Jen
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Jen's Discussions

Noela Vallis of the Spinal Cord Society of New Zealand says she can have a cure for T1D in a year

Started this discussion. Last reply by Timothy Nov 9, 2012. 12 Replies

Has anyone read about this? She is working with Drs. Jim Faed and Paul Turner. Their study and trial involves stem cells harvested from the patient's own bone marrow, which is based on the Chicago…Continue

New OmniPod user

Started this discussion. Last reply by Knox's Dad Jun 6, 2012. 6 Replies

My daughter is starting with the OmniPod and I was surprised to learn that the PDM alsways need to be at most 2 feet away from the Pod. Is that true - is this really necessary in real life use?…Continue

Tags: omnipod

 

Jen's Page

Latest Activity

Jen replied to Christopher's discussion 'Got my Freestyle Libre today'
"Hi Holger, Do you know if new customers can order it yet? Thanks! Jen"
Wednesday
Jen replied to Christopher's discussion 'Got my Freestyle Libre today'
"Sounds amazing! Does anyone know if the Libre is available again? I am thinking of coordinating some work travel to Europe to get one, but I can't seem to figure out if Abbott is distributing them again or if everything is still on hold. Thanks."
Wednesday
Jen replied to Mentha_piperita5's discussion 'Do a service to the newly diagnosed: brag'
"I will brag on behalf of my amazing daughter. When she was diagnosed three years ago at age eleven, she was in the middle of a hectic week of middle school, and was nervously practicing her dance for the upcoming Talent Show. Well, her diagnosis…"
Feb 2
Jen replied to Kate's discussion 'Testing Blood Sugar in the Classroom' in the group parents of kids with Type 1
"My daughter tests in the classroom and her endocrinologist was very clear with me that this accommodation has to be on her 504. You do not want to have to rely on getting a "nice" teacher who will allow your son to test. Once it is in the…"
Oct 24, 2014
Jen replied to Dondi's discussion 'New article on Artificial Pancreas Testing' in the group OmniPod Users
Mar 3, 2014
2hobbit1 replied to Jen's discussion 'Low White Blood Cell Count' in the group parents of kids with Type 1
"Hi, Low WBC can indeed be a transient effect of a viral infection. It happens in adults as well as kids of all ages. Be aware that you do not need to have full blown viral symptoms to have viral bone marrow suppression. The bone marrow is where…"
Jan 19, 2014
Jen added a discussion to the group parents of kids with Type 1
Thumbnail

Low White Blood Cell Count

My daughter is 13 and has had T1D for almost 2 years. She had a full blood work up (routine) and her endo called me to tell me that her White Blood Cell Count (WBC) was low. Not scary low, but low enough to be a concern and have her retested in a month. She said it could have been caused by a virus (my daughter has not been sick) or related to her T1D. Of course I have been googling and I have made myself sick with worry. Has anyone else been in a similar situation? Any insight would be hugely…See More
Dec 16, 2013
Jen replied to kaitype1's discussion 'How Many Carbs for a Teen?' in the group parents of kids with Type 1
"My daughter is 12 (5 ft 3 and 80 pounds)and her endo said she should get at least 120 carbs per day for growth/energy, etc. So would a 15 yr old boy need more? I find 120 carbs a day is really not a lot, and she eats between 130 - 150 per day total.…"
Jun 14, 2013
JaneC liked Jen's discussion New, smaller Omnipod arrived!
May 21, 2013
Colin replied to Jen's discussion 'New, smaller Omnipod arrived!' in the group OmniPod Users
"I think the standard is the initial provision is 40 pods then 30 each 3 month; the initial 10 pods being a "buffer" for the occasional failure. After a few years I think I got another 40 to restore that buffer of 10."
May 21, 2013
Emily replied to Jen's discussion 'New, smaller Omnipod arrived!' in the group OmniPod Users
"After reading through the posts to this thread, I totally agree with y'all that Insulet has and is handling the new PDM/Pod rollout terribly. I haven't been up-to-date on the new system's availability recently. Just prior to coming to…"
May 20, 2013
Clare replied to Jen's discussion 'New, smaller Omnipod arrived!' in the group OmniPod Users
"the new pods are awesome, I tried the older pod last year and decided it was just too big and clunky for me so I waited and when the new ones were available I ordered the test pods - actually I contacted my rep and asked for 3 demo pods because I…"
May 16, 2013
Gi replied to Jen's discussion 'New, smaller Omnipod arrived!' in the group OmniPod Users
"You will like it. There are occasional pod failures and occlusions but they will work with you on that. It is nice to be able to wear swimsuits and one piece outfits! I am waiting for the new pdm and pods..cant wait! :0)"
May 16, 2013
Clare replied to Jen's discussion 'New, smaller Omnipod arrived!' in the group OmniPod Users
"Hi Gi, actually as I read the statement of medical necessity that the doctor filled out to get me the pods there are 2 check boxes change every 48 hours is 50 pods/90 days or change every 72 hours is 40 pods /90 days. But if you do the math 30 pods…"
May 16, 2013
Gi replied to Jen's discussion 'New, smaller Omnipod arrived!' in the group OmniPod Users
"Hi Clare...been a type 1 for 40 years and been on a pump for 7. 1 box will last 30 days unless you have a problem with the site. I guess you doc wrote it for 4 months. You will have better control with the pump. :0)"
May 16, 2013
FHS replied to Jen's discussion 'New, smaller Omnipod arrived!' in the group OmniPod Users
"Depending upon your coverage, you can also have extra pods supplied regardless of which box you check. I have a 90 day prescription for 30 pods but since that isn't really enough actually cover 12 months worth of podding due to 31 day months,…"
May 16, 2013

Profile Information

The PRIMARY person in my life who has diabetes has
Type 1 or type 1.5 (LADA) diabetes
How do you hope to benefit from TuDiabetes?
support system
Date diagnosed
March 6, 2012
Type of treatment/devices you use
Pump
What pump model do you use, if any?
omnipod

Comment Wall (6 comments)

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At 10:19am on April 21, 2012, catlover said…

Hi Jen - Welcome to TuD. We hope you like it here.

At 6:00am on April 21, 2012, Marie B said…

hi Jen, welcome to the community. please join our group for parents
http://www.tudiabetes.org/group/parentsofkidswithtype1

At 2:14pm on April 19, 2012, SEAGATOR said…

Welcome to our wonderful family. We are a very caring and supportive group. Questions? Please feel free to ask us. Please read the BLOGS the FORUMS and check out the many GROUPS for much valuable advice and information. WELCOME!!!

At 1:49pm on April 19, 2012, Doris D said…

WELCOME TO OUR LOVING, CARING, AND UNDERSTANDING FAMILY MY FRIEND!!! Great to have you here with us!!!!Please feel free to check out our Forum, Blogs and Groups here!!! If u have any questions please feel free to ask any of us or put it on our forum. To answer any of us back just hit the "comment back "bar under our comments and you will go to our page where you can leave a comment to us and also read abit about us.

Here's a link to help you get to know more about us: http://www.tudiabetes.org/notes

At 1:41pm on April 19, 2012, brokenpole said…

Welcome to the family! On this forum you will learn so much. Most of all you will learn that you are not alone. Everyone here is supportive and will provide answers to your questions. Search the site for answers. Read the discussions and blogs for information. There are videos to help you understand diabetes and its treatment. Most of all there is family to talk to and even to vent to, if needed. Welcome home.

At 1:40pm on April 19, 2012, Linda G said…

Welcome home Jen...
This is a great place to share, to learn, and to grow...all the while meeting new people world wide, and making friends Black heart (cards)
Take a peek at some the groups when you get a chance. Just go to the top of your page, and click on "Groups".
Once in, you can either peruse the wide array of available groups....or simply type a specific interest in the space provided.
Take in some of the blogs/discussions as well.
The resource boxes at the top of the home "Home" page, and
"About us" at the very bottom of your page and every page (the footer), offer you more information still.
-------------------------------------------------------------------------------------------------
Hope you find the support and information you came looking for.
Here is a useful link to get you on your way:
http://www.tudiabetes.org/notes
--------------------------------------------------------------------------------------------------
There are also groups here for parents of children with D., such as....
"Parents of Kids with type 1" and "Kids with Diabetes"
--------------------------------------------------------------------------------------------------
Take care....and keep in touch!

 
 
 

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