I suddenly became the mother of a child with Type 1 diabetes in an odyssey that started on October 6th, 2008, when Eric was a toddler. Before that date, I'd noticed that Eric was peeing through his diapers at night, that he was really thirsty all the time in the evenings, and the possibility of diabetes had crossed my mind and was lurking there. But October 6 was the day Eric's daycare provider phoned me at work and told me she'd noticed he was thirsty all the time during the day, too. As soon as I got that info, I called the pediatrician and left a message — I wanted Eric checked out. All the drive home I was praying that we'd find out it was something else. But the next day, when I picked up my boys from the daycare en route to the pediatrician (Eric was 18 months, Nate was 3 1/2), I felt pretty sure what the verdict would be. And when Dr. Foster came into the room looking uncharacteristically anxious and said, "Well, Mom, you were right..." my heart just sank.
What I DIDN’T know was that he was already in serious trouble—diabetic ketoacidosis was underway, though you’d never know it to look at him, and the next stop on that train is a place no parent wants to go. I picked the boys up from daycare and went to the pediatrician thinking I’d get my diagnosis and go home with instructions to see an endocrinologist within the next day or two; instead, we were sent straight to the ER, do not pass go do not collect $200, met at the door by the pediatric endocrinologist on call, with me trying to keep Nate under control while listening to doctor explain what was happening, while the Dread Hamster of Parental Fear used my brain for a exercise ball. His blood glucose was 569, that much I remember, and his ketones were high too — the rest is something of a blur. Eric did well, even laughing when we were wheeled through the halls of the hospital on a gurney; considering how sick he was and how terrible he must have been feeling, it shows just how cheery his nature is. And of course Nate was with us and just loved it, although he kept doing little kid stuff like pointing at some guy on a stretcher who looked like he was having a heart event and saying loudly, “Mommy, is that guy REALLY TIRED?? Why’s he lying down?” Or at the person on chemotherapy: “Look, mommy, that guy has no hair!” (it was a woman. Aren’t kids great?) At one point Dr Olshan himself took on the task of keeping Nate locked down while the nurse was attending to Eric with my help, and he asked me if I’d ever before had a $200-an-hour babysitter. Which made me laugh, but also made me think about Eric’s less-than-stellar insurance coverage (but that’s another gripe for another day).
From there we went to the ICU, with tubes and wires and all that stuff. Mark took Nate home, while I got to stay to comfort my little pickle. What followed was an agonizing night in which I got no sleep, had to hold my screaming son down as ICU nurses drew blood and inserted IVs (I’ve threaded sewing needles bigger than his little veins, so it was torture to watch), and was wakened hour after hour to assist as they performed blood glucose and ketone tests. By the time they came for the 3 am round of testing, Eric was so exhausted he didn’t even wake when they stuck him... And I was little better, waking just enough to identify who it was leaning over my son before closing my eyes again. Thank GOD, Eric responded very well to the insulin—by mid-day he was practically back to normal.
We spent 2 1/2 days in the pediatric ward learning how to stick our child with needles, then came home to a completely new reality. We learned about insulin, we learned about needles, we learned about insulin pumps and all their assorted accessories; we learned about highs, lows, ketones, why an antiemetic is a good thing, and the many ways that insurance companies try to dodge paying the bill. I suspect we'll be learning more and more for years to come.
This is going to be a long blog post… but I woke up today feeling like I had to write it because I see so many people not understand the subject. And it’s important for people with diabetes — and parents of children with type 1 diabetes especially — to know what’s going on when ketones are present.
I see a lot of parents saying that high blood sugars and ketones go hand in hand, and that if you let your child’s blood sugar get…Continue
I realized something the other day.
Even as I found myself making progress toward putting the anguish of Eric's diabetes diagnosis behind me, Eric himself is making amazing strides at learning what he needs to know to take care of himself. For instance, just in the past six months, he has:
• Started taking his own blood sugar readings (I had to bribe him, but once he'd done it once, he seemed to really like the…Continue
At swimming lessons last week, I had an interesting encounter with another mom.
When we arrived at the pool, I did what we usually do: I sent the boys in to change into their bathing suits, then Eric came out to give me his pump and get a blood sugar drawn. He was lower than I wanted him before an hour-long swimming lesson (84), so I gave him some juice and a couple of lifesaver candies to bring his blood glucose up enough to get through the class without a low. I barely noticed the…Continue
Today is the sixth anniversary of Eric's diagnosis. And you know what? I didn't remember that until I had to run to the nurse's office to give her a new meter (the 5-year-old OneTouch Ultralink meter we'd gotten with Eric's pump gave up the ghost, not unexpectedly). When I signed into the school, I put the date down, and realized... oh.
What's funny is that October 6 and 7 represent a 2-day anniversary of what remains, and hopefully will always remain, the worst 48-hour period I've…Continue
Today was the day Eric and I were going to have our special outing to LegoLand, which was a way of making up to him the fact he couldn't go to camp with his brother and cousins.
The trip was an unmitigated disaster.
In an epic Mom fail, we wound up 120 miles from home with absolutely NO INSULIN, because Eric took his pump off without telling me and I did not discover this until we…Continue