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Courtneyv's Groups
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Autistic Diabetics
6 members
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Musicians/Music Lovers
162 members
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Animas Insulin Pump Users
297 members
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Continuous Glucose Mon...
491 members
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Diabetes + Disability
64 members
Courtneyv's Discussions
It is What it is...............
Latest Activity
Darlene, Thanks for reply, have you tryed regular inset from animas if so how have you found the difference between the two. Also with the Contact Detach do you find then fairly easy to insert? Thanks Darlene.........CourtneyV
Hi Courtney I use the Contact Detach set and it works wonderful....you put it straight in and their is no tubing it has a real needle and it does work for me you might want to check on those......I used to use the insets 30 I have little fat mass ...
Have tryed the Tegaderm, we now use IV Prep and IV frame around it. Glad to hear you can get that many days out of your site , let's your body rest a bit..................thanks for reply.be good....Courtneyv
Have you tried putting on a Tegaderm patch before putting down either site??
It helps create a barrier between the site and the skin - which a lot of people tend to have problems with, either the adhesive doesn't stick well (which was my problem ...
My son has Autism so for now it's not appropriate for him to disconnect/reconnect and give bolus. Who knows as time passes as we and the disease progress' perhaps that will change. For now it's winter here and the swimming has halted, we are havin...
My son was diagnosed 2 years ago, he is 9 years old. We began on Humalog and Lantus injections for a year, started the pump after. We currently use Animas Ping. We are having several pump problems and thought I should share some of the challenges....
Depending on how old your son is could you train him to disconnect his set and reconnect it? Also can he be trusted or trained to give boluses?
I have used the following sets...
Disetronic Rapid, Rapid D, and Ultraflex
MiniMed Sof-Set, Quick Set, Silhouette, Polyfin
Unomedical Inset
Cleo 90
Out of all of these sets I have 3 favorites!
Inset 90
Ultraflex
Cleo 90
What you want to do is t...
Profile Information
- Hometown (where you come from):
- Philadelphia
- Do you have diabetes?
- No
- Type of diabetes
- Type 1
- Date diagnosed
- February 2, 2008
- Most recent A1C (Blood Glucose Average) Value
- 6.7
- What glucose meter do you use?
- quick touch
- Type of treatment you use
- Shots
- How did you find out about us? What were you searching for?
- autism and diabetes
- What do you do for a living?
- mom/artist
Comment Wall (28 comments)
- At 8:19am on October 24, 2009,
Michiko said… - Hi Courtney! Thanks for leaving a comment. Good to know more people who're fighting and dealing with the same battle. Alliance! :)
- At 7:31am on October 21, 2009,
Marps said… - Hi Courtney. I'm sorry to hear about the struggles with your son. It must be so hard to not know what to do to fix it!
yes, my sites would get red, irritated, and ooze. And it was very painful. I haven't read any of your posts yet, so I don't know the age of your son, but I like the KwikPens the best.
The hardest part of switching back to the pens, after using the pump, was the brands of long-acting. I could still use the Humalog (same that I was using in the pump) but for long-acting, I was put on Lantus for about 6 months. Lantus put me into insulin shock comas while I was sleeping. From what I remember, I went through 5 insulin shock comas in 6 months. It was exhausting, and really really scary. So, I switched to Levemir and haven't had an issue since! It's been 2 years.
You may want to talk to the doctor about his reactions to the catheters. I was told three things:
1. I was allergic to the catheter plastic
2. Humalog was too thick of an insulin to fit through the pump tubes in hot weather (insulin swells a little in heat)
3. I was growing anti-bodies against short acting and needed to go back on long acting to support it.
I don't know if any or all of these apply to your son, but it's a start, I guess. :)
Let me know if I can help at all. I've been through a lot- and like you said, I don't have anyone here to talk to- so I know what it's like.
I'm here.
I don't sign onto TuD very much anymore, but I will try to come in once a week.
- At 8:27am on February 24, 2009,
Natalie said… - I came across your profile while reading through comments under the Omnipod review. I would just like to say you must be an amazing mommy! My 2 year old son was diagnosed with Type 1 Nov. 2007 and it has been a time of many struggles and I have a friend with a 4 year old with autism and I know the stuggles they have. I can't even imagine combining the 2! And from your picture it looks like you have a little one also! I have an 8 1/2 month daughter and a 5 year old also. I hope things are going well for you and your family!
- At 2:47pm on February 23, 2009,
Punk said… - Hi Cortney,
You were saying 5 times with ketones in the last 12 months Dane has started puberty and he has to have higher basals at some times of the day.The only time he has had them is when he first got sick and we didnt know what was wrong.Thank god he hasnt had them again.Is it when Luke is sick that he gets them? One blessing is that Dane doesnt get sick very often.
Had to stay up till after 12 last night couldnt seem to get him out of a hypo....Night ones seem to be a bit slow to respond to treatement and its hard when you are trying to shove lollies and drinks into a half asleep child!
Am so tired today that is probably the hardest part for me I never seem to get enough sleep.
I sent an invite for the group so you should get that right away.
Take care
Kim
- At 1:25am on February 23, 2009,
Punk said…
- Hello again ,
Nice to hear back from you again.We all have such busy lives its hard to stay in touch sometimes.Sorry to hear Luke was sick as well.How did you get rid of his Ketones? I thought you would end up in hospital if they got too high.
Dane has settled into school really well this year and we have just started to see a pyschologist to help him as well.
Kim
- At 11:53pm on February 18, 2009,
Punk said…
- Hi Courtney,
Sorry its been so long since Ive been in touch, I havent been on the site for ages.Hope all is going well with you and your son.Dane just got over a nasty gastric virus but I managed to keep him at home with some help from the doctor.
Kasi has started a Autistic Diabetics group if you would like to join.
- At 12:00pm on December 25, 2008,
Jonah said…
- I wanted to say that I have been diagnosed with both Asperger's and t1 diabetes.
- At 7:12pm on December 3, 2008,
Dave said… - Hello,
Sorry it has take two weeks for me to get back to you I ddn't see that you left a comment for me.
I think I understand your question and will do my best to answer it!!! You mention taking extra carbs because of exercise this is often the case because you don't want to go low but the better way to deal with it is to reduce your insulin amount through a temp basal if you pump. It took me along time and much experimentation to get this down and to work correctly.
If you take shots this becomes more challenging when I took Lantus I would go low very quickly once I started to increase my activity level. This is caused by the instability of long acting insulin, site selection and your bodies overall ability to absorb insulin.
As I mentioned before I do a Temp basal, I start this 2 hours before I am going to exercise because I don't want to have to eat in order to work out. I drop my basal to 25 or 50% for the length of time that I am going to be exercising. This usually prevent me from going low or having to eat. Depending on my intensity level I may have to bolus when I am done because my BG may actually be a bit high.
Well what happens 24 hours later because of the effects of exercise you had asked? For me not much at least that I can notice. Everyone's body is different. If you use a pump you could program a pattern in so that on exercise days you could have your basal rates adjusted. If you have eaten food so that you won't go low but find that your BG is out of range after you have finished with you activity I would bolus to get the numbers back under control because your short acting insulin is going to be out of your system in 4 hours and if you are concerned that you will go low 24 hours later there is a good chance you will be eating again and adjusting your bolus based on your BG at that given time.
Hopefully this answers your question. Feel free to ask me any clarifying questions about my answer.
Good luck---Dave
- At 6:44pm on October 31, 2008,
Liz said… - Hi Courtney,
I've been using the Ping for a week now, I was on MMs for 13 years prior. Like Jenny, I switched for customer service related issues. 4 1/2 years ago, I had the same billing problem she did, only I was told 1 yr later that I owed $1800 for the pump. They had originally told me my insurance covered 100%. As a company, I enjoyed MiniMed much more before they were bought by Medtronic.
I did have one problem with this last pump - we went camping over a weekend & the pump gave out on me with an irreparable motor error. FedEx didn't do Saturday deliveries to where we were (or to my home), so I was out of luck & on injections for the weekend. 3 days of injections out of 13 years of pumping isn't bad, I suppose, but still... Animas will provide you with a "loaner" pump when you travel. Granted, I wouldn't go thru the effort for just a weekend, but we'll be camping over Thanksgiving, in a rural area, & for an extended time next year as well, when I ABSOLUTELY will make sure I have a backup.
So, back to the Ping... I'm really enjoying it so far. I love the remote meter. So much so that I really have to focus on using the pump! Also, I'm a mac user & for the first time ever, I'm able to download my data!! Hurray! These were probably the biggest selling points to me, because it seems that when you boil it down to the features you really need & use, all pumps are fairly similar. (That's of course once I've knocked out the Omnipod, because I probably WOULD knock out the Omnipod! )
The Inset 30 infusion set has been a big revelation to me as well. Now, bear in mind that the Sof-serter I've been using from Minimed is ages old... I couldn't believe how pain-free & noise-free inserting the Inset 30 was. The first thing I said was, "That's it?" The Sof-serter (at least mine) makes a loud "thwack" & gives you a real solid thump.
I'm happy to answer any more questions you have. Good luck!
- At 4:15pm on October 27, 2008,
Nina said… - Hello Courtneyv. I was touched to read the words "eight" and "diabetic." Makes me feel not so alone.
I'll be glad to let you know how all goes with the Animas Ping, but I'm guessing that in the early days I may be rather frantic. I'm grateful that my son will be up and running on it when he comes out of the honeymoon stage, just for the increased control. In fact, I think that was part of his endo's strategy.
We also looked at the Omnipod, and my son wore it successfully for three days - in the shower, during soccer, etc... But he said it bothered him when he slept. Maybe he / we will look at it again in the future when he is older, it was just so big for his body.
I think there are great things about all the pumps, and it's a matter of what's important to your lifestyle. For us we really wanted waterproof (we are on a lake in the summer), and I liked the very small doses. They are supposed to call this week to tell me when to expect the delivery, wish us luck!
(p.s. Is your name Russian?)
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