Type1 for 30 Plus Years


Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 358
Latest Activity: Dec 11

Diabetes Forum

Sorry Honey...

Started by Stuart. Last reply by Stuart Dec 11. 32 Replies

Had a little "challenge" this week, which suffice to say I won't go into detail about. It was bad, really, really bad (sic. diabetic stuff) by any possible measure.My question for you my peers....…Continue

Tags: sorry, advice, counsel, experience, lover

50y.o. (almost) now what ...

Started by Stuart. Last reply by Fred Goldberg Dec 10. 9 Replies

Nearing fifty "soon", what kind of changes were necessary for YOU, re: dosages and so forth.How much did you need to tweak the carb counting? How much did you have to change/alter what you used to…Continue

Tags: percentage, anticipated-changes, anticipate, anticipated, formula

Blood sugar "stuck" despite comping with insulin

Started by Ms Ashua. Last reply by Fred Goldberg Dec 10. 8 Replies

Hi everyone,I am t1 x 50 years and in relatively good health, no significant issues at this time. I am new to pumping., OmniPod for about 6 weeks.My question is not specific to the pump. I noticed…Continue

You Did Not Take Good Care Of Yourself???

Started by Richard157. Last reply by artwoman Oct 17. 27 Replies

Those of us who have been type 1 for a very long time have probably dealt with a lot of ignorance from people giving us bad advice. Has anyone ever told you that "You Did Not Take Care Of Yourself"?…Continue

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Comment by Richard157 on January 30, 2012 at 7:57pm

Hello, Lathump! I have been a type 1 for 66 years, and I am very healthy. Some mild nerve damage and a little neuropathy are my only diabetes related complications.

I also agree that we long termers had it easier. We were not told about possible complications when I was diagnosed in 1945.One shot of pork insulin and one urine test , both in the morning, and that was it. I did not eat any sugar at all, but there was no mentioning of carbs whatsoever. So we were not worried about my diabetes. Avoiding sugar was easy once I was used to it. Like you said, we are lucky we did not have complications back then. There are thousands of long term type 1 diabetics in the US, and many of them do not have any sefrious complications. The Joslin Diabetes Center in Boston awards medals to type 1's who have lived with their diabetes for 50 and 75 years. I received the 50 year medal and am looking forward to the 75 year medal. I met with more than 100 of the medalists in Boston last year. It felt great to talk with so many healthy long term type 1's.

Comment by Laddie on January 30, 2012 at 5:30pm
I've had Type 1 since 1976--diagnosed at Age 24. I just joined this group today. I wish that it were more active because I'm really interested in what my fellow old timers have to say.

I agree with those who say that in some ways we had it easier than those who were diagnosed in recent years. I think that we escaped some of the guilt and anxiety that new Type 1's experience these days. On the other hand, our terrible control resulted in complications for many of us. I'm lucky to be in good health after 35+ years of this.

One of my biggest concerns is Medicare coverage. I still have 5 years to go, but I worry about lack of CGMS coverage and limitation on test strips.
Comment by Clinitest on January 30, 2012 at 12:59pm

Good for you Linda! Welcome to the club :) Guess we should start a 50 year group too! Keep all the bases covered.

Comment by Linda on January 30, 2012 at 12:51pm

Thought I should join this group too. I had joined the 25+ years but since I've been diabetic for 50 years I should join them all!! You can never learn enough.

Comment by Baby Peanut on January 18, 2012 at 4:53am

hi ruth, you can upload a photo on zazzle or spreadshirt if you can't find the shirt pre-made. my doctor gets excited if my a1c is under 6, i'm still trying to explain brittle to her but whatever ;) anyway, i'm trying to drop about 10-15 lbs & i think i'm doing ok(started calorie slashing friday), don't own a scale but just broke down & ordered one :0 anyway, best to you, cheers, liz

Comment by Ruth on January 17, 2012 at 7:56pm

Hi Everyone,

I am kind of new to the DOC community. I have had diabetes 38 years, since I was 8 years old. In pretty good health now, no complications but rather overweight. Working on it, though! Ive been inspired by all the Type 1 athletes and realize I cant use diabetes as an excuse anymore. In any case, I just had an h1C of 5.6. Ive never had one that low.. I attribute it to the CGM. It beeps at me, I yell and growl at it, but it saves my ass.

Anyone know where I can find a tshirt that has just the picture in my profile pic right now? Cant find one anywhere...
Thanks for being here. I can use the support. This disease really stinks. It takes up too much time, energy and money, not to mention mental health moments, mood disorders and the toll it takes on the family. Got to hang in there and hold out for a cure! Or at least the new pancreas...

Take care,

Comment by Mike S. on December 29, 2011 at 12:57pm

Thanks for the url, MikeO. Very familiar with Johns Hopkins. Wife is a CPA there, sister has a PhD there, another sister is an RN in the emer dept there. Dad was a pathologist associated with the system. Me? Before I was forced to quit due to complictions was a buyer for Medstar health. I assume the physician you posted is associated with the Wilmer Eye Institute. I will check it out. Thanks again.

Comment by BWashington on December 28, 2011 at 5:37am

Thank you MikeO!

Comment by MikeO on December 28, 2011 at 5:30am

To BWashington - JDRF has some information on these new treatment protocols for diabetic eye disease. http://www.jdrf.org/index.cfm?page_id=113726. It's not clear from their website, if these new treatments have gotten FDA approval to move from the clinical trial stage to general availability, Of course, Docs often don’t wait for the to try something new.

Comment by MikeO on December 27, 2011 at 3:18pm

Mike S - I see your from Maryland. The best guy in the country for diabeteic eye disease is just down the road at Johns Hopkins. They have a new treatment that doesn't use lasers and has a much better success rate. You might want to check it out.



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