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Elizabeth
  • Female
  • Buxton, Maine
  • United States
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Life Changed On October 6

Latest Activity

Thanks for this... I'm working on a book and will include this info in the resources section.
November 15
This is why I love tudiabetes.com. Every last person here has been through this and even if our experiences are a little bit different, we all "get it" and you can pretty much count on someone being here to pick you up when you're feeling down. My...
November 15
A blog post by Elizabeth was featured
Just got a letter from Anthem. They have reversed their decision about Eric's insulin pump. I'm at once thrilled and annoyed. It's not that I didn't think they would—I mean, the medical necessity was obvious, and there was no way they could deny t...
November 15
Trying to write, not successfully. Some days, it just won't flow.
November 15

Profile Information

Hometown (where you come from):
Buxton ME
Do you have diabetes?
I have a relative/friend with diabetes
Type of diabetes
Type 1
Date diagnosed
October 7, 2008
Most recent A1C (Blood Glucose Average) Value
8.2 (October 2009)
What glucose meter do you use?
One Touch
Type of treatment you use
Pump
What pump model do you use, if any?
Medtronic Paradigm
What do you expect from TuDiabetes?
Support, ideas, sympathetic ears, community
How did you find out about us? What were you searching for?
recipes for treats for a diabetic child
Who referred you? (if anyone)
Found posting on diabeticpastrychef.com
What do you do for a living?
Health writer/editor

So here's my basic story

I am suddenly the mother of a toddler with Type 1 diabetes. The odyssey started on October 6th, 2008. Before that date, I'd noticed that Eric was peeing through his diapers at night, that he was really thirsty all the time in the evenings, and the possibility of diabetes had crossed my mind and was lurking there. But October 6 was the day Eric's daycare provider phoned me at work and told me she'd noticed he was thirsty all the time during the day, too. As soon as I got that info, I called the pediatrician and left a message--I wanted Eric checked out. All the drive home I was praying that we'd find out it was something else. But the next day, when I picked up my boys from the daycare en route to the pediatrician (Eric is 18 months, Nate is 3 1/2), I felt pretty sure what the verdict would be. And when Dr. Foster came into the room looking uncharacteristically anxious and said, "Well, Mom, you were right..." my heart just sank.

What I DIDN’T know was that he was already in serious trouble—diabetic ketoacidosis was underway, though you’d never know it to look at him, and the next stop on that train is a place no parent wants to go. I picked the boys up from daycare and went to the pediatrician thinking I’d get my diagnosis and go home with instructions to see an endocrinologist within the next day or two; instead, we were sent straight to the ER, do not pass go do not collect $200, met at the door by the pediatric endocrinologist on call, with me trying to keep Nate under control while listening to doctor explain what was happening, while the Dread Hamster of Parental Fear used my brain for a exercise ball. His blood glucose was 569, that much I remember, and his ketones were high too--the rest is something of a blur. Eric did well, even laughing when we were wheeled through the halls of the hospital on a gurney; considering how sick he was and how terrible he must have been feeling, it shows just how cheery his nature is. And of course Nate was with us and just loved it, although he kept doing little kid stuff like pointing at some guy on a stretcher who looked like he was having a heart event and saying loudly, “Mommy, is that guy REALLY TIRED?? Why’s he lying down?” Or at the person on chemotherapy: “Look, mommy, that guy has no hair!” (it was a woman. Aren’t kids great?) At one point Dr Olshan himself took on the task of keeping Nate locked down while the nurse was attending to Eric with my help, and he asked me if I’d ever before had a $200-an-hour babysitter. Which made me laugh, but also made me think about Eric’s less-than-stellar insurance coverage (but that’s another gripe for another day).

From there we went to the ICU, with tubes and wires and all that stuff. Mark took Nate home, while I got to stay to comfort my little pickle. What followed was an agonizing night in which I got no sleep, had to hold my screaming son down as ICU nurses drew blood and inserted IVs (I’ve threaded sewing needles bigger than his little veins, so it was torture to watch), and was wakened hour after hour to assist as they performed blood glucose and ketone tests. By the time they came for the 3 am round of testing, Eric was so exhausted he didn’t even wake when they stuck him... And I was little better, waking just enough to identify who it was leaning over my son before closing my eyes again. Thank GOD, Eric responded very well to the insulin—by mid-day he was practically back to normal.

We spent 2 1/2 days in the pediatric ward learning how to stick our child with needles, then came home to a completely new reality. One I'm only starting to get attuned to.

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Elizabeth's Blog

Elizabeth

Score one for the good guys!

Just got a letter from Anthem. They have reversed their decision about Eric's insulin pump. I'm at once thrilled and annoyed. It's not that I didn't think they would—I mean, the medical necessity was obvious, and there was no way they could deny that in the face of all the documentation we provided. I'm annoyed that the extra effort was necessary, though.

It came at a good time, however — we've spent the whole week cosseting little boys sick with swine flu. Just as I feared, the virus got to my… Continue

Posted on November 12, 2009 at 4:37pm — 4 Comments

Elizabeth

The insurance appeals process - take note!!!!

So yesterday I called Anthem to check on my appeal of the denial of Eric's pump coverage. I guess I didn't put anything in about this, but the deal is, on October 7 his endo sent a letter to Anthem detailing that Eric's pump is medically necessary. Having had no acknowledgment of this letter in the past 3 weeks, I called them to check on it. Was told that the letter hadn't been sent to the Appeals Department because a specific one-page form that is supposed to accompany such letters (of which no… Continue

Posted on October 31, 2009 at 8:30am — 6 Comments

Elizabeth

The steady march downward - Eric's a1c getting better

At our one-month pump follow-up today, Eric's a1c had fallen from 8.4 to 8.2; if we continue at this rate, we'll be below 8.0 for the first time since his diagnosis by the end of the year. We've come to the conclusion that his pancreas is finally giving up completely, as his basals have been creeping upward. It was very encouraging -- Eric has gained another pound and grown a half inch, and he's happy and healthy and doing great. I feel like things are finally looking up. Maybe it was just that… Continue

Posted on October 16, 2009 at 10:13am — 5 Comments

Elizabeth

One year later

I can't believe a whole year has passed. Sometimes it seems much longer than that, other times like it went by in an instant. I've learned so much, yet I know so little.

Posted on October 7, 2009 at 3:05pm — 4 Comments

Elizabeth

Not just annoyed, but angry at my insurance company

So I learned today that Eric's endo DID send the documentation to Medtronic when we applied for a pump--it's SOP when they submit a pump application. Something fishy is going on here and I'm thinking it must be at Anthem's end. See, I find it hard to believe that Medtronic didn't pass this documentation along, because they wouldn't have sent me the pump OR given me a payment plan if they hadn't had assurance from Anthem that the pump would be covered—Anthem, after all, had to tell them just HOW… Continue

Posted on October 5, 2009 at 5:04pm — 6 Comments

Comment Wall (71 comments)

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At 10:18pm on October 13, 2009, Sohair Abdel-Rahman said…



Thanks Elizabeth for your kind words,time passes so quickly,glad all is well with our little darling.Take care.
At 11:13am on October 13, 2009, Christopher Smith said…
Yes he's as full blooded as you can get. What a good looking boy Sam is.
At 7:01am on October 13, 2009, Christopher Smith said…
Hey, would like to see Sam, got any pic's.....That's my brothers name too.
At 7:06pm on October 5, 2009, Katie Smith said…
Ugh! We had the problem of a crimped line just yesterday. We were out to dinner and I checked Jude's BG. It was 600! We rushed home and changed everything out. It was back down within 2 hours but GEEZZ...they definitely didn't warn us about that in all of the 10 classes we had to take!
At 2:37pm on September 14, 2009, Suzanne said…
Been keeping up with your blogs, seems like things are finally starting to even out! Stay strong and don't forget that you are doing a great job!
At 1:46pm on September 9, 2009, Robin Orthman said…
My daughter was just diagnosed on August 1, 2009, she is 13 years old. Most of the questions that we have right now are about the pumps and how they work, especially with the CGM. There is so many factors in dealing with diabetes, I think that reading other peoples experiences are the most helpful. It helps to know that she is not the only one that has trouble controlling her highs/lows and that she is not necessarily doing anything wrong. I think a Q&A book is a great idea. We have spent hours and hours looking on the internet for things like that.
At 10:32am on September 7, 2009, Suzanne said…
The degassing technique works easier for the minimed supplies because of that plastic piece that holds the vial upright. I have figured out how to do it with Animas supplies but I wish they had that piece too. Hope that helps out, here is a link to another video for that is helpful as well. Bill is using a cozmo pump but you can use some of his tips with your pump, I do it all the time. Bill and I run this site so that people can find our videos (and response videos that people do for us) easier :)
At 7:08pm on April 25, 2009, Jessica Park said…
Hi, Elizabeth,
I'm glad you were able to stick with nursing during diagnosis. I think I was in such shock and overwhelmed, I was just doing whatever they told me to do, although I quickly realized that not everyone has the same opinion on many things medically speaking. I am thankful we were able to continue nursing until we could wean at a more peaceful time...That's partly why I wrote about the various details of Elisabeth's diagnosis so that others who have little ones who are still nursing, etc. can have more insight and know there are others who have been down this road as well.

Hope your little one is feeling well and you all are getting more comfortable with your new routine. Again, feel free to send any questions our way and I would recommend a book (the pink panther book on pumping) that is companion to the pink panther book on diabetes. It even has a chart which compares all the features of the various pumps, or at least the most popular ones.

Take care!
At 7:49pm on April 23, 2009, Jessica Park said…
Hi, Elizabeth!
I just saw your questions on the pros & cons of pumps for little ones. Not sure if you've already made your decision, but we love the pump for our Elisabeth, so feel free to send any questions our way. We recently had to do 24 hours of shots when she had a pump problem and needed a new one, and my husband and I realized how much of a blessing the pump is. She literally jumped up and down when her new pump arrived and she didn't have to do injections anymore.

Take care!
Jessica
At 1:55pm on April 16, 2009, Josephine said…
You are very welcome.
 
 

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