Type1 for 30 Plus Years

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Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 350
Latest Activity: on Friday

Diabetes Forum

You Did Not Take Good Care Of Yourself???

Started by Richard157. Last reply by artwoman Jul 17. 13 Replies

Those of us who have been type 1 for a very long time have probably dealt with a lot of ignorance from people giving us bad advice. Has anyone ever told you that "You Did Not Take Care Of Yourself"?…Continue

Joslin Medalist Program

Started by Emily Coles. Last reply by shoshana27 Jun 8. 55 Replies

Hey fellow D long-timers,If you've had diabetes for 50 years or more, you're eligible for a…Continue

Tags: medalist, gold medal, Joslin

Our minds, our thinking... ???

Started by Stuart. Last reply by Stuart Jun 5. 25 Replies

Consider with this much experience, how has diabetes fundamentally effected the ways you think about & filter things?!?!How has our diabetes changed our psychology whether we are aware of it or…Continue

Tags: effects, mental-diabetes, floss, psychological, behavior

Osteoporosis meds?

Started by Marypat. Last reply by Sue R. Feb 27. 3 Replies

Are there any T1s who are taking meds for osteoporosis? What is your experience? I have seen 4 doctors and have 4 different opinions and still no treatment plan.Continue

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Comment by Clinitest on January 30, 2012 at 12:59pm

Good for you Linda! Welcome to the club :) Guess we should start a 50 year group too! Keep all the bases covered.

Comment by Linda on January 30, 2012 at 12:51pm

Thought I should join this group too. I had joined the 25+ years but since I've been diabetic for 50 years I should join them all!! You can never learn enough.

Comment by Baby Peanut on January 18, 2012 at 4:53am

hi ruth, you can upload a photo on zazzle or spreadshirt if you can't find the shirt pre-made. my doctor gets excited if my a1c is under 6, i'm still trying to explain brittle to her but whatever ;) anyway, i'm trying to drop about 10-15 lbs & i think i'm doing ok(started calorie slashing friday), don't own a scale but just broke down & ordered one :0 anyway, best to you, cheers, liz

Comment by Ruth on January 17, 2012 at 7:56pm

Hi Everyone,

I am kind of new to the DOC community. I have had diabetes 38 years, since I was 8 years old. In pretty good health now, no complications but rather overweight. Working on it, though! Ive been inspired by all the Type 1 athletes and realize I cant use diabetes as an excuse anymore. In any case, I just had an h1C of 5.6. Ive never had one that low.. I attribute it to the CGM. It beeps at me, I yell and growl at it, but it saves my ass.

Anyone know where I can find a tshirt that has just the picture in my profile pic right now? Cant find one anywhere...
Thanks for being here. I can use the support. This disease really stinks. It takes up too much time, energy and money, not to mention mental health moments, mood disorders and the toll it takes on the family. Got to hang in there and hold out for a cure! Or at least the new pancreas...

Take care,
Ruth

Comment by Mike S. on December 29, 2011 at 12:57pm

Thanks for the url, MikeO. Very familiar with Johns Hopkins. Wife is a CPA there, sister has a PhD there, another sister is an RN in the emer dept there. Dad was a pathologist associated with the system. Me? Before I was forced to quit due to complictions was a buyer for Medstar health. I assume the physician you posted is associated with the Wilmer Eye Institute. I will check it out. Thanks again.

Comment by BWashington on December 28, 2011 at 5:37am

Thank you MikeO!

Comment by MikeO on December 28, 2011 at 5:30am

To BWashington - JDRF has some information on these new treatment protocols for diabetic eye disease. http://www.jdrf.org/index.cfm?page_id=113726. It's not clear from their website, if these new treatments have gotten FDA approval to move from the clinical trial stage to general availability, Of course, Docs often don’t wait for the to try something new.

Comment by MikeO on December 27, 2011 at 3:18pm

Mike S - I see your from Maryland. The best guy in the country for diabeteic eye disease is just down the road at Johns Hopkins. They have a new treatment that doesn't use lasers and has a much better success rate. You might want to check it out.

http://doctors.hopkinsmedicine.org/directory/profile.asp?dbase=main...

Comment by Richard157 on December 26, 2011 at 11:26am

Mike, I like your attitude. Not letting D get you down is winning half the battle. The mental half. the rest of it is doing all the physical stuff necessary for getting decent control, and holding onto it.

Woops! I am sitting here eating peanuts. Sorry about that Baby Peanut, no offense intended!

Comment by Mike S. on December 26, 2011 at 11:09am

32 yrs. sigh. yes a progressive disease. I now have severe neuropathy in lower legs and hands. Seven laser treatments on the eyeballs. Vision is 20/40 which is OK and damaged has regressed. Can't walk very far though. Wish I could go hiking again at the Grand Canyon. My pic is from six years ago. I am in control of the thing and stay straight in the right direction. I don't let D get me down.

 

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REsources

From the Diabetes Hands Foundation blog...

Diabetes Among Hispanics: We’re not all the same

US Hispanics are often portrayed in the press as a single, monolithic group. But anyone who has spent any time in San Francisco’s Mission District or the Bronx can tell you, we’re not all the same. Now we’re finding out Read on! →

Diabetes entre los hispanos: no somos todos iguales

Traducido por Mila Ferrer.    A menudo los Hispanos en Estados Unidos son retratados en la prensa como un solo grupo, monolítico. Pero cualquiera que haya pasado algún tiempo en el  Mission District de San Francisco o el Bronx se Read on! →

Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


DHF VOLUNTEERS


Lead Administrator

Bradford (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

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