Clare
  • Female
  • Southborough, MA
  • United States
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Clare's Discussions

This might prove to be useful

Started this discussion. Last reply by meee Apr 27, 2014. 1 Reply

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Are pump algorithms really designed to achieve your target BG?

Started this discussion. Last reply by Clare Mar 17, 2014. 23 Replies

When I started using an Omnipod pump last May my initial blood glucose target was 100. After a couple of months using the system my average blood sugar (according to Dex) was 113 SD 35 and 5% hypos…Continue

Urgent product recall

Started this discussion. Last reply by indolent Feb 24, 2014. 22 Replies

https://www.abbottdiabetescare.com/press-room/2014/2014-b.htmlFor those using an Omnipod Insulin Pump system, Abbott has…Continue

 

Clare's Page

Latest Activity

Clare replied to Jaymie-Leigh's discussion 'Insulin Pump as a Circus Performer??'
"I use an Omnipod tubeless insulin pump. I like it because it is waterproof and can be stuck virtually any where on my body. Right now I have a pod on my back. But I have placed them on my breasts, thighs, arms, abdomen, calves and hips. I have had D…"
yesterday
Clare commented on Emily Coles's event 'Virtual focus group: The Experience and Evaluation of Diabetes‐Related Language in Diabetes Care'
"Sounds like fun, we have a similar time course with D, I was dxed in 1975 and this May will mark 40 years living with diabetes. There are few words that incense me more than non-compliant. Or compliance for that matter. I'll look forward to the…"
Wednesday
Clare is attending Emily Coles's event
Wednesday
Clare replied to Terry's discussion 'If you could write your own Rx's, would you visit your doctor?'
"3 years ago I was taking humalog and lantus on a sliding scale. I weighed 50 pounds more than I do today and thought my endo at the world famous Joslin Clinic knew everything about D. It is amazing when I look back that I am still alive and well…"
Tuesday
Clare replied to Terry's discussion 'If you could write your own Rx's, would you visit your doctor?'
"It's completely legal if you're in good control, are willing, and healthy, weigh enough and haven't ever taken beef insulin then there is nothing that would preclude you from donating. At least that has been my experience in…"
Tuesday
Clare replied to Terry's discussion 'If you could write your own Rx's, would you visit your doctor?'
"Hey Terry - try donating blood before your next one :). Sure fire way to lower you A1C."
Tuesday
Clare replied to Terry's discussion 'If you could write your own Rx's, would you visit your doctor?'
"I only visit my endo twice a year. She writes the rx for a year so in reality I could avoid going for an entire year. But she is smart and I appreciate her input and always feel like I'm part of my team not just following "orders". I…"
Tuesday
Clare replied to aimeeh2oski's discussion 'Anybody using 505 software update yet? Is it that much more accurate?' in the group Dexcom Users
"10-20 points away from 107 is still well within the standard for accuracy. Dexcom is for trends only. It is extremely rare that my Dexcom and my meter are absolutely the same, and that is most often after an 8 hour flatline or and uneventful night.…"
Saturday
Clare replied to aimeeh2oski's discussion 'Anybody using 505 software update yet? Is it that much more accurate?' in the group Dexcom Users
"Have you tried Flonase spray underneath the sensor ? Apparently this has worked for multiple people who were having Dexcom adhesive allergy. I believe Nasacourt is the same stuff as well."
Feb 20
Clare replied to aimeeh2oski's discussion 'Anybody using 505 software update yet? Is it that much more accurate?' in the group Dexcom Users
"bort269 I've been using the system continuously since November 2012 and I have regained some hypo awareness and now have a really good sense of where my blood sugar is even without looking at the receiver. It's always on my belt in a…"
Feb 20
Clare replied to aimeeh2oski's discussion 'Anybody using 505 software update yet? Is it that much more accurate?' in the group Dexcom Users
"Dishers, my high alert is set to 150 or 8.3 mmol. I have my snooze set for 60 minutes so once I know I have reached my high I don't get constantly buzzed while bringing it down. It helps to keep me sane and not panicking. My low is set at 70 or…"
Feb 20
Clare replied to aimeeh2oski's discussion 'Anybody using 505 software update yet? Is it that much more accurate?' in the group Dexcom Users
"The new MARD score for Dex with the 505 update is 9% it is the only single digit MARD for any CGM. Many of the D parents in my Dexcom group fall into the same category as you. Their kids started on Dex well before it was approved for peds. They have…"
Feb 20
Clare replied to aimeeh2oski's discussion 'Anybody using 505 software update yet? Is it that much more accurate?' in the group Dexcom Users
"Yes I am using the 505 version and have been since it was introduced. It is more accurate and seems to recover more quickly from lows. I was reticent to switch and had 2 receivers so I updated one and left the other one using the old version. The…"
Feb 19
Clare replied to meee's discussion 'Where does all the Dexcom Data go to?' in the group Dexcom Users
"The receiver can hold 30 days worth of readings which is 8640 data points. After that I believe each day you lose the single day's worth of data so it loses 288 results a day. Diasend is a free program I think the people that get charged are…"
Feb 19
Clare replied to Terry's discussion 'System check passed?' in the group Dexcom Users
"Great to actually get a reasonable explanation, even though it doesn't necessarily fit in your case. Here in the frigid northeast I am expecting to see the system check display and also the pod failures increase as the static electricity…"
Feb 17
Clare replied to Terry's discussion 'System check passed?' in the group Dexcom Users
"I have had this happen once and I thought I lost all the data. But I plugged it into my computer and downloaded to Studio and although the receiver didn't show a line, the Studio did. If you do a hard reset putting a pin into the hole in the…"
Feb 16

Profile Information

The PRIMARY person in my life who has diabetes is
me
The PRIMARY person in my life who has diabetes has
Type 1 or type 1.5 (LADA) diabetes
How do you hope to benefit from TuDiabetes?
To learn and to teach what I can about how to live a full and happy life with D.
Date diagnosed
May 12, 1975
Most recent HbA1C %, date of result (optional)
5.8 (12/14)
Type of treatment/devices you use
Pump, CGM, Diet and Exercise
What pump model do you use, if any?
Omnipod

Clare's Photos

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Clare's Blog

Clinical Trials and swag

Posted on November 16, 2014 at 11:24am 2 Comments

I reported a year ago I had been accepted to participate in the ACT1VE clinical trial of a replacement C peptide hormone as a potential treatment for peripheral diabetic neuropathy. Every Monday morning for a year I injected myself with 0.3 ml of drug. Since I do not have any symptoms or pain from diabetic neuropathy, I still have no idea whether or not I got the drug or placebo. But I finished the trial a couple of weeks ago and will find out once all the data has been tabulated. There were…

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Thank you Omnipod, Dexcom, tuD

Posted on September 9, 2014 at 12:46pm 1 Comment

I went for a visit with my nurse educator at the Joslin today. After teaching her everything I have learned over the last 6 months and giving her some Opsite Flexifix for her patients' sensors I got my A1C done. Drum roll please it was 5.5 ! Nice to see the hard work paying off not only from the number but also from how I feel and having the energy to ride in the Harbor to the Bay (Boston Harbor to Provincetown)charity bike ride in a couple of weeks. Wish me luck

My Diaversary

Posted on May 12, 2014 at 9:14am 5 Comments

39 years ago today I was diagnosed 250.9 which in 1975 was the ICD (International Classification of Diseases) code for Diabetes with Unspecified Complications. I have tried desperately through the years not to allow D to define me, but the reality is though D does not define me, it has helped shape me and the person I have become. Without D would I be the same independent, confident, competitive woman I am ? Would I have made the same career choice, chosen the same mate ? As I mull these…

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My first ride

Posted on May 3, 2014 at 3:48pm 13 Comments

I took my new bike out for its' first ride today. Some friends and I rode 23 miles through historic Lexington/Concord/Bedford and finished at Bertucci's for a lunch of salad and pasta. With the pump I was able to set a temp basal and managed to maintain my blood sugar between 100-150 throughout the ride. I can't even begin to say how happy this makes me. I fashioned a pretty good bike mount for my dexcom receiver so it was easy to see where my blood sugar was and where it was heading at any…

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Comment Wall (68 comments)

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Join Diabetes community by Diabetes Hands Foundation: TuDiabetes

At 4:28pm on November 19, 2014, Harmeet C said…

Thanks Clare! The site is addictive!!

At 6:36pm on July 7, 2014, Gail said…
Claire, you are definitely invited to my party! I picture huge chocolate fountains, great drinks, etc. It sure will be fun ... for at least one night. :-)
At 9:00am on July 3, 2014, Carol said…

Clare: Thank you so much for your message. We have such similar stories and experiences. Although, for me, I love my doctor and medical team and have been very lucky to part of the Gonda Diabetes Center at UCLA. They are fantastic!,but I too struggle with A1c's in the low 8's. I'm hoping the t:slim will help. Unfortunately, OmniPod did not work for me. My goal this month is to start a regular exercise program and I will definitely be looking to the community for some advice. I have always been active but now it is time to get serious.
What a wonderful welcome, -thank you all!!

At 2:29pm on June 29, 2014, Nicole said…

Thank you very much! I just did 5 miles today and started with a BG 156 once i was done i was 90- however i didnt stop half way through and eat/hydrate- my blood sugar at half point was 128 so i left it at that. I did cut my basal in half- since this morning after my run I have had 2 low BG's one was 42 and i came up to 187 the last was 58- so i feel i need some tweeking done before i go that far again.. I will look into Dicks Sporting goods also! Thank you for suggesting the other people- its very nice to have something like this website to rely on!

At 11:33am on June 29, 2014, rick (aka: #blankieboy) said…

Clare: I left your name with a blogger Nicole:

http://www.tudiabetes.org/profile/Nicole972

For advice about the dexcom / Omnipod combination and marathons.

Rick

At 11:37am on June 23, 2014, MrSilver said…

Thanks Clare :)
If I relocate to a warmer climate I think I'm in for a huge adventure in the near future. Time will only tell if a blog is in the works or perhaps a work soft, play soft, less hectic life with my art work involved will be my new focus once I am resettled.

At 10:17pm on May 11, 2014, piggy said…

OK,I will check into it and get one.

Thanks
Gary

At 10:49am on March 25, 2014, Ronda said…

Congratulations on being a featured member!!! You rock!

At 6:15pm on March 21, 2014, Linda G said…

BRAVA on being a FEATURED MEMBER Clare!!

At 6:22pm on March 20, 2014, rick (aka: #blankieboy) said…

Clare congratulations on being named a featured member of the week.

 
 
 

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