Type1 for 30 Plus Years

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Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 351
Latest Activity: Sep 9

Diabetes Forum

You Did Not Take Good Care Of Yourself???

Started by Richard157. Last reply by Marie Torregrosa Sep 7. 20 Replies

Those of us who have been type 1 for a very long time have probably dealt with a lot of ignorance from people giving us bad advice. Has anyone ever told you that "You Did Not Take Care Of Yourself"?…Continue

Joslin Medalist Program

Started by Emily Coles. Last reply by shoshana27 Jun 8. 55 Replies

Hey fellow D long-timers,If you've had diabetes for 50 years or more, you're eligible for a…Continue

Tags: medalist, gold medal, Joslin

Our minds, our thinking... ???

Started by Stuart. Last reply by Stuart Jun 5. 25 Replies

Consider with this much experience, how has diabetes fundamentally effected the ways you think about & filter things?!?!How has our diabetes changed our psychology whether we are aware of it or…Continue

Tags: effects, mental-diabetes, floss, psychological, behavior

Osteoporosis meds?

Started by Marypat. Last reply by Sue R. Feb 27. 3 Replies

Are there any T1s who are taking meds for osteoporosis? What is your experience? I have seen 4 doctors and have 4 different opinions and still no treatment plan.Continue

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Comment by Sue R. on February 2, 2012 at 6:05pm

Yes, lows always make you feel cold. The lows cause a lack of oxygen to the brain I suppose that must be the reason?

Comment by Sue R. on February 2, 2012 at 6:03pm

Comment by Bella on February 2, 2012 at 5:54pm

I have been diabetic for 27 years and I just realized that! I think I hate the early days with diabetes in my country was difficult to find insuline and I got my first glucose monitor 15 years later. Off course, I had some complications and consequences but since I am living in the US I have been under control. Last year I had a very low sugar while sleeping and I was alone. I have to crawl to reach the refigerator and call 911. I drunk cramberry juice about 16 onzas. When the nurse took my tempeture, it was 34, I was feeling like I was in a frozen lake. Now, Why this happen? any time my sugar goes too low and I drink some juice I feel cold?

Comment by Baby Peanut on January 31, 2012 at 7:16am

oooh, i like medals! i'll be eligible in '14 if i don't get hit by a bus or something :) i remember: clinitest, acetest, beef & pork insulin & my mom boiling syringes. although i am brittle & have had complications, i am still more or less in piece, & tell my doctor to chill out with the #'s(under 6 definitely too low for me). i'm gonna check out the joslin site for that medal now, cheers!

Comment by Richard157 on January 30, 2012 at 7:57pm

Hello, Lathump! I have been a type 1 for 66 years, and I am very healthy. Some mild nerve damage and a little neuropathy are my only diabetes related complications.

I also agree that we long termers had it easier. We were not told about possible complications when I was diagnosed in 1945.One shot of pork insulin and one urine test , both in the morning, and that was it. I did not eat any sugar at all, but there was no mentioning of carbs whatsoever. So we were not worried about my diabetes. Avoiding sugar was easy once I was used to it. Like you said, we are lucky we did not have complications back then. There are thousands of long term type 1 diabetics in the US, and many of them do not have any sefrious complications. The Joslin Diabetes Center in Boston awards medals to type 1's who have lived with their diabetes for 50 and 75 years. I received the 50 year medal and am looking forward to the 75 year medal. I met with more than 100 of the medalists in Boston last year. It felt great to talk with so many healthy long term type 1's.

Comment by Laddie on January 30, 2012 at 5:30pm
I've had Type 1 since 1976--diagnosed at Age 24. I just joined this group today. I wish that it were more active because I'm really interested in what my fellow old timers have to say.

I agree with those who say that in some ways we had it easier than those who were diagnosed in recent years. I think that we escaped some of the guilt and anxiety that new Type 1's experience these days. On the other hand, our terrible control resulted in complications for many of us. I'm lucky to be in good health after 35+ years of this.

One of my biggest concerns is Medicare coverage. I still have 5 years to go, but I worry about lack of CGMS coverage and limitation on test strips.
Comment by Clinitest on January 30, 2012 at 12:59pm

Good for you Linda! Welcome to the club :) Guess we should start a 50 year group too! Keep all the bases covered.

Comment by Linda on January 30, 2012 at 12:51pm

Thought I should join this group too. I had joined the 25+ years but since I've been diabetic for 50 years I should join them all!! You can never learn enough.

Comment by Baby Peanut on January 18, 2012 at 4:53am

hi ruth, you can upload a photo on zazzle or spreadshirt if you can't find the shirt pre-made. my doctor gets excited if my a1c is under 6, i'm still trying to explain brittle to her but whatever ;) anyway, i'm trying to drop about 10-15 lbs & i think i'm doing ok(started calorie slashing friday), don't own a scale but just broke down & ordered one :0 anyway, best to you, cheers, liz

Comment by Ruth on January 17, 2012 at 7:56pm

Hi Everyone,

I am kind of new to the DOC community. I have had diabetes 38 years, since I was 8 years old. In pretty good health now, no complications but rather overweight. Working on it, though! Ive been inspired by all the Type 1 athletes and realize I cant use diabetes as an excuse anymore. In any case, I just had an h1C of 5.6. Ive never had one that low.. I attribute it to the CGM. It beeps at me, I yell and growl at it, but it saves my ass.

Anyone know where I can find a tshirt that has just the picture in my profile pic right now? Cant find one anywhere...
Thanks for being here. I can use the support. This disease really stinks. It takes up too much time, energy and money, not to mention mental health moments, mood disorders and the toll it takes on the family. Got to hang in there and hold out for a cure! Or at least the new pancreas...

Take care,
Ruth

 

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From the Diabetes Hands Foundation blog...

#MedicareCoverCGM Panel Discussion

If you follow the diabetes online community, you know that #MedicareCoverCGM is a big deal. We have continued to raise awareness on #MedicareCoverCGM because we believe that ALL people living with diabetes should have access to continuous glucose monitors (CGM). With Read on! →

#WalkWithD: Making MORE Sense of Diabetes

  A few years ago, we at Diabetes Hands Foundation reached out to the members on TuDiabetes and asked them to share their perspective of life with diabetes through one of the five senses, as part of an initiative called Read on! →

Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


DHF VOLUNTEERS


Lead Administrator

Bradford (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

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