Type1 for 30 Plus Years


Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 350
Latest Activity: on Friday

Diabetes Forum

You Did Not Take Good Care Of Yourself???

Started by Richard157. Last reply by artwoman Jul 17. 13 Replies

Those of us who have been type 1 for a very long time have probably dealt with a lot of ignorance from people giving us bad advice. Has anyone ever told you that "You Did Not Take Care Of Yourself"?…Continue

Joslin Medalist Program

Started by Emily Coles. Last reply by shoshana27 Jun 8. 55 Replies

Hey fellow D long-timers,If you've had diabetes for 50 years or more, you're eligible for a…Continue

Tags: medalist, gold medal, Joslin

Our minds, our thinking... ???

Started by Stuart. Last reply by Stuart Jun 5. 25 Replies

Consider with this much experience, how has diabetes fundamentally effected the ways you think about & filter things?!?!How has our diabetes changed our psychology whether we are aware of it or…Continue

Tags: effects, mental-diabetes, floss, psychological, behavior

Osteoporosis meds?

Started by Marypat. Last reply by Sue R. Feb 27. 3 Replies

Are there any T1s who are taking meds for osteoporosis? What is your experience? I have seen 4 doctors and have 4 different opinions and still no treatment plan.Continue

Comment Wall


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Comment by hb8930 on April 20, 2013 at 12:02pm

Thank you for all of the comments and information........I use between 25 and 30 units of insulin per day in my pump....It depends on what I eat for the day. I wasn't sure how many calories I was eating...so I downloaded "myfitnesspal"......and followed it for a month. I set it up so that I was eating 1200 calories a day. For me, this is a lot of food. I had to stop after doing this for a month...I was driving myself nuts.....all I thought about was food......to make sure I was eating enough...so I stopped. I did not lose anything and did not gain anything during that month......but it seemed like a lot of food to me. I'm not sure about everyone else...I don't get hungry anymore unless my blood sugar is low.....I usually have little to no appetite. I eat because I know I have to...so food is a struggle for me. Not that I don't like food...I just don't have a desire to eat. Sounds silly.,,,,,,,I am complaining about not being able to lose weight....,and at the same time that I have no desire to eat. I would think I should be thin...however that is not the case. I am waiting for the clinic to call me with an appointment with the dietician.....I'm not sure what they are going to tell me being that I have seen many of them throughout my journey.......but that is my last hope......I need to know if she has any ideas on what I could do.......

Comment by Paul Veal on April 20, 2013 at 8:15am

I have been Type 1 now since 1976- and a pumper since 1982- Up until last year, my weight was a major yo-yo- I would go in cycles of chasing my Bsg with insulin, or chasing my insulin needs by over-exercising- A year ago, I gave up on gyms, weight loss TV dinners, etc and switch to some very basic ideas. First, I limited my carbs to no more than 100-150 a day. I began 1-2 hours a day of exercise, mostly walking around all of our hills here along the front range of Colorado- I met witha dietician who gave some really great ideas about food choices like brown rice over white rice, etc.....and my big secret.......almost every day, I have a much smaller breakfast, 1-2 pieces of raisin toast, and for lunch, a large hot and sour soup- very very filling at 20 carbs!! I only eat meat I can easily digist, so no more 6 hour later burns of meat I can't- The results for me have been awesome- I dropped from 270lbs to 230 lbs- My insulin went from combining 90U a day with the pump, supplimented with Lantus of 2x a day for a total of Lantus of 100U, and MDI's totaling 200-250U a day, now with changes in habits down to a stedy average of 70-80U a day total- I lost a lot of weight, and some complications like trigger fingers and skin rashes have gone away- I also was suffering from a few areas of legions due to vascular innsuficeincy, they for now have also all gone away and i was able toputoff vasculary surgery- My A1C went from 8's to 6's.......I know I am not cured, and I know my complications will not go away completely, etc.....but my heart rate average is down froma steady 110, to 80- I have not had to be revived in the morning with glucagon at least once a month for almostover a year now- the weight came off with exercise, but also a realization on my part that being diabetic, I just had to give up the false freedom I felt the pump gave me to eat whatever and whenever- What has not changed is I have tested 10-12 times a day, and I am always on top of my insulin, but this time,counting carbs- I used to take 30U on Novalog if by Bsg was over 250, now, I use my pump wizard and can resolve it with 3-10U.........I hope that no one takes this as critisism- I am just sharing a very personal admission that I was screwing things up, that I knew more than the doctors and dieticians, etc.......now,I listen more and try to take their advice- I do have other chronic conditions, I listen to these docs, but for some reason, I was why out there on not feeling anything could be done for my insulin resistance- I created it, but for now, I hope my changes remain longterm- I can never see myself going back,can't afford to- and I can still stand to loose more weight- I'll be 50 in June- Last year, my goal was toloose 50 by 50.......almost there- Goal setting is a must for me or I just go back to old habits- Paul Denver, Colorado

Comment by Kirk Slusher on April 20, 2013 at 7:40am
Being so skinny for so many years it was strange when I could test, control BS and add muscle. By lifting I added 30 lbs off mostly muscle. When fat came I burned by doing aerobics 2-3 times a day, prepping for a backpacking trip. Good luck can be a challenge.
Comment by Richard157 on April 20, 2013 at 7:26am

I gained weight in the 1990's when I switched from animal insulin to the present day synthetic insulin. I gained enough weight that I was diagnosed with insulin resistance (IR)in 1998. I used Avandia to help with the IR and gradually reduced my daily carb intake by 40%. I also increased my exercise. By 2004 I had lost 34 pounds, but I still needed to lose more weight. My endo approved of my using Metformin, and in less than one year I lost an additional 31 pounds. I am presently three pounds below my ideal weight, my IR has improved, and I no longer need Metformin.

Comment by melindalaw on April 19, 2013 at 5:45pm
Try some other type of exercise if you are not getting the results you want.I don't know if you can , but run bike swim anything that you like and set goals.The more you work out the better your insulin sensitivity will go.
Comment by hb8930 on April 19, 2013 at 5:20pm

Thank you.....I will just have to keep trying ....... I've been at this for over a year...I can see the muscles that I am gaining......I just can't get rid of the fat... I have had an insulin pump for 17 years...so will just have to keep working at it....not sure what else I can do. The exercise programs I am using are a mix between Jillian Michaels and different Beach Body DVD's.

Comment by melindalaw on April 19, 2013 at 4:33pm
Without knowing your particulars what worked for me was exercise,exercise exercise. The sticky wicket ,of course for us is to figure out how to calibrate insulin dosage so one does not go low. A ton of trial and error for that.
Comment by hb8930 on April 19, 2013 at 3:04pm

Hello all.......I have had type 1 for 39 years. I currently am very frustrated that I can not lose weight. I count calories/carbs.......exercise 5 days a week....just not sure what I can do. I don't weigh enough for gastric bypass. Just wish I knew what I could do ? Any suggestions ? I can stand to lose 50 lbs....and would if I could figure out what I am doing wrong or what I could do different. Suggestions welcome....

Comment by Marie B on February 24, 2013 at 12:31pm

hi everyone, hope you'll be able to come to our live interview with retina specialist Dr Wong this Friday, details here

Comment by Jenni Haveman on December 30, 2012 at 8:25pm

Wonderful to know that you're on your way back from such a terrible accident, Alice-- hope your recovery continues to go well! Good for you for buckling down on testing-- bodes well for your healing and your long-term health! (Must do better on that, myself!)


Members (350)




From the Diabetes Hands Foundation blog...

Diabetes Among Hispanics: We’re not all the same

US Hispanics are often portrayed in the press as a single, monolithic group. But anyone who has spent any time in San Francisco’s Mission District or the Bronx can tell you, we’re not all the same. Now we’re finding out Read on! →

Diabetes entre los hispanos: no somos todos iguales

Traducido por Mila Ferrer.    A menudo los Hispanos en Estados Unidos son retratados en la prensa como un solo grupo, monolítico. Pero cualquiera que haya pasado algún tiempo en el  Mission District de San Francisco o el Bronx se Read on! →

Diabetes Hands Foundation Team


Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


Lead Administrator

Bradford (has type 1)


Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)


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