We did have a big adjustmet when Lilly was diagnosed, because we knew next to nothing about D. It was so scary, i kept thinking that they must have had it wrong. With Evie we had a feeling that something wasn't right for a while before we got her antibody tests back.  She had some off BG readings, never high enough to be D, but off enough that we knew it wasn't normal. My 5 year old seems to assume that she will also get D. Every once in a while she asks me to check her BG, and she is measures her own food even though she doesn't need to. Evie will remember non d life, since she was 9 at cinical onset, but the rest won't. Even Lilly now has a hard time remebering what it was like before she needed to do checks and shots... Sad that this is the new norm.

hi Daun

Lilly is 7, she was 6 when she was diagnosed, and she was the first. She was also in severe DKA with diagnosis, she actually was in a coma, because we had a misdiagnosis 24 hours earlier at the oncall ped., we didn't take her in to the hospital until she began to be unresponsive.  We found out a month later that she had no natural insulin what-so-ever, so her numbers are still crazy. Evie (Genevieve) is 9, and she was diagnosed this year.  She was caught very early also, so early that the hospital didn't want to admit her, until i pushed them to contact the endo department.  She is doing extremely well, but she had the advantage of getting used to the idea rather than being suprised by it like we were with lilly! so far the 2 little ones are negative for the auto-antibodies, but we know that can change so they will be screened every year.

I just saw on your blog that you get up every night to check on them. i do too, i feel like a zombie, but i am terrified that something will happen during the night. i have a sigh of relief every morning when they wake up and talk to me.  it didn't used to be this bad, until Lilly had a severe low first thing in the morning this summer, and i found her siezing on the living room floor. since then i have been petrified that it could happen in the middle of the night and i wouldn't know!  Lilly is getting a temporary CGM tomorrow and we are in the process of getting our own.  I am hoping this will give us some peace!

i hope to chat with you again!

charis jo