Type1 for 30 Plus Years

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Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 350
Latest Activity: yesterday

Diabetes Forum

You Did Not Take Good Care Of Yourself???

Started by Richard157. Last reply by artwoman Jul 17. 13 Replies

Those of us who have been type 1 for a very long time have probably dealt with a lot of ignorance from people giving us bad advice. Has anyone ever told you that "You Did Not Take Care Of Yourself"?…Continue

Joslin Medalist Program

Started by Emily Coles. Last reply by shoshana27 Jun 8. 55 Replies

Hey fellow D long-timers,If you've had diabetes for 50 years or more, you're eligible for a…Continue

Tags: medalist, gold medal, Joslin

Our minds, our thinking... ???

Started by Stuart. Last reply by Stuart Jun 5. 25 Replies

Consider with this much experience, how has diabetes fundamentally effected the ways you think about & filter things?!?!How has our diabetes changed our psychology whether we are aware of it or…Continue

Tags: effects, mental-diabetes, floss, psychological, behavior

Osteoporosis meds?

Started by Marypat. Last reply by Sue R. Feb 27. 3 Replies

Are there any T1s who are taking meds for osteoporosis? What is your experience? I have seen 4 doctors and have 4 different opinions and still no treatment plan.Continue

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Comment by Elsa yesterday

Cora, I would like to get a kidney-pancreas transplant, but my kidneys are not yet "bad" enough, although I am called Stage III, sometimes Stage IV. My nephrologist reassures me I will not be a dialysis patient. However, his goal seems to be retaining any function left in my kidneys. I am anemic (and hate the FDA black box warning on Procrit, et al). And unfortunately I recently read K/P transplants are performed on those who are 50 years or younger. I am almost 57. I'll be asking my nephrologist about this...he has repeatedly told me that if I need a kidney transplant, it will be a K/P.

Comment by Cora yesterday

Elsa, the KP transplant is actually not that iffy any more. Not by a long shot. I am a PAK (pancreas after kidney) and my new pancreas is now 6 years old. While I don't play statistical games, I do appreciate the fact that the "average" pancreas transplant lasts about a decade. It's the islet cells that don't last that long.

Unfortunately, the only times they will do a pancreas transplant is if you need a kidney also, or are so hypoglycemically unaware that you are at significant risk, they will do it. If you don't mind my asking, what are your issues?

Comment by Elsa on Wednesday

I recently read something about inhaled insulin they are developing and testing. It is a very short acting insulin, and may be easier to use out in public...at restaurants, ball parks, etc than the pens. Regarding cures, they still perform the iffy kidney-pancreas transplants. Works for some, but typically not for many years. I'd be interested in islet cell transplant, but I have complications and no endo seems to want to talk about it with me. I'm 56 years old and wonder if that has anything to do with it.

Comment by shoshana27 on Wednesday

I HAD A GOOD DIABETES SPECIALIST IN PARIS, FRANCE, IN 1936.
THAT MUST BE WHY I AM SO LUCKY TO BE WELL ( MORE OR LESS )
I WAS ALSO VERY STRICT ABOUT FOOD & EVERYTHING ELSE.
IT IS MY NATURE I GUESS.

Comment by shoshana27 on Wednesday

Comment by shoshana27 on Wednesday

THIS PLACE IS AWSOME!

Comment by Marie B on Wednesday

here Rene, is our dexcom group
http://www.tudiabetes.org/group/dexcomusers

Comment by Rene on Wednesday

Can anyone tell me about Dexcon or is it Dexcom??, that sounds like Star Wars.

Comment by john on Wednesday
I keep seeing TV advertisements for new diabetes medications, but they are always aimed at Type2s. No one seems to advertise regarding new insulin types or new insulin pumps or anything regarding type 1. Being on very limited insurance, I am not able to see my endo except once per year UNLESS I have been hospitalized, and even then, the follow up care is difficult for me to achieve. No transportation to/fro for me, so it makes life a bit of a pain. However, even though I am now in the lists of those that have lost a limb, it truly was not caused by Diabetes but by the lack of proper care by a physician that was a simple GP and not fully knowledgeable regarding diabetes. I still have to tell him what my insulin doses are, what sort of insulin I Need etc. It's a bit frustrating at time. However, in the past 39 years, things HAVE improved quite a bit, but we are still nowhere near the promised cure that I heard about when I was 13 and first diagnosed. The pumps, while they have also improved somewhat, are still not truly that much better than they were 20 years ago when they first showed up... or however long ago it was. I was a patient that was used during the trials of the first pump released by Mini-med, and then up to their version 3 of the same basic model. I can no longer remember model numbers, but I have that last one out in the barn... one endo wanted me to give it to them for their museum... heh... buy it, and I would do it, but giving away something that cost me nearly 7k back then is not going to happen even if it no longer works! Shoot... my mind is wandering all over the place... sorry, I will shut up now.
Comment by Richard157 on Wednesday

Hello Rene, many type 1 people have said the same thing on this and other diabetes websites, and Facebook. It is a very common myth, and probably always will be.

Buddy,thirty years without a doctor was not good, but the doctors in your and my earlier years did not know much about diabetes anyway. I did not learn most of the things I know now until the 1990s, and the current century.

 

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From the Diabetes Hands Foundation blog...

Diabetes Among Hispanics: We’re not all the same

US Hispanics are often portrayed in the press as a single, monolithic group. But anyone who has spent any time in San Francisco’s Mission District or the Bronx can tell you, we’re not all the same. Now we’re finding out Read on! →

Diabetes entre los hispanos: no somos todos iguales

Traducido por Mila Ferrer.    A menudo los Hispanos en Estados Unidos son retratados en la prensa como un solo grupo, monolítico. Pero cualquiera que haya pasado algún tiempo en el  Mission District de San Francisco o el Bronx se Read on! →

Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


DHF VOLUNTEERS


Lead Administrator

Bradford (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

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