Type1 for 30 Plus Years

Information

Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 349
Latest Activity: on Wednesday

Diabetes Forum

You Did Not Take Good Care Of Yourself???

Started by Richard157. Last reply by artwoman Jul 17. 13 Replies

Those of us who have been type 1 for a very long time have probably dealt with a lot of ignorance from people giving us bad advice. Has anyone ever told you that "You Did Not Take Care Of Yourself"?…Continue

Joslin Medalist Program

Started by Emily Coles. Last reply by shoshana27 Jun 8. 55 Replies

Hey fellow D long-timers,If you've had diabetes for 50 years or more, you're eligible for a…Continue

Tags: medalist, gold medal, Joslin

Our minds, our thinking... ???

Started by Stuart. Last reply by Stuart Jun 5. 25 Replies

Consider with this much experience, how has diabetes fundamentally effected the ways you think about & filter things?!?!How has our diabetes changed our psychology whether we are aware of it or…Continue

Tags: effects, mental-diabetes, floss, psychological, behavior

Osteoporosis meds?

Started by Marypat. Last reply by Sue R. Feb 27. 3 Replies

Are there any T1s who are taking meds for osteoporosis? What is your experience? I have seen 4 doctors and have 4 different opinions and still no treatment plan.Continue

Comment Wall

Comment

You need to be a member of Type1 for 30 Plus Years to add comments!

Comment by Ruth on January 17, 2012 at 7:56pm

Hi Everyone,

I am kind of new to the DOC community. I have had diabetes 38 years, since I was 8 years old. In pretty good health now, no complications but rather overweight. Working on it, though! Ive been inspired by all the Type 1 athletes and realize I cant use diabetes as an excuse anymore. In any case, I just had an h1C of 5.6. Ive never had one that low.. I attribute it to the CGM. It beeps at me, I yell and growl at it, but it saves my ass.

Anyone know where I can find a tshirt that has just the picture in my profile pic right now? Cant find one anywhere...
Thanks for being here. I can use the support. This disease really stinks. It takes up too much time, energy and money, not to mention mental health moments, mood disorders and the toll it takes on the family. Got to hang in there and hold out for a cure! Or at least the new pancreas...

Take care,
Ruth

Comment by Mike S. on December 29, 2011 at 12:57pm

Thanks for the url, MikeO. Very familiar with Johns Hopkins. Wife is a CPA there, sister has a PhD there, another sister is an RN in the emer dept there. Dad was a pathologist associated with the system. Me? Before I was forced to quit due to complictions was a buyer for Medstar health. I assume the physician you posted is associated with the Wilmer Eye Institute. I will check it out. Thanks again.

Comment by BWashington on December 28, 2011 at 5:37am

Thank you MikeO!

Comment by MikeO on December 28, 2011 at 5:30am

To BWashington - JDRF has some information on these new treatment protocols for diabetic eye disease. http://www.jdrf.org/index.cfm?page_id=113726. It's not clear from their website, if these new treatments have gotten FDA approval to move from the clinical trial stage to general availability, Of course, Docs often don’t wait for the to try something new.

Comment by MikeO on December 27, 2011 at 3:18pm

Mike S - I see your from Maryland. The best guy in the country for diabeteic eye disease is just down the road at Johns Hopkins. They have a new treatment that doesn't use lasers and has a much better success rate. You might want to check it out.

http://doctors.hopkinsmedicine.org/directory/profile.asp?dbase=main...

Comment by Richard157 on December 26, 2011 at 11:26am

Mike, I like your attitude. Not letting D get you down is winning half the battle. The mental half. the rest of it is doing all the physical stuff necessary for getting decent control, and holding onto it.

Woops! I am sitting here eating peanuts. Sorry about that Baby Peanut, no offense intended!

Comment by Mike S. on December 26, 2011 at 11:09am

32 yrs. sigh. yes a progressive disease. I now have severe neuropathy in lower legs and hands. Seven laser treatments on the eyeballs. Vision is 20/40 which is OK and damaged has regressed. Can't walk very far though. Wish I could go hiking again at the Grand Canyon. My pic is from six years ago. I am in control of the thing and stay straight in the right direction. I don't let D get me down.

Comment by Baby Peanut on December 8, 2011 at 6:30am

thanks mike, good advice. i am medicaid eligible but have another option that is actually less expensive for me. i'm not sure how much it or medicaid will cover on the pump though, that is the problem but if i decide i really need to try the pump, i will work to make that happen. that's not #1 on my list though, it's getting some medical guidance & i'm preparing to do that. i don't have any type of specialist for my diabetes, i've been self-managing(just with my primary care doc)& all things considered not that badly but i have to admit it's time to get some help. will try the cde first then if nec. a diabetes clinic. i was more comfortable with my old pcp, but, she retired in august & referred me to the new one. in any case, i got my work cut out for me & appreciate all the good advice & support i'm getting here. & i will take all the luck i can get, let me see if i won the powerball :)

Comment by MikeO on December 8, 2011 at 6:04am

Hi - A couple of thoughts. First, if by below 135% of the poverty line you meant NYS Medicaid, they do cover insulin pumps, at least according to their website (http://www.health.ny.gov/publications/3385.pdf). Second, it sounds like you need a better endocrinologist. I think many of us have found that at some point we just have to shop around for the best person who knows what they’re doing and we are comfortable working with. You might want to try http://www.hormone.org/FindAnEndo/, but I know the last time I had to find a new endo I ended up just going to three or four before I found the right match.
Good luck

Comment by Baby Peanut on December 8, 2011 at 5:01am

david: yes, you have to either be wealthy or in ny, under 135% over the poverty line to be able to consider those luxuries. i happen to fall into the latter, i would have to ask my family for help if i were to consider a pump which i'm hoping i can get away with not. haha, my a1c was around 5.8 last time, my doctor was thrilled & when i told her i was cutting my insulin, she says, aw, i thought people were going to say 'dr. so&so is doing a great job with you.' it really shouldn't be that way. right now i'll stick with her for scripts & get a cde & see if that helps. best to you sir :)

alice: i hope your new regime helps, it sounds like you are being pro-active & it is never too late to learn.

shelby: i have about 5 'good' days a month, i'll leave that at that :) i suffer from depression & generally feel like a robot in groundhog day :) my top priority now is to get these lows under control, i am cutting in various places which should help. i nearly didn't make it home yesterday walking home from grocery shopping in the rain, i've been fearing the passing out in the street which has not happened to me in several years, but hopefully the insulin cuts & really watching what i eat will help. when i get that in order i can work on my feelings. never too late!

best to all!

 

Members (349)

 
 
 

Advertisement



REsources

From the Diabetes Hands Foundation blog...

DHF Partners with HelpAround in an Effort to Connect People Touched by Diabetes

  Leer en español Technology has the amazing ability to ease the stress associated with diabetes; It simply makes our lives a little more bearable. That’s why we are excited to announce DHFs partnership with HelpAround. This new application will help Read on! →

La Diabetes Hands Foundation y HelpAround uniendo las personas tocadas por la diabetes

  Para nuestra comunidad de diabetes la tecnología ha venido a llenar muchos vacíos y a hacer de nuestras vidas un poco mas llevaderas. Eso mismo nos proporciona una nueva aplicación de geo-localización llamada HelpAround (Ayuda a tu alrededor). HA Read on! →

Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


DHF VOLUNTEERS


Lead Administrator

Bradford (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

LIKE us on Facebook

Spread the word

Loading…

This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.

© 2014   A community of people touched by diabetes, run by the Diabetes Hands Foundation.

Badges  |  Contact Us  |  Terms of Service