I have two children with Monogenic Neonatal Diabetes. My son was diagnosed with Type 1 at 18 weeks old and was on insulin shots until just before his first birthday when we switched him to the pump. Then when we moved to North Carolina, several articles were published about a rare form of diabetes diagnosed in children under 6 months old who may be able to go off of insulin. My son's DNA was tested and he turned out positive for the rare single genetic mutation. This meant that his body still had the capability to produce insulin, but just had a mutation that was blocking the body's ability to do it correctly. In January of 2007, he was transitioned off of insulin and started the oral medication called glyburide (a Type 2 diabetic medication that's been around for decades).
My daughter was born in August of 2009 and we checked her right away. Even though the chances of having another child with this rare form was highly unlikely, we happened to "luck out" and get another positive. She was started on glyburide at 10 days old. While she is not the youngest to start on glyburide, she is one of only 2 or 3 who have done so. Here
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