Type1 for 30 Plus Years


Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 359
Latest Activity: 21 hours ago

Diabetes Forum

Perplexing symptoms - Autonomic Neuropathy or Addison's?

Started by earthling. Last reply by earthling 21 hours ago. 18 Replies

Hello fellow D-veterans. If anyone here could help me figure out my current weird symptoms, I would be eternally grateful! Sorry if this is long.Background:I'm a 62 year old woman I've had T1…Continue

Tags: Disease, low, BP, Addison's, Neuropathy

You Did Not Take Good Care Of Yourself???

Started by Richard157. Last reply by angivan yesterday. 28 Replies

Those of us who have been type 1 for a very long time have probably dealt with a lot of ignorance from people giving us bad advice. Has anyone ever told you that "You Did Not Take Care Of Yourself"?…Continue

Sorry Honey...

Started by Stuart. Last reply by angivan yesterday. 33 Replies

Had a little "challenge" this week, which suffice to say I won't go into detail about. It was bad, really, really bad (sic. diabetic stuff) by any possible measure.My question for you my peers....…Continue

Tags: sorry, advice, counsel, experience, lover

50y.o. (almost) now what ...

Started by Stuart. Last reply by Fred Goldberg Dec 10. 9 Replies

Nearing fifty "soon", what kind of changes were necessary for YOU, re: dosages and so forth.How much did you need to tweak the carb counting? How much did you have to change/alter what you used to…Continue

Tags: percentage, anticipated-changes, anticipate, anticipated, formula

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Comment by shelby on May 16, 2012 at 5:20pm

I've had type 1 for almost 43 years and I'm now 54. I, too, have never met anyone living with DM this long so I'm glad to talk to someone who knows what it's like. Every day is a challenge that's for sure. I do have retinopathy in my one eye for the last 3 years. For me, it's difficult to deal with. I get tired of reading articles of what to do to prevent complications but no articles to tell you what to do once you have one. It kinda makes me really mad as I'm sure there are some hints out there that could be told. I'm using the pump now which make my sugars more stable but sure have to put a lot of work into it. Testing sugars 10-12 times a day, changing set ups every 3 days, warning signals go off in my opinion way too often - it never ends but I guess.... things could be worse and all in all I'm pretty lucky. Would love to talk. I'm also new here.

Comment by melindalaw on April 2, 2012 at 8:38am

I know the feeling. I am 56. 51 years ago I was diagnosed. I was told I would not live really past 25.. I celebrate every birthday with relish. People who do not have the Big D cannot understand my feeling about celebrating a birthday. When you are told as a child that you do not have a long time on this earth, it changes everything, forever. Happy Birthday

Comment by melindalaw on April 2, 2012 at 8:35am

Comment by Baby Peanut on April 2, 2012 at 8:27am

haha, good for you & keep it going, another 40 at least!

Comment by Sam I am on April 2, 2012 at 8:02am
I am happy to announce that I just turned 40. This is huge for me because as a newly diagnosed child, we never thought I would live that long. So, to all those doctors 33 years ago....in your face! Here's to another 40!
Comment by MikeO on March 20, 2012 at 11:56am

Liz – They’re right that there is no point in sending claims to Medicare, because they haven’t gotten coverage approved yet. They have to apply to Medicare for it to be covered as a regular Medicare benefit. Dexcom is a little company and maybe doesn’t know the Medicare system, but Medtronic (the other big CGM manufacturer) certainly does. There’s nothing magical about getting Medicare to cover something. It’s hard, but not magical. They have to provide the data that the CGM really works and really reduces A1c and that it’s not prohibitively expensive. They have clinical trial data that shows both those things.

The companies and JDRF are the ones that got the non-Medicare insurers to cover CGMs for the non-Medicare population. They just have to realize that there are more Medicare Type 1’s than they think and they need to help them get CGM’s covered by Medicare. You did the right thing by calling everyone you did. If more people do what you did, things are much more likely to change.


Comment by Baby Peanut on March 20, 2012 at 9:39am

mike o., regarding cgm's & medicare-i've been in touch with jdrf, cgm manufacturer's & finally my congressman(didn't want to touch my medicare hmo)! his office actually got back to me very quickly, got some info & said they will look into it & get back to me. i don't expect anything to come of it, when i spoke to a dexcom rep, he told me that medicare told them not to even bother to submit claims, they don't recognize cgms. i will let you know if i hear anything, liz

Comment by Jason Casey on March 13, 2012 at 11:12am
To Spanishrose9668, I check my BG 10-13 times a day and it is a bit annoying. My best response to 'painful fingers' is use the side of the individual finger, not the tip, and use the outside, left-side on left hand / right-side on right hand. I also switched to a guitar with nylon strings and I am learning the piano. No matter what lies they tell you re: Type 1, it doesn't ever FEEL any better, but there's only one way to know...
Comment by Richard157 on March 11, 2012 at 5:39pm

Alan, are you talking about proof needed to get the Joslin medal? My hospital keeps patients records for 0nly 10 years. You do not need proof from a hospital. My parents and doctors from my early years had died, and a medalist told me that I could have a couple of people who knew me at the time, or near the time I was diagnosed, write letters. My sister and a cousin wrore letters telling some of the things they remembered from that time. The letters were sent to Joslin with my application. They were accepted, and they mailed me the nedal. When I participated in the Medalist Study they were easily able to see that I had been a type 1 diabetic for a very long time. Only medalists are permitted to take part in the study.

Comment by Sam I am on March 11, 2012 at 4:25pm
Sorry, I jumped in and started a discussion without introducing myself. I've been diabetic for 33 years now. This web site is something new for me--I had no idea folks could live so long with diabetes, and now, reading this group, I still feel pretty young. I've never taken great care of myself, happy to have A1c's under 9 as I've been a lot higher. No significant complications, although my hands now get tingly when my blood sugers drop. I have recently in the past couple of years become more unaware of low BG. I was on the pump in the very beginning (less my first year), then stopped after I graduated high school and could no longer afford it. Started back up again in 2007 with the Cosmore, and now with the minimed and a CGM. I was told in the beginning that I was "brittle", but now I am starting to wonder if that really exists. I am trying to remember that no matter how long I have had this, that there is always something new to learn.

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Grant given to support programs aimed at bringing together people touched by diabetes for positive change BERKELEY, CA: December 4, 2014 – Diabetes Hands Foundation (DHF) has received a grant of US$200,000 from Novo Nordisk to support programs aimed at Read on! →

Guest Post: World Diabetes Day 2014 on Twitter… sifting through the data

At Symplur we track hashtags, keywords, user accounts, and pretty much anything else on Twitter that has to do with healthcare. We collect the data and then build countless ways to slice it up so that we’re able to better Read on! →

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