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Amy Carbonneau
  • Female
  • Decatur, IL
  • United States
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Laugh your heart out. dance in the rain. cherish the moment. ignore the pain. live. laugh. love. forgive&forget. Life's too short to be living with regrets.

Latest Activity

Laugh your
(via My Status)
September 4, 2009
Amy Carbonneau and Vered are now friends
August 7, 2009
August 4, 2009
August 2, 2009
Amy Carbonneau and kabaso mumba are now friends
July 18, 2009
July 18, 2009
Send your blog via email to your parents ;) If you are bringing home your own income and of age...why not buy it yourself?...you only live once, Amy.
July 14, 2009
Show your parents this: http://www.2betr.com/ Hopefully they will come around and support you.
July 13, 2009
Sounds like you need to give the "I am an adult now" talk with the 'rents. Try using their first names instead of Mom and Dad. That will get them. =) Good luck! Better yet, just get it anyway, before your insurance changes.
July 13, 2009
Amy Carbonneau added a blog post
ugh. This is frustrating. I need and want to go on the pump so bad!! My endo has even said so. I have a tendency to drop really low, especially during the night. I've been looking at the One Touch Ping pump. It's got everything i want, and it's grea…
July 13, 2009
Amy Carbonneau and Saskia Marina are now friends
July 13, 2009
Amy Carbonneau and Jenna Faass are now friends
July 12, 2009
Hi! I just found your post on the Type 1's with Celiac group. I've had T1 diabetes and Celiac since I was almost 2 years old (going on 21 now) So, I understand your sons frustrations, especially with school lunches! Before GF bread was easily avalia…
July 10, 2009
Amy Carbonneau updated their profile
July 10, 2009
This is diabetics who are a young adults (18-29).
July 10, 2009
Amy Carbonneau is now friends with Mike Campana and Gerri
July 10, 2009

Profile Information

Hometown (where you come from):
Decatur, Illinois
Do you have diabetes?
Yes
I have:
Type 1
Date diagnosed
February 1, 1990
Most recent A1C (Blood Glucose Average) Value
12 :(
What glucose meter do you use?
One Touch Ultra Mini
Type of treatment you use
Shots, Diet and Exercise
What is the address for your Facebook profile, if any?
http://www.facebook.com/home.php#/profile.php?id=31407325&ref=p...
What do you expect from TuDiabetes?
support and more information on pumping
How did you find out about us? What were you searching for?
I was searching for information on Type 1 Diabetics who use insulin pumps, that also have Celiac, and how they deal with both issues.
What do you do for a living?
College Student

Just a little about me and the betes! :)

My run with diabetes hasn't been the greatest, but since I've had it for so long, I can't image what life would be like with out all of the injections and multiple daily tests!

I was diagnosed with juvenile diabetes when I was just 18 months old. It took the doctors 4-5 days to figure out what was wrong with me. I guess it wasn't obvious! A few months later I was diagnosed with Celiac Disease.

From what my parents tell me, we had pretty good control when I was younger. My Endo, who was the only one in town, retired. So, I was left without an endo for quite sometime. I suffered my first DKA when I was 4 years old. I was hospitalized for a week. Going through grade school wasn't a huge deal. My friends were really supportive, and wanted to learn more about both of my "diseases." I missed a lot of class in 2nd grade, as my sugars would always drop low. Jr. High was alright. I started seeing a new endo, so it was rough trying to get things regulated and consistent. My blood sugars were consitently high, with the occasional lows, it was never where it was supposed to be. High school was an experience. I found myself going to the nurse at least 2-3 times a day with extreme highs and lows. We talked to my endo about this, and he said that it was all just a part of having diabetes, and that we didn't need to change any insulin or anything, just to live with it!!! WHAT?! i remember my A1C's in high school being right around the 9-10 mark. not good.
I stopped seeing my endo when I began college. I sometimes saw the diabetes educator they had on campus at the health center, but he wanted me to change insulin without supervision, and I didnt think that was a good idea, at all, so I didnt' do it. With the added stress that college brings, I found myself having highs and a few lows, and sometimes even in the okay range! UNTIL--this past school year, which was my junior year. Back in late march I had really high sugars-like the meter said "HI"-which is never a good thing. These were consistent highs. I wound up going to the health center because I thought I had the flu or somethings. Turns out I was severely dehydrated, and had slight ketoacidosis, but they said that after some IV fluids I'd be good to go. Well, I was for only two weeks.

By mid to late April of this year (2009) I was thirsty all the time, and had to use the bathroom allllll the time, ya know like how you are right before you're diagnosed? Well that's what it was like, except I'd had diabetes for almost 16 years at this point! I checked my keytones and they were at the highest that they could go, and I also tested the glucose level in my urine, and it was at the highest that it could go. I called my parents freaking out about what was going on, as I was so sick to my stomach, and had tons and tons of projects and papers and exams were just around the corner! I called the ER to get their take on things, and they told me to get in there ASAP! (and not to drive myself!) I went into the ER that night with a blood sugar of 755. I was put on IV's and tons of blood work was done. I also had a very low potassium level, which is very bad for your heart (my pathophysiology class taught me that!) My bi-carbonate level was an astounding 20. Anything over 15 is considered DKA. So obviously I was now in full blown DKA. When the nurses were trying to get my hospital gown on me, I full out passed out. I think I freaked out my friend who was with me. Once my sugars were down, the doc admitted me overnight for observations. I was finally moved up to the cardiac floor at 3 AM!! I had extreme highs and lows my first night in the hospital. I went from a good number down to 30 after giving my novalog. I then spiked up to 405. That continued for the next 2 days. They finally took me off novalog, and put me back on R. It was better but there was still the extreme highs and lows. i was in the hospital for 4 and a half days, and was put on lantus insulin the day before I went home.

The sugars are much better now, for the most part. My highest number has been 345, which occured today (7/9/09). I've had so many lows though! anywhere from 29 and up. The only thing I don't like about Lantus, is that it's made me gain weight. I lost a lot when I was in the hospital, but I've gaid 30 back. :(

I'm really hoping for the One Touch PING pump! I really think that I would benefit from having it. And it's pretty discrete, so it's good for an on the go and active college student!

Plus, I'm really glad I found this site, and only wish that I could have found it sooner! :)

Amy Carbonneau's Blog

Amy Carbonneau

frustrated

ugh. This is frustrating. I need and want to go on the pump so bad!! My endo has even said so. I have a tendency to drop really low, especially during the night.
I've been looking at the One Touch Ping pump. It's got everything i want, and it's great that it has the extended bolus. I was told that was really important for people with celiac also.
So here's the thing. For the pump I want (I've never been on a pump) and 3 months of supplies, it's only going to cost me $190. That's it. nothing more… Continue

Posted on July 13, 2009 at 8:32pm — 4 Comments

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At 4:01pm on August 4, 2009, Christina said…
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At 10:09am on August 2, 2009, Christina said…
MyHotComments.com
MyHotComments + Layouts
At 9:48am on August 2, 2009, Stacey :0)~ said…
Happy Birthday Amy!! Hope its fun!! :)
At 6:57pm on July 18, 2009, Christina said…
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MyHotComments
At 10:20am on July 10, 2009, Stacey :0)~ said…
You're very welcome! I read your bio and it sounds like you have really had a rough time of it! :( I'm glad to hear you're considering the pump though! I think whichever one you choose it will be a very positive step for you and it will make things easier. I read you were using Lantus too. I did for a very short time before going on the pump but I had extreme lows on it like you mentioned on here. I totally stopped after one extreme low that scared me pretty bad. Actually I go to my DR this week for a follow-up and am going to ask her to test me for celiac along with all the normal blood work. I tested once for it after my daughter was diagnosed and it was ok but I was also eating more GF at that time because of her and I know you need to still be eating gluten before the test. I'm starting to think I could be or just have a sensitivity to gluten. So we'll see! Well have a great weekend! :)
At 8:15pm on July 9, 2009, Christina said…
Thats good to hear!
I'm doing pretty good.
At 7:48pm on July 9, 2009, Christina said…
Hi Amy! Thanks for the add!
How are you doing?
At 7:48pm on July 9, 2009, Gerri said…
Thanks for the friend invite! The "accept" button didn't show up for some reason, so I'll send you a friend add.
At 7:00am on July 9, 2009, Stacey :0)~ said…
Welcome Amy! I saw your post in the celiac group. I wanted to let you know I'm very familiar with both celiac and D's. I've been T1 for over 25 yrs and both my mother and daughter have celiac. So I certainly understand the struggles of both! My daughter has had it for 2 yrs and my mother for 13-14 yrs now! I am also on a pump( 3 yrs now) so if you have any questions that I can help you out with I would be happy to do so! :)
At 12:34am on July 9, 2009, Gerri said…
Hi Amy,

Welcome to the community! Glad you found us. There are a lot of pumpers here to help you.
 
 

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