Type1 for 30 Plus Years

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Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 287
Latest Activity: May 12

Discussion Forum

Our role (8,520 years w/ diabetes at minimum) ?

Started by Stuart. Last reply by Stephaniebeth May 12. 5 Replies

I am in stunned awe of the profound diabetic experience(s) which this 30 plus years group possesses. 8,520 years presuming only 30 years.Many (most?) appear to have significant diabetes experience…Continue

Tags: 8520, 1000, serious-experience, diabetes, experience

Symlin?

Started by ANTONIA RETMAN. Last reply by Robert Yancey May 9. 6 Replies

Any other long time Type 1's on Symlin? And how is that working out for you? I'm 40 and was diagnosed at the age of 3. Thanks for any infoContinue

Tags: Symlin

Memories I'd like to forget

Started by Marion Mifsud. Last reply by Mike May 2. 16 Replies

I was diagnosed at age 6 and am now 59. Trying to keep from losing kidney function 30% left. I remember the glass needles with the thick needles that could have a bard on it. I don't know if this…Continue

T1D - Discrimination or Not?

Started by Robert Yancey. Last reply by earthling Apr 23. 7 Replies

Hi All, After recently joining Emily's awesome interview with the CEO of Dexcom, I realized that I missed associating with fellow T1D'ers. So, I thought I would share with you a recent experience…Continue

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Comment by ShelbyH on December 6, 2011 at 11:46am

Hi everyone,
Apologies, I was on a lot last week and then went MIA. Finals - Grad School - enough said..
Welcome Peanut! Sorry to hear about bad lows. I hate them! I think sometimes life and personal issues just take precedence. We are people with busy lives and bad days, we just happen to have to always have to pay attention to our bodies.  It is a royal pain some of the time.  If you have the time, CDE's are way better than Endo's because they have the time to scrutinize your BS #'s.  Also, in my experience, they have been very caring and empathetic.  I wish you luck and please feel comfortable talking or asking about anything here, we are all in the same boat.  BTW, you are a ROCK STAR for having diabetes as long as you have.  Don't forget that.

@Janina - thanks for the head's up about that test.  I am interested.  Do you think since I am Irish I don't have to worry about the alcohol test?  HAHA just kidding!!! I love your input on VitC..  Thanks!

@Josh - at some point along the way here, you said you were boring now.  NO WAY.  Dude, you have traveled the world and get to travel for work.  That is so awesome.  I have to admit, I somehow can still hear my mother's words, "Traveling is not safe for you!!!"  So, now as an adult, I am a little scared.  : (  I will work through that fear, thanks to hearing stories like  yours. 

OK have a great week, I have 2 more papers to write, wish me luck!

~Shelby

Comment by Richard157 on December 6, 2011 at 9:04am

Hello Peanut, welcome to our community! If you have not been counting carbs and you are type 1 for 47 years, then you probably have very unstable control. Did you take better care of yourself in the past and have been more careless recently? Carb counting is the very best way to determine proper premeal insulin dosages. That will help stabilize your control and will result in fewer insulin reactions.

Comment by Baby Peanut on December 6, 2011 at 6:35am

hi, i just joined tudiabetes & this group. i was dx'd in 1964 at age 2, just turned 50 recently. i'm going through a difficult time with bad insulin reactions, lose days, passed out at a friend's house last week, that kind of crap. am working to resolve, am even starting to count carbs & consider a diabetic educator cause obviously there may be something i don't know :) i have to run but i'm glad i joined this site & this group, cheers!

Comment by Josh F on December 5, 2011 at 3:37pm

In fact i am reading this now.

http://www.nutri.com/wn/klenner.html

Comment by Josh F on December 5, 2011 at 3:35pm

Hi Janina,

No I have not. But I would love to work on any aspect of my care than could improve my outcome and future. I am finding the what ifs are causing me great focus and desire to finally fine tune myself and change my life for the better. Thanks for the suggestion.

Comment by JaninaWalker on December 5, 2011 at 3:27pm

Josh_F...have you had a GGT blood test done? It measures the effect of damage alcohol has done to date and while my numbers in 2000 and 2005 were pretty good at 20 and 21 respectively in Cdn terms, I discovered Dr Klenner said VitC could fix that and my test is now 14. Ideal would be under 10. I've used Calcium Ascorbate for 12 years as the best version for plenty of reasons I could explain. It only takes about 8 months to drop the test that much. My liver and kidneys are in top shape even though I am 54 with type 1 for over 30 years, so don't ignore my recommendation. Look up that doctor. He is quite famous.
.

Comment by Richard157 on December 1, 2011 at 8:43am

Th Quick sets gave me many problems for my first 6 weeks, so much kinking. I have used Sure-T's ever since. The Sure-T has a choice of 6 or 8 MM steel needles that stick straight into your body. It is painless for me. I never use a set more than 3 days to avoid scar tissue. Rotating sites is very important, scar tissue causes poor absorption of the insulin, which results in very high blood sugar. I test at least 12 times per day, keep a thorough chart, and do basal testing every month. Using variable basal rates throughout the day and night gives me very good control. If I had to go back to injections I would not have that stable control, and there would be so much high blood sugar. My A1c's would probably be much higher too.

Comment by Margaret on December 1, 2011 at 8:23am

Thanks, Richard! I've read John Walsh's book cover 2 cover! What are the Sure-T infusion sets? Maybe I should check them out. I went from the SoftSet to QuickSets recently. After Christmas, I think I'll do the 2-hour test after meals. Thanks again.

Comment by Margaret on December 1, 2011 at 8:21am

Comment by Richard157 on December 1, 2011 at 8:18am

Hello Margaret, I have read about many pumpers going back to injections. That is usually due to their not having stuck with it long enough, and not really giving it enough serious attention. You have been pumping for 17 years though, is that right? You have certainly given pumping a good try. Was it good for you before the recent problems, or has it always been giving you high numbers? I have pumped for only 4 years and the only time I have highs over 140 is when I encounter scar tissue or eat at a restaurant and underestimate the carbs in my meals. I use the Medtronic pump and the Sure-T infusion sets. Those sets do not kink, they never have. The book "Pumping Insulin" by John Walsh has helped many people to really learn about using their pumps properly. have you used that book, or one similar?

 

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