Replies to This Discussion

Permalink Reply by hiroze on November 23, 2010 at 5:50pm

hmmm, i've had type 1 for nearly 20 years and i only know 1 person in my life that has it and we only get along because we have a similar approach to our treatment of it. most people follow traditional treatments which i have qualms about so on the rare occasion i do run into another type 1, we butt heads.

still though, as it stands, i only know one type 1 diabetic in real life, but i don't make an effort to go to group events or things where i could meet others. plus, my hobbies tend to be hobbies i don't find many diabetics in.

so, although i don't feel alone as a diabetic right now), i did at times when i was younger. hopefully you can take some solace in the fact that the alone feeling does go away over time; sometimes pretty quickly too.

a note about highs and how they affect moods (at least how i've noticed them affecting me). before i was able to improve my level of care, i noticed that i needed about 2-3 weeks of good sugars for my mood to be normal. meaning, for me, having highs one day and normal sugars the next didn't mean that i was going to be in a better mood on the day my sugars were at a good range.

Permalink Reply by Jamie on November 23, 2010 at 11:44pm

Haha Thanks Hiroze. I hope someday these feeling will go away I've only had diabetes for a little over a year and I do tend to manage pretty well with the feeling of being alone and nobody really knowing what it's like it just gets hard at times when I think about it much. But thank you for replying

Permalink Reply by Tarra on November 23, 2010 at 6:07pm

I have had type 1 for 30 years and i only knew one other person with diabetes until i joined a diabetes group. I found that i liked the group but at times i find the group to not be that helpful. My experience is interesting because i currently have a diabetic service dog because of extremely quick dropping blood sugars that the cgm would alert to after i had passed out. I found that the people in the new group i just joined were insisting that the cgm had to work better than my service dog. I find certain things work for some and not others. I was take aback at the response of the people in the group. I will not be going back i feel i made the best choice to keep me safe i really thought another type 1 would understand.

There is quite few diabetic groups on meetup.com. You might look and see if one is near bye if that is of interest. I almost prefer the online forum verses the in person but that is me. I know just a couple years ago i was part of a group and found the group to be really fun.

I know i had some times when my blood sugars fluctuated that my mood was effected. Even with frequent lows in a day i know i get angry, upset and really moody. I think it could just be the frustration of dealing with D. I know i still have days when im like this really sucks. Why do i have to deal with this. Hang in there.

Permalink Reply by Jamie on November 23, 2010 at 11:40pm

Oh thank you Tarra I think I will look into that. What are the groups like?
I've never heard of anyone having a diabetic service dog, but I think it's a great idea if that is something you need. You must have went through some really seriouse stuff. I've never had any really bad lows yet thank god. My lowest is probably a little over 40. Thank you so much for replying. :)

Permalink Reply by J.Santiago on November 23, 2010 at 9:40pm

Hey, I'm 18 & I've had diabetes for 10 yrs. Yeah, pretty long time being a kid at the time and all. & to be honest with you I've never been in control of my diabetes. Lately I've been feeling so alone too. It's like people don't understand what you are going through even-though they might have an idea. I've never met anyone close to me with diabetes. I've been feeling kinda depressed because of all this. I wish I could do more which I can but I just feel stuck!

Permalink Reply by J.Santiago on November 23, 2010 at 9:45pm

The mood part. I'm a nervous moody wreck. People think I'm mean or rude or something. & they don't understand. It's like one second I am fine & the next I'm angry at the whole world.

Permalink Reply by Jamie on November 23, 2010 at 11:37pm

Thanks for the reply it's reasurring to know people do battle these same feelings. 10 years in a long time I've only had it for a little of a year and in just this one year I feel like I don't even remember what it feels like to get a peice of cake and not think if I counted my carbs right. It's not fair. I know everybody has there stuff but the other day it was really making me mad haha I'm doing better today thought

Permalink Reply by Emily on November 26, 2010 at 6:40pm

I have had type 1 for over 21yrs... I still feel this way from time to time... the majority of my "diabetic friends" are actually students of mine, so there is only so much I can talk to them about... I can't get into what's actually going on some days. It's just not appropriate for it to come from me...

Also, when my blood sugars go high, I noticed that I have more of the feelings of "I screwed up" and "life isn't fair..." then when things aren't going smoothly.

Hopefully, everything is leveling back out for you!

Permalink Reply by Zo Zo on November 28, 2010 at 11:43am

I feel like this a lot at uni! I know people with diabetes, but everyone has different experiences and views over things. I've been struggling with diabetes since i've been to uni and it sucks. I've had diabetes 13 years, so it's been a while for me
Keep your chin up hun
xxxx

Permalink Reply by DBella on November 29, 2010 at 9:05pm

i sure do wish i had some cool "everyday personal" friends that had type 1 diabetes.
i understand you comepletely!

Permalink Reply by Jeffrey M on December 4, 2010 at 7:51am

I felt so alone when I was diagnosed. I was at university and decided to quit drinking so the bar/club social scene was closed to me (that was a personal choice but I also felt awkward being sober amongst a sea of drunk people). What I have done is be open about it. Talk to people about how you are living with diabetes and you will be surprised with how many people are living with it as well. Also, you may decide to be proactive and volunteer for a diabetic foundation. I have in Canada through the Canadian Diabetic Foundation and have found many empathetic and kind individuals are there as well as few who are living with diabetes as well. And remember, the "down" mood is a state of mind. Analyze why you are sad and think of how things can make it better works for me. Sometimes it is EXTREMELY frustrating and as more and more instances occur, it can overwhelm me. Just remember, this is something you will be living with for the rest of your life and you can't beat it yet never let it defeat you. The best thing to do is to learn how to cope with it. I don't meen to sound preachy. However, all the best! And know that you are never alone in this struggle.

Permalink Reply by Jamie on December 4, 2010 at 12:25pm

Thanks to everybody who has replied it means a lot to me to know I'm not a lone.

• ‹ Previous
• 1
• 2
• Next ›
• Page