Type1 for 30 Plus Years

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Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 287
Latest Activity: May 12

Discussion Forum

Our role (8,520 years w/ diabetes at minimum) ?

Started by Stuart. Last reply by Stephaniebeth May 12. 5 Replies

I am in stunned awe of the profound diabetic experience(s) which this 30 plus years group possesses. 8,520 years presuming only 30 years.Many (most?) appear to have significant diabetes experience…Continue

Tags: 8520, 1000, serious-experience, diabetes, experience

Symlin?

Started by ANTONIA RETMAN. Last reply by Robert Yancey May 9. 6 Replies

Any other long time Type 1's on Symlin? And how is that working out for you? I'm 40 and was diagnosed at the age of 3. Thanks for any infoContinue

Tags: Symlin

Memories I'd like to forget

Started by Marion Mifsud. Last reply by Mike May 2. 16 Replies

I was diagnosed at age 6 and am now 59. Trying to keep from losing kidney function 30% left. I remember the glass needles with the thick needles that could have a bard on it. I don't know if this…Continue

T1D - Discrimination or Not?

Started by Robert Yancey. Last reply by earthling Apr 23. 7 Replies

Hi All, After recently joining Emily's awesome interview with the CEO of Dexcom, I realized that I missed associating with fellow T1D'ers. So, I thought I would share with you a recent experience…Continue

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Comment by Rickatie1122 on February 16, 2012 at 3:56am

Sue,
Simple, one word....Occlusions. Every time I set one up, 15 minutes later, the familiar tone of Occlusion would go off. Didn't matter where I put it, it would always go off. Plus, Cigna wouldn't cover durable medical supplies, so $1200 every 3 months was out of the question. Plus, they wouldn't stick.....I tried every Tegaderm, glue, adhesive known to man to get them to stay on, but they never would...and I was a little self concieous on the beach or poolside with a white wart sticking on my side or arm. Rick

Comment by Sue R. on February 16, 2012 at 3:05am

Welcome, Rick! Curious why you switched from Omnipod back to MDI. (43 years of MDI for me)
Sue

Comment by Michael McClure on February 15, 2012 at 6:24pm

Hola.

T1 since 1982 when I had late onset IDDM at the age of 23. Interesting to read the "we had it easier" notes below. You'd think the whole point of all the newfangled devices and information we have today would make it easier, not harder. Hm. In any case, I'm still here riding my bike in the mountains. No complications for me (lucky). On MDI and just get a Dexcom 7+ (which I love).

/\/\

Comment by Sue R. on February 2, 2012 at 6:05pm

Yes, lows always make you feel cold. The lows cause a lack of oxygen to the brain I suppose that must be the reason?

Comment by Sue R. on February 2, 2012 at 6:03pm

Comment by Bella on February 2, 2012 at 5:54pm

I have been diabetic for 27 years and I just realized that! I think I hate the early days with diabetes in my country was difficult to find insuline and I got my first glucose monitor 15 years later. Off course, I had some complications and consequences but since I am living in the US I have been under control. Last year I had a very low sugar while sleeping and I was alone. I have to crawl to reach the refigerator and call 911. I drunk cramberry juice about 16 onzas. When the nurse took my tempeture, it was 34, I was feeling like I was in a frozen lake. Now, Why this happen? any time my sugar goes too low and I drink some juice I feel cold?

Comment by Baby Peanut on January 31, 2012 at 7:16am

oooh, i like medals! i'll be eligible in '14 if i don't get hit by a bus or something :) i remember: clinitest, acetest, beef & pork insulin & my mom boiling syringes. although i am brittle & have had complications, i am still more or less in piece, & tell my doctor to chill out with the #'s(under 6 definitely too low for me). i'm gonna check out the joslin site for that medal now, cheers!

Comment by Richard157 on January 30, 2012 at 7:57pm

Hello, Lathump! I have been a type 1 for 66 years, and I am very healthy. Some mild nerve damage and a little neuropathy are my only diabetes related complications.

I also agree that we long termers had it easier. We were not told about possible complications when I was diagnosed in 1945.One shot of pork insulin and one urine test , both in the morning, and that was it. I did not eat any sugar at all, but there was no mentioning of carbs whatsoever. So we were not worried about my diabetes. Avoiding sugar was easy once I was used to it. Like you said, we are lucky we did not have complications back then. There are thousands of long term type 1 diabetics in the US, and many of them do not have any sefrious complications. The Joslin Diabetes Center in Boston awards medals to type 1's who have lived with their diabetes for 50 and 75 years. I received the 50 year medal and am looking forward to the 75 year medal. I met with more than 100 of the medalists in Boston last year. It felt great to talk with so many healthy long term type 1's.

Comment by Laddie on January 30, 2012 at 5:30pm
I've had Type 1 since 1976--diagnosed at Age 24. I just joined this group today. I wish that it were more active because I'm really interested in what my fellow old timers have to say.

I agree with those who say that in some ways we had it easier than those who were diagnosed in recent years. I think that we escaped some of the guilt and anxiety that new Type 1's experience these days. On the other hand, our terrible control resulted in complications for many of us. I'm lucky to be in good health after 35+ years of this.

One of my biggest concerns is Medicare coverage. I still have 5 years to go, but I worry about lack of CGMS coverage and limitation on test strips.
Comment by Clinitest on January 30, 2012 at 12:59pm

Good for you Linda! Welcome to the club :) Guess we should start a 50 year group too! Keep all the bases covered.

 

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