"Colleen, is this the BURT study? The one done in Brazil? (injecting stem cells from your own bone marrow)? If so, you have to be newly diagnosed for this approach to work. If not, PLEASE tell me about this study!"
"Thanks for sharing and keep us updated! Our diabetes center will only do pancreas/kidney transplants. Reasoning being, if you need a kidney transplant and will have to take the antirejection drugs anyway, you could then do the pancreas transplant.…"
my name is karole and im 42..... ive had diabetes type 1 since i was 8 and been on kidney dialysis for a little over two years now.... i live in ontario, canada... i am on the list for combined kidney/pancreas transplant.... it could…"
I don't think a pancreas transplant is a cure. It is a band-aid - one that comes with many risks and problems. I have now been sick from an unidentifiable virus for 3 months that has caused ulcers throughout my throat and GI tract. I am on myfortic and prograf. I cannot eat enough to stay alive and had a 14 day hospital stay just to get nutrition via IV. Granted I had diabetes much longer and was much sicker than you likely before transplant, but I don't think anyone should sell a transplant as a cure.
Yes, some people are lucky and have 'error-free' walks after transplants. I was great up until about 19 mos after when I caught this virus. Now I have exhausted my short term disability and am running out of options.
People need to know that there is no cure for diabetes. Immunosuppression and the risks it carries in terms of infections (like this one which in theory is mild) and cancer (skin, lymphoma, etc.) != a cure. It is a tradeoff. It is not a cure until we are off these meds with their horrible side effects.
Hi Colleen. I was just wondering about the Pancreatic transplant. How would a person go about something like that? Can anyone have it done or do you have to be in dire need of a pancreas to have that done? Any info would be appreciated. Thanks.
Hi Colleen. I have also had a pancreas alone transplant, but am struggling alot with constant infections due to the immunosuppression. I just wanted to point out that there are several centers in the US who do WAY more pancreases than IU. Number 1 I'm sure is Fairview! Just in 2008 alone, they've done 25 already. UCSF also does a lot (but no where close to the number at Fairview). You can check number of transplants by organ type at unos.org for each transplant facility. Check out www.transplantbuddies.org, we'd love to have you there.
Hi Colleen....sorry to clog up your page. There's a way to send you mail, but I can't seem to fiqure it out this morning.
Your dogs sound wonderful......I am partial to rescues and mixed breeds. We have rescued all 3 of our sweet dogs (just have 1, now,) and I think we get more out of it than they do. Had your dog been trained to alert you to lows? I am fascinated by that.
We live in S FL......1/2 hour west of Ft Ladeda! We have been here 2 years, gradually moving our way south from MD and then NC. It is very different here but I am a frustrated socialogist and find that I enjoy experiencing people in different parts of the country. The weather here can be a challange, but it is lovely in the winter and a pool and some palm trees is kind of fun.
Your experience with your transplant is amazing. Don't you feel so lucky! What is it with all these autoimmunes? I have friends with 2, one with 3, one with Parkinson's and who knows how many are living with undiagnosed stuff.
Have you gone back to work, yet? I know the pharmaceutical co's are great with disability and holding jobs. I have a friend who is a nurse....tough, tough profession, and way under appreciated....hoping to switch careers. It's sad that the industry makes it so unappealing for nurses to stay in the hospital, but great that your training and experience allows for other ops.
Have a fun weekend.
Thanks for the message Colleen! (Hope that you were able to sleep at some point!I)
I sort of started my PhD by accident... well at least it wasn't part of any grand plan that I had made. It was more a good reason to stay in Budapest, which was where I wanted to be. But now that I am into it, I found for a real excitement for academics and for teaching. So I am interested in teaching when I finish. I could also imagine working with research projects related to public policy, but I really love teaching. I have at least two more years left of the PhD... so I have some time to figure out what's next!
I can definitely relate to the desire just to learn for learning's sake. I genuinely enjoy being a student and think that I always will be :) I'll be interested to hear if you end up studying again some day!
Hi Colleen. Thanks for your nice note. Tell me about your precious dogs. What breed(s?) We now have a tiny Italian Greyhound and since our kids are out of the house, we treat her like a baby....
No idea where my T1 came from, although my father always said that he was border line hypoglycemic and I always felt lows if I hadn't eaten. I have heard that is a tendency some of us late onset people have. So far, no other obvious autoimmunes. I have done OK with my control....not great, but I have been working on it. I am thinking of getting an Omnipod. I don't mind shots, but I am shy in public about it so sometimes that causes me to be lax.
I am sorry you have had such a rough time.....were you somehow intolerant to insulin? It is wonderful that you are doing so well, now. I can't imagine a transplant to be an easy thing to go through.
Looking forward to chatting again.
The Diabetes Hands Foundation and Diabetes Advocates Program is proud to announce and congratulate the members of DA who were granted scholarships to attend diabetes conferences in 2013! Thanks to a generous grant from Novo Nordisk, in 2013 we were … Continue Reading
El Centro Nacional de Prevención de Enfermedades Crónicas y Promoción de la Salud en el Estados Unidos encontró que a partir de 2002-2009, el 11,8% de los hispanos mayores de 20 años, que viven en los EU, viven con diabetes … Continue Reading