Fred Goldberg's Page

Latest Activity

Fred Goldberg replied to Stuart's discussion '50y.o. (almost) now what ...' in the group Type1 for 30 Plus Years
"@Jane Dullius, I just read your reply, you communicate very well! There are several types of pumps you might find you like. The Omnipod attaches to your body directly, and the Amimas Ping has a remote control blood test meter, so you can hide the…"
Dec 10
Fred Goldberg replied to Ms Ashua's discussion 'Blood sugar "stuck" despite comping with insulin' in the group Type1 for 30 Plus Years
"Yes I was thinking about that too. But since the morning correction worked without an extra %, the problem might be time related. I know I have different basal rates depending on time of day, and some people even have different correction factors…"
Dec 10
Fred Goldberg commented on Desiree's event 'Live Interview with Dr. Christopher Jacobs, Ph.D., EE Creator of the painless lancing device, Genteel'
"First time I've heard about this device, interested even though I usually don't get pain with my Accu-Check Multiclix. But I only use my fingertips so I get most recent readings, and have some hardening/callusing forming after 40+ years,…"
Dec 8
Fred Goldberg is attending Desiree's event
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Live Interview with Dr. Christopher Jacobs, Ph.D., EE Creator of the painless lancing device, Genteel at Tu Diabetes Home Page

December 11, 2014 from 10am to 11am
This event already occurred.  Enjoy the recording! Christopher Jacobs holds a PhD in Bio-medical Engineering, pioneering early work in cardiac pacemakers, renal dialysis,…See More
Dec 8
Fred Goldberg joined kassie's group
Dec 7
Fred Goldberg joined Robert Yancey's group
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Type1 for 30 Plus Years

For those who've had Type 1 diabetes for a long time. I don't really care how long. Just long.
Dec 7
Fred Goldberg updated their profile
Dec 7
Fred Goldberg replied to Earl's discussion 'Vibe' in the group Animas Insulin Pump Users
"I used Medtronic pump and CGM for >8 years, switched to Dexcom and Animas Ping in November. Since I'm a guy, the pump remote is interesting, but too slow for me punching in carb amounts to be helpful. I did look up some exchange info with…"
Dec 7

Profile Information

The PRIMARY person in my life who has diabetes is
me
The PRIMARY person in my life who has diabetes has
Type 1 or type 1.5 (LADA) diabetes
How do you hope to benefit from TuDiabetes?
Hearing different ideas/comments from community with same condition: Diabetes
Date diagnosed
May 15, 1970
Most recent HbA1C %, date of result (optional)
6.5
Type of treatment/devices you use
Pump, CGM, Diet and Exercise
What pump model do you use, if any?
Animas Ping->Vibe 1/2015 w Dexom
Enter your website, if any (blog, Facebook, Twitter)
http://www.about.me/fredgoldberg

My Diabetes Story

First, I've been on a pump and combined CGM for more than 8 years now, and a member here more than 5 years. I use the CGM all the time, except when I have to replace the sensor every week. I've been a type 1 since age 13, so that's a long time. Now if you have time here's the rest.

As a child I screamed whenever I got a yearly flew shot. At age 13 I decided I wanted to lose weight to be more attractive to girls. I found out dieting was easy to just eat slightly less, and I started losing a lot of weight. Well that losing weight was accompanied with excessive thirst and urination, and when I finally went to the doctor’s office he ran a urine test and said I was a diabetic and needed to go to the hospital. He also said I would need to take insulin shots by myself before they would let me out of the hospital. I asked what would happen if I didn’t take the insulin shots and the doctor replied, “Well I’d probably live for a couple of weeks.” I definitely wanted to live longer than that, so I started taking daily insulin shots.

It was many years of my diabetic specialist endocrinologists saying I needed better control before I took a shot before lunch. I had already started taking a shot with dinner, and mixing two different insulins in my morning shot. Eventually before starting on an Insulin Pump I was also on another set of injections to slow the absorption of food into my system before each of the 3 mail meals in the day, along with a separate shot using an insulin pen of quick acting insulin, plus 2 doses of long acting insulin (morning and night) for a total of 8 shots per day. Not to mention blood testing, I was feeling like I was full of pin pricks.

I have been taken by ambulance to a hospital 3 times for losing consciousness due to low blood sugar. (Before I was on a pump and CGMS.) Not a fun or cheap experience. I was on the first trials for home blood glucose testing many years ago, and have used home blood glucose testing since then. I did not want to start an insulin pump until there was some kind of closed loop testing of blood sugar, because with pumps you need to test blood sugar more often than with shots. I had gone from the original 1 shot per day to 8 shots per day, just before going on an insulin pump. My doctor suggested going on the pump and Continuous Glucose Monitor System (CGMS) as soon as it came out to the public in June 2006. I did, but was told only the pump would be covered by my insurance. Fine, I spent $1,500 of my own money for the CGMS, but the really expensive part over time is replacing the disposable sensors at $35 each. My sensors are supposed to last for 3 days, but I found out they can be used for 6-7 days. So that’s a minimum of $5/day instead of $11.66/day as the manufacturer sells them. I have had to spend many hours fighting, and writing many letters with different insurance companies trying to get them to pay for my CGMS sensors. This is even after I was told as a new employee that, “Yes we pay for CGMS sensors” because they didn’t say that only sometimes do they pay. A doctor’s letter and payment receipts are not enough. I also had to send copies of research proving CGMS provides better care for Type 1 diabetics than only using blood glucose testing. Even after getting approval, I had to fight for full payment of my sensor claims. Each time I switch insurance carriers due to a new job, I have to start that fight again. I’m about to start that process again, and hoping it’s easier now that there is so much research showing the benefits of CGMS.

Comment Wall (5 comments)

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At 9:10am on October 20, 2013, Carol said…

Thanks for contacting me re using Patterns, the same as I do, on the MM site. As I talked about in my answer to Don's posting, I was frustrated with my health care people not liking the use of Patterns it seemed, because they could not see them in their readout. I will make note to ask if they use the "Professional". They did ask why I did not use the Contour Meter, which comes free with the new pump. The results from it are downloaded on the same graph. So maybe that's part of their/my problem. I use the One Touch and especially like the new Verio Meter. I did try the Contour but didn't like it as well for a couple of reasons. One being size. So if you use a Contour Meter they love you! Where I go is part of a large hospital, and is a Diabetes Education Centre, so I wonder if all the nurses/dieticians are trained to do things a certain way, and so many of them, that their flexibility is therefore loss....I might be a number, rather then a individual, kind of idea. If I get the same nurse next time I might tell her all diabetics are not the same, ha, ha. Anyway, thanks for "friending" me. I was glad to hear you seem to be handling diabetes the same as I do. Different Patterns for what is happening on a given day, really works well for me, rather than bothering with T.B.'s a lot. I do use them too, but on more of a ...sudden situation has arisen, kind of way. I'm in the city where Best & Banting worked on insulin at the University of Western Ontario. Banting had an office here which they made into a museum. The Queen Mother lit a torch which is suppose to stay lit until a discovery is found...and it has been flickering constantly for quite a few years now!

At 6:52pm on March 13, 2012, shoshana27 said…

i've had diabetes 75 years...do you feel better now?
i just joined this group.all the groups are great.i learn something from each.

At 3:23pm on February 8, 2008, Allie Beatty said…
Hey Fred -- thanks for your kind words. Every time I meet somebody who spends **any** time listening to me rant ;) it makes every word worthwhile! Thank you so much for the support!
At 11:30am on January 11, 2008, Manny Hernandez said…
Welcome to the TuDiabetes family, Fred.

When you can, please consider adding a photo to your profile page.
At 6:30pm on January 10, 2008, Allie Beatty said…
Hey Fred, Welcoe to TuDiabetes!! It looks like with the pump and CGM you've got the whole "kit and caboodle" in diabetes management ;) How long have you been diabetic?
 
 
 

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