Jen
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  • Sagola, MI
  • United States
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Need a perspective from someone else in kidney failure.

Started this discussion. Last reply by Judith in Portland Apr 18. 18 Replies

My husbands kidneys have failed. He has been on dyalisis for 2 months. I just need a different perspective, because he is driving me nuts.He has had uncontrolled diabetes since he was 12. He has…Continue

stage three kidney disease

Started this discussion. Last reply by Sam F Jul 13, 2013. 10 Replies

I was just told, half hour ago, I have this. What does it mean? How come I just had a 24 hour urine four months ago, after baby was born, and it was good. How can that be? Finally, can it be…Continue

 

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Judith in Portland replied to Jen's discussion 'Need a perspective from someone else in kidney failure.'
"Love you and yours...What you are dealing with is very complex. Please don't blame yourself. Of course you need to interact. But you really also need to make the effort to explore county/city/federal resources for relief care. I mean it. There…"
Apr 18
Jen replied to Jen's discussion 'Need a perspective from someone else in kidney failure.'
"Just thought I would update. My husband switched back to hemodialysis. The other one just was not working. He seems to have gotten a little beter. He did call into work today though because his blood pressure was 214/108. He called his nurse and she…"
Apr 16
swisschocolate replied to Jen's discussion 'Need a perspective from someone else in kidney failure.'
"Hi, you do have a heartbreaking story. I can only second what the others said, you can not take care of his Diabetes for him, neither of his Kidneys, it is his health and you can only support him. Make sure this does not wear down the kids too…"
Apr 1
Judith in Portland replied to Jen's discussion 'Need a perspective from someone else in kidney failure.'
"Well said, Kathy. I lost my Mom to kidney failure, but she was 89. She had periods of dementia as her kidneys failed and she wasn't even diabetic. So I can imagine the combo of a low and progressive kidney failure would be devastating. My dad…"
Apr 1
Whirlygig replied to Jen's discussion 'Need a perspective from someone else in kidney failure.'
"((Hugs)) I'm sure this is all very hard on you and the children. Make sure you take some time for you and the children to do something, even if it is just a little time at the park or something."
Apr 1
Jen replied to Jen's discussion 'Need a perspective from someone else in kidney failure.'
"Thanks for all the replies. I may not answer back, but I read and consider everyones thoughts. As of right now I am not sure of what is going to happen. He ended up in ER on Sunday. He was sleeping and his sugars went low. He doesn't wake up…"
Apr 1
Bob2 replied to Jen's discussion 'Need a perspective from someone else in kidney failure.'
"Here is the harsh reality of his problems and the outcome, he's going to die period. The way I see it, you may be better off of without him, being a millstone around you and the kids dragging everyone down. He never accepted his diabetes and…"
Mar 30
Whirlygig replied to Jen's discussion 'Need a perspective from someone else in kidney failure.'
"Jen, a lot of it is you feeling guilty. I didn't make my husband's appointments until I had to be the one driving him. When he was still able to get himself places he made them. When I had to do it then it needed to be to my schedule since…"
Mar 30
2hobbit1 replied to Jen's discussion 'Need a perspective from someone else in kidney failure.'
"You can not do this for him. He has to want to do it for himself. You need to start thinking about yourself and your children. If he will beat up the dog any of you may be next. Please get to a safe place. Staying only enables him further. If you…"
Mar 29
Jen replied to Jen's discussion 'Need a perspective from someone else in kidney failure.'
"Thank you for the reply. I will look for that group. I am sorry for your loses. That must have been so hard. I feel that I am not handling this very well. I still feel guilty about not making sure he gets everything done. He has done nothing but…"
Mar 29
Whirlygig replied to Jen's discussion 'Need a perspective from someone else in kidney failure.'
"((Hugs)) it is very hard to be the caretaker of an ill person. I can't remember the name of the board but I found one for spouses of chronically ill people. It is different to take care of a spouse than it is a parent (which is hard and I have…"
Mar 29
Jen and Kathy are now friends
Mar 27
Kathy replied to Jen's discussion 'Need a perspective from someone else in kidney failure.'
"It is hard to belie that he is not on a food plan. But, if his numbers are good, then I guess he doesn't need to be. My center did monthly labs also. I was not allowed to eat foods high in potassium such as citrus, tomatoes or potatoes an also…"
Mar 27
Jen commented on Stela's group 'Diabetics with kidney problems'
"I feel like I am his nurse. I already have six kids to take care of, one who is a type I and my own diabetes. Since all this started all he does is sleep. Well, he goes to work too. About 32 hrs. He sleeps until 12:30-1 and then gets ready for work.…"
Mar 26
Daniel replied to Jen's discussion 'Need a perspective from someone else in kidney failure.'
"Typically the longer a person has had T1 D the less responsive they may be to symptoms of low bg. For example years ago I would notice I was low when my bg's were in the 70's to low 80's range. Now, and after nearly 50 years of D, I…"
Mar 26
Jen replied to Jen's discussion 'Need a perspective from someone else in kidney failure.'
"I am so glad that your kidneys healed! Cancer, diabetes and kidney failure that must have been so hard to deal with! I hope you are doing good with the cancer also? To try to understand him I have asked myself what type of dialysis would I choose if…"
Mar 26

Profile Information

The PRIMARY person in my life who has diabetes is
me
The PRIMARY person in my life who has diabetes has
Type 1 or type 1.5 (LADA) diabetes
How do you hope to benefit from TuDiabetes?
I am hoping for support with my daughters new diagnoses.
Type of treatment/devices you use
Shots
Tell us more about you (optional)
I come from a small town. I have 6 wonderful children. Both my husband and I have diabetes. My oldest daughter has just been diagnosed with type 1.

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What is the type 1.5?

Posted on November 6, 2011 at 3:03pm 1 Comment

Type 1.5 is what the endocrinologist said I have. Every time I tell the doctors in my area what I have they all smile like there is some inside joke. Do all doctors accept this diagnoses? I know I am still making insulin, but not enough. How is that different from type 2? Anyone have a clearer explanation? And has anyone else come across the same attitude with their doctor not acting like it is a proper diagnoses?

Comment Wall (10 comments)

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At 9:14pm on November 25, 2012, Cammie said…

Hi Jen I am Cammie i am 15. I was diagnosed last december almost a year ago. and I saw your post on the christian page about your daughter who is 13 and I know that post was a while ago, but if she still wanted someone to talk to i would love too especially since we are close to the same age. My sister is also diabetic but is almost 18, but anyways let me know!:)

At 7:25pm on August 12, 2012, aliceclones said…
Hi Jen. I was in your shoes two years ago. My middle daughter had been diagnosed 6months prior when my oldest began having erratic blood sugar numbers. Thanks to trial net we were able to get her on insulin with an official diagnosis well before dka became an issue. Our two youngset are still screened every year to check incase they develop auto antibodies. So far they are clear. Our daughters were the first in either family to be diagnosed. My prayers are with you. That time was the most helpless I ever felt.
At 11:25am on January 28, 2012, Jacob's mom said…

Hi Jen, how are you and your girl doing, i havent heard from you in while, I hope all is well, i worry more about you than her! kids are so resilient, let go of the self blame and you can handle it, you are a super mom remember, by setting the can do attitiude she will follow suit, i sound so strong but we had a tough pumping week around here but things are better, the sun is shining and my boy is happy as ussual. hang in there! wishing you the best, amy

At 9:43am on November 7, 2011, Doris D said…
WELCOME TO ONE OF THE BEST DIABETIC FAMILIES ON THE WEB MY FRIEND!!!!!!!!!! GLAD TO HAVE YOU HERE WITH US!!!!!!!!!! If any of us can help please feel free to ask us!!!!
Here's a link to help our new member's get to know us better: http://www.tudiabetes.org/notes
At 6:40pm on November 6, 2011, Donna H said…
Welcome to TuDiabetes! Check out some of the groups - it's a great way to get to know the community.
At 3:52pm on November 6, 2011, brokenpole said…
Welcome to the family! On this forum you will learn so much. Most of all you will learn that you are not alone. Everyone here is supportive and will provide answers to your questions. Search the site for answers. Read the discussions and blogs for information. There are videos to help you understand diabetes and its treatment. Most of all there is family to talk to and even to vent to, if needed. Welcome home.
At 3:30pm on November 6, 2011, Linda G said…
Welcome home Jen. I so hate it when doctors do that....so condescending. It's not just with diabetes. We constantly hear that we should educate ourselves, and when we do, we get the pat on the head. Praise to thee oh omnipotent and omniscient doctor! I, who do not boast of a doctorate, am therefore stupid!
This is a great place to share, to learn, and to grow...all the while meeting new people world wide, and making friends ♥
Take a peek at some the groups when you get a chance. Just go to the top of your page, and click on "Groups".
Once in, you can either peruse the wide array of available groups....or simply type a specific interest in the space provided.
Take in some of the blogs/discussions as well.
-------------------------------------------------------------------------------------------------
Hope you find the support and information you came looking for.
Here is a useful link to get you on your way:
http://www.tudiabetes.org/notes
--------------------------------------------------------------------------------------------------
There are also groups here for parents of children with D., such as....
"Parents of Kids with type 1" and "Kids with Diabetes"
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Take care....and keep in touch!
At 2:20pm on November 6, 2011, catlover said…
Hi Jen- Welcome to TuD. We hope you like it here.
At 1:59pm on November 6, 2011, SEAGATOR said…
Welcome to our wonderful family. We are a very caring and supportive group. Questions? Please feel free to ask us. WELCOME!!!
At 11:30am on November 6, 2011, Marie B said…
hi Jen, welcome! let me know if you have any questions about our community.
 
 
 

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