Emily Coles
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  • San Francisco, CA
  • United States
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Emily Coles's Discussions

Smash Diabetes!

Started this discussion. Last reply by Manny Hernandez on Thursday. 2 Replies

There's a creative new awareness- and fund-raising campaign just begun by MyGlu.org, called "Smash…Continue

Tags: frustration, T1, frustrated, Smashing Diabetes, MyGlu

Tell the FDA What's Important When it Comes to Living with Diabetes

Started this discussion. Last reply by Emily Coles 32 minutes ago. 23 Replies

On November 3, the FDA will host an unprecedented…Continue

Tags: diaTRIBE, FDA

Humana project: fifth and final question!

Started this discussion. Last reply by Pastelpainter yesterday. 7 Replies

Humana provides health insurance to nearly 1 million people with type 2 diabetes. In an effort to better understand and support these Humana…Continue

Tags: type 2, T2, Humana

Changes to the TuDiabetes Administrative Volunteer Team

Started this discussion. Last reply by Christopher on Friday. 4 Replies

Today is a day of big change on the TuDiabetes Volunteer Admin Team. First, our own, dear …Continue

Tags: BSC, volunteer, Dan P, Bradford, lead admin

 

Emily Coles

DHF Head of Communities

Hi TuDiabetes community. I'm the Diabetes Hands Foundation Head of Communities, and here's a bit about me:

I'm originally from Pennsylvania, but have lived in San Francisco since 1996, and consider it home now.

I was diagnosed with type I diabetes in 1978, when there was no structured way for people with diabetes to connect. My parents tracked down another family with a diabetic child my age, and every few months we would drive 2 hours to visit them so that I could have a "peer". And do you know what? I did not like that kid AT ALL. But she was my entire diabetic peer group up until I went to college, so there we were.

Look how different it is to have diabetes now! Bye-bye, rotten kid. Now I've got thousands of potential diabetic friends to share with, all right here.

In college I studied biology and considered going into medicine, but opted for "life experience" before making such a commitment. In 1996 I moved to San Francisco and made my way into public health, by way of much volunteering and networking. At the time there was strong focus on HIV/AIDS-related work in SF, and I became a research assistant in the SF AIDS Office within the Public Health Department. Soon thereafter I decided to go back to school for epidemiology in order to progress into a career studying infectious disease, which I did in 2000, at Stanford University.

Epidemiology turned out not to be quite the right fit for me. I got the degree, but the actual work was too solitary. Lots of numerical data, not much human interaction.

... So of course the logical next step was to become a ballroom dance teacher. ALL human interaction! I worked for a dance studio from 2005 to 2008, and then for myself from 2008 to the present. I love it, and I still teach, perform and compete in ballroom dance to this day.

All through this story I still had diabetes, of course, and it has always been a main theme in my life, even as I've tried to focus my attention elsewhere. In 2010 I decided to go ahead and DO something with it. That decision eventually led me to Diabetes Hands Foundation, and I could not be more thrilled that it did! My position here combines perfectly my passion for public health and advocacy, my love of personal human contact, and my long- and hard-earned knowledge of diabetes.

Latest Activity

Emily Coles replied to Emily Coles's discussion 'Tell the FDA What's Important When it Comes to Living with Diabetes'
"Anna says: "
32 minutes ago
Linda G might attend Emily Coles's event
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Master Chat: Benefits of Exercise and Risks of Avoiding it at TuDiabetes homepage

October 22, 2014 from 3:30pm to 4pm
3:30-4pm PT (5:30-6pm CT, 6:30-7pm ET)What time is this where you are?How to watch this live eventChris Anderson presents the Benefits of Exercise and Risks of Avoiding itChris is a volunteer RN and diabetes educator at a faith based, non-profit primary healthcare center for uninsured individuals in Alabama, which is staffed…See More
6 hours ago
Profile IconToeKnee, Olivia, Lisa Mearing and DS might attend Emily Coles's event
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Live interview with Michael Stevens, "Breaking Down Diabetes" at TuDiabetes homepage

October 21, 2014 from 1pm to 2pm
1pm PT (3pm CT, 4pm ET, 9pm GMT)What time is this where you are?How to watch this live eventWhen Michael Stevens speaks, the Internet listens. Why? That is the very question that transformed Michael’s passion for science and questioning everyday things into an online phenomenon amassing more than 7.7 million subscribers on…See More
7 hours ago
Profile IconNONI, Linda G, MyTime56 and 6 other members are attending Emily Coles's event
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Live interview with Michael Stevens, "Breaking Down Diabetes" at TuDiabetes homepage

October 21, 2014 from 1pm to 2pm
1pm PT (3pm CT, 4pm ET, 9pm GMT)What time is this where you are?How to watch this live eventWhen Michael Stevens speaks, the Internet listens. Why? That is the very question that transformed Michael’s passion for science and questioning everyday things into an online phenomenon amassing more than 7.7 million subscribers on…See More
10 hours ago
Emily Coles posted a status
"I just did my FIRST www.bigbluetest.org of 2014!!!"
19 hours ago
Profile IconChar and StephenS are attending Emily Coles's event
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Big Blue Test kick-off party with DHF staff! at TuDiabetes homepage

October 20, 2014 from 1pm to 2pm
1pm PT (4pm ET, 9pm GMT)What time is this where you are?How to watch this live eventToday is the first day of the Big Blue Test 2014!!!Join the staff of Diabetes Hands Foundation - Manny, Mike, Corinna, Emily and Desiree - to learn about this important annual tradition and…See More
21 hours ago
Emily Coles updated an event
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Live interview with Michael Stevens, "Breaking Down Diabetes" at TuDiabetes homepage

October 21, 2014 from 1am to 2am
1pm PT (3pm CT, 4pm ET, 9pm GMT)What time is this where you are?How to watch this live eventWhen Michael Stevens speaks, the Internet listens. Why? That is the very question that transformed Michael’s passion for science and questioning everyday things into an online phenomenon amassing more than 7.7 million subscribers on…See More
22 hours ago
bkind replied to Emily Coles's discussion 'Tell the FDA What's Important When it Comes to Living with Diabetes'
"Please and I can not express enough other than a cure please gov't and all insurances please declare CGM's medically necessary and cover them not only for adults but for our children this helps with better control & A1c's &…"
23 hours ago
Pastelpainter replied to Emily Coles's discussion 'Humana project: fifth and final question!'
"I can't better on what has already been said. My main tip is to test to see what foods you can or can't eat, we are all different. Don't accept advice from a health care professional as cast in stone, if you aren't on insulin you…"
yesterday
Corinna replied to Emily Coles's discussion 'Humana project: fifth and final question!'
"Understand that your life has changed and that you must change your daily habits. The choices you make will affect your quality of life. While you can influence your health outcomes, you cannot control them."
yesterday
Corinna replied to Emily Coles's discussion 'Humana project: fourth question!'
"1. Find and use a tracking app. In my case I use OnTrack for Android. 2. Be kind of obsessive about using the tracking app. 2. Make changes based on what the data in the tracking app shows."
yesterday
Brian (bsc) replied to Emily Coles's discussion 'Tell the FDA What's Important When it Comes to Living with Diabetes'
"I think we have already seen the FDA start to listen to patients. In April the heard directly from Kelly Close and Adam Brown of diaTribe as well as our own Manny Hernandez on Afrezza. And then there has been real progress on glucose monitoring and…"
yesterday
Judith in Portland replied to Emily Coles's discussion 'Tell the FDA What's Important When it Comes to Living with Diabetes'
"Muragaki---I did try to put it into a few sentences in that comment box at the end. Something about mis-information about how many carbs we can safely eat everyday. And I there was one page where I could list arthritis and fibromyalgia as…"
yesterday
Don replied to Emily Coles's discussion 'Tell the FDA What's Important When it Comes to Living with Diabetes'
"Transparency would be great. I am guessing and placing most of the blame on the FDA but you're right, who knows? I see that pump products change only incrementally from their original designs and I can only guess that the FDA process…"
Sunday
Muragaki replied to Emily Coles's discussion 'Tell the FDA What's Important When it Comes to Living with Diabetes'
"Judith, I am wondering whether it might be worth your time (and anyone else who feels it useful) to pen your relevant concerns under separate cover to FDA, also stating that the survey didn't quite cover your concerns."
Sunday
Muragaki replied to Emily Coles's discussion 'Tell the FDA What's Important When it Comes to Living with Diabetes'
"Thanks, Emily, for making this available. While I applaud the FDA for taking on the community's responses, the more meaningful gesture will be knowing the outcome of their considerations. Will there be some way for us to track FDA's…"
Sunday

Profile Information

The PRIMARY person in my life who has diabetes is
me
The PRIMARY person in my life who has diabetes has
Type 1 or type 1.5 (LADA) diabetes
How do you hope to benefit from TuDiabetes?
Community, information, friends with experiences similar to some of mine.
Date diagnosed
March 15, 1978
Most recent HbA1C %, date of result (optional)
7.1, June 2014
Type of treatment/devices you use
Pump, CGM, Diet and Exercise
What pump model do you use, if any?
Animas Ping

Emily Coles's Photos

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Emily Coles's Blog

Queens and Kings of Carb Counting Share Their Secrets

Posted on July 28, 2014 at 4:00pm 1 Comment

From the Integrated Diabetes services Blog

The results are in. Apparently, there is universal interest in the topic, because we received hundreds of entries in our carb counting contest from people as far away as Eastern Europe and Australia. We all think we’re “experts” after years of label reading and WAG counting, but our three winners really showed their expertise and scored high…

Continue

I just need a witness

Posted on May 9, 2014 at 1:30pm 13 Comments

I awoke at 7am this morning with a BG of 433.  Did a pretty conservative injection.  Awoke at 9am with a BG of 25.

I'm fine, physically and emotionally.  I just needed to share that with some folks who understand what kind of start to the day that is.

Thanks and big hugs, y'all

THANK YOU, from the team at Diabetes Hands Foundation

Posted on December 30, 2013 at 11:15am 3 Comments

thankssmall

As the year comes to a close, and our families come together for a merry good time near the warmth of the fire, our attention turns to those who have made our progress possible. In the spirit of the holidays and sending virtual hugs, we want to say sincerely, thank you.

Thank you for supporting the work we do.

Thank you for participating.

Thank you for showing up when it counts.

Thank you for sharing our mission.

Thank you for being open…

Continue

Thanksgiving: A few tips for PWD

Posted on November 21, 2013 at 5:00pm 0 Comments

By guest writer Jonathan Jarashow, Publisher of Walgreens Diabetes & You magazine

(Jonathan@hcrimson.com)

 

During my two decades as the publisher of Walgreens Diabetes & You and walgreensdiabetes.com, I published a large collection of articles about the holidays. With Thanksgiving right around the corner, I thought it would be a…

Continue

Emily Coles's Videos

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Comment Wall (325 comments)

You need to be a member of Diabetes community by Diabetes Hands Foundation: TuDiabetes to add comments!

Join Diabetes community by Diabetes Hands Foundation: TuDiabetes

At 6:19pm on October 17, 2014, Mike Ratrie said…

Wow, I am honored that you have asked to be my friend!

Cheers!

At 8:09pm on October 16, 2014, meee said…

Hi Emily, Thanks for your friendship! :-)

At 10:22am on August 26, 2014, J-Andrew said…

nope, maybe 5 guys tomorrow, debating on going down to Mcdonald to Honor Pup

At 12:41pm on July 21, 2014, Berniedettie said…

This sparkling rose is just awesome

At 6:30pm on July 19, 2014, lotsofshots said…
At 5:01am on June 27, 2014, rick the "Blogabetic" said…

Emily: thank you so much for the chat yesterday with Chris and Lorraine Stiehl, it was fantastic. Thank you for what you do for our community.

rick

At 10:46am on June 25, 2014, Judith in Portland said…

You did it!!!!!. Thanks, sweetie. Ooodles. Gotta run now, but look forward to hearing just HOW!.....xx000

At 8:01am on June 24, 2014, catlover said…
Hi Emily-Unfortunately, due to other medical problems, other than D, I am unable to continue on the care team. I am also moving in early August to a new home and am quite busy with that. I will show up on TuD whenever I can and welcome new members to this special site. It has been very rewarding being on the care team. Catlover
At 4:00pm on June 23, 2014, Jim Roach said…

Hi Emily, count me in for continued support on the Care Team. Thanks Jim

At 8:12pm on June 18, 2014, grahamo said…

I'll be a frind to anyone who supports Life for a Child like you do, and anyone who likes my socks - smile.
Good to meet you and the team, see you in Boston next year!

 
 
 

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REsources

From the Diabetes Hands Foundation blog...

Meet The 2014 Big Blue Test Grant Recipients

  This year Diabetes Hands Foundation has pledged US$35,000 in Big Blue Test grants, continuing its support for programs aimed at providing lifesaving supplies, medical tests, treatment, and patient education to people living in need who have or at risk Read on! →

Kim Vlasnik: The Patient Voice

  Kim Vlasnik, you NAILED it! In this video, Kim Vlasnik takes our breath away as she describes what its like to be a person with diabetes. Fortunately, Stanford’s Medicine-X Conference gives ePatients, like Kim, a chance to speak since we carry the Read on! →

Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator

Brian (bsc) (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)

 

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