Type1 for 30 Plus Years


Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 351
Latest Activity: Sep 9

Diabetes Forum

You Did Not Take Good Care Of Yourself???

Started by Richard157. Last reply by Marie Torregrosa Sep 7. 20 Replies

Those of us who have been type 1 for a very long time have probably dealt with a lot of ignorance from people giving us bad advice. Has anyone ever told you that "You Did Not Take Care Of Yourself"?…Continue

Joslin Medalist Program

Started by Emily Coles. Last reply by shoshana27 Jun 8. 55 Replies

Hey fellow D long-timers,If you've had diabetes for 50 years or more, you're eligible for a…Continue

Tags: medalist, gold medal, Joslin

Our minds, our thinking... ???

Started by Stuart. Last reply by Stuart Jun 5. 25 Replies

Consider with this much experience, how has diabetes fundamentally effected the ways you think about & filter things?!?!How has our diabetes changed our psychology whether we are aware of it or…Continue

Tags: effects, mental-diabetes, floss, psychological, behavior

Osteoporosis meds?

Started by Marypat. Last reply by Sue R. Feb 27. 3 Replies

Are there any T1s who are taking meds for osteoporosis? What is your experience? I have seen 4 doctors and have 4 different opinions and still no treatment plan.Continue

Comment Wall


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Comment by Josh F on December 5, 2011 at 3:37pm

In fact i am reading this now.


Comment by Josh F on December 5, 2011 at 3:35pm

Hi Janina,

No I have not. But I would love to work on any aspect of my care than could improve my outcome and future. I am finding the what ifs are causing me great focus and desire to finally fine tune myself and change my life for the better. Thanks for the suggestion.

Comment by JaninaWalker on December 5, 2011 at 3:27pm

Josh_F...have you had a GGT blood test done? It measures the effect of damage alcohol has done to date and while my numbers in 2000 and 2005 were pretty good at 20 and 21 respectively in Cdn terms, I discovered Dr Klenner said VitC could fix that and my test is now 14. Ideal would be under 10. I've used Calcium Ascorbate for 12 years as the best version for plenty of reasons I could explain. It only takes about 8 months to drop the test that much. My liver and kidneys are in top shape even though I am 54 with type 1 for over 30 years, so don't ignore my recommendation. Look up that doctor. He is quite famous.

Comment by Richard157 on December 1, 2011 at 8:43am

Th Quick sets gave me many problems for my first 6 weeks, so much kinking. I have used Sure-T's ever since. The Sure-T has a choice of 6 or 8 MM steel needles that stick straight into your body. It is painless for me. I never use a set more than 3 days to avoid scar tissue. Rotating sites is very important, scar tissue causes poor absorption of the insulin, which results in very high blood sugar. I test at least 12 times per day, keep a thorough chart, and do basal testing every month. Using variable basal rates throughout the day and night gives me very good control. If I had to go back to injections I would not have that stable control, and there would be so much high blood sugar. My A1c's would probably be much higher too.

Comment by Margaret on December 1, 2011 at 8:23am

Thanks, Richard! I've read John Walsh's book cover 2 cover! What are the Sure-T infusion sets? Maybe I should check them out. I went from the SoftSet to QuickSets recently. After Christmas, I think I'll do the 2-hour test after meals. Thanks again.

Comment by Margaret on December 1, 2011 at 8:21am

Comment by Richard157 on December 1, 2011 at 8:18am

Hello Margaret, I have read about many pumpers going back to injections. That is usually due to their not having stuck with it long enough, and not really giving it enough serious attention. You have been pumping for 17 years though, is that right? You have certainly given pumping a good try. Was it good for you before the recent problems, or has it always been giving you high numbers? I have pumped for only 4 years and the only time I have highs over 140 is when I encounter scar tissue or eat at a restaurant and underestimate the carbs in my meals. I use the Medtronic pump and the Sure-T infusion sets. Those sets do not kink, they never have. The book "Pumping Insulin" by John Walsh has helped many people to really learn about using their pumps properly. have you used that book, or one similar?

Comment by Margaret on December 1, 2011 at 8:03am

I just found this group. I've been T1 for 38 years....will reach 70 yo this month. A1C has never been below 6.9, but was 11 about 20 years ago for awhile. I've been on Medtronic pump since 1994, but I'm just about ready to go back to injections. Sometimes it gets kinked, or the insulin is bad, etc., and my numbers go high. Has anyone ever gone from a pump back to injections? How did you do?
Thanks, Margaret

Comment by Josh F on December 1, 2011 at 2:04am

Shelby: I gave up drinking when I decided to get my A1c under control. It just wrecks havok on my system, no matter what. I find it is hard not to get low after I drink so I decided the most I will do is a glass of red wine every once in a while. It has helped in helping me lose weight too, as I love a good micro brew beer. But that along with going back to the gym, it seemed counter productive for me. Plus I figured it can't be good for the eyes. Haha, I have become so boring in my 32nd year of this. ;-)

Comment by rahul aswani on December 1, 2011 at 1:36am

hi jack...gr8 going for the HbA1c.....i hv diabetes for past 27 years...recently detected with background retinopathy.....my HbA1c is not that good......trying level best....


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From the Diabetes Hands Foundation blog...

#MedicareCoverCGM Panel Discussion

If you follow the diabetes online community, you know that #MedicareCoverCGM is a big deal. We have continued to raise awareness on #MedicareCoverCGM because we believe that ALL people living with diabetes should have access to continuous glucose monitors (CGM). With Read on! →

#WalkWithD: Making MORE Sense of Diabetes

  A few years ago, we at Diabetes Hands Foundation reached out to the members on TuDiabetes and asked them to share their perspective of life with diabetes through one of the five senses, as part of an initiative called Read on! →

Diabetes Hands Foundation Team


Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


Lead Administrator

Bradford (has type 1)


Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)


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