Type1 for 30 Plus Years

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Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 358
Latest Activity: Dec 11

Diabetes Forum

Sorry Honey...

Started by Stuart. Last reply by Stuart Dec 11. 32 Replies

Had a little "challenge" this week, which suffice to say I won't go into detail about. It was bad, really, really bad (sic. diabetic stuff) by any possible measure.My question for you my peers....…Continue

Tags: sorry, advice, counsel, experience, lover

50y.o. (almost) now what ...

Started by Stuart. Last reply by Fred Goldberg Dec 10. 9 Replies

Nearing fifty "soon", what kind of changes were necessary for YOU, re: dosages and so forth.How much did you need to tweak the carb counting? How much did you have to change/alter what you used to…Continue

Tags: percentage, anticipated-changes, anticipate, anticipated, formula

Blood sugar "stuck" despite comping with insulin

Started by Ms Ashua. Last reply by Fred Goldberg Dec 10. 8 Replies

Hi everyone,I am t1 x 50 years and in relatively good health, no significant issues at this time. I am new to pumping., OmniPod for about 6 weeks.My question is not specific to the pump. I noticed…Continue

You Did Not Take Good Care Of Yourself???

Started by Richard157. Last reply by artwoman Oct 17. 27 Replies

Those of us who have been type 1 for a very long time have probably dealt with a lot of ignorance from people giving us bad advice. Has anyone ever told you that "You Did Not Take Care Of Yourself"?…Continue

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Comment by Baby Peanut on March 4, 2012 at 7:24pm

shoshana, you're on page 4 of the pics, i'm on 5 :) i've only got 48 ;)

Comment by shoshana27 on March 4, 2012 at 6:36pm

why is my picture not in the over 30 group?
75 years with type 1.

Comment by Richard157 on February 23, 2012 at 7:07am

Shoshana, are you talking about your own experience when you say "75 years since I was not yet 3"? Does that mean you have been type 1 for 75 years? Plese tell us more. I have been type 1 for 66 years and am looking forward to the 75 year Joslin medal.

Comment by Tracy on February 23, 2012 at 7:06am

Diagnosed age 21 in 1979. Now 53 and doing OK. Thyroid has given me problems. A1c has never been that good. But I watch what I eat, exercise and try to keep a good attitude.

Minimed pump over 10 years. Its a long road.

Comment by Baby Peanut on February 23, 2012 at 6:58am

shoshana-bless you for having survived ww2 never mind the diabetes! i was also not quite 3 when diagnosed, that was 48 yrs ago now but i remember my mom boiling those syringes. i also am old enough to have been brought up with how horrible that war was. thank you for sharing. liz

Comment by shoshana27 on February 22, 2012 at 6:30pm

SURVIVING WORLD WAR 2 IN FRANCE WHILE HIDING & FINDING INSULIN & STERILIZING SYRINGE & NEEDLE WITH ALCOHOL

Comment by shoshana27 on February 22, 2012 at 6:27pm

HOW ABOUT 75 YEARS SINCE I WAS NOT YET 3

Comment by Baby Peanut on February 19, 2012 at 10:04am

thank you mike, good info!

Comment by MikeO on February 19, 2012 at 8:42am

Hi -

There's an issue that keeps coming up in these discussions - Medicare's lack of coverage for CGM's. I wrote earlier about the process to get an individual exception, but this seems to be more of a systemic problem. There isn’t very good data on how many T1’s are on Medicare, so Medicare may not even be aware of how big an issue this is. Candidly, I don’t think Medicare thinks many of us make it to 65. The best people to fix this problem are at JDRF, but I don’t think know how big a problem it is. If this is an issue for you e-mail them at advocacy@jdrf.org.

Mike

Comment by Richard157 on February 19, 2012 at 6:45am

Alan, the Joslin medal is a reward for having lived well for 50 years. That is my point of view. After getting the medal I was invited to participate in the Medalist Study in Boston. They paid for thr travel and lodging expenses. A lot of free tests were valuable to me. The participation is optional.

Every two years a big meeting of medalists takes place at the Joslin Diabetes Center. I attended in June, 2011. There were over 100 of us at that meeting. What a wonderful experience to be with such a large group of healthy, long term type 1 diabetics! Good friends, and free food, and a very good program with updates of the research that has been done with the study. That will be held again in 2013. It is worth getting a medal even if you put it away and never look at it....so you can attend those meetings.

 

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Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
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