Comment

Comment by MegaMinxX on May 26, 2012 at 3:27pm

Hi all. Sorry to say I 'qualify' to join this group. T1 since 1965, age 5. Interesting to see so many stories and comments I relate to so well. I have no memories of not having D, but in some ways it seems easier to deal with compared to posts I see from others diagnosed when older. I've been fortunate to have never been in DKA or need of medical assistance for hypos.

Comment by Rene on May 21, 2012 at 10:54am

Thanks Shelby you are toooo kind.
I do believe I made it this far due to the research and advancements in the testing, record keeping,and methods of administering insulin. Having said that I will probably never weight, measure, or limit my food by any other method.
That is me rebelling against all the rules a diabetic must live by.
How do y'all rebel.

Comment by shelby on May 20, 2012 at 5:34pm

Hi Rene. Your not old at all!!!!You look great.

Comment by ShelbyH on May 16, 2012 at 6:08pm

I'm freaking out in a good way! Shelby, my name is Shelby also! We can be the Diab Shelby's!
Great to meet you & Ben also.

Don't know too many other Shelby's & you are my first partner in diabetes crime! Yeay!

Take care message anytime!
~Shelby

Comment by Rene on May 16, 2012 at 5:56pm

How about 46 years. Does make me feel like an old lady. Oh well better old than the alternative.

Comment by shoshana27 on May 16, 2012 at 5:50pm

TO SHELBY & BEN I'VE HAD TYPE 1 SINCE I WAS NOT YET 3...AM 78+ NOW...GOOD LUCK & DON'T GIVE UP.

Comment by Richard157 on May 16, 2012 at 5:46pm

Hello Shelby and Ben, welcome! Both of you have been type 1 a very long time, and you must be doing something right to be here with us today. I have been type 1 for 66 years, and am very healthy.

Shelby, I had some retinopathy in both eyes several years ago. My ophthalmologist told me he would have to use laser treatment if the problem remained. I had appointments every four months. It did not get worse, but not better. In 2007 I started using an insulin pump and after a few weeks I was having fewer highs and lows. The trauma caused by a roller coaster control had apparently caused the retinopathy, and also some neuropathy. With a more stable control the retinopathy completely disappeared and the neuropathy rarely bothers me, but it is still there. A good A1c combined with stable control was the secret for me. Some diabetics can have that stability without using a pump, but I found it much easier with pumping.

I hope both of yo will get the Joslin medal after you have completed 50 years with your diabetes. Meeting in Boston with many other long term medalists is a very wonderful experience.

Comment by shelby on May 16, 2012 at 5:20pm

I've had type 1 for almost 43 years and I'm now 54. I, too, have never met anyone living with DM this long so I'm glad to talk to someone who knows what it's like. Every day is a challenge that's for sure. I do have retinopathy in my one eye for the last 3 years. For me, it's difficult to deal with. I get tired of reading articles of what to do to prevent complications but no articles to tell you what to do once you have one. It kinda makes me really mad as I'm sure there are some hints out there that could be told. I'm using the pump now which make my sugars more stable but sure have to put a lot of work into it. Testing sugars 10-12 times a day, changing set ups every 3 days, warning signals go off in my opinion way too often - it never ends but I guess.... things could be worse and all in all I'm pretty lucky. Would love to talk. I'm also new here.

Comment by melindalaw on April 2, 2012 at 8:38am

I know the feeling. I am 56. 51 years ago I was diagnosed. I was told I would not live really past 25.. I celebrate every birthday with relish. People who do not have the Big D cannot understand my feeling about celebrating a birthday. When you are told as a child that you do not have a long time on this earth, it changes everything, forever. Happy Birthday

Comment by melindalaw on April 2, 2012 at 8:35am

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