Type1 for 30 Plus Years

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Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 287
Latest Activity: May 12

Discussion Forum

Our role (8,520 years w/ diabetes at minimum) ?

Started by Stuart. Last reply by Stephaniebeth May 12. 5 Replies

I am in stunned awe of the profound diabetic experience(s) which this 30 plus years group possesses. 8,520 years presuming only 30 years.Many (most?) appear to have significant diabetes experience…Continue

Tags: 8520, 1000, serious-experience, diabetes, experience

Symlin?

Started by ANTONIA RETMAN. Last reply by Robert Yancey May 9. 6 Replies

Any other long time Type 1's on Symlin? And how is that working out for you? I'm 40 and was diagnosed at the age of 3. Thanks for any infoContinue

Tags: Symlin

Memories I'd like to forget

Started by Marion Mifsud. Last reply by Mike May 2. 16 Replies

I was diagnosed at age 6 and am now 59. Trying to keep from losing kidney function 30% left. I remember the glass needles with the thick needles that could have a bard on it. I don't know if this…Continue

T1D - Discrimination or Not?

Started by Robert Yancey. Last reply by earthling Apr 23. 7 Replies

Hi All, After recently joining Emily's awesome interview with the CEO of Dexcom, I realized that I missed associating with fellow T1D'ers. So, I thought I would share with you a recent experience…Continue

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Comment by barbraann on May 9, 2013 at 2:37pm

Wow, going on 37 years. Want to make it to 50.

Comment by Christel on May 9, 2013 at 8:51am

Thanks for the heads up that this group exists. Just hit my thirty year mark (I'm 42) and my daughter hit the two year mark of life (without diabetes). It's wonderful seeing so many of us living well!

Comment by Robert Yancey on May 9, 2013 at 7:23am

Well, I enjoyed reading her letter to herself so wanted to repost in case you didn't see it in the email or on the main page:

http://www.tudiabetes.org/profiles/blogs/the-letter-i-wish-i-could-...

Comment by Betty J on April 28, 2013 at 8:25am

@ Tom b, thank you. I know about the meeting from Richard I was sent an invitation for May but I won't be able to make it. I know there's another one not long after May's meeting maybe I'll be able to make that one.

Comment by Richard157 on April 28, 2013 at 6:43am

Betty, that is wonderful! I will look for the picture on Facebook.

Comment by tom b on April 27, 2013 at 7:53pm
@Betty J: I'm glad to hear that your medal arrived. I hope they have given you the opportunity to attend the medalist meetings on May 10-11, and that you will be there. I think there may be some other recent applicants, and your success should provide them with hope for the short term.
Comment by Betty J on April 27, 2013 at 7:05pm

I would like to share my good news. Some of you know that I applied for Joslin's 50 year medal program, well today I got my medal and certificate. I posted a picture with both at Facebook.

Comment by hb8930 on April 20, 2013 at 1:39pm

Hi....I am female......42 yoa... I am on thyroid medication....have been for over 10 years.........so I know it doesn't work well. I would be happy to weigh 130....but that means 50 lbs to lose....and so far have not been successful to even lose a pound.. but will keep trying. Thanks for your comments....

Comment by artwoman on April 20, 2013 at 12:54pm

I don't know how old you are - nor your gender. But thyroid changes can make it difficult to lose weight and if female, menopause seems to really slow down the metabolism. Stick to our guns with the dietitian. When I was first dx'd, I was a ballet dancer. I weighted 96 lbs at dx (I'm 5'5") and started to put weight on straight away once on insulin. The dietitian wanted me to be at a BMI of 25. I had to be at BMI 17 in order towork. It took me forever to get back to a workiong weight. I count calories as well as carbs and work tosee food as fuelo. Like you, I'm not much of a foodie which helps. Good luck

Comment by hb8930 on April 20, 2013 at 12:02pm

Thank you for all of the comments and information........I use between 25 and 30 units of insulin per day in my pump....It depends on what I eat for the day. I wasn't sure how many calories I was eating...so I downloaded "myfitnesspal"......and followed it for a month. I set it up so that I was eating 1200 calories a day. For me, this is a lot of food. I had to stop after doing this for a month...I was driving myself nuts.....all I thought about was food......to make sure I was eating enough...so I stopped. I did not lose anything and did not gain anything during that month......but it seemed like a lot of food to me. I'm not sure about everyone else...I don't get hungry anymore unless my blood sugar is low.....I usually have little to no appetite. I eat because I know I have to...so food is a struggle for me. Not that I don't like food...I just don't have a desire to eat. Sounds silly.,,,,,,,I am complaining about not being able to lose weight....,and at the same time that I have no desire to eat. I would think I should be thin...however that is not the case. I am waiting for the clinic to call me with an appointment with the dietician.....I'm not sure what they are going to tell me being that I have seen many of them throughout my journey.......but that is my last hope......I need to know if she has any ideas on what I could do.......

 

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