Type1 for 30 Plus Years


Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 350
Latest Activity: on Friday

Diabetes Forum

You Did Not Take Good Care Of Yourself???

Started by Richard157. Last reply by artwoman Jul 17. 13 Replies

Those of us who have been type 1 for a very long time have probably dealt with a lot of ignorance from people giving us bad advice. Has anyone ever told you that "You Did Not Take Care Of Yourself"?…Continue

Joslin Medalist Program

Started by Emily Coles. Last reply by shoshana27 Jun 8. 55 Replies

Hey fellow D long-timers,If you've had diabetes for 50 years or more, you're eligible for a…Continue

Tags: medalist, gold medal, Joslin

Our minds, our thinking... ???

Started by Stuart. Last reply by Stuart Jun 5. 25 Replies

Consider with this much experience, how has diabetes fundamentally effected the ways you think about & filter things?!?!How has our diabetes changed our psychology whether we are aware of it or…Continue

Tags: effects, mental-diabetes, floss, psychological, behavior

Osteoporosis meds?

Started by Marypat. Last reply by Sue R. Feb 27. 3 Replies

Are there any T1s who are taking meds for osteoporosis? What is your experience? I have seen 4 doctors and have 4 different opinions and still no treatment plan.Continue

Comment Wall


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Comment by Richard157 on October 23, 2011 at 9:16am
Marion, I agree with you, but living that long with diabetes is a wonderful reward in itself. I have lived 66 years with my type 1, and despite the aggravations involved I am so grateful that I can just keep putting one foot in front of the other and plod along day after day. You and I are winners! We have lived well beyond the time that so many doctors thought we would.
Comment by Terrie on October 23, 2011 at 12:13am
Hi Marion:

So sorry that you are feeling fed up. I know that we have all been there in some stages in our Diabetic existence. We just have to take a breather at these times. Do something that you enjoy but don't normally do. You deserve it. I am Sooo impressed that you have made it to 55 years with the D. Congratulations!! Hopefully you have received your 50 year D medal. If not, then that is something more to look forward to. Hoping that you have an uplifting week-end. :)
Comment by Marion Mifsud on October 22, 2011 at 7:51pm
I have problems on and off with being fed up with being diabetic for 55 yrs. I get to the point where I say I don't care. Sticking fingers, wearing pump having to each get high blood sugar down and low blood sugar up. Control control. What to do about living with diabetes for so long and getting fed up with the whole thing. The mindset is exhausting.
Comment by JaninaWalker on August 26, 2011 at 9:16pm
Here is an explanation of side effects from a type of B12 that I am dead set against.
It is not what I recommend which is the active methylcobalamin form. Secondly I never think taking only one B vitamin is proper as they work together, so it proves the doctors do not understand. But you didn't specify what you did take, whether it was a tablet with magnesium stearate in it which is a lubricant to keep the pill making machinery working and not good for humans. Also, with injections a very small amount is all that is needed. More is taken orally as so little is effectively absorbed.
One of the reasons antibiotics cause a problem is because they kill friendly good bacteria that is used to absorb B6 in the intestines. So much more to mention.
You should try a different approach, and not give up because one supplement disagreed with you, because it could have been one of these negative factors that I know should be avoided.
But if you are not often in pain, I can see you are just avoiding trying anything. For me the pain was so intense, so I wanted to fix it desperately.
One thing I found in 2009 when helping one person was that I found sites that say pain increases as healing progresses, so I guess that is why everyone stops too soon because it seems like it is making it worse. That's why my approach that was intense, happend to improve so fast that all I can remember is that it was better so soon that I knew it was working. But then I do have good circulation because I had done chelation between 2000-2002.
Comment by Richard157 on August 25, 2011 at 12:37pm
My doc prescribed B vitamins, but I had side effects and had to stop taking them. I am very healthy and my lab reports do not indicate any vitamin supplements. There are B vitamins in my Centrum Silver multiple vitamins. I have been taking those for a long time.
Comment by JaninaWalker on August 24, 2011 at 9:34pm
Are you taking B vitamins by supplements? Or only relying on the Bs in beef?
Pork has about half the Bs that grass fed beef has and chicken will also be low as they dont eat greens. I am always sorry that some people think red meat is bad for you as the popular press seems to be against it. So that leads to low B vitamins in people.
Comment by Richard157 on August 24, 2011 at 6:59pm
Hi Janina, it is nice to hear from you! My occasional EMG tests given by my neurologist shows I still have the neuropathy, but it has not progressed for the last 4 years. I have felt a little of the burning/stabbing pain when I have had high BG for several hours. It hits me while I am sleeping, but not bad like it used to be.
Comment by JaninaWalker on August 24, 2011 at 6:00pm
Dear Richard157...why do you say the neuropathy is still there even though you feel no pain? Is this because someone said you have it for life and it only goes into remission? By that, are we to say when we get a cold, that we have it for life and it only goes into remission?
My own neuropathy, even if on rare occasions my blood sugar level goes over 30, I still don't get symptoms. I feel as good as I did even before I had it, with respect to those symptoms, and it has been gone since 2003.
I just disagree with the doctors who say it is something a person will have for life. That would only apply if the doctors know nothing about how to heal it, which is the majority of doctors. Every person I've helped told me they were told they would have it for life. One person has no more pain since 2004, but has numb feet and IMHO that is because of advanced heart disease and PAD (Peripheral Artery Disease) and blocked circulation from 23 years of huge amounts of insulin which caused overweight of over 100 lbs too much. That was caused by not learning and expecting the doctor to explain everything which they don't have time to do.
When they say neuropathy is for life, that's another way of saying, "don't expect me to make it go away, but we can manange it with pain meds for the rest of your life."
Comment by melindalaw on August 24, 2011 at 3:41pm
Might as well add in my two cents. I have had Type 1 for 51 years, and I just turned 56. Right now I am really learning the how to's of triathlon. I swim 3 days a week, bike 3-4 days a week, and run 3-4 days a week, The biggest challenge is catching up to the increased insulin sensitivity. I have pumped since 1997, and have a CGM. It all helps to make me much more aware of what is going on and when. I don't really have any long term complications, except that sometimes I am less flexible than i want. I just try to stay grateful and not let myself get upset when I miscalculate insulin to food ratios.
Comment by Florian Menninger Jr on August 24, 2011 at 10:58am
I just celebrated birthday No 74 and of those years I have been a practicing type 1 for 44. I am very lucky and very grateful to be living in the Boston area where we have the Joslin Diabetes Center and access to world class state of the art diabetes care.
In addition to that we have a Boston MA insulin pumpers support group that meets on the second Sat of the month in Woburn, MA. Its an active, dynamic, knowledgeable, fun group that can be the best resource for someone new to pumping or someone who has been pumping for a long time.. Several members are Joslin 50 year medalists.Many are using a CGM and have participated in some of the Clinical Trials for these devices. The sharing of information at the meetings by members of the MA Pumpers Support Group is invaluable. I try to go to all the meetings and I always learn something new.
Last but not least we have an active Boston Chapter of DESA (Diabetes Exercise and Sports Assoc). We do bicycle rides on the various bike trails around MA, CT, and RI. The fall is a great time for this activity. The weather is cooler and the colors can be spectacular. We've done kayaking and hiking in the summer and in the winter snow shoeing and x-country skiing. This group emphasizes the part of diabetes management that doesn't get enough attention....be active, be fit, be healthy. We also have lots of fun.
One more thing 6 members of the pump support group recently went to the Joslin Diabetes Camp for a half day to spend some time with the young Leaders in Training at the camp and talk with them about the art and science of living a long time with diabetes. When we totaled the number of years for the 6 members it was 276 years. (Two of the 50 year medalists were with us that day).
The bottom line is get involved with a Diabetes Support Group, and do some physical activity that you like. The diabetes will be easier to manage the blood sugars will be under control, you will be healthy and feel better and Life will be Good.

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From the Diabetes Hands Foundation blog...

Diabetes Among Hispanics: We’re not all the same

US Hispanics are often portrayed in the press as a single, monolithic group. But anyone who has spent any time in San Francisco’s Mission District or the Bronx can tell you, we’re not all the same. Now we’re finding out Read on! →

Diabetes entre los hispanos: no somos todos iguales

Traducido por Mila Ferrer.    A menudo los Hispanos en Estados Unidos son retratados en la prensa como un solo grupo, monolítico. Pero cualquiera que haya pasado algún tiempo en el  Mission District de San Francisco o el Bronx se Read on! →

Diabetes Hands Foundation Team


Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


Lead Administrator

Bradford (has type 1)


Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)


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