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Emily Coles's Discussions

Self-monitoring study for people with type 2 diabetes

Started Aug 29 0 Replies

Researchers from Columbia University are looking for individuals with type 2 diabetes to participate in a self-monitoring study. The purpose of the study is to collect a set of data to develop and…Continue

Tags: research, type 2, survey, study

Study: TuDiabetes member attitudes and experiences

Started this discussion. Last reply by swisschocolate Aug 30. 3 Replies

A group of researchers from the Department of Biomedical Informatics of Columbia University is conducting a study of the TuDiabetes community. They are interested in understanding users’ attitudes,…Continue

Tags: interview, survey, study, research, community

Seeking people with Type 2, on insulin injections, for study of needle-free glucagon

Started Aug 4 0 Replies

A clinical study for a new needle-free glucagon for treatment of severe hypoglycemia in people on insulin is being conducted at several centers in the US.  The study is currently seeking adults…Continue

Tags: glucagon, type 2, t2

Tell FDA your thoughts on the proposed Nutrition Fact Label (by Aug. 1)

Started this discussion. Last reply by jbowler Aug 4. 32 Replies

A change to the Nutrition Label we are so familiar with and food serving sizes used in labels is currently being considered by the Food and Drug Administration (FDA).Commenting on the dockets …Continue

Tags: ADA, food labeling, nutrition labeling, FDA

 

Emily Coles

DHF Head of Communities

Hi TuDiabetes community. I'm the Diabetes Hands Foundation Head of Communities, and here's a bit about me:

I'm originally from Pennsylvania, but have lived in San Francisco since 1996, and consider it home now.

I was diagnosed with type I diabetes in 1978, when there was no structured way for people with diabetes to connect. My parents tracked down another family with a diabetic child my age, and every few months we would drive 2 hours to visit them so that I could have a "peer". And do you know what? I did not like that kid AT ALL. But she was my entire diabetic peer group up until I went to college, so there we were.

Look how different it is to have diabetes now! Bye-bye, rotten kid. Now I've got thousands of potential diabetic friends to share with, all right here.

In college I studied biology and considered going into medicine, but opted for "life experience" before making such a commitment. In 1996 I moved to San Francisco and made my way into public health, by way of much volunteering and networking. At the time there was strong focus on HIV/AIDS-related work in SF, and I became a research assistant in the SF AIDS Office within the Public Health Department. Soon thereafter I decided to go back to school for epidemiology in order to progress into a career studying infectious disease, which I did in 2000, at Stanford University.

Epidemiology turned out not to be quite the right fit for me. I got the degree, but the actual work was too solitary. Lots of numerical data, not much human interaction.

... So of course the logical next step was to become a ballroom dance teacher. ALL human interaction! I worked for a dance studio from 2005 to 2008, and then for myself from 2008 to the present. I love it, and I still teach, perform and compete in ballroom dance to this day.

All through this story I still had diabetes, of course, and it has always been a main theme in my life, even as I've tried to focus my attention elsewhere. In 2010 I decided to go ahead and DO something with it. That decision eventually led me to Diabetes Hands Foundation, and I could not be more thrilled that it did! My position here combines perfectly my passion for public health and advocacy, my love of personal human contact, and my long- and hard-earned knowledge of diabetes.

Latest Activity

Profile IconBabs and Eric joined Emily Coles's group
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TuDiabetes Beta-Tester Team

This group is for people who are interested in trying out new diabetes-related smart phone and web-based applications that are in development, and giving feedback to help the developers make them as useful to people with diabetes as possible.  It's a great chance to to let the folks who are working to improve life with diabetes know exactly what we want and need.See More
8 hours ago
Emily Coles and Jennifer are now friends
Friday
A video by Emily Coles was featured

TuDiabetes Live Interview with Marina Tsaplina, clown and puppeteer with diabetes

Marina is the founder and catalyst of The Betes. She has lived with type 1 diabetes since she was 2 years old. When she was little she wanted to be an artist, a dancer, a teacher and a diabetes doctor. The Betes is her doing precisely that, with a…
Friday
Emily Coles posted a video

TuDiabetes Live Interview with Marina Tsaplina, clown and puppeteer with diabetes

Marina is the founder and catalyst of The Betes. She has lived with type 1 diabetes since she was 2 years old. When she was little she wanted to be an artist...
Friday
Emily Coles posted a note

Resources for D-Parents

Information on this page represents a sample of the content available on TuDiabetes, curated by members of the community and sponsored by Diabetes Hands Foundation. This is not an exhaustive list of the resources offered here, but may be viewed as a…
Friday
Emily Coles updated their profile
Friday
ShannonL replied to Emily Coles's discussion 'Help the Behavioral Diabetes Institute' in the group Type 3 Diabetes
"This seems like such a good idea yet I do not see any responses. So, I will go first. My boyfriend does not regulate his blood sugars the way he needs to. I am scared for him as i know the long term effects will be devastating on his body. He seems…"
Friday
Judith in Portland commented on Emily Coles's event 'Live Interview with TuDiabetes member Melissa: peer to peer fundraising!'
"Melissa's a star. Should be a great interview!....She raises money with whimsy and playfulness and a love of life that is contagious. I have every confidence that she will inspire others to do the same....."
Friday
Judith in Portland is attending Emily Coles's event
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Live Interview with TuDiabetes member Melissa: peer to peer fundraising! at TuDiabetes homepage

September 18, 2014 from 1pm to 2pm
1pm PT  (3pm CT, 4pm ET, 9pm GMT)What time is this where you are?How to watch this live eventMelissa Lee (MelissaBL on TuDiabetes) is a long-time member and supporter of TuDiabetes. Melissa was diagnosed with type 1 diabetes at the age of 10, DKA and…See More
Friday
Profile IconNancyT1D1969 and acidrock23 joined Emily Coles's group
Thumbnail

TuDiabetes Beta-Tester Team

This group is for people who are interested in trying out new diabetes-related smart phone and web-based applications that are in development, and giving feedback to help the developers make them as useful to people with diabetes as possible.  It's a great chance to to let the folks who are working to improve life with diabetes know exactly what we want and need.See More
Friday
Emily Coles updated an event
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2014 Weekend for Women - Los Angeles at EMBASSY SUITES LAX NORTH

October 24, 2014 to October 25, 2014
DiabetesSisters' Weekend for Women Conference is the destination for the diabetes community's greatest voices, hearts and minds. Past speakers include many well-known advocates from the diabetes community and leading experts such as Laura Young, MD, PhD,  Riva Greenberg, Kelly Close, Rhonda Merwin, PhD, Kerri Sparling, Claudia Graham, MPH, PhD, and Janis Roszler, MSFT, RD, CDE.The goal of the event is to…See More
Thursday
An event by Emily Coles was featured
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TCOYD Conference and Health Fair in Des Moines, IA at Iowa Events Center

September 27, 2014 all day
Many are asking the same question: “Does anyone understand what it’s like to live with diabetes?” Taking Control of Your Diabetes (TCOYD) is a 501(c)3 not-for-profit organization that has been educating and motivating diabetes communities in cities around the country since 1995, and they understand. TCOYD will be hosting its 153rd an all-star cast of diabetes experts for a day that will ignite motivation, offer hope and change the life of…See More
Thursday
Emily Coles posted an event
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TCOYD Conference and Health Fair in Des Moines, IA at Iowa Events Center

September 27, 2014 all day
Many are asking the same question: “Does anyone understand what it’s like to live with diabetes?” Taking Control of Your Diabetes (TCOYD) is a 501(c)3 not-for-profit organization that has been educating and motivating diabetes communities in cities around the country since 1995, and they understand. TCOYD will be hosting its 153rd an all-star cast of diabetes experts for a day that will ignite motivation, offer hope and change the life of…See More
Thursday
Profile Iconamira nanai, Judy, Phmarb and 8 other members are attending Emily Coles's event
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Live interview with Zoe Heineman: Hypoglycemia Awareness Month at TuDiabetes homepage

September 11, 2014 from 12pm to 12:30pm
12-12:30pm PT (3-3:30pm ET, 8-8:30pm GMT)What time is this where you are?How to watch this live event NEW YORK, NY, (September 5, 2014) – “Hypoglycemia Awareness,” also known as “Ha!” launches an initiative this month to raise public awareness of severe…See More
Thursday
NancyT1D1969 liked Emily Coles's group TuDiabetes Beta-Tester Team
Thursday
catwoman29 replied to Emily Coles's discussion 'Goal Tracker App' in the group TuDiabetes Beta-Tester Team
"I love it! It even reminds you to check in. The one thing I don't like is you cannot view all of you goals at once. It seems that it would be more expedient to have them all on one page. Otherwise, I think it's great, and I use it everyday."
Thursday

Profile Information

The PRIMARY person in my life who has diabetes is
me
The PRIMARY person in my life who has diabetes has
Type 1 or type 1.5 (LADA) diabetes
How do you hope to benefit from TuDiabetes?
Community, information, friends with experiences similar to some of mine.
Date diagnosed
March 15, 1978
Most recent HbA1C %, date of result (optional)
7.1, June 2014
Type of treatment/devices you use
Pump, CGM, Diet and Exercise
What pump model do you use, if any?
Animas Ping

Emily Coles's Photos

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Emily Coles's Blog

Queens and Kings of Carb Counting Share Their Secrets

Posted on July 28, 2014 at 4:00pm 1 Comment

From the Integrated Diabetes services Blog

The results are in. Apparently, there is universal interest in the topic, because we received hundreds of entries in our carb counting contest from people as far away as Eastern Europe and Australia. We all think we’re “experts” after years of label reading and WAG counting, but our three winners really showed their expertise and scored high…

Continue

I just need a witness

Posted on May 9, 2014 at 1:30pm 13 Comments

I awoke at 7am this morning with a BG of 433.  Did a pretty conservative injection.  Awoke at 9am with a BG of 25.

I'm fine, physically and emotionally.  I just needed to share that with some folks who understand what kind of start to the day that is.

Thanks and big hugs, y'all

THANK YOU, from the team at Diabetes Hands Foundation

Posted on December 30, 2013 at 11:15am 3 Comments

thankssmall

As the year comes to a close, and our families come together for a merry good time near the warmth of the fire, our attention turns to those who have made our progress possible. In the spirit of the holidays and sending virtual hugs, we want to say sincerely, thank you.

Thank you for supporting the work we do.

Thank you for participating.

Thank you for showing up when it counts.

Thank you for sharing our mission.

Thank you for being open…

Continue

Thanksgiving: A few tips for PWD

Posted on November 21, 2013 at 5:00pm 0 Comments

By guest writer Jonathan Jarashow, Publisher of Walgreens Diabetes & You magazine

(Jonathan@hcrimson.com)

 

During my two decades as the publisher of Walgreens Diabetes & You and walgreensdiabetes.com, I published a large collection of articles about the holidays. With Thanksgiving right around the corner, I thought it would be a…

Continue

Emily Coles's Videos

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Comment Wall (323 comments)

You need to be a member of Diabetes community by Diabetes Hands Foundation: TuDiabetes to add comments!

Join Diabetes community by Diabetes Hands Foundation: TuDiabetes

At 10:22am on August 26, 2014, Josh said…

nope, maybe 5 guys tomorrow, debating on going down to Mcdonald to Honor Pup

At 12:41pm on July 21, 2014, Berniedettie said…

This sparkling rose is just awesome

At 6:30pm on July 19, 2014, lotsofshots said…
At 5:01am on June 27, 2014, rick the "Blogabetic" said…

Emily: thank you so much for the chat yesterday with Chris and Lorraine Stiehl, it was fantastic. Thank you for what you do for our community.

rick

At 10:46am on June 25, 2014, Judith in Portland said…

You did it!!!!!. Thanks, sweetie. Ooodles. Gotta run now, but look forward to hearing just HOW!.....xx000

At 8:01am on June 24, 2014, catlover said…
Hi Emily-Unfortunately, due to other medical problems, other than D, I am unable to continue on the care team. I am also moving in early August to a new home and am quite busy with that. I will show up on TuD whenever I can and welcome new members to this special site. It has been very rewarding being on the care team. Catlover
At 4:00pm on June 23, 2014, Jim Roach said…

Hi Emily, count me in for continued support on the Care Team. Thanks Jim

At 8:12pm on June 18, 2014, grahamo said…

I'll be a frind to anyone who supports Life for a Child like you do, and anyone who likes my socks - smile.
Good to meet you and the team, see you in Boston next year!

At 4:47pm on June 8, 2014, wendy said…

Emily,think we could have Mary back one day soon ? :)

At 2:52pm on June 7, 2014, eulalio rocha said…

I'm insulin dependent type 2 diabetic.at bed time i take 12-units of lantus glargine at bed time, during the course of the day.am-2-units,lunch time 4-units, dinner time 4-units.before breakfast readings ( 85-110 )about one and half later I take a walk for half hour.and my blood pressure runs under 140 over 60-55.seems good how do I GET OFF OF IN SULIN? DIBETIC 2 SINCE 1993

 
 
 

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REsources

From the Diabetes Hands Foundation blog...

DHFs Newest Board Member: Andreas Stuhr

  We are pleased to announce our newest board member Dr. Andreas Stuhr, Senior Medical director in Medical Diabetes for Sanofi North America. Dr. Stuhr has a phenomenal background in diabetes care including a medical focus in pediatric endocrinology and Read on! →

Diabetes Among Hispanics: We’re not all the same

US Hispanics are often portrayed in the press as a single, monolithic group. But anyone who has spent any time in San Francisco’s Mission District or the Bronx can tell you, we’re not all the same. Now we’re finding out Read on! →

Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


DHF VOLUNTEERS


Lead Administrator

Bradford (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

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