 2011 at 12:19pm

I was diagnosed in 1945, when I was 6, so it has been 66 years for me. I have some mild nerve damage, but no other complications. There are hundreds of moms of T1 kids in parent's groups on Facebook. They love to hear from us long termers who are healthy. Many of them have bought my book about my life with T1.

Comment by ShelbyH on November 30, 2011 at 11:42am

Uh oh. Let me clarify. My most recent eye tests are normal. But, I did have some retinopathy in my right eye. I got that lasered in 1999. But, now that is all healed up and have had no further problems.
You are a ROCK STAR! Seriously, what's a little laser action on the eyes? Nothing much! I bet your eyes heal up and your eye doc won't even see scarring or anything!
Thanks for the warm fuzzies, BTW.

Comment by Josh F on November 30, 2011 at 11:15am

Shelby I am so impressed and jealous ;-) Nothing after 38 years of T1? WOW. i thought I was doing ok. Heh. Congrats.

Comment by ShelbyH on November 30, 2011 at 10:59am

Hi fellow warriors and rock stars,
It is awesome to meet more people like me and have new people in our very special group. It is awesome to hear your stories and successes.
Everyday I am blown away by how old I am, 39, and how many years with diabetes, 38 this month! I really don't know how this happens. Time moves so fast, doesn't it?
Anyways, I got my labs back and my kidneys are AOK. My eyes too. I really don't have time for issues. I am in Grad School, getting married Dec 30th, and moving to San Diego. Life plows forward! : )
It is not like everyday is a picnic though, as I am sure you all can attest to. I was late to Thanksgiving festivities because I had the worst low I have had in a long time. I was 53, did the normal juice and granola bar thing. But, it just didn't work. 30 minutes later I was 40. I still have no idea what was going on. I just drank some juice and laid in my bed listening to music accepting I would be late. Whateves! Just how it goes sometimes.
The point is that we all RULE and I am happy to chat with all of you.

Comment by Tarra on November 30, 2011 at 10:47am

It has been great hearing how many there are in 30 plus years doing well. I have had it 31 years only issue i have is hypoglycemia unawareness. So feeling lucky so far. It makes me realize how long i have had it when people ask. Still can't believe i have had it since i was 18 months old and her i am at 31 years.

Comment by cr88te on November 30, 2011 at 10:35am

I agree with Josh... it gives me hope to see so many who have found their own way to 'make it work.' Josh, the passing of time with diabetes is as strange to me as admitting how old I am... my first memories are of being in the hospital being diagnosed (at 3), so life without it is like a new language to me, i just don't understand the concept. I guess it's all relative... to me, this is normal. :)


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From the Diabetes Hands Foundation blog...

#MedicareCoverCGM Panel Discussion

If you follow the diabetes online community, you know that #MedicareCoverCGM is a big deal. We have continued to raise awareness on #MedicareCoverCGM because we believe that ALL people living with diabetes should have access to continuous glucose monitors (CGM). With Read on! →

#WalkWithD: Making MORE Sense of Diabetes

  A few years ago, we at Diabetes Hands Foundation reached out to the members on TuDiabetes and asked them to share their perspective of life with diabetes through one of the five senses, as part of an initiative called Read on! →

Diabetes Hands Foundation Team


Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


Lead Administrator

Bradford (has type 1)


Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)


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