I suddenly became the mother of a child with Type 1 diabetes in an odyssey that started on October 6th, 2008, when Eric was a toddler. Before that date, I'd noticed that Eric was peeing through his diapers at night, that he was really thirsty all the time in the evenings, and the possibility of diabetes had crossed my mind and was lurking there. But October 6 was the day Eric's daycare provider phoned me at work and told me she'd noticed he was thirsty all the time during the day, too. As soon as I got that info, I called the pediatrician and left a message — I wanted Eric checked out. All the drive home I was praying that we'd find out it was something else. But the next day, when I picked up my boys from the daycare en route to the pediatrician (Eric was 18 months, Nate was 3 1/2), I felt pretty sure what the verdict would be. And when Dr. Foster came into the room looking uncharacteristically anxious and said, "Well, Mom, you were right..." my heart just sank.
What I DIDN’T know was that he was already in serious trouble—diabetic ketoacidosis was underway, though you’d never know it to look at him, and the next stop on that train is a place no parent wants to go. I picked the boys up from daycare and went to the pediatrician thinking I’d get my diagnosis and go home with instructions to see an endocrinologist within the next day or two; instead, we were sent straight to the ER, do not pass go do not collect $200, met at the door by the pediatric endocrinologist on call, with me trying to keep Nate under control while listening to doctor explain what was happening, while the Dread Hamster of Parental Fear used my brain for a exercise ball. His blood glucose was 569, that much I remember, and his ketones were high too — the rest is something of a blur. Eric did well, even laughing when we were wheeled through the halls of the hospital on a gurney; considering how sick he was and how terrible he must have been feeling, it shows just how cheery his nature is. And of course Nate was with us and just loved it, although he kept doing little kid stuff like pointing at some guy on a stretcher who looked like he was having a heart event and saying loudly, “Mommy, is that guy REALLY TIRED?? Why’s he lying down?” Or at the person on chemotherapy: “Look, mommy, that guy has no hair!” (it was a woman. Aren’t kids great?) At one point Dr Olshan himself took on the task of keeping Nate locked down while the nurse was attending to Eric with my help, and he asked me if I’d ever before had a $200-an-hour babysitter. Which made me laugh, but also made me think about Eric’s less-than-stellar insurance coverage (but that’s another gripe for another day).
From there we went to the ICU, with tubes and wires and all that stuff. Mark took Nate home, while I got to stay to comfort my little pickle. What followed was an agonizing night in which I got no sleep, had to hold my screaming son down as ICU nurses drew blood and inserted IVs (I’ve threaded sewing needles bigger than his little veins, so it was torture to watch), and was wakened hour after hour to assist as they performed blood glucose and ketone tests. By the time they came for the 3 am round of testing, Eric was so exhausted he didn’t even wake when they stuck him... And I was little better, waking just enough to identify who it was leaning over my son before closing my eyes again. Thank GOD, Eric responded very well to the insulin—by mid-day he was practically back to normal.
We spent 2 1/2 days in the pediatric ward learning how to stick our child with needles, then came home to a completely new reality. We learned about insulin, we learned about needles, we learned about insulin pumps and all their assorted accessories; we learned about highs, lows, ketones, why an antiemetic is a good thing, and the many ways that insurance companies try to dodge paying the bill. I suspect we'll be learning more and more for years to come.
"In many of the more relaxed civilizations on the Outer Eastern Rim of the Galaxy, the Hitchhiker's Guide has already supplanted the great Encyclopaedia Galactica as the standard repository of all knowledge and wisdom, for though it has many omissions and contains much that is apocryphal, or at least wildly inaccurate, it scores over the older, more pedestrian work in two important respects.…Continue
Eric has had an insulin pump since he was 2 years old. Many of my anxieties about it have centered on the idea that he might get his little hands on it and press the wrong buttons... because Eric is an inquisitive child, and he loves nothing better than to push buttons. It's hell on our thermostat — I can't begin to describe the number of times the little monkey has turned the heat off, or jacked it up to 75, or down to 58, simply out of his love of button-pushing. That's why he wears his…Continue
One of the things I love about Eric's endocrinologist is that he is a very, very funny guy. He loves kids, and he puts them at ease by clowning with them (there's even a photo of him dressed up in clown makeup, which I gather from the nurses was his Halloween costume a few years back).
Eric thinks he's great, and told him so at our visit yesterday.
"You're my fave-rit doctor," he said.
"Oh really? Why?" asked Dr. O.
"Because you don't give him shots," I said…Continue
My older D-free son Nathaniel was home "sick" yesterday. "Sick" in quotes, because though he'd puked prodigiously the night before, I pegged that as being a predictable outcome of his having eaten, (against my caring-parental advice) 12 chicken nuggets, two donuts, a 12-ounce glass of milk, and if my reading of the output was accurate, at least three chocolate chip cookies, the latter explicitly forbidden. One can only say so often, "Don't eat so much or you'll get a tummyache" before one…Continue
Eric's endo visit today gave me a bit of a shock. His a1c had gone up substantially, from 7.4 to 7.9. I knew his numbers hadn't been great, but that bad??
The CDE and I assessed his numbers, and while we agreed that we needed to do an overnight basal check, she also said that perhaps a basal check for the afternoon would be valuable too. I'd noted a strange pattern... not daily, but certainly fairly frequent... in which he got on the school bus in range and was sky high when he…Continue