This group is for people out there who were born with or close to born with diabetes and have had it for a long time. I have had it for about 21yrs now and it's very hard to find people and talk to others who are dealing with the same issues I am.See More
For users of any model of the Medtronic Minimed Paradigm insulin pump.Please note: the exchange, sale or giveaway of items between members that require a prescription from a licensed practitioner, including insulin pumps and pump supplies, is not allowed on TuDiabetes.We encourage you to donate supplies to non-profits such as the Charles Ray III Diabetes Association and Insulin…See More
For moms and dads with diabetes. Sharing stories of how to talk to your children about diabetes, what happens when your blood sugar gets low or high? Share stories about how you eat with your kids, how what you eat influences what they eat?
"I may give UW a call. It would be nice to see a Dr. that has diabetes himself. I too enjoy travelling to my appointments. I like to "shop my way home" as well. I will definitely join the NW group. Thanks for your reply!"
"Hi Amy, on a post you asked me who my endo is, so I thought I would drop by and say hello. First of all I go to Dr. Irl Hirsch at the Diabetes Care Center at the Univ. of Washington. He's great, and a T1 himself. If you've read the book…"
"Welcome to tudiabetes, Jaime! Here you will find alot going on as I have for over two years now lots of friends and support.
Please insert a pic of you so as to recognise you in upcoming discussions. Read up on us in the ABOUT US and click on NEW…"
Jul 29, 2009
Jaime is now a member of Diabetes community by Diabetes Hands Foundation: TuDiabetes
HAPPY BIRTHDAY JAIME!! Best Wishes NOW....and for the rest of the year! (You haven't been on in a while...I hope everything is OK) Have a GREAT "ME" DAY :)
-------------------------------------------------------------------------------------------------- Hey, why don't you come join us in the TuD chat room?
You'll see us at the bottom of the home page.
We have a great time getting to know each other, sharing info and lots of laughs :) It's on right now!
I'm glad to hear your appt. went well. It sounds like he's being cautious about any changes in insulin which isn't a bad thing. If it costs a lot more even with insurance that is certainly a consideration. My Novolog is expensive enough right now with insurance! *sigh* I still haven't tried the bottle of Apidra I got but that's more expensive too so I may just stick to the Novolog myself for now!
It must be interesting working with diabetic children and being able to tell them you are diabetic and understand what it's like. So what are you telling your celiac patients in terms of diet? Anything other then to avoid wheat,rye,barley etc. and items cross contaminated with gluten? It's interesting that you think you had it when you were younger though. Have you been tested for it? T1 diabetics often have it or get it as I'm sure you probably know. I just had my DR test me for it along with all my other tests so I'm waiting for results any day now! I was tested for it once a couple yrs ago but I want to make sure nothing has changed.
So how did your appt. go with your Endo? What did he/she say about Apidra and Symlin?
Your daughter is still at her cute age! :) I love ages 2-4! I was a preschool teacher before my daughter started elementary school and that was the age group I used to work with..so darn cute!!(most of the time at least!!)
I understand the connection you said you had with your dad. That's like my grandmother and I. We have always been close and her being diabetic as well(T2) made us understand things that others just didn't or couldn't even if they tried. We were and still do look out for each other in that way. She's had a lot of difficulty over the past several years with 3 major surgeries and toe amputations/infections and a scare that they thought they would have to amputate her leg. Luckily the infection got under control to not go that route. But now she has a lot of difficulty getting around,uses a walker to do everything and lives with my mom now. It's hard to see her like that because her and I used to walk everywhere together when I was younger because she never drove a car her entire life. I would visit her on weekends and we just always walked everywhere or took taxis/trains/buses for anywhere too far to walk which was good exercise for us!
I'm sure being a nutritionist is very helpful to you. Did you go into that because of being diabetic? Do you have a lot of diabetic children you work with or children with celiac?
Hi Amy, on a post you asked me who my endo is, so I thought I would drop by and say hello. First of all I go to Dr. Irl Hirsch at the Diabetes Care Center at the Univ. of Washington. He's great, and a T1 himself. If you've read the book Cheating Destiny: Living With Diabetes, that's his brother who wrote it (a good read if you haven't yet). It would be a bit of a drive for you, but not any further than mine....I live on Whidbey Island, so make the trip to Seattle every 3 months or so (shop my way home!). I'm not sure if he's taking new patients or not, but there are several good endos in the practice and lots of helpful staff. I
I see you haven't joined the NW Diabetic group. You should do so, as there are a couple of other people in the Olympia area, and it seems to me there was one fellow out towards the coast in your area. Hope you're staying cool this hot, hot week. We just got back from Lake Chelan last night to find out it had been hotter here than there!
Which insulin are you using in your pump now? I wonder if changing insulins would help you? I currently use Novalog but just got a RX for Apidra to try out after reading about it here and also having my last DR mentioning it to me. No, I have not tried Symlin yet but am very interested in trying it out. That's why I joined the Symlin group here to learn more about it and how people like it. I may ask my DR about it on my next visit in 3 months if I read enough good things about it here ;)! I would hate to take shots again along with the pump but if it helps you lose weight(as I have read) and get better numbers then it may be worth it! So we'll see!
I'm sorry to hear about your dad. That must have been hard to go through especially being diabetic yourself. D's runs in my family too but mostly T2. I do have one daughter and like you I feel lucky to have one healthy child (besides her having celiac now). I really didn't think I would be able to have children and was afraid to try. She was not a planned pregnancy either.But, I made the decision a few yrs ago not to have any more. I just decided the first time was too difficult on me and felt I was getting to an age that I really didn't want to start all over anyway! ;) How old is your child? I'm sure being on the pump while you were pregnant helped you stay in better control then I was. My blood sugars swang high and low constantly and I was trying so hard to control them so I felt frustrated and scared most of my pregnancy.The worst thing that happened is she got too big(9 1/2 lbs!) and I had to have her by planned c-section 2 weeks early. But I was just happy and relieved she was otherwise healthy!
Yes, the pump has been a great thing for me too! I've only been on mine about 3 yrs now..took me forever to be brave enough to try one! How long were you on it before you started noticing scar tissue? I haven't had that problem..at least not yet! I had more problems with multiple injections before the pump. I haven't had any serious D complications myself except for short term memory loss lately and not sure if it's diabetes related or not yet, but I think it probably is.:( I try not to worry about the unknown future but lately the idea of D complications after having this for so long does play heavy on my mind now. I try to stay positive about it but some days its just really hard to do!
If you follow the diabetes online community, you know that #MedicareCoverCGM is a big deal. We have continued to raise awareness on #MedicareCoverCGM because we believe that ALL people living with diabetes should have access to continuous glucose monitors (CGM). With Read on! →
A few years ago, we at Diabetes Hands Foundation reached out to the members on TuDiabetes and asked them to share their perspective of life with diabetes through one of the five senses, as part of an initiative called Read on! →