Type1 for 30 Plus Years

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Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 338
Latest Activity: on Monday

Diabetes Forum

Our minds, our thinking... ???

Started by Stuart. Last reply by Stuart on Sunday. 22 Replies

Consider with this much experience, how has diabetes fundamentally effected the ways you think about & filter things?!?!How has our diabetes changed our psychology whether we are aware of it or…Continue

Tags: effects, mental-diabetes, floss, psychological, behavior

Joslin Medalist Program

Started by Emily Coles. Last reply by Richard157 Mar 1. 53 Replies

Hey fellow D long-timers,If you've had diabetes for 50 years or more, you're eligible for a…Continue

Tags: medalist, gold medal, Joslin

Osteoporosis meds?

Started by Marypat. Last reply by Sue R. Feb 27. 3 Replies

Are there any T1s who are taking meds for osteoporosis? What is your experience? I have seen 4 doctors and have 4 different opinions and still no treatment plan.Continue

insulin pump vs shots perplexed

Started by Francie. Last reply by Francie Feb 11. 17 Replies

T1 36 years w/ insulin resistance for 3 years . . . I was put on the pump 5 years ago to gain better control which looking back, was a horrible mistake, i needed twice as much insulin to control…Continue

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Comment by Tracy on February 23, 2012 at 7:06am

Diagnosed age 21 in 1979. Now 53 and doing OK. Thyroid has given me problems. A1c has never been that good. But I watch what I eat, exercise and try to keep a good attitude.

Minimed pump over 10 years. Its a long road.

Comment by Baby Peanut on February 23, 2012 at 6:58am

shoshana-bless you for having survived ww2 never mind the diabetes! i was also not quite 3 when diagnosed, that was 48 yrs ago now but i remember my mom boiling those syringes. i also am old enough to have been brought up with how horrible that war was. thank you for sharing. liz

Comment by shoshana27 on February 22, 2012 at 6:30pm

SURVIVING WORLD WAR 2 IN FRANCE WHILE HIDING & FINDING INSULIN & STERILIZING SYRINGE & NEEDLE WITH ALCOHOL

Comment by shoshana27 on February 22, 2012 at 6:27pm

HOW ABOUT 75 YEARS SINCE I WAS NOT YET 3

Comment by Baby Peanut on February 19, 2012 at 10:04am

thank you mike, good info!

Comment by MikeO on February 19, 2012 at 8:42am

Hi -

There's an issue that keeps coming up in these discussions - Medicare's lack of coverage for CGM's. I wrote earlier about the process to get an individual exception, but this seems to be more of a systemic problem. There isn’t very good data on how many T1’s are on Medicare, so Medicare may not even be aware of how big an issue this is. Candidly, I don’t think Medicare thinks many of us make it to 65. The best people to fix this problem are at JDRF, but I don’t think know how big a problem it is. If this is an issue for you e-mail them at advocacy@jdrf.org.

Mike

Comment by Richard157 on February 19, 2012 at 6:45am

Alan, the Joslin medal is a reward for having lived well for 50 years. That is my point of view. After getting the medal I was invited to participate in the Medalist Study in Boston. They paid for thr travel and lodging expenses. A lot of free tests were valuable to me. The participation is optional.

Every two years a big meeting of medalists takes place at the Joslin Diabetes Center. I attended in June, 2011. There were over 100 of us at that meeting. What a wonderful experience to be with such a large group of healthy, long term type 1 diabetics! Good friends, and free food, and a very good program with updates of the research that has been done with the study. That will be held again in 2013. It is worth getting a medal even if you put it away and never look at it....so you can attend those meetings.

Comment by SamiiiG on February 16, 2012 at 8:29am

Hi - New to the group and will be reaching 25 years w/Type 1 next October (I am only 26 yrs old!). Oh, how diabetes management has changed in that time! : )

Comment by Rickatie1122 on February 16, 2012 at 8:00am

Richard,
Yeah, I have a bottle of the amber liquid somewhere around the house. The tape backing stuck great, just the pod itself would seperate from the tape. The paper/tape backing would come off the plastic. I would super glue the tape to the pod, work great for 2 hours, then occlude....Frustrating!

Comment by Richard157 on February 16, 2012 at 7:55am

I also had trouble getting my infusion sets to stick when I started pumping. An online friend suggested I use Skin-Prep before applying a new set. That puts a sticky film on the skin. When dry I put my set on and it stayed even after showers. I also use a strip of tape to hold the end of the set where the tubing joins. The glue is still on my skin when I change sets, so I wipe it off using Uni-Solve. I have not any sets come lose from my skin for more than 4 years.

 

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From the Diabetes Hands Foundation blog...

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Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Heather Gabel
(Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator
Bradford (has type 1)

Administrators
Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

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