Type1 for 30 Plus Years

Information

Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 363
Latest Activity: Jan 14

Diabetes Forum

You Did Not Take Good Care Of Yourself???

Started by Richard157. Last reply by artwoman Jan 7. 34 Replies

Those of us who have been type 1 for a very long time have probably dealt with a lot of ignorance from people giving us bad advice. Has anyone ever told you that "You Did Not Take Care Of Yourself"?…Continue

Sorry Honey...

Started by Stuart. Last reply by Stuart Jan 7. 36 Replies

Had a little "challenge" this week, which suffice to say I won't go into detail about. It was bad, really, really bad (sic. diabetic stuff) by any possible measure.My question for you my peers....…Continue

Tags: sorry, advice, counsel, experience, lover

Subdural Hematoma

Started by Richard157. Last reply by Richard157 Jan 6. 4 Replies

Subdural Hematoma involves bleeding inside the head on the surface of the brain. Surgery is necessary to remove the blood after the bleeding has stopped. That involves drilling holes through the…Continue

Perplexing symptoms - Autonomic Neuropathy or Addison's?

Started by earthling. Last reply by earthling Dec 21, 2014. 18 Replies

Hello fellow D-veterans. If anyone here could help me figure out my current weird symptoms, I would be eternally grateful! Sorry if this is long.Background:I'm a 62 year old woman I've had T1…Continue

Tags: Disease, low, BP, Addison's, Neuropathy

Comment Wall

Comment

You need to be a member of Type1 for 30 Plus Years to add comments!

Comment by Baby Peanut on April 2, 2012 at 8:27am

haha, good for you & keep it going, another 40 at least!

Comment by Sam I am on April 2, 2012 at 8:02am
I am happy to announce that I just turned 40. This is huge for me because as a newly diagnosed child, we never thought I would live that long. So, to all those doctors 33 years ago....in your face! Here's to another 40!
Comment by MikeO on March 20, 2012 at 11:56am

Liz – They’re right that there is no point in sending claims to Medicare, because they haven’t gotten coverage approved yet. They have to apply to Medicare for it to be covered as a regular Medicare benefit. Dexcom is a little company and maybe doesn’t know the Medicare system, but Medtronic (the other big CGM manufacturer) certainly does. There’s nothing magical about getting Medicare to cover something. It’s hard, but not magical. They have to provide the data that the CGM really works and really reduces A1c and that it’s not prohibitively expensive. They have clinical trial data that shows both those things.

The companies and JDRF are the ones that got the non-Medicare insurers to cover CGMs for the non-Medicare population. They just have to realize that there are more Medicare Type 1’s than they think and they need to help them get CGM’s covered by Medicare. You did the right thing by calling everyone you did. If more people do what you did, things are much more likely to change.

Mike

Comment by Baby Peanut on March 20, 2012 at 9:39am

mike o., regarding cgm's & medicare-i've been in touch with jdrf, cgm manufacturer's & finally my congressman(didn't want to touch my medicare hmo)! his office actually got back to me very quickly, got some info & said they will look into it & get back to me. i don't expect anything to come of it, when i spoke to a dexcom rep, he told me that medicare told them not to even bother to submit claims, they don't recognize cgms. i will let you know if i hear anything, liz

Comment by Jason Casey on March 13, 2012 at 11:12am
To Spanishrose9668, I check my BG 10-13 times a day and it is a bit annoying. My best response to 'painful fingers' is use the side of the individual finger, not the tip, and use the outside, left-side on left hand / right-side on right hand. I also switched to a guitar with nylon strings and I am learning the piano. No matter what lies they tell you re: Type 1, it doesn't ever FEEL any better, but there's only one way to know...
Comment by Richard157 on March 11, 2012 at 5:39pm

Alan, are you talking about proof needed to get the Joslin medal? My hospital keeps patients records for 0nly 10 years. You do not need proof from a hospital. My parents and doctors from my early years had died, and a medalist told me that I could have a couple of people who knew me at the time, or near the time I was diagnosed, write letters. My sister and a cousin wrore letters telling some of the things they remembered from that time. The letters were sent to Joslin with my application. They were accepted, and they mailed me the nedal. When I participated in the Medalist Study they were easily able to see that I had been a type 1 diabetic for a very long time. Only medalists are permitted to take part in the study.

Comment by Sam I am on March 11, 2012 at 4:25pm
Sorry, I jumped in and started a discussion without introducing myself. I've been diabetic for 33 years now. This web site is something new for me--I had no idea folks could live so long with diabetes, and now, reading this group, I still feel pretty young. I've never taken great care of myself, happy to have A1c's under 9 as I've been a lot higher. No significant complications, although my hands now get tingly when my blood sugers drop. I have recently in the past couple of years become more unaware of low BG. I was on the pump in the very beginning (less my first year), then stopped after I graduated high school and could no longer afford it. Started back up again in 2007 with the Cosmore, and now with the minimed and a CGM. I was told in the beginning that I was "brittle", but now I am starting to wonder if that really exists. I am trying to remember that no matter how long I have had this, that there is always something new to learn.
Comment by Richard157 on March 6, 2012 at 1:16pm

I'm pleased to hear that, Shoshana. I am anxious to read about your getting the medal. Maybe you can post a picture of it here.Let us know when it arrives. It can take awhile.

Comment by shoshana27 on March 6, 2012 at 8:35am

thanks,richard157,i just applied.

Comment by Richard157 on March 6, 2012 at 7:50am

Shoshana, here is a link on applying for the Joslin medals, The phone number is on the right hand side of the page. Stephanie will help you with the application.

http://www.joslin.org/medalist/apply_now.html

 

Members (363)

 
 
 

Advertisement



REsources

From the Diabetes Hands Foundation blog...

Spare A Rose, Save A Child for Valentines Day

Here’s a new way to celebrate Valentines Day: Buy a dozen roses, spare the cost of one (about $5) and donate to IDF’s Life for a Child program. By doing this, you will help children in need of life saving insulin. Those of Read on! →

Diabetes Hands Foundation Announces Interim Executive Director as Manny Hernandez, Co-Founder and President, Steps Down

Read the Spanish version of the announcement. BERKELEY, CA: January 15, 2015 – Manny Hernandez, President and Co-Founder of the Diabetes Hands Foundation (DHF), has announced his decision to step down as President of the organization. “Diabetes Hands Foundation has Read on! →

Diabetes Hands Foundation Team

DHF TEAM

Melissa Lee
(Interim Executive Director, has type 1)
Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Director of Operations and Development, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator

Brian (bsc) (has type 2)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)

 

LIKE us on Facebook

Spread the word

Loading…

This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.

© 2015   A community of people touched by diabetes, run by the Diabetes Hands Foundation.

Badges  |  Contact Us  |  Terms of Service