Type1 for 30 Plus Years

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Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 351
Latest Activity: Nov 10

Diabetes Forum

Sorry Honey...

Started by Stuart. Last reply by Stuart Nov 6. 29 Replies

Had a little "challenge" this week, which suffice to say I won't go into detail about. It was bad, really, really bad (sic. diabetic stuff) by any possible measure.My question for you my peers....…Continue

Tags: sorry, advice, counsel, experience, lover

50y.o. (almost) now what ...

Started by Stuart. Last reply by Jane Dullius Oct 22. 8 Replies

Nearing fifty "soon", what kind of changes were necessary for YOU, re: dosages and so forth.How much did you need to tweak the carb counting? How much did you have to change/alter what you used to…Continue

Tags: percentage, anticipated-changes, anticipate, anticipated, formula

You Did Not Take Good Care Of Yourself???

Started by Richard157. Last reply by artwoman Oct 17. 27 Replies

Those of us who have been type 1 for a very long time have probably dealt with a lot of ignorance from people giving us bad advice. Has anyone ever told you that "You Did Not Take Care Of Yourself"?…Continue

insulin pump vs shots perplexed

Started by Francie. Last reply by Stuart Oct 16. 18 Replies

T1 36 years w/ insulin resistance for 3 years . . . I was put on the pump 5 years ago to gain better control which looking back, was a horrible mistake, i needed twice as much insulin to control…Continue

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Comment by artwoman on September 6, 2014 at 6:08pm

I test that much because I always had - before CGM. I tested about 8-10x before I was clued into the fact that having type 1 meant my insurance would cover my test strips. I just paid a ton of money. Then a colleague with type 1 mentioned that her health plan covered testing. I hauled my butt to my Endo and got an rx. I am by nature anal-retentive and self-controlling (better than being a pain and trying to control others!). It helps me have numbers (all numbers not just bg) in the healthy non-d range. My Dexcomn4 is very very accurate. I tst to confirm where I am once I notice a change in the trend arrow.

Comment by Rene on September 6, 2014 at 6:03pm

Hi art woman sorry I've been so long my computer is about to drive me up a wall,
I hope I won't have to test that much. Do you do it because you don't trust your sensor reading? I hope not since I will moving to Dex because I don't trust MM.

Comment by artwoman on September 4, 2014 at 6:04pm

Rene, I've bee3n CGM'ing with Dexcom for about 7 years now. I still test between 10-15x a day - mainly when I see trend changes, or numbers that I question. Together with my testing, my micro-dosing of the pump, and my Dexcom4 I stay in range (60-130) most of the time. I couldn't do it with all three. I do have rogue numbers occasionally, but that's part of having T1D

Comment by Rene on September 4, 2014 at 2:15pm

Lisa I can't wait to get it. Right now I check 9 times a day or more and even though I wear a MM CGM I don't trust so I ignore. My husband likes me to wear it so that maybe he'll hear it during the night when my sugar drops but since I wind up sleeping on my pump trying to get it close enough so it will read the sensor I don't hear and he only hears it sometime, the problems of age.
Thanks for the encouragement and advice. I'll let you know.

Comment by lisa c on September 4, 2014 at 12:52pm

Rena, you should love the dexcom. short learning curve. the MM was so stressful and ended up needing to test more than ever. keep us posted on your progreaa,

Comment by Rene on September 4, 2014 at 12:18pm

Thank you Robert that was really clear and I hope you will keep reporting as you go along.

Comment by Rene on September 4, 2014 at 8:25am

Hi Lisa; You are right about the fact that we are blessed but sometimes it doesn't quite feel that way. I have had MM forever oh I'm T148 this month, anyway i am going to try Dex CGM system and I can't wait.

Comment by lisa c on September 4, 2014 at 7:25am

T1 47 years. Same doctors with same mantras. We are blessed to have made it to this point with the wonderful technology. MM makes good pumps (in my opinion) but they bottomed out on the CGM. Dex is far better on all accounts.

Comment by Rene on September 4, 2014 at 6:46am

Robert, do you have the pump that turns itself off if your sugar level gets too low? If so does it work?

Comment by john on September 4, 2014 at 6:41am

Shoot, sorry for the blank comment prior to this one.. I made the mistake of thinking I had to hit the "Add comment" Button to open up an editor, which is likely what happened to Robert as well.
Anyway, T1 for 39-40 years now, and I have been involved with Pumps and false promises since the very beginning of Minimed. Also tried this latest Omni-pod which turned out to be a HUGE let down due to all the failures out of the box with those pods. I have had over 40 of them fail over a span of about 8 months and fighting insurance to pay for replacements which they never would... out of pocket is way too much for me so, back to MDI again for me. As to transplants etc, I never bothered to apply as I was always told that I was too healthy to truly qualify and would have to have kidney failure first... of course, so far, I have come close, but the kidney's have not failed, so now with this new age limit? I guess I am completely out of luck with regards to that. The major issue(s) with the various pumps, despite all their claims etc, is the time it takes for a NEW model to get accepted, so decades have been wasted and will continue to get wasted. Of course each company involved wants to make a HUGE profit right from the start, and seldom re-invests in the NEXT version until whatever their latest is has paid for itself with a profit... meaning more decades lost.

 

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Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator

Brian (bsc) (has type 2)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)

 

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