For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.
Members: 291
Latest Activity: 8 hours ago
Started by Stuart. Last reply by Stephaniebeth May 28. 9 Replies 4 Likes
I am in stunned awe of the profound diabetic experience(s) which this 30 plus years group possesses. 8,520 years presuming only 30 years.Many (most?) appear to have significant diabetes experience…Continue
Tags: 8520, 1000, serious-experience, diabetes, experience
Started by Robert Yancey. Last reply by Theodore Quick May 27. 9 Replies 0 Likes
Hi All, After recently joining Emily's awesome interview with the CEO of Dexcom, I realized that I missed associating with fellow T1D'ers. So, I thought I would share with you a recent experience…Continue
Started by Marion Mifsud. Last reply by Mike May 2. 16 Replies 0 Likes
I was diagnosed at age 6 and am now 59. Trying to keep from losing kidney function 30% left. I remember the glass needles with the thick needles that could have a bard on it. I don't know if this…Continue
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Dear Alice,
Sorry that you have endured such an ordeal. I agree that more tests and record keeping will keep you on a better regime. I test frequently, am on the pump and CGM. I am a Joslin 50 year medalist. I hope that you continue to recover.
I'm back from 5 months in the hospital. I got hit by a car when crossing the street. At one point my chances of living was 0-20% ! The doctors, family and friends got me through. I came home in a wheelchair, but I'm walking now, a little unsteadily. The ICU must have kept my GL in control; I had better numbers than when I'm not in the hospital.Given a longer life span, I'm buckling down more with tests and records.
Comment by Richard157 on August 9, 2012 at 3:13pm Hello Buddy King, pleased to meet you. You have been a diabetic for 60 years, and are eligible for the Joslin medal. Do you have the medal? If not, please let me know if you are interested. All type 1 diabetics are eligible after 50 years of diabetes. After receiving the medal you are invited to participate in the Joslin Medalist Study at the Joslin Diabetes Center in Boston. (Participation is optional.) This assumes you are a US citizen. They will pay your transportation expenses, and one day's lodging. they are attempting to find what makes us long term type 1 diabetics so different. Over 700 medalists have participated so far, and some very interesting things have been found. You would also have the opportunity to attend the medalist meetings in Boston. I have been type 1 for 66 years and attended one of the meetings in 2011. It was wonderful to be with a group of over 100 fellow long term type 1's. The next meeting is in 2013, probably in June.
Comment by Buddy King on August 8, 2012 at 8:04pm Hi. I was diagnosed in 1952 when I was six, after living through the last of the polio outbreaks just after the Salk vaccine. I was sent to "dancing lessons" to learn to walk, liked the attention and eventually became a professional dancer, went to Goodman Theater in Chicago, traveled with many shows and reviews. I am 66 now, still active and eager to learn all the things I don't know about the treatment of this disease. I use Lantus and Novolog and am interested in constant blood monitoring and maybe even pumps. I now have Medicare and because of "Pre-existing conditions" have not had insurance for 35 years. I am happy to be here and look forward to the friendships, information and experience.
Comment by 1Run on July 28, 2012 at 3:34pm Just thought I'd share my story here. I was diagnosed with type 1 in 1977 at age 3. Now I'm 38 and I'm running across the United States. I'll be the first insulin-dependent diabetic to do this. Along the way, I'm meeting diabetic communities at children's diabetic camps, hospitals, grocery stores, city parks, and even bars. My hope is that I'll inspire other diabetics to take ownership in their health and to show recently diagnosed diabetics that this isn't the end of the world. Because of the volume of my running, I'm down to a quarter (down 75%) of the insulin I once needed. If you live along my route (Denver - Omaha - Chicago - Ft. Wayne - Pittsbourgh - Trenton - NYC), I'd love to connect with you! Visit 1run.org for my blog, videos, and an events calendar.
Comment by Marion Mifsud on July 21, 2012 at 6:46pm I wander if anyone with 30% of kidney function left after 56 yrs. takes Crestor. I just read on internet can damage kidneys.
Comment by MegaMinxX on May 26, 2012 at 3:27pm Hi all. Sorry to say I 'qualify' to join this group. T1 since 1965, age 5. Interesting to see so many stories and comments I relate to so well. I have no memories of not having D, but in some ways it seems easier to deal with compared to posts I see from others diagnosed when older. I've been fortunate to have never been in DKA or need of medical assistance for hypos.
Thanks Shelby you are toooo kind.
I do believe I made it this far due to the research and advancements in the testing, record keeping,and methods of administering insulin. Having said that I will probably never weight, measure, or limit my food by any other method.
That is me rebelling against all the rules a diabetic must live by.
How do y'all rebel.
Comment by shelby on May 20, 2012 at 5:34pm Hi Rene. Your not old at all!!!!You look great.
Comment by ShelbyH on May 16, 2012 at 6:08pm Manny Hernandez(Co-Founder, Editor, has LADA)
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