Our Privacy Policy

Privacy Policy — Last updated: August 18, 2017

We at Beyond Type 1 (“Beyond Type 1,” “we,” “us,” or “our”) created this Privacy Policy (“Privacy Policy”) because we know that you care about how information you provide to us is used and shared.  This Privacy Policy relates to the information collection and use practices of Beyond Type 1 in connection with our Services, which are made available through our Sites.

Description of Users and Acceptance of Terms

This Privacy Policy applies to visitors to the Sites, who view only publicly-available content (“Visitors”), and individuals who have registered to use our Services as members (“Members”).

By visiting our Sites, Visitors are agreeing to the terms of this Privacy Policy and the accompanying Terms of Use. By accessing and/or using the Services, each Member is agreeing to the terms of this Privacy Policy and the accompanying Terms of Use.

Capitalized terms not defined in this Privacy Policy shall have the meaning set forth in our Terms of Use.

Children’s Online Privacy Protection Act (“COPPA”)

  1. Overview

Although our Pen Pal Program is directed towards children under the age of 13, we are a 501(c) (3) non-profit organization and are exempt from compliance with COPPA.  Nevertheless, we do care deeply about privacy of children under the age of 13 and choose to protect the privacy of children under the age of 13 within the spirit of COPPA. For more information about COPPA and your child’s rights to online privacy, visit the Children’s Privacy section of the FTC’s website.

This Privacy Policy describes our information practices for personal information collected online from all of our users, including those under the age of 13.

  1. Consent.

We do not knowingly collect or solicit personally identifiable information from a child under 13 without first obtaining verifiable consent from that child’s parent or guardian (“Parental Consent”), except for the limited amount of personally identifiable information we need to collect in order to obtain Parental Consent such as child’s name, parent’s or guardian’s name, parent’s or guardian’s phone number and parent’s or guardian’s email address (“Required Information”). We will only use Required Information for the purpose of obtaining Parental Consent. In order to obtain Parental Consent, we will email your parent or guardian with direct notice about what information we are collecting, how we plan to use it, how your parent or guardian can provide consent, and how your parent or guardian can revoke consent (“Notice”). We will also provide a link to our Privacy Policy in our Notice.  If we do not receive Parental Consent within a reasonable time, we will delete the Required Information we received from you. If your parent or guardian provides Parental Consent, we will send a confirmation email confirming their consent and advising them how they can revoke their consent.  If you are a child under 13, please do not attempt to send any personal information about yourself to us before we obtain Parental Consent, except for the Required Information in the context of the Parental Consent process. If you believe that a child under 13 has provided us with personal information (beyond the Required Information) without our obtaining Parental Consent, please contact us at hello@beyondtype1.org. We do not condition participation in our Pen Pal Program on disclosure of more personal information from a child under 13 than is reasonably necessary for that participation, and we do not retain personal information from children under 13 longer than is reasonably necessary in order to fulfill the purpose for which it was disclosed.

  1. Changing or Deleting Personal Information About Children Under 13

At any time, parents or guardians can refuse to permit us to collect further personal information from their children under 13 and can request that any personal information that we have collected be deleted from our records.  Parents or guardians can contact us to access, change, or delete the personal information that we have collected from their children by sending an e-mail to hello@beyondtype1.org.  Please include the children’s name and the parent’s e-mail address in the e-mail so that we can better assist you with your inquiry or request.

Before responding to any request to review personal information collected from children under 13, we may require that the requester follow reasonable procedures to help verify his or her identity as the child’s parent or guardian.  We may deny any request that fails to follow these procedures.  Please note that if you choose to have your child’s personal information deleted, or refuse to permit further collection or use of your child’s personal information, your child may not be able to participate in our Pen Pal Program.

Information We Collect/Receive   

In the course of operating the Sites and/or providing the Services, we collect and/or receive the following information:

If you are under the age of 13 and you sign up to participate in our Pen Pal Program, you will be asked to provide the Required Information.

If you are not under the age of 13 and you sign up to participate in our Pen Pal Program, you will be asked to provide you name, email address, birth date, and diagnosis date. If you sign up to receive email newsletters and updates about our organization, you will be asked to provide your email address. If you would like to join our wall, you will be asked to provide your first name, age, email address, birthdate, location, Instagram, and approximate diagnosis of Type 1 diabetes.  In order to access and use certain Services, you may be required to register as a Member by providing your name, birth date, residence city, state, country and email address. In this Privacy Policy, we refer to this information as “Registration Information.”

When you register as a Member, you will also be asked to provide us with background health information that relates to your past, present, or future physical or mental health or condition, including but not limited to, the type of diabetes you have and information about your treatment (collectively, “Health Information”).

If you wish to use make a donation through the Sites, you acknowledge and agree that the Sites will link to a third party service provider of ours who will process your payment (“Third Party”), and that any information that you submit in connection with such donation will be submitted to such Third Party and will be subject to the privacy policy and terms of use of such Third Party.

If you would like to purchase Products through our online store, you will be required to provide certain information in addition to the personal information noted above.  Such information may include a debit card number, credit card number, expiration date, billing address, activation codes, and similar information.  Such information is collectively called the “Billing Information.”  Such Billing Information will be collected and processed by our Third-Party Payment Vendors pursuant to the terms and conditions of their privacy policies and terms of use, and we do not obtain access to any Billing Information.

Like most web Sites, we use automatic data collection technology when you visit the Sites to record information that identifies your computer, to track your use of the Sites and the Services, and to collect certain basic information about you and your surfing habits. This information includes information about your operating system, your IP addresses, browser type and language, referring and exit pages and URLs, keywords, date and time, amount of time spent on particular pages, what sections of a website you visit, and similar information concerning your use of the Sites and the Services (the “Usage Information”).

We may collect this Usage Information by using cookies and pixel tags (also called web beacons or clear gifs). Cookies are small packets of data that a website stores on your computer’s hard drive so that your computer will “remember” information about your visit. Clear gifs are tiny graphics with a unique identifier, similar in function to cookies, and are used to track the online movements of website users.  You can reject cookies by following the directions provided in your Internet provider’s “help” file.  If you reject cookies, you may still visit the Sites and use the Services, but may not be able to use some areas of the Sites and the Services.

We may use third-party analytics services (such as Google Analytics) to evaluate your use of the Sites, the Services, compile reports on activity, collect demographic data, analyze performance metrics, and collect and evaluate other information relating to the Sites, the Services and Internet usage.  These third parties use cookies and other technologies to help analyze and provide us the data.  By accessing and using the Sites and/or the Services, you consent to the processing of data about you by these analytics providers in the manner and for the purposes set out in this Privacy Policy.

For more information on Google Analytics, including how to opt out from certain data collection, please visit https://www.google.com/analytics.

Please be advised that if you opt out of any service, you may not be able to use the full functionality of the Sites and the Services.

Information Collected Through the Sites that is Not Covered by this Privacy Policy.

You may voluntarily post and share information including, but not limited to comments, and experiences through blogs, forums and other similar features available from time to time through the Sites and the Services. None of the information you provide through the use of these features is protected by this Privacy Policy including any personal information. THIS PRIVACY POLICY DOES NOT APPLY TO ANY INFORMATION (INCLUDING PERSONAL INFORMATION) THAT YOU PROVIDE USING ANY SUCH FEATURES. ALL SUCH INFORMATION IS PUBLIC INFORMATION AND MAY BE VIEWED, COLLECTED, USED, MODIFIED AND/OR DISCLOSED FOR ANY PURPOSE BY BT1, ITS AFFILIATES AND SUBSIDIARIES, ANY USER OF THE SITES, AND THE PUBLIC.

Information Collected by or Through Third-Party Companies

We may share Usage Information about you with third parties for ad distribution and ad optimization (defined as the tailoring, targeting (i.e., behavioral, contextual, and retargeting), analyzing, managing, reporting, and optimizing of ads).  These third parties may use cookies, pixel tags (also called web beacons or clear gifs), and/or other technologies to collect such Other Information for such purposes.  Pixel tags enable us, and these third-parties, to recognize a browser’s cookie when a browser visits the website on which the pixel tag is located in order to learn which advertisement brings a user to a given site. You may opt-out of the tailoring of advertising based on information we collect.  To learn more about the use of this information, or to choose not to have this information used by our providers or third party advertising partners by opting out, please visit the Network Advertising Initiative by clicking http://www.networkadvertising.org/managing/opt_out.asp.

How We Use Your Information

We will use your Registration Information, Health Information and Usage Information for the following purposes:

  • To respond to your inquiries and contact you about changes to the Sites and the Services;
  • For any other purposes disclosed at the time the information is collected or to which you consent; and
  • As otherwise specifically described in this Privacy Policy.

We may also use your information to improve our Sites, and Services, and may use cookies and other information to enable us to customize your user experience.

We will share your Registration Information with your Pen Pal. We are not responsible for any Pen Pal’s use of such information and their use of the information is not subject to this Privacy Policy.

We may use your Health Information and Personal Information for creating internal reports and to help us develop specific content for the Sites. Your diabetes type will be displayed on your Member profile.

We, like many businesses, sometimes hire other companies to perform certain business-related functions.  Examples include mailing information, maintaining databases, hosting services, and processing payments.  When we employ another company to perform a function of this nature, we provide them with the information that they need to perform their specific function, which may include your information.  We require such third parties to maintain the confidentiality of such information and use such information only as necessary to provide us with designated services.

If we or all or substantially all of our assets are acquired, we expect that the information that we have collected, including personal information, would be transferred along with our other business assets.

We may disclose user information to government authorities, and to other third parties when compelled to do so by government authorities, at our discretion, or otherwise as required by law, including but not limited to in response to court orders and subpoenas. We also may disclose user information when we have reason to believe that someone is or may be causing injury to or interference with our rights or property, other users of the Sites and the Services, or anyone else that could be harmed by such activities.

How We Protect Your Information

We take commercially reasonable steps to protect your information from loss, misuse, and unauthorized access, disclosure, alteration, or destruction. Please understand, however, that no security system is impenetrable. We cannot guarantee the security of our databases, nor can we guarantee that the information you supply will not be intercepted while being transmitted to and from us over the Internet. In particular, e-mail sent to or from us may not be secure, and you should therefore take special care in deciding what information you send to us via e-mail.

Control of Your Information

You may update the information you have provided to us by e-mailing us at hello@beyondtype1.org.

Your Choices

If you wish to stop receiving e-mails from us, please send us a message via hello@beyondtype1.org.  You may also choose to unsubscribe from our emails by following the instructions in the bottom of the email.

External Links

The Sites and the Services may contain content, services, advertising and other materials that link to websites operated by third parties. We have no control over those other sites, and this Privacy Policy does not apply to them.

Important Notice to Non-U.S. Residents      

The Sites, the Services, and its servers are operated in the United States.  If you are a European Union citizen, we may transfer your personal information from the European Union (EU) to the United States (US). We will use User Consent to Transfer of Personal Data to the United States to obtain your consent.

California Privacy Rights

Under California Civil Code Section 1798.83, California residents who have an established business relationship with Beyond Type 1 may choose to opt out of our sharing your personal information with third parties for direct marketing purposes.  If you are a California resident and (1) you wish to opt out; or (2) you wish to request certain information regarding our disclosure of your personal information to third parties for the direct marketing purposes, please send an e-mail to [thom@beyondtype1.orgwith “Privacy Policy” in the subject line or write to us at:

Beyond Type 1

545 Middlefield Road, Suite 220

Menlo Park, California 94025

In addition, Beyond Type 1 does not monitor, recognize, or honor any opt-out or do not track mechanisms, including general web browser “Do Not Track” settings and/or signals.

Changes to This Privacy Policy

This Privacy Policy is effective as of the date stated at the top of this Privacy Policy.  We may change this Privacy Policy from time to time, and will post any changes on the Sites as soon as they go into effect.  By visiting the Sites, and/or accessing and/or using the Services after we make any such changes to this Privacy Policy, you are deemed to have accepted such changes.  Please refer back to this Privacy Policy on a regular basis.

How to Contact Us  

If you have questions about this Privacy Policy, please e-mail us at hello@beyondtype1.org,  “PRIVACY POLICY” in the subject line, or mail us at the following address:

Beyond Type 1

545 Middlefield Road, Suite 220

Menlo Park, California 94025

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