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Type1 for 30 Plus Years

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Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 375
Latest Activity: yesterday

Diabetes Forum

Are we losing this group with new migration?

Started by Sally. Last reply by Marie B yesterday. 2 Replies

Robert-New to tudiabetes and your group. Social media not my thing. Not sure how to keep this group active. Don't want to lose this great group with all it's insights. Thanks!Continue

Our minds, our thinking... ???

Started by Stuart. Last reply by Sally Apr 11. 31 Replies

Consider with this much experience, how has diabetes fundamentally effected the ways you think about & filter things?!?!How has our diabetes changed our psychology whether we are aware of it or…Continue

Tags: effects, mental-diabetes, floss, psychological, behavior

What if you psychologist doesn't GET IT??

Started by Marga. Last reply by Marga Apr 7. 23 Replies

I got T1D less than 5 years ago...rollercoaster rides w/lots of insulin shots etc...you know...It's painful for me to hear that my new psychologist said "IT'S NOT SO HARD"!!! It's hard for me to…Continue

Symlin?

Started by ANTONIA RETMAN. Last reply by Sally Apr 7. 8 Replies

Any other long time Type 1's on Symlin? And how is that working out for you? I'm 40 and was diagnosed at the age of 3. Thanks for any infoContinue

Tags: Symlin

Comment Wall

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You need to be a member of Type1 for 30 Plus Years to add comments!

Comment by MikeO on December 8, 2011 at 6:04am

Hi - A couple of thoughts. First, if by below 135% of the poverty line you meant NYS Medicaid, they do cover insulin pumps, at least according to their website (http://www.health.ny.gov/publications/3385.pdf). Second, it sounds like you need a better endocrinologist. I think many of us have found that at some point we just have to shop around for the best person who knows what they’re doing and we are comfortable working with. You might want to try http://www.hormone.org/FindAnEndo/, but I know the last time I had to find a new endo I ended up just going to three or four before I found the right match.
Good luck

Comment by Baby Peanut on December 8, 2011 at 5:01am

david: yes, you have to either be wealthy or in ny, under 135% over the poverty line to be able to consider those luxuries. i happen to fall into the latter, i would have to ask my family for help if i were to consider a pump which i'm hoping i can get away with not. haha, my a1c was around 5.8 last time, my doctor was thrilled & when i told her i was cutting my insulin, she says, aw, i thought people were going to say 'dr. so&so is doing a great job with you.' it really shouldn't be that way. right now i'll stick with her for scripts & get a cde & see if that helps. best to you sir :)

alice: i hope your new regime helps, it sounds like you are being pro-active & it is never too late to learn.

shelby: i have about 5 'good' days a month, i'll leave that at that :) i suffer from depression & generally feel like a robot in groundhog day :) my top priority now is to get these lows under control, i am cutting in various places which should help. i nearly didn't make it home yesterday walking home from grocery shopping in the rain, i've been fearing the passing out in the street which has not happened to me in several years, but hopefully the insulin cuts & really watching what i eat will help. when i get that in order i can work on my feelings. never too late!

best to all!

Comment by David G. on December 7, 2011 at 5:43pm

Just like a nimber of you the original doctor told the parents that I am a brittle diabetic. Aside from dealing with female hormones of other people and other male hormones (none of which have functioning brains) it continues to be frustrating. Doctors just look at numbers and when they aren't the numbers they want go moronic. Numbers like 40-28-36 look good to people that have been in liquor establishments longer than they should be but if that is your mmol/l numbers at meal times it is not good.
Tax system really stinks for medical things and not everyone can afford a pump or testing blood sugars several times a day. At least my last name isn't Kennedy, Rockefeller, Gates and you have to live within your means.

Comment by Alice on December 7, 2011 at 2:59pm

Well, it finally happened. After 50 years, I got a great endo nurse who is helping me solve BG swings. She says I've been taking too much Lantus at night (and at a wide variety of bedtimes). So I'm trying less Lantus, and switching to mornings. I've actually started testing 4x's a day. Up from 0x's a day. I'm using a 20 carbs per unit instead of 15. Cross your fingers. Old dog learning new tricks.

Comment by ShelbyH on December 7, 2011 at 2:30pm

Hi again,
No offense to the fellas, but I honestly believe that the amount of hormones we women have floating around wreaks havoc on our diabetes. Boo hiss!
Also, I know the "same meal, same time" thing can at times work, but it is just to unnatural for me. We do not live in the movie Groundhog Day. 
We are humans with lives and different feelings, thoughts, moods, and schedules every day.  We are also not robots. 

I get very frustrated when what I do one day does not work on another day, so I completely empathize with you both!

Good luck.

I have 12 pages left!

Comment by Sue R. on December 7, 2011 at 5:59am

Hi, Peanut,
Oh, yes, I count carbs, but pretty much stick to the same meals all the time.
Thanks,
Sue

Comment by Baby Peanut on December 7, 2011 at 5:18am

sue, i take levemir in the morning & evening, i stopped needing a lunchtime dose of short acting(using novolog now)a year or 2 ago. i'm sorry we're in the same boat, do you count carbs? i'm starting to do that & plan to see a cde after the holidaze, maybe something'll come of it, figure it's worth a try. hope you have a smooth day :)

Comment by Sue R. on December 7, 2011 at 4:09am

Hi, Peanut,
Yes, frequently the same dose, same meals at exactly the same times works day one and not day two. I'm from the same era as you and find severe insulin reactions the biggest problem.
I long for the days when there was no pre-lunch dose.
Good luck with everything!
Sue

Comment by Sue R. on December 7, 2011 at 4:06am

Comment by Baby Peanut on December 6, 2011 at 7:31pm

i've always been brittle, some times are better than others. what works one day may not work the next(i do factor in a lot of stuff, & tend to eat very similar or identical meals/quantities as much as possible, which is annoying if i eat out but i don't do that too much). i only need short-acting before breakfast & dinner. my attention & self care has only progressively gotten better over the years actually, it's a process to say the least. it is time for another step though, & i am going to see if i can find a cde & work with them probably early next year. i found a good site to help me with my carb counting quest for now, you enter everything you eat & it calculates how many carbs there are in it, which is important for unlabeled food. i am keeping a food diary for the 1st time too, which might help with the binge eating, :) we'll see how that goes. not sure how to apply all this to my benefit yet, but, i guess that's where the cde would come in.i went insane last night but got right back on track today, i don't feel much like a rockstar at the moment, but, thanks for your feedback, both of you.

 

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Diabetes Hands Foundation Team

DHF TEAM

Melissa Lee
(Interim Executive Director, Editor, has type 1)


Manny Hernandez
(Co-Founder, has LADA)

Emily Coles (Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Director of Operations and Development, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator

Brian (bsc) (has type 2)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)

 

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