Comment

Comment by Tracy on February 23, 2012 at 7:06am

Diagnosed age 21 in 1979. Now 53 and doing OK. Thyroid has given me problems. A1c has never been that good. But I watch what I eat, exercise and try to keep a good attitude.

Minimed pump over 10 years. Its a long road.

Comment by Baby Peanut on February 23, 2012 at 6:58am

shoshana-bless you for having survived ww2 never mind the diabetes! i was also not quite 3 when diagnosed, that was 48 yrs ago now but i remember my mom boiling those syringes. i also am old enough to have been brought up with how horrible that war was. thank you for sharing. liz

Comment by shoshana27 on February 22, 2012 at 6:30pm

SURVIVING WORLD WAR 2 IN FRANCE WHILE HIDING & FINDING INSULIN & STERILIZING SYRINGE & NEEDLE WITH ALCOHOL

Comment by shoshana27 on February 22, 2012 at 6:27pm

HOW ABOUT 75 YEARS SINCE I WAS NOT YET 3

Comment by Baby Peanut on February 19, 2012 at 10:04am

thank you mike, good info!

Comment by MikeO on February 19, 2012 at 8:42am

Hi -

There's an issue that keeps coming up in these discussions - Medicare's lack of coverage for CGM's. I wrote earlier about the process to get an individual exception, but this seems to be more of a systemic problem. There isn’t very good data on how many T1’s are on Medicare, so Medicare may not even be aware of how big an issue this is. Candidly, I don’t think Medicare thinks many of us make it to 65. The best people to fix this problem are at JDRF, but I don’t think know how big a problem it is. If this is an issue for you e-mail them at advocacy@jdrf.org.

Mike

Comment by Richard157 on February 19, 2012 at 6:45am

Alan, the Joslin medal is a reward for having lived well for 50 years. That is my point of view. After getting the medal I was invited to participate in the Medalist Study in Boston. They paid for thr travel and lodging expenses. A lot of free tests were valuable to me. The participation is optional.

Every two years a big meeting of medalists takes place at the Joslin Diabetes Center. I attended in June, 2011. There were over 100 of us at that meeting. What a wonderful experience to be with such a large group of healthy, long term type 1 diabetics! Good friends, and free food, and a very good program with updates of the research that has been done with the study. That will be held again in 2013. It is worth getting a medal even if you put it away and never look at it....so you can attend those meetings.

Comment by SamiiiG on February 16, 2012 at 8:29am

Hi - New to the group and will be reaching 25 years w/Type 1 next October (I am only 26 yrs old!). Oh, how diabetes management has changed in that time! : )

Comment by Rickatie1122 on February 16, 2012 at 8:00am

Richard,
Yeah, I have a bottle of the amber liquid somewhere around the house. The tape backing stuck great, just the pod itself would seperate from the tape. The paper/tape backing would come off the plastic. I would super glue the tape to the pod, work great for 2 hours, then occlude....Frustrating!

Comment by Richard157 on February 16, 2012 at 7:55am

I also had trouble getting my infusion sets to stick when I started pumping. An online friend suggested I use Skin-Prep before applying a new set. That puts a sticky film on the skin. When dry I put my set on and it stayed even after showers. I also use a strip of tape to hold the end of the set where the tubing joins. The glue is still on my skin when I change sets, so I wipe it off using Uni-Solve. I have not any sets come lose from my skin for more than 4 years.

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