CaryJ
  • Female
  • Northborough, MA
  • United States
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  • Zoe
  • Jake
  • Bernard

CaryJ's Discussions

Treatment for DME

Started this discussion. Last reply by Brian (bsc) Dec 3, 2012. 3 Replies

My adult son was recently dx'd with type 1, Aug.2. I am my son's advocate for health care decisions. He was actually dx'd by his ophthalmologist while undergoing treatment for uveitis in one eye. She…Continue

 

CaryJ's Page

Latest Activity

rick phillips left a comment for CaryJ
"CaryJ Happy Birthday !!! Here is wishing you a wonderful and happy birthday. I hope the coming year will be full of blessings, joy and the wonderful love of family and friends."
Sep 29, 2013
Linda G left a comment for CaryJ
"Smiles and laughter. Joy and cheer. New happiness that stays throughout the year... Hope your birthday brings all these and more. BEST WISHES CARY!! I did not mention it before....but my deepest condolences with regards to your husband. How is your…"
Sep 29, 2013
CaryJ replied to Cheri's discussion 'Anyone Else Freaking Out Over New Insurance Policies Coming?'
"There are some merits to the changes particularly the right to insurance regardless of a pre-existing condition. I'm sure the insurance companies will find loopholes around this though. In general, I think it's pointless to debate the pros…"
Aug 5, 2013
CaryJ commented on Rob's group 'Dexcom Users'
"My son just applied for the Dexcom G4. However, his insurance will not cover it. Do many people pay out of pocket for the Dexcom? Even though the unit is very pricey, I wouldn't mind paying for the equipment if insurance would pick up the cost…"
May 10, 2013
CaryJ joined Rob's group
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Dexcom Users

For users of a Dexcom Continuous Glucose Monitoring ("CGM") deviceJust as a reminder with the recent release of the new Dexcom G4 to the US market--it is NOT okay to post about previous models or older sensors as being 'for sale' on this site.It is a violation of the Terms of Use because it is a prescription device, and any such efforts will unfortunately be removed.We encourage you to donate supplies to non-profits such as the Charles Ray III Diabetes Association (…See More
May 10, 2013
CaryJ replied to Leata's discussion 'Lucentis for Macular Edema' in the group Diabetics With Eye Problems
"My son has had 5 treatments with Lucentus with one macula brought back to normal contour and thickness. The other eye was improved but there is still some swelling on one side of the macula of the right eye. It's hard to know if the treatments…"
Apr 27, 2013
CaryJ replied to jeffri kay's discussion 'Have you ever considered the carbon footprint diabetics leave behind?'
"I find your attitude very commendable. However, shouldn't we be putting pressure on companies like BP and TEPCO that try to cover up their environmental disasters that will end up killing millions of people, and by the way, there is a direct…"
Apr 20, 2013
Zoe left a comment for CaryJ
"Thanks, Cary, that's really nice of you to say. Glad to be friends!"
Apr 10, 2013
Zoe and CaryJ are now friends
Apr 10, 2013
CaryJ replied to Clare's discussion 'Dietary Fat Can Affect Glucose and Insulin Needs of Type 1s'
"I'm a little wary of this mini study. The results could be used to bolster the outdated dietary recommendations that the high carb, low fat diet is the one diabetics should follow. If they had people eating pizza for this study, I'm not…"
Apr 9, 2013
CaryJ replied to Negg's discussion 'Does anyone not count carbs, like me?' in the group Dr. Bernstein Diabetes Solution Group
"When my son was first dx'd type 1 in Aug., we counted everything, carbs, protein, fat you name it. After a while he learned to eliminate the foods that caused spikes in his blood sugar, mainly wheat, rice and other processed grains. He can…"
Apr 7, 2013
CaryJ replied to Mayumi's discussion 'Beware ~ Medicare recipients'
"Let's face it. The so-called "Affordable" Care Act is anything but and is already proving to be an enormous boondoggle. It's all about profit for the insurance companies. In this equation is huge cuts to Medicare. Doctors will be…"
Apr 6, 2013
CaryJ replied to sdkate's discussion 'Diabetics or Medical People'
"Hands down - other diabetics. I have to qualify that by saying other diabetics with years of experience who have lived well with their diabetes. When my son was first diagnosed with type 1 in Aug. 2012, I read everything I could. I was particularly…"
Apr 5, 2013
CaryJ commented on C Irons's blog post 'My Garden, The Grow Room'
"I'm from the Boston area too, and looking at about six inches of new snow out my window with more to come. Just looking at your great efforts makes me realize I could be doing the same. I was going to sow the seed directly into the garden, but…"
Mar 19, 2013
CaryJ replied to Emily Coles's discussion 'FDA Approves Lucentis® (Ranibizumab Injection) for Treatment of Diabetic Macular Edema (DME)'
"Hi dishers, My son has received 3 Lucentus injections, 2 in his right eye and 1 in his left eye. The right eye responded dramatically to the injections reducing the swelling by about 200 microns by the second week after the second injection.…"
Mar 10, 2013
CaryJ replied to Emily Coles's discussion 'FDA Approves Lucentis® (Ranibizumab Injection) for Treatment of Diabetic Macular Edema (DME)'
"My son is currently being treated with Lucentis in both eyes. He has mild to moderate DME. His macular edema is resolving. However, he is a newly diagnosed type 1 since August. He has literally halved his A1c to 5.0. I really think the improvement…"
Feb 26, 2013

Profile Information

The PRIMARY person in my life who has diabetes has
Type 1 or type 1.5 (LADA) diabetes
How do you hope to benefit from TuDiabetes?
I want support and advice in the best ways to help my son cope with diabetes.
Date diagnosed
August 2, 2012
Most recent HbA1C %, date of result (optional)
9.8, Aug.2, 2012
Type of treatment/devices you use
Shots, Diet and Exercise
Tell us more about you (optional)
Both my son and I are musicians I play classical guitar and he plays and teaches cello. We both live in the same household. My husband died last year, and recently my son was diagnosed with type 1 diabetes. We've had a lot to deal with emotionally.
First and foremost we are learning how to use insulin effectively along with lowering carbs to bring down the bg levels. Our ultimate goal is to learn how to effectively manage the condition over the long term while avoiding the complications of diabetes. I trust the advice of people who have diabetes because it seems they know more from experience how to live successfully with diabetes. I'm especially influenced by Dr. Bernstein, and we are trying to follow his guide to diet and insulin use. My son is being treated at Joslin Diabetes Center. I thought the dietary information that we were given was very outdated, the high carb, low fat type of advice. Also, we were just handed a print out guide that told us what fixed amount of insulin to inject per the bg reading before meals.- not good diabetes education, nor effective control. I think people are really on their own when it comes to managing the condition.

Comment Wall (14 comments)

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At 7:27pm on September 29, 2013, rick phillips said…

CaryJ Happy Birthday !!! Here is wishing you a wonderful and happy birthday. I hope the coming year will be full of blessings, joy and the wonderful love of family and friends.

At 6:52am on September 29, 2013, Linda G said…

Smiles and laughter. Joy and cheer.
New happiness that stays throughout the year...
Hope your birthday brings all these and more.
BEST WISHES CARY!!
I did not mention it before....but my deepest condolences with regards to your husband. How is your son doing?
---------------------------------------------------------------------------------------------------

At 6:33pm on April 10, 2013, Zoe said…

Thanks, Cary, that's really nice of you to say. Glad to be friends!

At 11:05am on October 3, 2012, Bernard said…
Cary, drop me a line at bernard.farrell@gmail.com.
At 6:10am on October 3, 2012, Bernard said…

Wow, Cary you've had a bad year. I work in Hopkinton, if you ever want to meet for a cup of coffee and a vent session do let me know.

I was originally diagnosed as a teen. I'm now seeing a great endo in Nashua, NH. I can really recommend her, let me know if you want her name.

I'd recommend getting a copy of the book Think Like a Pancreas by Gary Scheiner, it's a good read, informative and funny in places.

If you have any questions, or want that coffee just drop me a note.

Best wishes.

At 8:19pm on September 29, 2012, Linda G said…

Hello! How Do You Do, and HAPPY BIRTHDAY to you Cary...
Best Wishes NOW....and for the rest of the year!
Have a GREAT "ME" DAY :)
--------------------------------------------------------------------------------------------------
Hey, why don't you come join us in the TuD chat room?
You'll see us at the bottom of the home page.
We have a great time getting to know each other, sharing info and lots of laughs :)
It's on right now!
--------------------------------------------------------------------------------------------------

At 7:02am on September 29, 2012, SEAGATOR said…

Happy,Happy Birthday,CaryJ. I wish for you a most wonderful day. ENJOY!!!

At 2:35am on September 29, 2012, brokenpole said…

Happy Birthday!! Hope you have a wonderful day and get to have some fun. Enjoy your special day.

At 2:02pm on September 8, 2012, Marie B said…

you're welcome Cary, you'll find many DrB fans here, please feel free to join any discussions, and also the chat room at the bottom of the main page. we are all helping each other here.

At 10:56am on September 8, 2012, Linda G said…

We're so happy that you're finally here!
Welcome home Cary! YOU ARE NOT ALONE!!!
August 2nd...a mere 5 weeks ago! How's it all going?
How old is your son?
This is a great place to share, to learn, and to grow...all the while meeting new people world wide, and making friends.
Take a peek at some the groups when you get a chance. Just go to the top of your page, and click on "Groups".
Once in, you can either peruse the wide array of available groups....or simply type a specific interest in the space provided.
Take in some of the blogs/discussions as well.
The resource boxes at the top of the home "Home" page, and
"About us" at the very bottom of your page and every page (the footer), offer you more information still.
-------------------------------------------------------------------------------------------------
Hope you find the support and information you came looking for.
Here is a useful link to get you on your way:
http://www.tudiabetes.org/notes
--------------------------------------------------------------------------------------------------
There are also groups here for young people, and parents of children with diabetes, such as....
"Teenagers with Type 1", "College Students with Diabetes", "Young Adults with Diabetes",
"Parents of Kids with type 1" and "Kids with Diabetes".
--------------------------------------------------------------------------------------------------
Hey, why don't you come join us in the TuD chat room?
You'll see us at the bottom of the home page.
We have a great time getting to know each other, sharing info and lots of laughs :)
It's on right now!
--------------------------------------------------------------------------------------------------
Take care....and keep in touch!

 
 
 

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