Type1 for 30 Plus Years


Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.

Members: 337
Latest Activity: on Monday

Diabetes Forum

Our minds, our thinking... ???

Started by Stuart. Last reply by Coastal1 Apr 4. 21 Replies

Consider with this much experience, how has diabetes fundamentally effected the ways you think about & filter things?!?!How has our diabetes changed our psychology whether we are aware of it or…Continue

Tags: effects, mental-diabetes, floss, psychological, behavior

Joslin Medalist Program

Started by Emily Coles. Last reply by Richard157 Mar 1. 53 Replies

Hey fellow D long-timers,If you've had diabetes for 50 years or more, you're eligible for a…Continue

Tags: medalist, gold medal, Joslin

Osteoporosis meds?

Started by Marypat. Last reply by Sue R. Feb 27. 3 Replies

Are there any T1s who are taking meds for osteoporosis? What is your experience? I have seen 4 doctors and have 4 different opinions and still no treatment plan.Continue

insulin pump vs shots perplexed

Started by Francie. Last reply by Francie Feb 11. 17 Replies

T1 36 years w/ insulin resistance for 3 years . . . I was put on the pump 5 years ago to gain better control which looking back, was a horrible mistake, i needed twice as much insulin to control…Continue

Comment Wall


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Comment by Stephaniebeth on December 18, 2013 at 12:36pm

Hi Jimi...glad to hear that you were able to work things out with obtaining coverage for your CGM,sensors,etc. I wish all these details could be more simple for everyone,
but it does feel like some sort of victory when everything fits together

Comment by jimi on December 18, 2013 at 12:24pm

Im a type 1 for 30+ years,,strange,medicare denies me,bcbs pays for the cgm with the sensors - 10% i think{ hav'nt gotten a bill yet.,my express scripts would'nt cover anything here..arriva covers my meter,teststrips..last jan ,I spent a lot of time working things out with my endo. and insurance companies. just thankful things worked out

Comment by Cora on December 18, 2013 at 12:14pm

Hi VJ. Sorry, but I'm going to be a bit silly. Aaaaw, aren't you cute? You're just a baby! lol I was dxd in 1966. The good news is that you can continue to lead a wonderful life.

Comment by VJ on December 18, 2013 at 9:18am

Hi All, I am 32 Years T1 for 10 Years. got diognized at age of 21 years..

Comment by MikeO on December 18, 2013 at 8:55am

Thank you. Very good to know. Mike

Comment by Stephaniebeth on December 18, 2013 at 7:31am

Hi Mike, I have Medicare but did not think that they covered the CGM when I got it a few years ago. My sensors are covered by ExpressScripts and my transmitter was covered by BlueCross/Blue Shield of MA. The transmitter is considered "durable medical equipment." Using that term may help you in finding the coverage from United. The sensors were considered like pharmaceuticals. Obviously there is a copayment for the sensors. Obtaining this coverage was not easy. I had to advocate for myself quite a bit. Hopefully you will be able to work something out.

Comment by MikeO on December 18, 2013 at 7:02am

Hi – T1 for 41 years. I have a question for those of you who are covered by Medicare. I use a CGM and find it very helpful. I looked on their website and traditional Medicare doesn’t cover CGMs. My current insurer (United) has a Medicare Advantage plan, but they couldn’t tell if the CGM would be covered by their Medicare plan, even if it’s not by the traditional Medicare plan. Anyone in Medicare and using a CGM – what’s your experience been? Thanks – Mike

Comment by Marie B on November 11, 2013 at 8:46am

hi Aimee, 46 years t1 here. here's group you may be interested in

what kinds of alternate treatments are you interested in?

Comment by Aimee on November 11, 2013 at 7:56am
Hi, everyone.
I was diagnosed at 16 and I am now 59. Diagnosed 1971, April. So 43 years. The only complication i have is dupuytren contracture in both hands, if you want to call it a complication. What kinds of things are you guys doing to stay healthy and insulin sensitive? Anyone want to start a group concerning alternative treatments?
Comment by Justin on November 2, 2013 at 4:21pm

Hi there. I've ben an inactive member for 3 years and looking forward to meeting some new people with Type one. I was diagnosed in November of 1982, so just reached my 31 year mark. Anyone in the Portland area who wants to meet up, message me. Peace.


Members (337)




From the Diabetes Hands Foundation blog...

FDA Docket Extended! We Need You.

If you are new to diabetes advocacy in the traditional sense of the word, you may be thinking, “What the heck is a docket!?” I certainly was the first twenty times I heard it (yes it took that long). For Read on! →

An Open Letter from @AskManny, @DiabetesHF to @NYTRosenthal, @NYTimes

Dear Ms. Rosenthal: I am a person living with type 1 diabetes since the age of 30. I am also the President and co-Founder of the Diabetes Hands Foundation, a nonprofit aimed at connecting and mobilizing the diabetes community. Seeing Read on! →

Diabetes Hands Foundation Team


Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Heather Gabel
(Administrative and Programs Assistant, has type 1)


Lead Administrator
Bradford (has type 1)

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)


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