Type1 for 30 Plus Years

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Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 351
Latest Activity: Nov 10

Diabetes Forum

Sorry Honey...

Started by Stuart. Last reply by Stuart Nov 6. 29 Replies

Had a little "challenge" this week, which suffice to say I won't go into detail about. It was bad, really, really bad (sic. diabetic stuff) by any possible measure.My question for you my peers....…Continue

Tags: sorry, advice, counsel, experience, lover

50y.o. (almost) now what ...

Started by Stuart. Last reply by Jane Dullius Oct 22. 8 Replies

Nearing fifty "soon", what kind of changes were necessary for YOU, re: dosages and so forth.How much did you need to tweak the carb counting? How much did you have to change/alter what you used to…Continue

Tags: percentage, anticipated-changes, anticipate, anticipated, formula

You Did Not Take Good Care Of Yourself???

Started by Richard157. Last reply by artwoman Oct 17. 27 Replies

Those of us who have been type 1 for a very long time have probably dealt with a lot of ignorance from people giving us bad advice. Has anyone ever told you that "You Did Not Take Care Of Yourself"?…Continue

insulin pump vs shots perplexed

Started by Francie. Last reply by Stuart Oct 16. 18 Replies

T1 36 years w/ insulin resistance for 3 years . . . I was put on the pump 5 years ago to gain better control which looking back, was a horrible mistake, i needed twice as much insulin to control…Continue

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Comment by MikeO on March 20, 2012 at 11:56am

Liz – They’re right that there is no point in sending claims to Medicare, because they haven’t gotten coverage approved yet. They have to apply to Medicare for it to be covered as a regular Medicare benefit. Dexcom is a little company and maybe doesn’t know the Medicare system, but Medtronic (the other big CGM manufacturer) certainly does. There’s nothing magical about getting Medicare to cover something. It’s hard, but not magical. They have to provide the data that the CGM really works and really reduces A1c and that it’s not prohibitively expensive. They have clinical trial data that shows both those things.

The companies and JDRF are the ones that got the non-Medicare insurers to cover CGMs for the non-Medicare population. They just have to realize that there are more Medicare Type 1’s than they think and they need to help them get CGM’s covered by Medicare. You did the right thing by calling everyone you did. If more people do what you did, things are much more likely to change.

Mike

Comment by Baby Peanut on March 20, 2012 at 9:39am

mike o., regarding cgm's & medicare-i've been in touch with jdrf, cgm manufacturer's & finally my congressman(didn't want to touch my medicare hmo)! his office actually got back to me very quickly, got some info & said they will look into it & get back to me. i don't expect anything to come of it, when i spoke to a dexcom rep, he told me that medicare told them not to even bother to submit claims, they don't recognize cgms. i will let you know if i hear anything, liz

Comment by Jason Casey on March 13, 2012 at 11:12am
To Spanishrose9668, I check my BG 10-13 times a day and it is a bit annoying. My best response to 'painful fingers' is use the side of the individual finger, not the tip, and use the outside, left-side on left hand / right-side on right hand. I also switched to a guitar with nylon strings and I am learning the piano. No matter what lies they tell you re: Type 1, it doesn't ever FEEL any better, but there's only one way to know...
Comment by Richard157 on March 11, 2012 at 5:39pm

Alan, are you talking about proof needed to get the Joslin medal? My hospital keeps patients records for 0nly 10 years. You do not need proof from a hospital. My parents and doctors from my early years had died, and a medalist told me that I could have a couple of people who knew me at the time, or near the time I was diagnosed, write letters. My sister and a cousin wrore letters telling some of the things they remembered from that time. The letters were sent to Joslin with my application. They were accepted, and they mailed me the nedal. When I participated in the Medalist Study they were easily able to see that I had been a type 1 diabetic for a very long time. Only medalists are permitted to take part in the study.

Comment by Sam I am on March 11, 2012 at 4:25pm
Sorry, I jumped in and started a discussion without introducing myself. I've been diabetic for 33 years now. This web site is something new for me--I had no idea folks could live so long with diabetes, and now, reading this group, I still feel pretty young. I've never taken great care of myself, happy to have A1c's under 9 as I've been a lot higher. No significant complications, although my hands now get tingly when my blood sugers drop. I have recently in the past couple of years become more unaware of low BG. I was on the pump in the very beginning (less my first year), then stopped after I graduated high school and could no longer afford it. Started back up again in 2007 with the Cosmore, and now with the minimed and a CGM. I was told in the beginning that I was "brittle", but now I am starting to wonder if that really exists. I am trying to remember that no matter how long I have had this, that there is always something new to learn.
Comment by Richard157 on March 6, 2012 at 1:16pm

I'm pleased to hear that, Shoshana. I am anxious to read about your getting the medal. Maybe you can post a picture of it here.Let us know when it arrives. It can take awhile.

Comment by shoshana27 on March 6, 2012 at 8:35am

thanks,richard157,i just applied.

Comment by Richard157 on March 6, 2012 at 7:50am

Shoshana, here is a link on applying for the Joslin medals, The phone number is on the right hand side of the page. Stephanie will help you with the application.

http://www.joslin.org/medalist/apply_now.html

Comment by shoshana27 on March 6, 2012 at 7:21am

Comment by shoshana27 on March 6, 2012 at 7:21am

HOW DO YOU /I APPLY FOR A 75 YEAR MEDAL?
I TRIED ON THE INTERNET BUT IT DID NOT WORK?IF I HAD A PHONE NO. I WOULD CALL.THANKS.

 

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Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator

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Administrators

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Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)

 

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