Emily Coles
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  • San Francisco, CA
  • United States
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Emily Coles's Discussions

Tell FDA your thoughts on the proposed Nutrition Fact Label (by Aug. 1)

Started this discussion. Last reply by Manny Hernandez 6 hours ago. 28 Replies

A change to the Nutrition Label we are so familiar with and food serving sizes used in labels is currently being considered by the Food and Drug Administration (FDA).Commenting on the dockets …Continue

Tags: ADA, food labeling, nutrition labeling, FDA

Consensus Conference on glucose monitoring, patient input needed!

Started this discussion. Last reply by shoshana27 on Friday. 5 Replies

On September 28th there will be a Consensus Conference in DC, in which representatives from (1) government, payers, employers; (2)…Continue

Tags: feedback, FDA, CGM, glucose monitoring, strip safely

Ask Manny!!!

Started this discussion. Last reply by Linda G 14 hours ago. 17 Replies

CLICK HERE to go straight to the answers, without reading the thread.We're going to test-run a new idea on…Continue

Tags: #AskManny, @AskManny, Diabetes Hands Foundation, DHF, Ask Manny

 

Emily Coles

DHF Head of Communities

Hi TuDiabetes community. I'm the Diabetes Hands Foundation Head of Communities, and here's a bit about me:

I'm originally from Pennsylvania, but have lived in San Francisco since 1996, and consider it home now.

I was diagnosed with type I diabetes in 1978, when there was no structured way for people with diabetes to connect. My parents tracked down another family with a diabetic child my age, and every few months we would drive 2 hours to visit them so that I could have a "peer". And do you know what? I did not like that kid AT ALL. But she was my entire diabetic peer group up until I went to college, so there we were.

Look how different it is to have diabetes now! Bye-bye, rotten kid. Now I've got thousands of potential diabetic friends to share with, all right here.

In college I studied biology and considered going into medicine, but opted for "life experience" before making such a commitment. In 1996 I moved to San Francisco and made my way into public health, by way of much volunteering and networking. At the time there was strong focus on HIV/AIDS-related work in SF, and I became a research assistant in the SF AIDS Office within the Public Health Department. Soon thereafter I decided to go back to school for epidemiology in order to progress into a career studying infectious disease, which I did in 2000, at Stanford University.

Epidemiology turned out not to be quite the right fit for me. I got the degree, but the actual work was too solitary. Lots of numerical data, not much human interaction.

... So of course the logical next step was to become a ballroom dance teacher. ALL human interaction! I worked for a dance studio from 2005 to 2008, and then for myself from 2008 to the present. I love it, and I still teach, perform and compete in ballroom dance to this day.

All through this story I still had diabetes, of course, and it has always been a main theme in my life, even as I've tried to focus my attention elsewhere. In 2010 I decided to go ahead and DO something with it. That decision eventually led me to Diabetes Hands Foundation, and I could not be more thrilled that it did! My position here combines perfectly my passion for public health and advocacy, my love of personal human contact, and my long- and hard-earned knowledge of diabetes.

Latest Activity

Mark Harmel commented on Emily Coles's video
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CGM and Medicare: Why Can't We Use It?

"A big thank to all of you for helping to promote the CGM video. Progress is being made and a bill to provide Medicare coverage has been introduced! I received a report today that a new bill was introduced for Medicare coverage of CGM. U.S. Senators…"
18 minutes ago
NancyT1D1969 is attending Emily Coles's event
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Live Interview with Grace Murphy, 10-year-old Bionic Pancreas trial participant at TuDiabetes homepage

August 4, 2014 from 9am to 10am
9am PT  (11am CT, 12pm ET, 5pm GMT)What time is this where you are?How to watch this live eventGrace and her mom, Nancy, will be joining us fresh from Grace's summer camp for kids with diabetes, where she got to try out the Bionic Pancreas for ONE WEEK!Grace has had T1D since 2011 and uses an insulin pump and continuous…See More
1 hour ago
Frank Olsen commented on Emily Coles's video
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CGM and Medicare: Why Can't We Use It?

"Thanks Al, I'm learning that it all depends on where you live and what plans are availible in ones state and county. Medicare coverage for CGM's is rare so you are quite lucky! I might have to wait for the next congress and hope HR3710, to…"
4 hours ago
NancyT1D1969 liked Emily Coles's event Live Interview with Grace Murphy, 10-year-old Bionic Pancreas trial participant
4 hours ago
Baby Peanut commented on Emily Coles's video
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CGM and Medicare: Why Can't We Use It?

"funny thing was i initially called dexcom, the rep wasn't too optimistic but said he'd put it in. i gave them my info over the phone, that was that until i heard from the pharmacy not too long after. i just ordered a refill on the sensors,…"
5 hours ago
Al commented on Emily Coles's video
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CGM and Medicare: Why Can't We Use It?

"U-Care,MN Not a pumper,shots. No hoops, just filled out 2 Dexcom forms and they did the rest, checked with my provider, placed order with supplier, notified me I had 100% coverage, no co-pays and set me up on monthly auto refill. Key was DME…"
6 hours ago
Emily Coles replied to Andrew's discussion 'Lets play high/ low. What's your highest and lowest reading you recall, EVER?'
"High: HI Low: 27 good times :)"
6 hours ago
Frank Olsen commented on Emily Coles's video
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CGM and Medicare: Why Can't We Use It?

"Al, which advantage plan do you have? If you are a pump user are your pump supplies covered under that same plan? Did you have to jump through any hoops to get coverage? Thanks, Frank"
6 hours ago
Manny Hernandez replied to Emily Coles's discussion 'Tell FDA your thoughts on the proposed Nutrition Fact Label (by Aug. 1)'
"To make your comment be taken into account by the FDA, it needs to be posted on the appropriate docket: - Nutrition label: http://www.regulations.gov/#!submitComment;D=FDA-2012-N-1210-0130 - Serving sizes:…"
6 hours ago
11 events by Emily Coles were featured
7 hours ago
Emily Coles posted events
7 hours ago
roguediabetic replied to Emily Coles's discussion 'Tell FDA your thoughts on the proposed Nutrition Fact Label (by Aug. 1)'
"As a member of Dr. Bernstein's Diabetes Solution group and a diabetic who follows a very low carbohydrate diet it's my opinion that the proposed changes are useless at best or worse yet will be damaging to diabetics in particular but also…"
7 hours ago
3 videos by Emily Coles were featured
7 hours ago
Al commented on Emily Coles's video
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CGM and Medicare: Why Can't We Use It?

"I have a Medicare Advantage plan and the Dexcom CGM is covered 100% under DME,same as test strips."
7 hours ago
Emily Coles posted videos
7 hours ago
Emily Coles liked rick the "Blogabetic"'s blog post Consensus Conference on glucose monitoring, patient input needed!
8 hours ago

Profile Information

The PRIMARY person in my life who has diabetes is
me
The PRIMARY person in my life who has diabetes has
Type 1 or type 1.5 (LADA) diabetes
How do you hope to benefit from TuDiabetes?
Community, information, friends with experiences similar to some of mine.
Date diagnosed
March 15, 1978
Most recent HbA1C %, date of result (optional)
7.1, Nov 2012
Type of treatment/devices you use
Pump, CGM, Diet and Exercise
What pump model do you use, if any?
Animas Ping

Emily Coles's Photos

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Emily Coles's Blog

Queens and Kings of Carb Counting Share Their Secrets

Posted on July 28, 2014 at 4:00pm 1 Comment

From the Integrated Diabetes services Blog

The results are in. Apparently, there is universal interest in the topic, because we received hundreds of entries in our carb counting contest from people as far away as Eastern Europe and Australia. We all think we’re “experts” after years of label reading and WAG counting, but our three winners really showed their expertise and scored high…

Continue

I just need a witness

Posted on May 9, 2014 at 1:30pm 13 Comments

I awoke at 7am this morning with a BG of 433.  Did a pretty conservative injection.  Awoke at 9am with a BG of 25.

I'm fine, physically and emotionally.  I just needed to share that with some folks who understand what kind of start to the day that is.

Thanks and big hugs, y'all

THANK YOU, from the team at Diabetes Hands Foundation

Posted on December 30, 2013 at 11:15am 3 Comments

thankssmall

As the year comes to a close, and our families come together for a merry good time near the warmth of the fire, our attention turns to those who have made our progress possible. In the spirit of the holidays and sending virtual hugs, we want to say sincerely, thank you.

Thank you for supporting the work we do.

Thank you for participating.

Thank you for showing up when it counts.

Thank you for sharing our mission.

Thank you for being open…

Continue

Thanksgiving: A few tips for PWD

Posted on November 21, 2013 at 5:00pm 0 Comments

By guest writer Jonathan Jarashow, Publisher of Walgreens Diabetes & You magazine

(Jonathan@hcrimson.com)

 

During my two decades as the publisher of Walgreens Diabetes & You and walgreensdiabetes.com, I published a large collection of articles about the holidays. With Thanksgiving right around the corner, I thought it would be a…

Continue

Comment Wall (324 comments)

You need to be a member of Diabetes community by Diabetes Hands Foundation: TuDiabetes to add comments!

Join Diabetes community by Diabetes Hands Foundation: TuDiabetes

At 12:41pm on July 21, 2014, Berniedettie said…

This sparkling rose is just awesome

At 6:30pm on July 19, 2014, lotsofshots said…
At 5:01am on June 27, 2014, rick the "Blogabetic" said…

Emily: thank you so much for the chat yesterday with Chris and Lorraine Stiehl, it was fantastic. Thank you for what you do for our community.

rick

At 10:46am on June 25, 2014, Judith in Portland said…

You did it!!!!!. Thanks, sweetie. Ooodles. Gotta run now, but look forward to hearing just HOW!.....xx000

At 8:01am on June 24, 2014, catlover said…
Hi Emily-Unfortunately, due to other medical problems, other than D, I am unable to continue on the care team. I am also moving in early August to a new home and am quite busy with that. I will show up on TuD whenever I can and welcome new members to this special site. It has been very rewarding being on the care team. Catlover
At 4:00pm on June 23, 2014, Jim Roach said…

Hi Emily, count me in for continued support on the Care Team. Thanks Jim

At 8:12pm on June 18, 2014, grahamo said…

I'll be a frind to anyone who supports Life for a Child like you do, and anyone who likes my socks - smile.
Good to meet you and the team, see you in Boston next year!

At 4:47pm on June 8, 2014, wendy said…

Emily,think we could have Mary back one day soon ? :)

At 2:52pm on June 7, 2014, eulalio rocha said…

I'm insulin dependent type 2 diabetic.at bed time i take 12-units of lantus glargine at bed time, during the course of the day.am-2-units,lunch time 4-units, dinner time 4-units.before breakfast readings ( 85-110 )about one and half later I take a walk for half hour.and my blood pressure runs under 140 over 60-55.seems good how do I GET OFF OF IN SULIN? DIBETIC 2 SINCE 1993

At 2:41pm on June 7, 2014, eulalio rocha said…

 
 
 

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REsources

From the Diabetes Hands Foundation blog...

DHF Partners with HelpAround in an Effort to Connect People Touched by Diabetes

  Leer en español Technology has the amazing ability to ease the stress associated with diabetes; It simply makes our lives a little more bearable. That’s why we are excited to announce DHFs partnership with HelpAround. This new application will help Read on! →

La Diabetes Hands Foundation y HelpAround uniendo las personas tocadas por la diabetes

  Para nuestra comunidad de diabetes la tecnología ha venido a llenar muchos vacíos y a hacer de nuestras vidas un poco mas llevaderas. Eso mismo nos proporciona una nueva aplicación de geo-localización llamada HelpAround (Ayuda a tu alrededor). HA Read on! →

Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


DHF VOLUNTEERS


Lead Administrator

Bradford (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

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