Type1 for 30 Plus Years

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Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 349
Latest Activity: Jul 22

Diabetes Forum

You Did Not Take Good Care Of Yourself???

Started by Richard157. Last reply by artwoman Jul 17. 13 Replies

Those of us who have been type 1 for a very long time have probably dealt with a lot of ignorance from people giving us bad advice. Has anyone ever told you that "You Did Not Take Care Of Yourself"?…Continue

Joslin Medalist Program

Started by Emily Coles. Last reply by shoshana27 Jun 8. 55 Replies

Hey fellow D long-timers,If you've had diabetes for 50 years or more, you're eligible for a…Continue

Tags: medalist, gold medal, Joslin

Our minds, our thinking... ???

Started by Stuart. Last reply by Stuart Jun 5. 25 Replies

Consider with this much experience, how has diabetes fundamentally effected the ways you think about & filter things?!?!How has our diabetes changed our psychology whether we are aware of it or…Continue

Tags: effects, mental-diabetes, floss, psychological, behavior

Osteoporosis meds?

Started by Marypat. Last reply by Sue R. Feb 27. 3 Replies

Are there any T1s who are taking meds for osteoporosis? What is your experience? I have seen 4 doctors and have 4 different opinions and still no treatment plan.Continue

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Comment by Robert Yancey on August 23, 2011 at 1:12pm
In my mind there is a lot you can do, and do as much as you can. I've had some of those same issues at times, my hba1C has generally been running in the 7's. I ran a marathon and 3 half's over the past year. I also just got back from Kayaking around the Apostle Islands this summer. I go camping on "High Adventures" as a Boy Scout leader regularly. Each different activity for me presents its own challenges. My fingers are still a little numb from what I think is a combination of Neuropathy, carpal tunnel syndrome, and excessive use on the Kayaking trip. During my long runs I often deal with some nausea. I think that the activity in general keep my excited and motivated and in good shape. I think that in turn helps me to have more energy. I'm sure those that have had tight control have little or no complications, however, statistically, those that keep their health in perfect control are a smaller percentage than the majority. My goal is to make it for 85 years with diabetes, just turned 40 and have had it 35 so far. I feel like I'm in pretty good health, even with some of the complications and am hoping to go for a long time without adding any more! Best of luck!
Comment by Robert Yancey on August 23, 2011 at 1:04pm
A Member wrote in email to members of "Type One for 30+ Years ":
After having diabetes for over 30+ years, What is the normal overall feeling of good or ok health? More specifically, I have various complications from diabetes (retinopathy, neuropathy, stomach issues, trigger fingers, extreme fatigue). Most of this is attributed to the diabetes and my doctor(s) have basically said there is nothing I can do except continue to keep my sugars in better control. Is this how most people feel with having diabetes so long? Is this normal and I just need to manage it as best I can and not complain?
Comment by dickengel on June 3, 2011 at 6:15am
Terri the application is hereJoslin Application

Fill it out and send it in to sara.turek@joslin.harvard.edu


Good Luck
Comment by Terrie on June 2, 2011 at 11:13pm
LOL! I'm not greedy Richard. That would be Great if we could have a medal from each org./assoc./comp. for the 50th and 75th D-year but I think that we are only allowed 1 per Person. As I said, I'm not sure if my Endo is correct since I haven't heard of CDA giving medals nor do I know of a Canadian who has received one from the CDA(it must be Top Secret). It's still a mystery to me. I guess I'll know for sure during the winter, when I hopefully receive it. The other Canadians on TuD received their medals from Joslin, as far as I know. Maybe I will also. My Endo was the one who mentioned to me about getting the medal in the first place, so he is the one who should know where it is coming from since he is putting my name on the list and he said it is the CDA.

That's Terrific that you will have at least 2 couples sharing the meal. I'm sure you all will have Really interesting discussions and ideas about the Joslin studies and many other topics. Have a Wonderful time Richard and Anita. You sooo deserve it. :)
Comment by Richard157 on May 31, 2011 at 7:46am
What's wrong with two medals, Terrie? i understand your wanting the Canadian medal, but you need the Joslin medal in order to attend the Medalist meet-ups in Boston.
Comment by Terrie on May 31, 2011 at 12:31am
Sorry, I didn't notice the date of your post. So it is the 3rd and 4th. That would be Amazing to be there Richard. As I said though, my Endo said that he is putting my name on the list in the Fall but he said it is the CDA giving the medal. We'll see. I cannot receive 2 medals for my 50th D year. One is Special enough.
Comment by Richard157 on May 30, 2011 at 8:07am
Terrie, the Joslin Medalist meet-up is scheduled for Friday and Saturday, June 3 and 4, this week. The weather looks great for the two days. If you apply for the Joslin medal, you will be eligible to attend the meet-ups in Boston. They are held every two years. The next one is in 2013. See you there?
Comment by Terrie on May 30, 2011 at 12:49am
Hi Richard: :)

I was quite certain that you and I discussed this Richard. I know that you speak to zillions of Diabetics, so you may have forgotten our chat about my 50th year medal. Danny and I were discussing it not to long ago also.

I must confess that I’m CONFUSED. When my Endo mentioned about me receiving the medal, last fall, I presumed that it would be from Joslin (or Lilly)since many Canadian Diabetics have received it from them. But my Endo said, “No, it will be given from the CDA(Canadian Diabetes Association). One of his Patients received a medal from them a couple years ago. Nel said that the CDA does not give out medals. I even looked it up and found nothing about a 50 year medal. Maybe they get them from Joslin or Lilly and present them here on behalf of the company/org..

I asked my Endo again at my Spring appointment, who is the medal given by and he again said, from the CDA. Perhaps I hallucinated twice. :D He will be sending my info/paperwork and adding my name in Nov. That may not be a Dec. medal but a New Years’ medal. I do not know why he’s leaving it that late. Maybe that is the way they do it here. Oh well, as long as I receive one. It doesn’t matter who it’s from or if it’s a bit late. This Really has my curiousity revving since this doesn’t add up as it should. Just like carb counting sometimes eh?.

Oh, how did that meet-up turn-out Richard? It sounds like a Blast. I’m so Happy that you and Anita were in attendance. Tell us about it please. Is this the one you were at? “This week, the Joslin will honor its “medalists’’ — patients who have lived for more than 50 years with type 1 diabetes — most of whom are participating in the research. The 100 or so medalists planning to attend the two-day festivities, including Ham and Schneider, will have a lot in common”.
Comment by Terrie on May 30, 2011 at 12:08am
You're Very Welcome and deserving of your medal Patricia. Thank you for thinking of me in the future. :)
Comment by Patricia Bason on May 27, 2011 at 1:09pm
Thank you for the good wishes Terrie. I look forward to congratulating you on the same 50 years in December when your medal will take it's rightful place in the display cabinet. Good luck x
 

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