Type1 for 30 Plus Years

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Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 338
Latest Activity: on Monday

Diabetes Forum

Our minds, our thinking... ???

Started by Stuart. Last reply by Stuart on Sunday. 22 Replies

Consider with this much experience, how has diabetes fundamentally effected the ways you think about & filter things?!?!How has our diabetes changed our psychology whether we are aware of it or…Continue

Tags: effects, mental-diabetes, floss, psychological, behavior

Joslin Medalist Program

Started by Emily Coles. Last reply by Richard157 Mar 1. 53 Replies

Hey fellow D long-timers,If you've had diabetes for 50 years or more, you're eligible for a…Continue

Tags: medalist, gold medal, Joslin

Osteoporosis meds?

Started by Marypat. Last reply by Sue R. Feb 27. 3 Replies

Are there any T1s who are taking meds for osteoporosis? What is your experience? I have seen 4 doctors and have 4 different opinions and still no treatment plan.Continue

insulin pump vs shots perplexed

Started by Francie. Last reply by Francie Feb 11. 17 Replies

T1 36 years w/ insulin resistance for 3 years . . . I was put on the pump 5 years ago to gain better control which looking back, was a horrible mistake, i needed twice as much insulin to control…Continue

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Comment by Linda on January 30, 2012 at 12:51pm

Thought I should join this group too. I had joined the 25+ years but since I've been diabetic for 50 years I should join them all!! You can never learn enough.

Comment by Baby Peanut on January 18, 2012 at 4:53am

hi ruth, you can upload a photo on zazzle or spreadshirt if you can't find the shirt pre-made. my doctor gets excited if my a1c is under 6, i'm still trying to explain brittle to her but whatever ;) anyway, i'm trying to drop about 10-15 lbs & i think i'm doing ok(started calorie slashing friday), don't own a scale but just broke down & ordered one :0 anyway, best to you, cheers, liz

Comment by Ruth on January 17, 2012 at 7:56pm

Hi Everyone,

I am kind of new to the DOC community. I have had diabetes 38 years, since I was 8 years old. In pretty good health now, no complications but rather overweight. Working on it, though! Ive been inspired by all the Type 1 athletes and realize I cant use diabetes as an excuse anymore. In any case, I just had an h1C of 5.6. Ive never had one that low.. I attribute it to the CGM. It beeps at me, I yell and growl at it, but it saves my ass.

Anyone know where I can find a tshirt that has just the picture in my profile pic right now? Cant find one anywhere...
Thanks for being here. I can use the support. This disease really stinks. It takes up too much time, energy and money, not to mention mental health moments, mood disorders and the toll it takes on the family. Got to hang in there and hold out for a cure! Or at least the new pancreas...

Take care,
Ruth

Comment by Mike S. on December 29, 2011 at 12:57pm

Thanks for the url, MikeO. Very familiar with Johns Hopkins. Wife is a CPA there, sister has a PhD there, another sister is an RN in the emer dept there. Dad was a pathologist associated with the system. Me? Before I was forced to quit due to complictions was a buyer for Medstar health. I assume the physician you posted is associated with the Wilmer Eye Institute. I will check it out. Thanks again.

Comment by BWashington on December 28, 2011 at 5:37am

Thank you MikeO!

Comment by MikeO on December 28, 2011 at 5:30am

To BWashington - JDRF has some information on these new treatment protocols for diabetic eye disease. http://www.jdrf.org/index.cfm?page_id=113726. It's not clear from their website, if these new treatments have gotten FDA approval to move from the clinical trial stage to general availability, Of course, Docs often don’t wait for the to try something new.

Comment by MikeO on December 27, 2011 at 3:18pm

Mike S - I see your from Maryland. The best guy in the country for diabeteic eye disease is just down the road at Johns Hopkins. They have a new treatment that doesn't use lasers and has a much better success rate. You might want to check it out.

http://doctors.hopkinsmedicine.org/directory/profile.asp?dbase=main...

Comment by Richard157 on December 26, 2011 at 11:26am

Mike, I like your attitude. Not letting D get you down is winning half the battle. The mental half. the rest of it is doing all the physical stuff necessary for getting decent control, and holding onto it.

Woops! I am sitting here eating peanuts. Sorry about that Baby Peanut, no offense intended!

Comment by Mike S. on December 26, 2011 at 11:09am

32 yrs. sigh. yes a progressive disease. I now have severe neuropathy in lower legs and hands. Seven laser treatments on the eyeballs. Vision is 20/40 which is OK and damaged has regressed. Can't walk very far though. Wish I could go hiking again at the Grand Canyon. My pic is from six years ago. I am in control of the thing and stay straight in the right direction. I don't let D get me down.

Comment by Baby Peanut on December 8, 2011 at 6:30am

thanks mike, good advice. i am medicaid eligible but have another option that is actually less expensive for me. i'm not sure how much it or medicaid will cover on the pump though, that is the problem but if i decide i really need to try the pump, i will work to make that happen. that's not #1 on my list though, it's getting some medical guidance & i'm preparing to do that. i don't have any type of specialist for my diabetes, i've been self-managing(just with my primary care doc)& all things considered not that badly but i have to admit it's time to get some help. will try the cde first then if nec. a diabetes clinic. i was more comfortable with my old pcp, but, she retired in august & referred me to the new one. in any case, i got my work cut out for me & appreciate all the good advice & support i'm getting here. & i will take all the luck i can get, let me see if i won the powerball :)

 

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Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

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