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Emily Coles's Discussions

Tell FDA your thoughts on the proposed Nutrition Fact Label (by Aug. 1)

Started this discussion. Last reply by Manny Hernandez 16 hours ago. 24 Replies

A change to the Nutrition Label we are so familiar with and food serving sizes used in labels is currently being considered by the Food and Drug Administration (FDA).Commenting on the dockets …Continue

Tags: ADA, food labeling, nutrition labeling, FDA

Consensus Conference on glucose monitoring, patient input needed!

Started this discussion. Last reply by shoshana27 on Friday. 5 Replies

On September 28th there will be a Consensus Conference in DC, in which representatives from (1) government, payers, employers; (2)…Continue

Tags: feedback, FDA, CGM, glucose monitoring, strip safely

Ask Manny!!!

Started this discussion. Last reply by Lilli D on Friday. 14 Replies

We're going to test-run a new idea on TuDiabetes:"Ask Manny"  This mini-program will consist of short video clips of our Founder,…Continue

Tags: DHF, Diabetes Hands Foundation, Ask Manny

 

Emily Coles

DHF Head of Communities

Hi TuDiabetes community. I'm the Diabetes Hands Foundation Head of Communities, and here's a bit about me:

I'm originally from Pennsylvania, but have lived in San Francisco since 1996, and consider it home now.

I was diagnosed with type I diabetes in 1978, when there was no structured way for people with diabetes to connect. My parents tracked down another family with a diabetic child my age, and every few months we would drive 2 hours to visit them so that I could have a "peer". And do you know what? I did not like that kid AT ALL. But she was my entire diabetic peer group up until I went to college, so there we were.

Look how different it is to have diabetes now! Bye-bye, rotten kid. Now I've got thousands of potential diabetic friends to share with, all right here.

In college I studied biology and considered going into medicine, but opted for "life experience" before making such a commitment. In 1996 I moved to San Francisco and made my way into public health, by way of much volunteering and networking. At the time there was strong focus on HIV/AIDS-related work in SF, and I became a research assistant in the SF AIDS Office within the Public Health Department. Soon thereafter I decided to go back to school for epidemiology in order to progress into a career studying infectious disease, which I did in 2000, at Stanford University.

Epidemiology turned out not to be quite the right fit for me. I got the degree, but the actual work was too solitary. Lots of numerical data, not much human interaction.

... So of course the logical next step was to become a ballroom dance teacher. ALL human interaction! I worked for a dance studio from 2005 to 2008, and then for myself from 2008 to the present. I love it, and I still teach, perform and compete in ballroom dance to this day.

All through this story I still had diabetes, of course, and it has always been a main theme in my life, even as I've tried to focus my attention elsewhere. In 2010 I decided to go ahead and DO something with it. That decision eventually led me to Diabetes Hands Foundation, and I could not be more thrilled that it did! My position here combines perfectly my passion for public health and advocacy, my love of personal human contact, and my long- and hard-earned knowledge of diabetes.

Latest Activity

Manny Hernandez replied to Emily Coles's discussion 'Tell FDA your thoughts on the proposed Nutrition Fact Label (by Aug. 1)'
"Update: When this topic started there were 440 comments posted on the FDA docket for proposed changes to the Nutrition Label: http://www.regulations.gov/#!documentDetail;D=FDA-2012-N-1210-0130 Now there are 497! As to proposed changes to Food…"
16 hours ago
Manny Hernandez replied to Emily Coles's discussion 'Tell FDA your thoughts on the proposed Nutrition Fact Label (by Aug. 1)'
"Excellent! It's important that all Canadians on TuDiabetes participate. On the page you linked to I found this link to participate in the dialog: http://www.hc-sc.gc.ca/ahc-asc/minist/messages/_2014/2014_07_14-eng.php Even if we agree,…"
16 hours ago
Nyadach commented on Emily Coles's event 'Live Interview with Doug Baum, making better glucagon with Xeris Pharmaceuticals'
"Sounds like some great progress you guys are going. You mention room temperature stable, does that mean outside for example you are still working on a formulation which will be stable for the high variances of everyday life etc? is there an eta on…"
yesterday
Nyadach might attend Emily Coles's event
Thumbnail

Live Interview with Doug Baum, making better glucagon with Xeris Pharmaceuticals at TuDiabetes homepage

July 31, 2014 from 10am to 10:30am
10:00am PT (1pm ET, 6pm GMT)What time is this where you are?How to watch this live event Check out what Xeris Pharmaceuticals is working on!  And their…See More
yesterday
Emily Coles posted videos
yesterday
millieska replied to Emily Coles's discussion 'Tell FDA your thoughts on the proposed Nutrition Fact Label (by Aug. 1)'
"They are going through a similar process in Canada. Read about it here: http://news.gc.ca/web/article-en.do?nid=867669."
yesterday
shoshana27 replied to Emily Coles's discussion 'What D-issues are most important to YOU?'
"Trudy i agree 100% with you about insulin & also which meter & test strips & which pump , etc... we can use as PWD whose LIFE DEPENDS ON THESE."
yesterday
Trudy replied to Emily Coles's discussion 'What D-issues are most important to YOU?'
"Frankly I don't think that there's any help for this problem, but it bothers me greatly that insurance companies insist on telling us which kind of insulin we can take. I need, NEED, Levemir and Apidra and every January my doctor has to…"
yesterday
Lilli D replied to Emily Coles's discussion 'Ask Manny!!!'
"Thanks Manny!"
Friday
Manny Hernandez replied to Emily Coles's discussion 'Ask Manny!!!'
"Here you go, Karen: "
Friday
Manny Hernandez replied to Emily Coles's discussion 'Ask Manny!!!'
Friday
Emily Coles posted events
Friday
Dee replied to Emily Coles's discussion 'Tell FDA your thoughts on the proposed Nutrition Fact Label (by Aug. 1)'
""the elimination of 'serving size' and its replacement by nutritional content per 100 gm." Good idea."
Friday
meee replied to Emily Coles's discussion 'Tell FDA your thoughts on the proposed Nutrition Fact Label (by Aug. 1)'
":)"
Friday
meee replied to Emily Coles's discussion 'Tell FDA your thoughts on the proposed Nutrition Fact Label (by Aug. 1)'
"Thanks Manny :)"
Friday
shoshana27 replied to Emily Coles's discussion 'What D-issues are most important to YOU?'
"I agree with all of you here To get what we need & how much we need to take care of ourselves T1 for over 77 years We've come a long way...let's not stop now"
Friday

Profile Information

The PRIMARY person in my life who has diabetes is
me
The PRIMARY person in my life who has diabetes has
Type 1 or type 1.5 (LADA) diabetes
How do you hope to benefit from TuDiabetes?
Community, information, friends with experiences similar to some of mine.
Date diagnosed
March 15, 1978
Most recent HbA1C %, date of result (optional)
7.1, Nov 2012
Type of treatment/devices you use
Pump, CGM, Diet and Exercise
What pump model do you use, if any?
Animas Ping

Emily Coles's Photos

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Emily Coles's Blog

I just need a witness

Posted on May 9, 2014 at 1:30pm 13 Comments

I awoke at 7am this morning with a BG of 433.  Did a pretty conservative injection.  Awoke at 9am with a BG of 25.

I'm fine, physically and emotionally.  I just needed to share that with some folks who understand what kind of start to the day that is.

Thanks and big hugs, y'all

THANK YOU, from the team at Diabetes Hands Foundation

Posted on December 30, 2013 at 11:15am 3 Comments

thankssmall

As the year comes to a close, and our families come together for a merry good time near the warmth of the fire, our attention turns to those who have made our progress possible. In the spirit of the holidays and sending virtual hugs, we want to say sincerely, thank you.

Thank you for supporting the work we do.

Thank you for participating.

Thank you for showing up when it counts.

Thank you for sharing our mission.

Thank you for being open…

Continue

Thanksgiving: A few tips for PWD

Posted on November 21, 2013 at 5:00pm 0 Comments

By guest writer Jonathan Jarashow, Publisher of Walgreens Diabetes & You magazine

(Jonathan@hcrimson.com)

 

During my two decades as the publisher of Walgreens Diabetes & You and walgreensdiabetes.com, I published a large collection of articles about the holidays. With Thanksgiving right around the corner, I thought it would be a…

Continue

Join the Thunderclap!

Posted on November 4, 2013 at 3:30pm 0 Comments

International Diabetes Federation just started a Thunderclap campaign to raise awareness on World Diabetes Day!

 

Thunderclap is a website that allows people to pledge to Tweet or Facebook a message all on the same time day and at the exact same time, in order to achieve the maximum effect. They aim to reach at least 250 supporters at the latest on Nov.14 but the more supporters they get, the more successful the campaign will…

Continue

Emily Coles's Videos

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Comment Wall (324 comments)

You need to be a member of Diabetes community by Diabetes Hands Foundation: TuDiabetes to add comments!

Join Diabetes community by Diabetes Hands Foundation: TuDiabetes

At 12:41pm on July 21, 2014, Berniedettie said…

This sparkling rose is just awesome

At 6:30pm on July 19, 2014, lotsofshots said…
At 5:01am on June 27, 2014, rick the "Blogabetic" said…

Emily: thank you so much for the chat yesterday with Chris and Lorraine Stiehl, it was fantastic. Thank you for what you do for our community.

rick

At 10:46am on June 25, 2014, Judith in Portland said…

You did it!!!!!. Thanks, sweetie. Ooodles. Gotta run now, but look forward to hearing just HOW!.....xx000

At 8:01am on June 24, 2014, catlover said…
Hi Emily-Unfortunately, due to other medical problems, other than D, I am unable to continue on the care team. I am also moving in early August to a new home and am quite busy with that. I will show up on TuD whenever I can and welcome new members to this special site. It has been very rewarding being on the care team. Catlover
At 4:00pm on June 23, 2014, Jim Roach said…

Hi Emily, count me in for continued support on the Care Team. Thanks Jim

At 8:12pm on June 18, 2014, grahamo said…

I'll be a frind to anyone who supports Life for a Child like you do, and anyone who likes my socks - smile.
Good to meet you and the team, see you in Boston next year!

At 4:47pm on June 8, 2014, wendy said…

Emily,think we could have Mary back one day soon ? :)

At 2:52pm on June 7, 2014, eulalio rocha said…

I'm insulin dependent type 2 diabetic.at bed time i take 12-units of lantus glargine at bed time, during the course of the day.am-2-units,lunch time 4-units, dinner time 4-units.before breakfast readings ( 85-110 )about one and half later I take a walk for half hour.and my blood pressure runs under 140 over 60-55.seems good how do I GET OFF OF IN SULIN? DIBETIC 2 SINCE 1993

At 2:41pm on June 7, 2014, eulalio rocha said…

 
 
 

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REsources

From the Diabetes Hands Foundation blog...

DHF Partners with HelpAround in an Effort to Connect People Touched by Diabetes

  Leer en español Technology has the amazing ability to ease the stress associated with diabetes; It simply makes our lives a little more bearable. That’s why we are excited to announce DHFs partnership with HelpAround. This new application will help Read on! →

La Diabetes Hands Foundation y HelpAround uniendo las personas tocadas por la diabetes

  Para nuestra comunidad de diabetes la tecnología ha venido a llenar muchos vacíos y a hacer de nuestras vidas un poco mas llevaderas. Eso mismo nos proporciona una nueva aplicación de geo-localización llamada HelpAround (Ayuda a tu alrededor). HA Read on! →

Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


DHF VOLUNTEERS


Lead Administrator

Bradford (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

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