I can have everybody elses support but I still feel a lone all the time. I have everybody on here and still I get angry sometimes. Most the time it doesn't bother but does anyone else just get really down about having diabetes, I mean really this sucks. My sugar has been all over the place today maybe it's high right now and that's why I'm all mad. I've never met anyone with type 1 diabetes and I feel like nobody can relate not anybody I really know I mean in person.

 

Does anyone else feel like this?

Has anyone else been recently diagnosted and still knows nobody else who has it?

It seems everyone I tell knows somebody but I DON'T?

I know I'm not alone I really do, I'm just in that "down" mood.

Someone reply !

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Replies to This Discussion

I hear ya on leaving the bar scene.  That was my weekend and pretty much my whole social life.  I made the same decision (figured living was more important than beer).  We're on winter break now so there is no one around to meet/talk to.  I feel kind of like I did in summer.  I moved here early and there was no one to meet.  Now I realize I didn't have too much in common with the people I was hanging out with other than the bars.  I can't wait for spring to start so I can meet people I actually can relate to.

Hi Jamie:-)Im sorry to hear you feel like this but trust me you are not alone with these feelings.Infact expecting someone to rejoice because they have been diagnosed with diabtes is unreasonable.But its not the end of the world it could be a LOT worse.Diabetes can be controlled ad you can live a relatively normal life!I would advise you to get into contact with your endo and make sure to tell them about you feeling down.It has been proven that there is a link between diabetes and depression.I have had diabetes for over 10 years and I still dont know that many diabetics.If you ever want to email me its no problem!Best of Luck!

Hey :)
I've had diabetes for 10 years (soooo doesn't feel that long) and it gets pretty depressing and lonely sometimes. It can totally isolate you from people.
I'm like a few of the other posters... I don;t drink so the whole clubbing/drinking scene is not for me.
I'm at uni and the whole experience is centered around getting hammered and going out and losing it. It's sooooo not for me but there's very little I've found that I can do ot help them understand that I'm not drinking because there are more serious consequences for us diabetics.
I'm kinda lucky tho cos I'm on a pharmacy course... and we;ve just had lectures about the big dee. It's not made them all experts but it's given the people I hang around with a better insight.
I feelvery lonely sometimes and it;s nice to be able to come on here and reach out to others with the condition... you don't feel quite so isolated then :)
Keep your chin up - we ALL have bad days (diabetes or not) and though diabetes can amplify the bad ones we should remember that it could be a whole lot worse! :D
x
I know exactly what you're talking about, and I realize this thread was made a long time ago so I hope you're feeling better. I've only had diabetes for....a year and a half? Sounds about right. But that loner feeling kicked in immediately after I was diagnosed.

It's so weird how everyone else seems to know about fifteen diabetics, along with their entire routine and health habits, yet I've only known three. All of them are related to me, one died recently, the other I don't talk to and the last is my grandpa. It's really not the best support group. Meanwhile my friend always has comments and criticism along the lines of, "Well these other diabetics I know...." What does she hang out at the hospital 24/7? How does she know all those diabetics and I don't? And she knows them so intimately too! I call shenanigans. I think a lot of people pretend to know fifty billion other diabetics so they have a valid excuse to give you unsolicited advice and show how clever they are. xD I've begun to ignore people who do this.

It would be nice to meet some other diabetics. You know, in real life. Internet support is great but there are some days when you need a literal shoulder to cry on. I recently had a group of friends just completely phase me out of their lives when they realized I wouldn't be getting drunk with them anymore. One of my closest friends tries, but it gets tiring having to explain to her what I'm feeling. I'd love a friend who knew exactly what I was talking about without the slew of background information distracting from my mental break down. Hopefully I'll find a friend like that someday. In the meantime I'm glad I found this site. It does remind me that I'm not alone, even on those days when I'd rather just curl into a ball, cry and watch old movies all day.
I just got diagnosed dec 2 but i def feel isolated already. Im in the middle of my soph more year of college where as people have said is pretty centered around drinking. Now that i cant do this its hard to hangout with the same people i did. Like i know you can drink a little but i just don't feel confident in my ability to handle myself at parties all night and not end up drinking a bit more than i intend, or forgetting to check my bg, not having glucose if im low, etc. it just makes the whole thing not worth it at this time which completely changed my college experience. I was a huge party person through out high school and college before dx so my liver is really loving this slacking in my pancreas. But i definitely can get to feeling down but just try to take my mind off it with what i can and make the best go at it i can. Im also in a drug trial for the D that requires me to fly from Colorado to Atlanta weekly for like 6 weeks i a row with a 3 week break then 6 more weeks in a row and during that there is 4 week long visits. Needless to say this totally sucks and i had to drop a bunch of classes which also totally sucks. So things should get better after that which will be nice but im a ball of stress right now.
Thanks for sharing tyler I'm in college too but I was never really a drinker so it didn't affect me in that way all I can say is try to surround yourself with people who don't I'm sure you'll find a lot of new things that are fun. I'm sorry that you'll have to deal with this tho it isn't easy. I was dxd a year and half ago and I'm still struggling to feel normal I'm confident we will get there some day.
I recently became friends with a type 1 diabetic here in NY, it is really cool because you will never feel the awkwardness of having to explain to someone the feelings that I may go through. I will be honest, I still get angry inside about it, but knowing that so many people go through the same things I go through on a daily basis is very comforting. I still also get mad at people if they give that sympathy face when they talk to me about it. I will want to shout at them to go run for run to see who would last longer lol.. I also was at the gym a few weeks back and saw someone working out wearing a pump. I walked over to him and we had a very interesting conversation.
It's amazing how many of us feel alone. I feel like I'm in the same boat as you. Feeling lonely, and down about it. I got diagnosed in February so I'm a new Type 1 and am still working through accepting things. Sometimes I feel like diabetes is this ethereal spirit that is always there with me. Not really hurting me, but always there day in and day out. I hate having to think about it every single day. Every time I change my pump site I think "There, that'll last till I'm cured". I still feel like I have braces or something and if I stick it out it'll go away in a year. I guess I need to figure out how to keep good control without burning out, overdoing it or getting angry. I'm sure that many other people have felt this way.

I just want to say thank you to Jamie for this post and for everyone else who shared their stories. Just hearing how others are feeling makes me feel less alone and more "Normal". Phew, it's going to be ok guys :)
It will :)... but wow, I remember the beginning stage of my journey in 2009. Honestly, it seems like forever ago since I didn't have to think about everything I ate... or thought ahead before I go to work(packing snacks in case my sugar gets low)etc.
It really does grow you up though.... so hey, there's an upside.
I've heard that only 5-10-% of diabetics are Type 1... so that probably explains a lot of that... I know A LOT of Type 2's... but not Type 1's except for this site and that's why I was so excited.
...and you're right! It does freaking suck I was really upset about it today actually!...reflecting on my recent dramatic hypo... All that you can do is do your best and keep pushing on... i've had mine for about 2 years, so I understand where you're coming from. I honestly wish I had a Type 1 diabetic friend. There is a girl in my class that is a Type 1 diabetic and I only know because I "heard the sounds"(checking blood sugar finger prick-similar beeping sounds) & turned around because surely there couldn't be a diabetic in my class!
But i'm down too, but it will go away...that's what I look forward to. Just don't let it consume you...
Man, not to be corny, but I LOVE this! So many similar feelings to mine! No one ever really understands.

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