Type1 for 30 Plus Years

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Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 350
Latest Activity: on Wednesday

Diabetes Forum

You Did Not Take Good Care Of Yourself???

Started by Richard157. Last reply by artwoman Jul 17. 13 Replies

Those of us who have been type 1 for a very long time have probably dealt with a lot of ignorance from people giving us bad advice. Has anyone ever told you that "You Did Not Take Care Of Yourself"?…Continue

Joslin Medalist Program

Started by Emily Coles. Last reply by shoshana27 Jun 8. 55 Replies

Hey fellow D long-timers,If you've had diabetes for 50 years or more, you're eligible for a…Continue

Tags: medalist, gold medal, Joslin

Our minds, our thinking... ???

Started by Stuart. Last reply by Stuart Jun 5. 25 Replies

Consider with this much experience, how has diabetes fundamentally effected the ways you think about & filter things?!?!How has our diabetes changed our psychology whether we are aware of it or…Continue

Tags: effects, mental-diabetes, floss, psychological, behavior

Osteoporosis meds?

Started by Marypat. Last reply by Sue R. Feb 27. 3 Replies

Are there any T1s who are taking meds for osteoporosis? What is your experience? I have seen 4 doctors and have 4 different opinions and still no treatment plan.Continue

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Comment by Sue R. on December 30, 2012 at 10:15am

Comment by Sue R. on December 30, 2012 at 10:14am

Comment by Stephaniebeth on December 30, 2012 at 9:53am

Dear Alice,
Sorry that you have endured such an ordeal. I agree that more tests and record keeping will keep you on a better regime. I test frequently, am on the pump and CGM. I am a Joslin 50 year medalist. I hope that you continue to recover.

Comment by Alice on December 30, 2012 at 8:40am

I'm back from 5 months in the hospital. I got hit by a car when crossing the street. At one point my chances of living was 0-20% ! The doctors, family and friends got me through. I came home in a wheelchair, but I'm walking now, a little unsteadily. The ICU must have kept my GL in control; I had better numbers than when I'm not in the hospital.Given a longer life span, I'm buckling down more with tests and records.

Comment by Richard157 on August 9, 2012 at 3:13pm

Hello Buddy King, pleased to meet you. You have been a diabetic for 60 years, and are eligible for the Joslin medal. Do you have the medal? If not, please let me know if you are interested. All type 1 diabetics are eligible after 50 years of diabetes. After receiving the medal you are invited to participate in the Joslin Medalist Study at the Joslin Diabetes Center in Boston. (Participation is optional.) This assumes you are a US citizen. They will pay your transportation expenses, and one day's lodging. they are attempting to find what makes us long term type 1 diabetics so different. Over 700 medalists have participated so far, and some very interesting things have been found. You would also have the opportunity to attend the medalist meetings in Boston. I have been type 1 for 66 years and attended one of the meetings in 2011. It was wonderful to be with a group of over 100 fellow long term type 1's. The next meeting is in 2013, probably in June.

Comment by Buddy King on August 8, 2012 at 8:04pm

Hi. I was diagnosed in 1952 when I was six, after living through the last of the polio outbreaks just after the Salk vaccine. I was sent to "dancing lessons" to learn to walk, liked the attention and eventually became a professional dancer, went to Goodman Theater in Chicago, traveled with many shows and reviews. I am 66 now, still active and eager to learn all the things I don't know about the treatment of this disease. I use Lantus and Novolog and am interested in constant blood monitoring and maybe even pumps. I now have Medicare and because of "Pre-existing conditions" have not had insurance for 35 years. I am happy to be here and look forward to the friendships, information and experience.

Comment by 1Run on July 28, 2012 at 3:34pm

Just thought I'd share my story here. I was diagnosed with type 1 in 1977 at age 3. Now I'm 38 and I'm running across the United States. I'll be the first insulin-dependent diabetic to do this. Along the way, I'm meeting diabetic communities at children's diabetic camps, hospitals, grocery stores, city parks, and even bars. My hope is that I'll inspire other diabetics to take ownership in their health and to show recently diagnosed diabetics that this isn't the end of the world. Because of the volume of my running, I'm down to a quarter (down 75%) of the insulin I once needed. If you live along my route (Denver - Omaha - Chicago - Ft. Wayne - Pittsbourgh - Trenton - NYC), I'd love to connect with you! Visit 1run.org for my blog, videos, and an events calendar.

Comment by Marion Mifsud on July 21, 2012 at 6:46pm

I wander if anyone with 30% of kidney function left after 56 yrs. takes Crestor. I just read on internet can damage kidneys.

Comment by MegaMinxX on May 26, 2012 at 3:27pm

Hi all. Sorry to say I 'qualify' to join this group. T1 since 1965, age 5. Interesting to see so many stories and comments I relate to so well. I have no memories of not having D, but in some ways it seems easier to deal with compared to posts I see from others diagnosed when older. I've been fortunate to have never been in DKA or need of medical assistance for hypos.

Comment by Rene on May 21, 2012 at 10:54am

Thanks Shelby you are toooo kind.
I do believe I made it this far due to the research and advancements in the testing, record keeping,and methods of administering insulin. Having said that I will probably never weight, measure, or limit my food by any other method.
That is me rebelling against all the rules a diabetic must live by.
How do y'all rebel.

 

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Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


DHF VOLUNTEERS


Lead Administrator

Bradford (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

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