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Comment by Shawnmarie on April 5, 2012 at 9:05am

You may have already found this, but it's a discussion I started re LADAs who only need bolus.

I was starting to feel a bit like a freak, but the discussion confirmed there are others out there in the same situation. For some reason, it made me feel a bit better.
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Comment by Parrformance on April 5, 2012 at 3:13am

Thanks for the input Shawnmarie, I hope to know what I need before I make it out to my second opinion appointment. I to have no real issue with fasting bg numbers. Most mornings I wake up in the 80's. and not unusual to see 70's several days in a row. I find like you a big spike after a meal. 50 points or more higher than before the meal. I am starting to "feel bad" again much like I did before the original diagnosis. I lost 55 pounds in about 6 months, I have put 5 pounds back on and have remained at that weight 140 lbs for 11 months. I am back to exercising like I was before I got sick, I am 5 foot nine inches tall and have no fat stores left. I have had Hypo episodes while not taking any meds or Insulin, for this reason I do not want to take a long acting Insulin because I believe I will have significant lows. I believe right now I would prefer to manage with a basel rate from a pump or like you just bolus's for meals. I will be pushing for a CGM so that I can have fair warning when I am heading low, my job is different everyday requiring significant time behind the wheel and unknown time in front of equipment in the feild. Most service calls take 25 minutes to accomplish but I can run into situations where I am buried in a problem for two to three hours or more. I look forward to what others have experienced during the time of transition from diagnosis to Insulin dependence. I know I have already learned so much and hope I can learn from the experiences that others have been through.

Thanks,
Michael

Comment by Shawnmarie on April 4, 2012 at 8:59pm

Seems like people aren't nearly as active in the groups as they are in the forums, so that might be why folks are so silent on your quesiton. I just now saw it and thought I'd weigh in. I was diagnosed on 10/1/11 by a nurse practictioner who knew his stuff. He prescribed Met that day only because the antibody test was going to take a few days and the protocol is apparently to assume it's T2 until proven otherwise. Within a few days, the GAD test came back and we knew I was a T1. After a few days on basal, it was clear I needed to bolus, but as I was only taking one unit of Levemir a night (after I crashed the first day when I took five units), I stopped taking it altogether and went to bolus only. That's been what's worked for me for the last six months. Fastings have been under 100 most mornings. I had a virus recently and that threw a wrench into things, but I still don't need basal. Once I do, I'll be pushing for a pump. Like you, I think the flexibility and ability to do very small increments will be extremely helpful.

Comment by Parrformance on April 2, 2012 at 2:24pm

I have been treated as a Type 2 diabetic by my Endocronologist for almost a year and a half. The Endo even had the proper diagnosis after we pushed/forced him to do an antibodies Islet test at our first visit to see him.
I do wish that I would have run across Tudiabetes back then, I would have a better idea how my condition should have been treated, I would have loved to know what Miss Melitta knows back in 2011, I would have pressed for a low dose Insulin therapy to help me maintain Beta cells and just to feel better.
One good thing I hope comes out of this is I am going to see another Endo the next town over to get a second opinion.
I will be requesting to start on pump therapy instead of Lantus or Levimer, my thinking is a low basel rate that can be manipulated throughout the day would be better to manage than one long acting dose taken in the am or pm. I will also be seeking to aquire a CGM to assist thru this transition where I am making some Insulin until I am completely Insulin dependent. I must travel for work and often get tied up longer than expected while solving an equipment issue. I believe a CGM would be a good fit to alert me when I am focused on something else and am heading low. I was wondering what some of you other Honeymooning type 1's think?

Comment by Parrformance on March 24, 2012 at 7:08pm

I am quickly getting frustrated with the lack of knowledge on the proper method's for treating late onset type1D. I finally quit taking the type2 meds the pcp and Endo prescribed, in my pcp defense she never saw the results of the antibodies tests or the c-peptide test. The comment from the Endo after telling me at repeated visits "keep taking the meds" after I asked if I could quit at each visit. When I finnally quit on my own and let the endo know he said "that's ok, they probaby weren't doing anything for you any way". I am thinking to myself "did he really just say that"? and why the hell was I taking them for 9 months? I am so mad, one six inch sub roll will blow up my sugar, and I rarely feel good anymore. When will these endos get it? If an active guy in his 40's with a slim build walks in, you may want to check if he is T1 before you send him out the door with Metformin.

Comment by Parrformance on March 17, 2012 at 4:14am

I am curious who has had the longest honeymoon out of the late onset crowd? I am at 15 months and counting.

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