Type1 for 30 Plus Years

Information

Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 351
Latest Activity: Sep 9

Diabetes Forum

You Did Not Take Good Care Of Yourself???

Started by Richard157. Last reply by Marie Torregrosa Sep 7. 20 Replies

Those of us who have been type 1 for a very long time have probably dealt with a lot of ignorance from people giving us bad advice. Has anyone ever told you that "You Did Not Take Care Of Yourself"?…Continue

Joslin Medalist Program

Started by Emily Coles. Last reply by shoshana27 Jun 8. 55 Replies

Hey fellow D long-timers,If you've had diabetes for 50 years or more, you're eligible for a…Continue

Tags: medalist, gold medal, Joslin

Our minds, our thinking... ???

Started by Stuart. Last reply by Stuart Jun 5. 25 Replies

Consider with this much experience, how has diabetes fundamentally effected the ways you think about & filter things?!?!How has our diabetes changed our psychology whether we are aware of it or…Continue

Tags: effects, mental-diabetes, floss, psychological, behavior

Osteoporosis meds?

Started by Marypat. Last reply by Sue R. Feb 27. 3 Replies

Are there any T1s who are taking meds for osteoporosis? What is your experience? I have seen 4 doctors and have 4 different opinions and still no treatment plan.Continue

Comment Wall

Comment

You need to be a member of Type1 for 30 Plus Years to add comments!

Comment by Rene on September 6, 2014 at 6:03pm

Hi art woman sorry I've been so long my computer is about to drive me up a wall,
I hope I won't have to test that much. Do you do it because you don't trust your sensor reading? I hope not since I will moving to Dex because I don't trust MM.

Comment by artwoman on September 4, 2014 at 6:04pm

Rene, I've bee3n CGM'ing with Dexcom for about 7 years now. I still test between 10-15x a day - mainly when I see trend changes, or numbers that I question. Together with my testing, my micro-dosing of the pump, and my Dexcom4 I stay in range (60-130) most of the time. I couldn't do it with all three. I do have rogue numbers occasionally, but that's part of having T1D

Comment by Rene on September 4, 2014 at 2:15pm

Lisa I can't wait to get it. Right now I check 9 times a day or more and even though I wear a MM CGM I don't trust so I ignore. My husband likes me to wear it so that maybe he'll hear it during the night when my sugar drops but since I wind up sleeping on my pump trying to get it close enough so it will read the sensor I don't hear and he only hears it sometime, the problems of age.
Thanks for the encouragement and advice. I'll let you know.

Comment by lisa c on September 4, 2014 at 12:52pm

Rena, you should love the dexcom. short learning curve. the MM was so stressful and ended up needing to test more than ever. keep us posted on your progreaa,

Comment by Rene on September 4, 2014 at 12:18pm

Thank you Robert that was really clear and I hope you will keep reporting as you go along.

Comment by Rene on September 4, 2014 at 8:25am

Hi Lisa; You are right about the fact that we are blessed but sometimes it doesn't quite feel that way. I have had MM forever oh I'm T148 this month, anyway i am going to try Dex CGM system and I can't wait.

Comment by lisa c on September 4, 2014 at 7:25am

T1 47 years. Same doctors with same mantras. We are blessed to have made it to this point with the wonderful technology. MM makes good pumps (in my opinion) but they bottomed out on the CGM. Dex is far better on all accounts.

Comment by Rene on September 4, 2014 at 6:46am

Robert, do you have the pump that turns itself off if your sugar level gets too low? If so does it work?

Comment by john on September 4, 2014 at 6:41am

Shoot, sorry for the blank comment prior to this one.. I made the mistake of thinking I had to hit the "Add comment" Button to open up an editor, which is likely what happened to Robert as well.
Anyway, T1 for 39-40 years now, and I have been involved with Pumps and false promises since the very beginning of Minimed. Also tried this latest Omni-pod which turned out to be a HUGE let down due to all the failures out of the box with those pods. I have had over 40 of them fail over a span of about 8 months and fighting insurance to pay for replacements which they never would... out of pocket is way too much for me so, back to MDI again for me. As to transplants etc, I never bothered to apply as I was always told that I was too healthy to truly qualify and would have to have kidney failure first... of course, so far, I have come close, but the kidney's have not failed, so now with this new age limit? I guess I am completely out of luck with regards to that. The major issue(s) with the various pumps, despite all their claims etc, is the time it takes for a NEW model to get accepted, so decades have been wasted and will continue to get wasted. Of course each company involved wants to make a HUGE profit right from the start, and seldom re-invests in the NEXT version until whatever their latest is has paid for itself with a profit... meaning more decades lost.

Comment by john on September 4, 2014 at 6:35am

 

Members (351)

 
 
 

Advertisement



REsources

From the Diabetes Hands Foundation blog...

#MedicareCoverCGM Panel Discussion

If you follow the diabetes online community, you know that #MedicareCoverCGM is a big deal. We have continued to raise awareness on #MedicareCoverCGM because we believe that ALL people living with diabetes should have access to continuous glucose monitors (CGM). With Read on! →

#WalkWithD: Making MORE Sense of Diabetes

  A few years ago, we at Diabetes Hands Foundation reached out to the members on TuDiabetes and asked them to share their perspective of life with diabetes through one of the five senses, as part of an initiative called Read on! →

Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


DHF VOLUNTEERS


Lead Administrator

Bradford (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

LIKE us on Facebook

Spread the word

Loading…

This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.

© 2014   A community of people touched by diabetes, run by the Diabetes Hands Foundation.

Badges  |  Contact Us  |  Terms of Service