Life Changed On October 6

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Elizabeth replied to Emily Coles's discussion 'What are we afraid of?'
"Funny, I don't really worry about them much. When Eric was first diagnosed, I thought about them a lot and was very sad and frightened, but over time I came to realize that we could just do the best we could and try to keep his BGs and A1cs at…"
yesterday
Elizabeth replied to Sara's discussion 'Issues w/ pumps after going through security' in the group Minimed Paradigm Insulin Pump Users
"Huh. I've used all different kinds of batteries and never had any issues. I'm using Energizer rechargeables now only because I like being able to recharge them and not throw them away. I *did* notice that store-brand batteries don't…"
yesterday
Elizabeth replied to Jamie's discussion 'Shyness toward diabetes at School' in the group parents of kids with Type 1
"My son is so young, I haven't attempted any of these presentations, but when I am with him (on a field trip, say) and the kids see me using Eric's pump, they always watch and I can see questions in their eyes. Usually, I will…"
yesterday
Elizabeth and Jamie are now friends
yesterday
Elizabeth replied to Jay (JJ)'s discussion 'Products to Treat Low BG' in the group parents of kids with Type 1
"When you're dealing with a low, cavities are pretty much the last thing you want to worry about, because the fastest way to get glucose into the system is through the mouth. If need be, they can chew sugar free gum after taking juice or glucose…"
Wednesday
Elizabeth replied to kaitype1's discussion 'How many Carbs?' in the group parents of kids with Type 1
"I'm going to come in on the side of Cheryl and say it may not be such a good idea to carb-reduce in a teenager. Keep in mind, they are growing and experiencing brain development. For that, they need glucose. LOTS of glucose. And to process the…"
May 17
Elizabeth replied to karatejoe's discussion 'reminder to myself'
"I had a frantic call from the school nurse the other day, telling me Eric was north of 400. I grabbed the insulin & syringe and went over to the school. When I got there, she said (somewhat shamefaced) she'd re-tested him and found him at…"
May 15
Elizabeth commented on Elizabeth's blog post 'Don't panic — advice to the newly diagnosed'
"But he DIDN'T PANIC. And so lived to die another day. Or almost die. Mostly."
May 15

Profile Information

The PRIMARY person in my life who has diabetes is
1 or more of my children
The PRIMARY person in my life who has diabetes has
Type 1 or type 1.5 (LADA) diabetes
How do you hope to benefit from TuDiabetes?
Support, ideas, sympathetic ears, community
Date diagnosed
October 7, 2008
Most recent HbA1C %, date of result (optional)
7.4 (March 5 2013)
Type of treatment/devices you use
Pump
What pump model do you use, if any?
Medtronic Paradigm 522
Enter your website, if any (blog, Facebook, Twitter)
http://www.twitter.com/fenbeast

So here's my basic story

I suddenly became the mother of a child with Type 1 diabetes in an odyssey that started on October 6th, 2008, when Eric was a toddler. Before that date, I'd noticed that Eric was peeing through his diapers at night, that he was really thirsty all the time in the evenings, and the possibility of diabetes had crossed my mind and was lurking there. But October 6 was the day Eric's daycare provider phoned me at work and told me she'd noticed he was thirsty all the time during the day, too. As soon as I got that info, I called the pediatrician and left a message — I wanted Eric checked out. All the drive home I was praying that we'd find out it was something else. But the next day, when I picked up my boys from the daycare en route to the pediatrician (Eric was 18 months, Nate was 3 1/2), I felt pretty sure what the verdict would be. And when Dr. Foster came into the room looking uncharacteristically anxious and said, "Well, Mom, you were right..." my heart just sank.

What I DIDN’T know was that he was already in serious trouble—diabetic ketoacidosis was underway, though you’d never know it to look at him, and the next stop on that train is a place no parent wants to go. I picked the boys up from daycare and went to the pediatrician thinking I’d get my diagnosis and go home with instructions to see an endocrinologist within the next day or two; instead, we were sent straight to the ER, do not pass go do not collect $200, met at the door by the pediatric endocrinologist on call, with me trying to keep Nate under control while listening to doctor explain what was happening, while the Dread Hamster of Parental Fear used my brain for a exercise ball. His blood glucose was 569, that much I remember, and his ketones were high too — the rest is something of a blur. Eric did well, even laughing when we were wheeled through the halls of the hospital on a gurney; considering how sick he was and how terrible he must have been feeling, it shows just how cheery his nature is. And of course Nate was with us and just loved it, although he kept doing little kid stuff like pointing at some guy on a stretcher who looked like he was having a heart event and saying loudly, “Mommy, is that guy REALLY TIRED?? Why’s he lying down?” Or at the person on chemotherapy: “Look, mommy, that guy has no hair!” (it was a woman. Aren’t kids great?) At one point Dr Olshan himself took on the task of keeping Nate locked down while the nurse was attending to Eric with my help, and he asked me if I’d ever before had a $200-an-hour babysitter. Which made me laugh, but also made me think about Eric’s less-than-stellar insurance coverage (but that’s another gripe for another day).

From there we went to the ICU, with tubes and wires and all that stuff. Mark took Nate home, while I got to stay to comfort my little pickle. What followed was an agonizing night in which I got no sleep, had to hold my screaming son down as ICU nurses drew blood and inserted IVs (I’ve threaded sewing needles bigger than his little veins, so it was torture to watch), and was wakened hour after hour to assist as they performed blood glucose and ketone tests. By the time they came for the 3 am round of testing, Eric was so exhausted he didn’t even wake when they stuck him... And I was little better, waking just enough to identify who it was leaning over my son before closing my eyes again. Thank GOD, Eric responded very well to the insulin—by mid-day he was practically back to normal.

We spent 2 1/2 days in the pediatric ward learning how to stick our child with needles, then came home to a completely new reality. We learned about insulin, we learned about needles, we learned about insulin pumps and all their assorted accessories; we learned about highs, lows, ketones, why an antiemetic is a good thing, and the many ways that insurance companies try to dodge paying the bill. I suspect we'll be learning more and more for years to come.

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Elizabeth's Blog

Don't panic — advice to the newly diagnosed

Posted on May 6, 2013 at 1:30pm 8 Comments

"In many of the more relaxed civilizations on the Outer Eastern Rim of the Galaxy, the Hitchhiker's Guide has already supplanted the great Encyclopaedia Galactica as the standard repository of all knowledge and wisdom, for though it has many omissions and contains much that is apocryphal, or at least wildly inaccurate, it scores over the older, more pedestrian work in two important respects.…

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Today, we pushed buttons

Posted on April 7, 2013 at 2:30pm 1 Comment

Eric has had an insulin pump since he was 2 years old. Many of my anxieties about it have centered on the idea that he might get his little hands on it and press the wrong buttons... because Eric is an inquisitive child, and he loves nothing better than to push buttons. It's hell on our thermostat — I can't begin to describe the number of times the little monkey has turned the heat off, or jacked it up to 75, or down to 58, simply out of his love of button-pushing. That's why he wears his…

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Visiting the endocrinologist: a comedy in 2 parts

Posted on March 6, 2013 at 4:26pm 13 Comments

One of the things I love about Eric's endocrinologist is that he is a very, very funny guy. He loves kids, and he puts them at ease by clowning with them (there's even a photo of him dressed up in clown makeup, which I gather from the nurses was his Halloween costume a few years back).

Eric thinks he's great, and told him so at our visit yesterday.

"You're my fave-rit doctor," he said.

"Oh really? Why?" asked Dr. O.

"Because you don't give him shots," I said…

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Answering the unanswerable question

Posted on January 15, 2013 at 7:30am 11 Comments

My older D-free son Nathaniel was home "sick" yesterday. "Sick" in quotes, because though he'd puked prodigiously the night before, I pegged that as being a predictable outcome of his having eaten, (against my caring-parental advice) 12 chicken nuggets, two donuts, a 12-ounce glass of milk, and if my reading of the output was accurate, at least three chocolate chip cookies, the latter explicitly forbidden. One can only say so often, "Don't eat so much or you'll get a tummyache" before one…

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In your 504 Plan, don't forget the lunch ladies

Posted on December 4, 2012 at 9:30am 5 Comments

Eric's endo visit today gave me a bit of a shock. His a1c had gone up substantially, from 7.4 to 7.9. I knew his numbers hadn't been great, but that bad??

The CDE and I assessed his numbers, and while we agreed that we needed to do an overnight basal check, she also said that perhaps a basal check for the afternoon would be valuable too. I'd noted a strange pattern... not daily, but certainly fairly frequent... in which he got on the school bus in range and was sky high when he…

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Comment Wall (108 comments)

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At 4:12am on November 27, 2012, Linda G said…

You're a featured member....BRAVA ELIZABETH!!!!

At 7:19am on November 13, 2012, jrtpup said…

Got it, thanks Elizabeth!

At 6:07am on November 8, 2012, jrtpup said…

Our Annual Campaign is coming!

Would you consider helping by writing a short comment/testimonial about your
experiences at TuD? The main message for the campaign this year is that no
one with diabetes should ever feel alone. Messages from our community give
people a real-life, personal sense of how valuable TuDiabetes is to each of
us, how it's changed our lives, etc.

If you can, please include a photo of you doing something diabetic (if that
makes sense LOL). Please post to this group
(http://www.tudiabetes.org/group/why-i-participate-in-this-community), or message to me from my page.

Thanks my friends!

At 9:02am on September 28, 2012, Marie B said…

hey Elizabeth, good for Eric on branching out into new territory! hope you can join us this afternoon for the video chat, 2 well known pumping experts will be on to answer your questions
http://www.tudiabetes.org/events/live-videochat-with-ruth-roberts-and-john-walsh-authors-of-pumpin

At 10:10am on March 24, 2012, Linda G said…

Bravo on being a featured member Elizabeth!! How is Eric??

At 8:35am on February 18, 2012, Jacob's mom said…

Hi elizabeth, i noticed eric just had the stomach bug, my biggest fear even before D, so glad you made it through ok, the last time jacob had one he had to go to the ER for fluids and zofran, the ER doc was old school( we went to the closest thinking he just needed fluids) and said basically dont worry dear we all have ketones when we have the stomach bug, luckily he went off shift and we got a "real" doctor who did more testing and consulted with the pedi endo i had been speaking with before i brought him in, sadly he moved to FL! in any case just wanted to congratulate you on navigating the tricky road so well! have a good weekend and hopefully the bug does not get anyone else, especially you! best wishes, amy

At 9:29am on January 17, 2012, muleman said…

Going to pray for you that you get the job. Don't know what storyBird is but sounds good!Lovely to see a small child on a horse to!

At 6:03am on November 24, 2011, lotsofshots said…

At 5:38pm on November 22, 2011, jrtpup said…

An inch in a month? Wow! Good going on keeping the A1C down ;)

At 11:46am on November 1, 2011, MarysMom said…
thanks elizabeth!
 
 
 

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TuDiabetes Team

DHF STAFF

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Emily Walton
(Business Manager)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Heather Gabel
(Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator
Bradford (has type 1)

Administrators
Lorraine (mother of type 1)
Marie B (has type 1)

Teena (has type 2)

Brian (bsc) (has type 2)

jrtpup (has type 1)

 

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