Life Changed On October 6

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Elizabeth replied to crys's discussion 'help... hi ketones'
"Mark, sneaking food might account for the high BGs but it would not cause ketones. If he has ketones, it means one thing: he isn't getting insulin. Not just short acting insulin for food, but long acting insulin. So either there's an issue…"
19 hours ago
Marie B left a comment for Elizabeth
"HAHA, maybe you'll luck out and he'll stay the sweetie. I've heard that such kids exist (j/k, I know a bunch who are)"
20 hours ago
Elizabeth replied to Catvet's discussion 'Anti GAD antibodies'
"There are some clinical trials going on that you may want to look into, but I think you would not be eligible for them while pregnant — still, they could give you some ideas for further research. Take a look on TRIALNet for LADA trials —…"
yesterday
Elizabeth left a comment for Marie B
"Besides, I'm going to need all these people to walk me through it when I have a grumpy teenager on my hands instead of a sweet natured 7 year old ;)"
yesterday
Elizabeth left a comment for Marie B
"AW, shucks. Just trying to give back what I got when Eric was little. Soothing the panic!"
yesterday
Marie B left a comment for Elizabeth
"Hi Elizabeth, I just wanted to stop by and say how much your thoughtful replies (esp to parents) are appreciated. Thanks for being here!"
yesterday
Elizabeth replied to crys's discussion 'help... hi keytones'
"OK, I just saw on your profile that he's on shots. Presumably you have a long-acting insulin like Lantus or Levemir that he takes once a day, plus a short-acting insulin like Novolog or Humalog that he takes for meals — is this the…"
yesterday
Elizabeth replied to crys's discussion 'help... hi keytones'
"Is he on a pump, or getting shots?"
yesterday

Profile Information

The PRIMARY person in my life who has diabetes is
1 or more of my children
The PRIMARY person in my life who has diabetes has
Type 1 or type 1.5 (LADA) diabetes
How do you hope to benefit from TuDiabetes?
Support, ideas, sympathetic ears, community
Date diagnosed
October 7, 2008
Most recent HbA1C %, date of result (optional)
7.2 (September 4 2014)
Type of treatment/devices you use
Pump
What pump model do you use, if any?
Medtronic Paradigm 522
Enter your website, if any (blog, Facebook, Twitter)
http://www.twitter.com/fenbeast

So here's my basic story

I suddenly became the mother of a child with Type 1 diabetes in an odyssey that started on October 6th, 2008, when Eric was a toddler. Before that date, I'd noticed that Eric was peeing through his diapers at night, that he was really thirsty all the time in the evenings, and the possibility of diabetes had crossed my mind and was lurking there. But October 6 was the day Eric's daycare provider phoned me at work and told me she'd noticed he was thirsty all the time during the day, too. As soon as I got that info, I called the pediatrician and left a message — I wanted Eric checked out. All the drive home I was praying that we'd find out it was something else. But the next day, when I picked up my boys from the daycare en route to the pediatrician (Eric was 18 months, Nate was 3 1/2), I felt pretty sure what the verdict would be. And when Dr. Foster came into the room looking uncharacteristically anxious and said, "Well, Mom, you were right..." my heart just sank.

What I DIDN’T know was that he was already in serious trouble—diabetic ketoacidosis was underway, though you’d never know it to look at him, and the next stop on that train is a place no parent wants to go. I picked the boys up from daycare and went to the pediatrician thinking I’d get my diagnosis and go home with instructions to see an endocrinologist within the next day or two; instead, we were sent straight to the ER, do not pass go do not collect $200, met at the door by the pediatric endocrinologist on call, with me trying to keep Nate under control while listening to doctor explain what was happening, while the Dread Hamster of Parental Fear used my brain for a exercise ball. His blood glucose was 569, that much I remember, and his ketones were high too — the rest is something of a blur. Eric did well, even laughing when we were wheeled through the halls of the hospital on a gurney; considering how sick he was and how terrible he must have been feeling, it shows just how cheery his nature is. And of course Nate was with us and just loved it, although he kept doing little kid stuff like pointing at some guy on a stretcher who looked like he was having a heart event and saying loudly, “Mommy, is that guy REALLY TIRED?? Why’s he lying down?” Or at the person on chemotherapy: “Look, mommy, that guy has no hair!” (it was a woman. Aren’t kids great?) At one point Dr Olshan himself took on the task of keeping Nate locked down while the nurse was attending to Eric with my help, and he asked me if I’d ever before had a $200-an-hour babysitter. Which made me laugh, but also made me think about Eric’s less-than-stellar insurance coverage (but that’s another gripe for another day).

From there we went to the ICU, with tubes and wires and all that stuff. Mark took Nate home, while I got to stay to comfort my little pickle. What followed was an agonizing night in which I got no sleep, had to hold my screaming son down as ICU nurses drew blood and inserted IVs (I’ve threaded sewing needles bigger than his little veins, so it was torture to watch), and was wakened hour after hour to assist as they performed blood glucose and ketone tests. By the time they came for the 3 am round of testing, Eric was so exhausted he didn’t even wake when they stuck him... And I was little better, waking just enough to identify who it was leaning over my son before closing my eyes again. Thank GOD, Eric responded very well to the insulin—by mid-day he was practically back to normal.

We spent 2 1/2 days in the pediatric ward learning how to stick our child with needles, then came home to a completely new reality. We learned about insulin, we learned about needles, we learned about insulin pumps and all their assorted accessories; we learned about highs, lows, ketones, why an antiemetic is a good thing, and the many ways that insurance companies try to dodge paying the bill. I suspect we'll be learning more and more for years to come.

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Elizabeth's Blog

Nightmare travel FAIL

Posted on August 6, 2014 at 3:00pm 11 Comments

Today was the day Eric and I were going to have our special outing to LegoLand, which was a way of making up to him the fact he couldn't go to camp with his brother and cousins.

The trip was an unmitigated disaster.

In an epic Mom fail, we wound up 120 miles from home with absolutely NO INSULIN, because Eric took his pump off without telling me and I did not discover this until we…

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D is for... demigod?

Posted on July 15, 2014 at 10:30am 0 Comments

I've always done everything in my power to make sure Eric and Nate have the same opportunities, D or no D. But this week... Nate went to summer camp.

And suddenly, unexpectedly, Eric was jealous.

I have two very different boys here. Nate is outdoorsy, athletic, rough-and-tumble, enjoys (ENJOYS!) doing farm chores, can take or leave the electronics (unless, of course, he's competing with Eric for control of the iPad), likes to read books. Eric is much less physical, much more…

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Just another day in the life

Posted on May 1, 2014 at 6:00am 2 Comments

The morning thus far:

7:00 AM: First BG of the morning was sky high (328). Checked for ketones, those too were sky high (4.5). Looked at pump site, found cannula full of blood (must've been a restless night). Brand new site, less than 12 hours old, clearly was toast. Pasted a blop of lido/prilo cream on the next available site location, dosed Eric with a whopping 7.5 units of insulin to account for high BG, high ketones, and anticipated 65-g breakfast, and…

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Checking for monsters

Posted on April 27, 2014 at 12:35am 6 Comments

It's 2:30 a.m., and I just performed what I call a "monster check", and can't get back to sleep for thinking. So up comes the blog.

"Monster check" is one of those expressions that is my way of pigeonholing the fears that go with parenting a child with diabetes. It's a BG test that you make when you wake in the middle of the night and go test your child for no other reason than that you can't stop thinking of their last low (or high) and obsess about whether you'll find them in an…

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The Bad Kind

Posted on April 12, 2014 at 8:27am 18 Comments

It's almost a cliche to say that the most annoying response people make to learning your child has Type 1 diabetes is to say, "Is that the bad kind?" To everyone in the know, that level of ignorance is bothersome on many levels, which we can summarize via the various responses that pop into my head (and sometimes out my mouth, depending on how annoying the questioner seems):

• "Well, there IS no 'good' kind of diabetes."

• "If you mean, does he need to take insulin for the rest…

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Comment Wall (123 comments)

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At 11:43am on September 16, 2014, Marie B said…

HAHA, maybe you'll luck out and he'll stay the sweetie. I've heard that such kids exist (j/k, I know a bunch who are)

At 7:15am on September 16, 2014, Marie B said…

Hi Elizabeth, I just wanted to stop by and say how much your thoughtful replies (esp to parents) are appreciated. Thanks for being here!

At 5:12am on July 16, 2014, rick the "Blogabetic" said…

Elizabeth, I do not know what it means to have a child so young with diabetes. I am thankful. Though I grew up with diabetes I was not diagnosed until I was 17.

But I do know a few situations where children have diabetes and live in a multi-child family. I think you did the camp thing about as good as anyone I know. When I was diagnosed I left one month later for a months worth of backpacking in New Mexico. My mom was ok with it because as I said I grew up with the disease and that was my last summer before my senior year in HS.

Had I been younger, with a non diabetic sibling I think my mom would have said almost the very same things you did in that situation. I cannot give you a higher compliment than saying that.

rick

At 6:13pm on July 14, 2014, Linda G said…

GREAT Elizabeth!!! You're a FEATURE MEMBER!! BRAVA!

At 3:47pm on October 9, 2013, Linda G said…

BRAVA ON BEING A FEATURED MEMBER ELIZABETH!!

At 5:32pm on October 8, 2013, rick the "Blogabetic" said…

Elizabeth congratulations on being named a featured member of the week.

At 6:56am on August 30, 2013, Linda G said…

HEY!!! You're a FEATURED MEMBER! BRAVO!

At 4:50pm on August 26, 2013, Mom of a Winner said…

Thank you.

At 6:23am on August 26, 2013, Sandy said…

Hi Elizabeth!! Congrats on being featured!! I'm enjoying your blog! ANd your boys are adorable!!

At 4:02am on August 26, 2013, Mom of a Winner said…

Congratulations!

 
 
 

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Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


DHF VOLUNTEERS


Lead Administrator

Bradford (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

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