Fred Goldberg's Page

Latest Activity

Fred Goldberg replied to LiL MaMa's discussion 'IMPORTANT! Update to my previous post about insulin pumps and flying'
"Thank you! I've been wearing a pump for more than 8 years and didn't know about this! I take about 30 units/day and travel by plane several times a year. Wearing my CGMS I thought my lows on planes was a CGMS problem in flight (and high…"
Sep 19
Fred Goldberg is attending Emily Coles's event
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Live Interview with Doug Baum, making better glucagon with Xeris Pharmaceuticals at TuDiabetes homepage

September 24, 2014 from 1pm to 1:30pm
This event already occurred.  Enjoy the recording! Check out what Xeris Pharmaceuticals is working on!  And their…See More
Sep 19
Fred Goldberg is attending Emily Coles's event
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Live interview with Dr. Korey Hood: "Diabetes and Sex, for Men" at TuDiabetes homepage

October 7, 2014 from 1pm to 2pm
1-2pm PT (4-5pm ET, 9-10pm GMT)What time is this where you are?How to watch this live event Korey K. Hood, PhD works closely with people with diabetes in clinical, research, and advocacy settings. For this particular discussion entitled “Diabetes and Sex, for Men,” it helps that Dr. Hood is a guy and happens to have type 1…See More
Sep 19
Fred Goldberg is attending Emily Coles's event
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Live interview with Zoe Heineman: Hypoglycemia Awareness Month at TuDiabetes homepage

September 19, 2014 from 12pm to 12:30pm
This event already occurred.  Enjoy the recording! NEW YORK, NY, (September 5, 2014) – “Hypoglycemia Awareness,” also known as “Ha!” launches an initiative this month to raise public awareness of severe hypoglycemia, an ongoing risk for people with diabetes. In order to mitigate the safety risk of severe…See More
Sep 18
Fred Goldberg liked Emily Coles's event Live interview with Zoe Heineman: Hypoglycemia Awareness Month
Sep 18
dishers replied to Fred Goldberg's discussion 'Dexcom G4 w Animas Vibe Pump Impressions?' in the group Dexcom Users
"Transmitter costs $800 and receiver $700 Canadian. So far medically I don't believe for me ther is non diabetic but controlled absolutely but not want to assume I'm not and forget the seriousness that could cause me.i am not sure how not…"
Jul 2
Bob Martin replied to Fred Goldberg's discussion 'Dexcom G4 w Animas Vibe Pump Impressions?' in the group Dexcom Users
"dishers, if you have the success that I have had using the Dexcom G4 you will be one happy non-diabetic. I have been using my G4 for about 18 months and my A1C's in the normal range 5.2 to 5.6. My now have total control of my diabetes. I, like…"
Jul 2
Fred Goldberg joined Manny Hernandez's group
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Animas Insulin Pump Users

For users of any model of Animas insulin pumps.Please note: the exchange, sale or giveaway of items between members that require a prescription from a licensed practitioner, including insulin pumps and pump supplies, is not allowed on TuDiabetes.We encourage you to donate supplies to non-profits such as the Charles Ray III Diabetes Association and Insulin for Life, which…See More
Apr 27

Profile Information

How do you hope to benefit from TuDiabetes?
Hearing different ideas/comments from community with same condition: Diabetes
Most recent HbA1C %, date of result (optional)
6.1
Type of treatment/devices you use
Pump, Diet and Exercise
What pump model do you use, if any?
Medtrpnic 522 w CGM
Enter your website, if any (blog, Facebook, Twitter)
http://none

My Diabetes Story

First, I've been on a pump and combined CGM for 3 years and 3 months now. I use the CGM all the time, except when I have to replace the sensor and recharge the battery. I've been a type 1 since age 13, so that's a long time. Now if you have time here's the rest.

As a child I screamed whenever I got a yearly flew shot. At age 13 I decided I wanted to lose weight to be more attractive to girls. I found out dieting was easy to just eat slightly less, and I started losing a lot of weight. Well that losing weight was accompanied with excessive thirst and urination, and when I finally went to the doctor’s office he ran a urine test and said I was a diabetic and needed to go to the hospital. He also said I would need to take insulin shots by myself before they would let me out of the hospital. I asked what would happen if I didn’t take the insulin shots and the doctor replied, “Well I’d probably live for a couple of weeks.” I definitely wanted to live longer than that, so I started taking daily insulin shots.

It was many years of my diabetic specialist endocrinologists saying I needed better control before I took a shot before lunch. I had already started taking a shot with dinner, and mixing two different insulins in my morning shot. Eventually before starting on an Insulin Pump I was also on another set of injections to slow the absorption of food into my system before each of the 3 mail meals in the day, along with a separate shot using an insulin pen of quick acting insulin, plus 2 doses of long acting insulin (morning and night) for a total of 8 shots per day. Not to mention blood testing, I was feeling like I was full of pin pricks.

I have been taken by ambulance to a hospital 3 times for losing consciousness due to low blood sugar. (Before I was on a pump and CGMS.) Not a fun or cheap experience. I was on the first trials for home blood glucose testing many years ago, and have used home blood glucose testing since then. I did not want to start an insulin pump until there was some kind of closed loop testing of blood sugar, because with pumps you need to test blood sugar more often than with shots. I had gone from the original 1 shot per day to 8 shots per day, just before going on an insulin pump. My doctor suggested going on the pump and Continuous Glucose Monitor System (CGMS) as soon as it came out to the public in June 2006. I did, but was told only the pump would be covered by my insurance. Fine, I spent $1,500 of my own money for the CGMS, but the really expensive part over time is replacing the disposable sensors at $35 each. My sensors are supposed to last for 3 days, but I found out they can be used for 6-7 days. So that’s a minimum of $5/day instead of $11.66/day as the manufacturer sells them. I have had to spend many hours fighting, and writing many letters with different insurance companies trying to get them to pay for my CGMS sensors. This is even after I was told as a new employee that, “Yes we pay for CGMS sensors” because they didn’t say that only sometimes do they pay. A doctor’s letter and payment receipts are not enough. I also had to send copies of research proving CGMS provides better care for Type 1 diabetics than only using blood glucose testing. Even after getting approval, I had to fight for full payment of my sensor claims. Each time I switch insurance carriers due to a new job, I have to start that fight again. I’m about to start that process again, and hoping it’s easier now that there is so much research showing the benefits of CGMS.

Comment Wall (5 comments)

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At 9:10am on October 20, 2013, Carol said…

Thanks for contacting me re using Patterns, the same as I do, on the MM site. As I talked about in my answer to Don's posting, I was frustrated with my health care people not liking the use of Patterns it seemed, because they could not see them in their readout. I will make note to ask if they use the "Professional". They did ask why I did not use the Contour Meter, which comes free with the new pump. The results from it are downloaded on the same graph. So maybe that's part of their/my problem. I use the One Touch and especially like the new Verio Meter. I did try the Contour but didn't like it as well for a couple of reasons. One being size. So if you use a Contour Meter they love you! Where I go is part of a large hospital, and is a Diabetes Education Centre, so I wonder if all the nurses/dieticians are trained to do things a certain way, and so many of them, that their flexibility is therefore loss....I might be a number, rather then a individual, kind of idea. If I get the same nurse next time I might tell her all diabetics are not the same, ha, ha. Anyway, thanks for "friending" me. I was glad to hear you seem to be handling diabetes the same as I do. Different Patterns for what is happening on a given day, really works well for me, rather than bothering with T.B.'s a lot. I do use them too, but on more of a ...sudden situation has arisen, kind of way. I'm in the city where Best & Banting worked on insulin at the University of Western Ontario. Banting had an office here which they made into a museum. The Queen Mother lit a torch which is suppose to stay lit until a discovery is found...and it has been flickering constantly for quite a few years now!

At 6:52pm on March 13, 2012, shoshana27 said…

i've had diabetes 75 years...do you feel better now?
i just joined this group.all the groups are great.i learn something from each.

At 3:23pm on February 8, 2008, Allie Beatty said…
Hey Fred -- thanks for your kind words. Every time I meet somebody who spends **any** time listening to me rant ;) it makes every word worthwhile! Thank you so much for the support!
At 11:30am on January 11, 2008, Manny Hernandez said…
Welcome to the TuDiabetes family, Fred.

When you can, please consider adding a photo to your profile page.
At 6:30pm on January 10, 2008, Allie Beatty said…
Hey Fred, Welcoe to TuDiabetes!! It looks like with the pump and CGM you've got the whole "kit and caboodle" in diabetes management ;) How long have you been diabetic?
 
 
 

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